Practice-Based Research Networks: Strategic Opportunities to Advance Implementation Research for Health Equity
Open accessAbstract
While the vast majority of people receive their medical care in community primary and specialty care clinics, most clinical research is performed in academic tertiary care hospitals and hospital clinics. Practice-based research networks are most commonly collections of primary care practices that work together to ask and answer health questions for their patients and communities and are an integral part of the translational pathway from discovery to practice to community health. Community primary care practices are at the front line of health equity issues; equity in clinical care, equity in community health, equity in social determinants of health, and equity in health outcomes. Practice-based research networks can gather and combine data from dozens of communities, hundreds of practices and thousands of patients to address health equity and disparities across the full spectrum of community and public health to clinical and primary care. This article will briefly outline the history of PBRNs, types of PBRNs, locations, topics, and patient outcomes over the past 25 years. Current PBRN efforts to address health disparities and improve health equity will be described. New PBRN opportunities to address health disparities and approaches to advance implementation research for health equity in the practice and community will be described. Readers will be challenged to consider ways to engage practice-based research networks in their health equity efforts.Ethn Dis. 2019;29(Suppl 1):113-118; doi:10.18865/ed.29.S1.113.
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Cites
Practice-based research--“Blue Highways” on the NIH roadmap
Westfall, J. M., Mold, J., & Fagnan, L. (2007) · JAMA · doi:10.1001/jama.297.4.403 · Cited by 1,209 · see citing works
Self-citationGreen, L. A., & Hickner, J. (2006) · The Journal of the American Board of Family Medicine · doi:10.3122/jabfm.19.1.1 · Cited by 187 · see citing works
Hickner, J., & Green, L. A. (2015) · The Journal of the American Board of Family Medicine · doi:10.3122/jabfm.2015.05.150227 · Cited by 42 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Structure, function, and productivity from the National Dental Practice-Based Research Network.
Gilbert, G. H., Fellows, J. L., Allareddy, V., Cochran, D. L., Cunha-Cruz, J., Gordan, V. V., McBurnie, M. A., Meyerowitz, C., Mungia, R., Rindal, D. B., et al. (2022) · Journal of Clinical and Translational Science · doi:10.1017/cts.2022.421 · Cited by 54 · see citing works
“Practice-based research networks (PBRNs) offer unique advantages to clinical research and quality improvement [1-6], primarily because they bring practice-relevant topics onto the research agenda and are conducted in “real-world,” nonacademic clinical settings where almost all of the population receives its health car…”
BackgroundAdvancing Genomics to Improve Health Equity
Madden, E. B., Hindorff, L., Bonham, V., Akintobi, T., Burchard, E., Baker, K., Begay, R., Carpten, J., Cox, N. J., Francesco, V. D., et al. (2024) · Nature Genetics · doi:10.1038/s41588-024-01711-z · Cited by 52
Kho, A., Daumit, G. L., Truesdale, K. P., Brown, A. F., Kilbourne, A. M., Ladapo, J. A., Wali, S., Cicutto, L. C., Matthews, A. K., Smith, J. D., et al. (2022) · Health Services Research · doi:10.1111/1475-6773.13983 · Cited by 30 · see citing works
View From the Canoe: Co-Designing Research Pacific Style
Lamont, R., Fishman, T., Sanders, P., Ofanoa, M., & Goodyear-Smith, F. (2020) · Annals of Family Medicine · doi:10.1370/afm.2497 · Cited by 13
Kruse, G., Hale, E. R., Bekelman, J., DeVoe, J., Gold, R., Hannon, P. A., Houston, T., James, A., Johnson, A., Klesges, L., et al. (2023) · BMC Health Services Research · doi:10.1186/s12913-023-09128-w · Cited by 12 · see citing works
Jensen, I. B., Brämberg, E. B., Wåhlin, C., Björklund, C., Hermansson, U., Lohela-Karlsson, M., Elinder, L. S., af Rosenschöld, P. M., Nevala, T., Carter, N., et al. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17155283 · Cited by 14 · see citing works
“In line with previous studies, our work supports the contention that PBRN is beneficial from several perspectives [28,31].”
