The DOI matches its Crossref record; 48 of the 48 references it cites were found in a registry or an index.
Racial/Ethnic Disparities in the Identification of Children With Autism Spectrum Disorders
Open accessAbstract
Objectives. We sought to examine racial and ethnic disparities in the recognition of autism spectrum disorders (ASDs). Methods. Within a multisite network, 2568 children aged 8 years were identified as meeting surveillance criteria for ASD through abstraction of evaluation records from multiple sources. Through logistic regression with random effects for site, we estimated the association between race/ethnicity and documented ASD, adjusting for gender, IQ, birthweight, and maternal education. Results. Fifty-eight percent of children had a documented autism spectrum disorder. In adjusted analyses, children who were Black (odds ratio [OR] = 0.79; 95% confidence interval [CI] = 0.64, 0.96), Hispanic (OR = 0.76; CI = 0.56, 0.99), or of other race/ethnicity (OR = 0.65; CI = 0.43, 0.97) were less likely than were White children to have a documented ASD. This disparity persisted for Black children, regardless of IQ, and was concentrated for children of other ethnicities when IQ was lower than 70. Conclusions. Significant racial/ethnic dispatrities exist in the recognition of ASD. For some children in some racial/ethnic groups, the presence of intellectual disability may affect professionals' further assessment of developmental delay. Our findings suggest the need for continued professional education related to the heterogeneity of the presentation of ASD.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“In the U.S., African American, Hispanic, and Asian children are more likely to receive a diagnosis at a later age than Caucasian children (Maenner et al. 2020; Mandell et al. 2009; Palmer et al. 2010).”
From The Diagnosis of Autism: From Kanner to DSM-III to DSM-5 and Beyond (2021) · cites this paper as Mandell et al. 2009
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“there are continued disparities in the number of children identified with ASD across race, ethnicity, states, and even neighborhoods within cities, with children of color and from less advantaged backgrounds being diagnosed less often and later than other children (Mandell et al. 2009, Mandell & Palmer 2005).”
From Recent Advances in Autism Research as Reflected in DSM-5 Criteria for Autism Spectrum Disorder (2015) · cites this paper as Mandell et al. 2009
Experimental — accuracy not yet measuredThe cited source says what the claim attributes to it.
In the citing paper
“Furthermore, many factors, both internal and external to a child, affect when he or she first receives a diagnosis. These include ethnicity and race, access to appropriate services, bilingual status and region of the country, as well as whether the child has delays besides those that characterize autism, such as in motor coordination or cognitive development (e.g., Mandell et al. 2009, Shattuck et”
From Recent Advances in Autism Research as Reflected in DSM-5 Criteria for Autism Spectrum Disorder (2015) · cites this paper as Mandell et al. 2009
In the citing paper
“disadvantaged racial/ethnic or sociodemographic groups have been shown to have lower rates of diagnosis1,29 and up to 20% of children are not diagnosed by 8 years of age,1”
From Environmental Chemical Exposures and Autism Spectrum Disorders: A Review of the Epidemiological Evidence (2014) · cites this paper as [29]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
Estimating the Dimension of a Model
Schwarz, G. (1978) · The Annals of Statistics · doi:10.1214/aos/1176344136 · Cited by 47,033
Fitzmaurice, G. M., Laird, N. M., & Ware, J. H. (2011) · Wiley Series in Probability and Statistics · doi:10.1002/9781119513469 · Cited by 4,639
Markowitz, L. E., Dunne, E. F., Saraiya, M., Lawson, H. W., Chesson, H. W., & Unger, E. R. (2007) · PsycEXTRA Dataset · doi:10.1037/e601292007-001 · Cited by 1,873
Prevalence of Autism in a US Metropolitan Area
Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003) · JAMA · doi:10.1001/jama.289.1.49 · Cited by 1,248
Self-citationPractice parameter: Screening and diagnosis of autism
Filipek, P. A., Accardo, P., Ashwal, S., Baranek, G. T., Cook, E. H., Dawson, G., Gordon, B., Gravel, J. S., Johnson, C. P., Kallen, R. J., et al. (2000) · Neurology · doi:10.1212/wnl.55.4.468 · Cited by 1,106
Autism From 2 to 9 Years of Age
Lord, C., Risi, S., DiLavore, P. S., Shulman, C., Thurm, A., & Pickles, A. (2006) · Archives of General Psychiatry · doi:10.1001/archpsyc.63.6.694 · Cited by 973
Autism and the pervasive developmental disorders
Volkmar, F. R., & Klin, A. (2012) · doi:10.1093/med/9780199696758.003.0214 · Cited by 931
Factors Associated With Age of Diagnosis Among Children With Autism Spectrum Disorders
Mandell, D. S., Novak, M. M., & Zubritsky, C. D. (2005) · Pediatrics · doi:10.1542/peds.2005-0185 · Cited by 896
Self-citation(2005) · PubMed · Cited by 775
Advancing Health Disparities Research Within the Health Care System: A Conceptual Framework
Kilbourne, A. M., Switzer, G., Hyman, K., Crowley-Matoka, M., & Fine, M. J. (2006) · American Journal of Public Health · doi:10.2105/ajph.2005.077628 · Cited by 761 · cited 1×
“suggested a model of health disparities research with 3 components: identification of disparities, discovery of malleable factors that mediate differential health outcomes, and strategies for reducing these disparities.(43) We have provided robust findings suggesting the presence of significant disparities in the iden…”
Background
Research works printed but not linked: 6
- Fombonne E, 2005, J Clin Psychiatry, 66, 3
- Institute of Medcine. Unequal Treatment. Washington, DC: National Academies Press; 2002.