ResultMorley, C. P., Schad, L. A., Tumiel-Berhalter, L., Brady, L., Bentham, A., Vitale, K., Norton, A. L., Noronha, G. J., & Swanger, C. (2021) · Journal of Patient-Centered Research and Reviews · doi:10.17294/2330-0698.1855 · Cited by 11
Peters, S., Chakraborty, S., Barton, C., Sturgiss, E., Mazza, D., Leon-Santiago, M. D., Staunton-Smith, T., & Russell, G. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-060524 · Cited by 8 · see citing works
Dania, A., Nagykaldi, Z., Haaranen, A., Muris, J., Evans, P. H., Mäntyselkä, P., & van Weel, C. (2025) · BMC Health Services Research · doi:10.1186/s12913-025-13159-w · Cited by 6 · see citing works
“Convener networks possess innate strengths that enable them to adapt to new healthcare contexts and needs [22], and they have greater capacity for multi-faceted research and innovation [21, 22, 46, 47, 50, 58].”
Bringing Parent Voices into a Pediatric Research Network Through a Virtual Parent Panel
Engster, S. A., Fascetti, C., Mykita, A., Pompa, K., & Reis, E. (2020) · Journal of the American Board of Family Medicine · doi:10.3122/jabfm.2020.05.200050 · Cited by 6 · see citing works
Tapp, H. (2020) · Journal of the American Board of Family Medicine · doi:10.3122/jabfm.2020.05.200400 · Cited by 5 · see citing works
Draper-Rodi, J., Fawkes, C., & Bailey, D. (2025) · Scientific Reports · doi:10.1038/s41598-025-11527-4 · Cited by 4 · see citing works
“They are a useful tool to invite clinicians in day-to-day practice to contribute to national research agenda and improvement initiatives 9,10 .”
Practice-Based Research Networks in Stakeholder-Driven Social Work Research
Kelly, E., Davis, L., Holguin, M., Gaona, L., Pahwa, R., Lee, S., Pancake, L., Murch, L., Giambone, L., & Brekke, J. (2020) · Research on social work practice · doi:10.1177/1049731520942591 · Cited by 3 · see citing works
“Some established networks have been able to set up data linkage across practices, which is allowing them to conduct multiple, large-scale projects than was previously possible (Hickner & Green, 2015; Westfall et al., 2019).”
BackgroundMethodInfluentialAn observational study of motivation and outcomes for training in Ayurveda.
Edwards, M. T., & Gaylord, S. (2026) · Explore · doi:10.1016/j.explore.2026.103459 · Cited by 2 · see citing works
Are we being equitable enough? Lessons learned from sites lost in an implementation trial
Austin, E. J., Chen, J., Ferro, L., Saxon, A., Fortney, J. C., Curran, G. M., Ratzliff, A. D., & Williams, E. C. (2024) · Implementation Research and Practice · doi:10.1177/26334895241267023 · Cited by 2 · see citing works
“Central to this is diversifying where research is conducted and expanding practice-based research that draws on the varied real-world conditions of care delivery (Westfall et al., 2019).”
BackgroundValue in Primary Care: Evidence from the Canadian Primary Care Sentinel Surveillance Network
Wong, S. T., Morkem, R., Salman, A., Barber, D., & Leis, J. A. (2023) · Healthcare Policy | Politiques de Santé · doi:10.12927/hcpol.2023.27093 · Cited by 2
“These learning communities provide opportunities for clinicians and practices of provincial PBRLNs to learn and generate practice knowledge that could be tailored to their provincial context.”
InfluentialDaly, J., O'Connor, L., Schmidt, M. E., Ferrara, L. K., Parang, K., & Levy, B. (2023) · Journal of Primary Care & Community Health · doi:10.1177/21501319231164540 · Cited by 2 · see citing works
Handyside, L., Cameron, J., & Freeman, C. R. (2025) · Research in Social and Administrative Pharmacy · doi:10.1016/j.sapharm.2025.10.004 · Cited by 1 · see citing works
Bailey, D., Fawkes, C., & Draper-Rodi, J. (2025) · BMJ Open · doi:10.1136/bmjopen-2024-095191 · Cited by 1 · see citing works
Bailey, D., Fawkes, C., Carnes, D., & Draper-Rodi, J. (2024) · International Journal of Osteopathic Medicine · doi:10.1016/j.ijosm.2024.100742 · Cited by 1 · see citing works
Development of a national osteopathic practice-based research network: the NCOR Research NetworkPreprint
Draper-Rodi, J., Fawkes, C., & Bailey, D. (2024) · medRxiv · doi:10.1101/2024.09.03.24312982 · Cited by 1 · see citing works
Mensah, G. A., & Murray, D. M. (2023) · Ethnicity & Disease · doi:10.18865/ed.decipher.1 · Cited by 1
The Challenge to Be Inclusive and Diversify Our Aging Populations.
Alegría, M. (2021) · The American journal of geriatric psychiatry · doi:10.1016/j.jagp.2021.09.002 · Cited by 1
SOARNet: Establishing an older adult focused practice-based research network
Sangdahl, C. E., Masoud, S. S., Sharma, V., Stensland, M. L., Sierra, C., LaCoss, J., & Davila, A. E. (2026) · Journal of Clinical and Translational Science · doi:10.1017/cts.2026.10797
“…with other reports suggesting that targeted electronic recruitment is often more efficient than in-person strategies for initiating a network [26] and has been adopted as the primary recruitment strategy moving forward, with plans for repeated outreach waves and expansion of contact networks.”
Sanftenberg, L., Stark-Felbinger, U., Eck, S., Schneider, A., Kurotschka, P. K., Gágyor, I., Stark, S., Kühlein, T., Walter, F., Roos, M., et al. (2026) · BMC Family Practice · doi:10.1186/s12875-026-03459-3
“PBRNs provide a vital link between academic general practice and practices to enable a practice-theory–practice loop and contribute to evidence-based quality improvement [6, 9–13].”
Burchim, S., Miller, S. G., Beima‐Sofie, K., Spencer, A. G., Selah, B., Suchsland, M. Z., Wadden, E., Jaffari, A., Cole, A., Elrod, S., et al. (2026) · BMC Family Practice · doi:10.1186/s12875-026-03451-x
“Furthermore, understanding past implementation experiences could guide the development of telemedicine and digital health innovations to ensure equitable implementation in rural settings [21, 22].”
Wood, B., Zelek, B., Daneshemand, R., Kennel, M., Myles, S., O'Loughlin, R. A., & Manitowabi, D. (2026) · Annals of Family Medicine · doi:10.1370/afm.240336
Holmes, M., Miller, A., & Newell, D. (2026) · Chiropractic & Manual Therapies · doi:10.1186/s12998-026-00630-6
“Suggested infrastructure for PBRNs includes strategic leadership and administrative support, independent of a single study, to allow for the management and quality assurance of activity [48, 49].”
Ayurveda-Practice-Based Research Network (A-PBRN): Lesson Learned and Way Forward in the UK
Sharma, N., Lakshmanan, S., Pandey, K., Nair, R., Singh, A., Kulkarni, G., Pandav, K., & Shah, P. (2022) · Global Journal of Health Science · doi:10.5539/gjhs.v14n10p36
MSN perceptions of practice-based problems and research-based interventions.
Riccio, P., & Bloch, J. (2019) · Journal of Professional Nursing · doi:10.1016/j.profnurs.2019.09.007
- Authors
- Westfall, J. M., Roper, R., Gaglioti, A., & Nease, Jr.
- Affiliations
- University of Colorado Anschutz (US)
- National Institutes of Health (US)
- Morehouse School of Medicine (US)
- Venue
- Ethnicity & Disease
- Publisher
- Ethnicity and Disease Inc
- Published
- 2019-02-21
- Volume
- 29
- Issue
- Suppl 1
- Pages
- 113-118
- ISSN
- 1049-510X (ISSN-L)
- 1945-0826
- PMC
- PMC6428170
- OpenAlex
- W2916590334
- Cited by
- 36
- References
- 21
- Citations by year
- 2026: 4 · 2025: 7 · 2024: 5 · 2023: 5 · 2022: 6 · 2021: 2 · 2020: 5 · 2019: 2
- FWCI
- 5.10
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Ethnicity & Disease (publishedVersion)
- Europe PMC (PubMed Central) (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institute on Minority Health and Health Disparities (R25MD007589)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
- Social Sciences › Health › Health disparities and outcomes
- Health Sciences › Health Professions › General Health Professions › Primary Care and Health Outcomes
- Keywords
- practice-based research networks, health equity, implementation research, health disparities, primary care, social determinants of health, community health, translational research, community-engaged research
- MeSH terms
- Health Equity, Implementation Science, Community Health Services, Humans, Primary Health Care, Public Health, Research, Community Networks
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