- Centers for Disease Control and Prevention, 2007, MMWR Morb Mortal Wkly Rep, 56, 1
- Centers for Disease Control and Prevention, 2006, MMWR Morb Mortal Wkly Rep, 55, 481
- Van Naarden Braun K, 2007, MMWR Morb Mortal Wkly Rep, 56, 29
- Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition. Washington, DC; American Psychiatric Association; 1994.
Cited by
Sorted by citations
Items 901–946 of 946
Building Coalitions and Cross-System Partnerships
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0056
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.002.0005
Spotlighting Communication Diversity as a Strategy
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0047
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0025
Modeling Youth-Adult Relationships
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0028
Bridging Individual Work to Systemic Change
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0054
Crisis Intervention through a Neurodiversity-Affirming Lens
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0052
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.002.0007
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0013
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0037
Revisiting the Theory of Mind Narrative
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0006
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0039
Cultural Humility and Reflexivity in Practice
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0022
Centering Dignity, Strength, and Self-Determination
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0007
Reimagining Behavior Support in Schools
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0026
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0003
Environmental Fit and the Ecology of Inclusion
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0015
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0012
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.005.0007
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.005.0005
Gender, Masking, and the Performance of Acceptability
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0019
Recognizing Strengths and Challenges Across Neurodivergent Profiles
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0005
Centering Sensory Inclusivity and Student Voice in Neurodiversity-Affirming SEL
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0033
Advocacy in Special Education Systems
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0023
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.005.0003
Supporting Neurodivergent Caregivers
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0045
Accessible Design for Learning
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0029
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.005.0004
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0017
Honoring Dedicated Interests as Pathways to Learning and Connection
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0041
Accessible Design for Learning
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.003.0010
Rodrigues, S. (2026) · Oxford University Press eBooks · doi:10.1093/9780197843413.002.0006
Tefera, A., Scott, L. A., & Catherine, E. (2026) · Educational Evaluation and Policy Analysis · doi:10.3102/01623737261454707
Aligning Counseling Psychology with Neurodiversity Scholarship: A Call to Action
Sivathasan, S., Moravvej, M., Botha, M., & Bottema‐Beutel, K. (2026) · The Counseling Psychologist · doi:10.1177/00110000261458822
DESIGUALDADES SOCIAIS E ESPACIAIS NO DIAGNÓSTICO DO TRANSTORNO DO ESPECTRO AUTISTA NO BRASIL
Rodrigues, G. F. F. D. C., Ramos, E. M., Dias, J. M. A., & Konkiewitz, E. C. (2026) · Psicologia e Saúde em Debate · doi:10.22289/2446-922x.v12a1a91
Paquette, G., Bolduc, M., Sablonnière-Griffin, M. D. L., Argumedes, M., Brument, M., & Dion, J. (2026) · Research in Autism · doi:10.1016/j.reia.2026.202973
Zhang, E., Snyder, M., Alduraidi, W., Hunley, S., Sohl, K., Cheak‐Zamora, N., & Nelson, E. (2026) · Autism · doi:10.1177/13623613261472991
AI-driven autism screening: superiority over traditional methods – systematic review
Aghaie, A., & Nikkhoo, F. (2026) · Current Psychology · doi:10.1007/s12144-026-09891-z
Two-Year Outcomes of a 211 Care Coordination Trial
Gulsrud, A., Nelson, B. B., Vangala, S., Dudovitz, R., Thompson, L. R., Porras-Javier, L., Romley, J. A., Aceves, I., & Chung, P. J. (2026) · PEDIATRICS · doi:10.1542/peds.2024-069315
Davidson, E. (2026) · Culture Medicine and Psychiatry · doi:10.1007/s11013-026-10018-z
Diagnostic Agreement of a Structured Telehealth Adult Autism Assessment
Crehan, E., Whaling, K. M., Jones, H., Shinall, J., & Loftin, R. L. (2026) · Journal of Autism and Developmental Disorders · doi:10.21203/rs.3.rs-11166196/v1
Wang, Z., Onal, S., Pandit, P., Gladfelter, A., & Buac, M. (2026) · International Journal of Developmental Disabilities · doi:10.1080/20473869.2026.2737775
Cunningham, A., Rao, P. S., Loades, M. E., & Russell, A. (2026) · The Cognitive Behaviour Therapist · doi:10.1017/s1754470x26100919
Comprehensive Programs for Autistic Children and Youth
Odom, S. L., Suhrheinrich, J., HALL, L. J., & Melgarejo, M. (2026) · doi:10.1002/9781394489886.ch31
Abrams, D. N. (2022) · Digital Archive @ GSU · doi:10.57709/7029986
Predicting Autism in Young Children Based on Social Interaction and Selected Demographic Variables
Princiotta, D. K., & Morris, R. J. (2011) · PsycEXTRA Dataset · doi:10.1037/e679842011-001
Metadata
- Authors
- Mandell, D. S., Wiggins, L. D., Carpenter, L. A., Daniels, J., DiGuiseppi, C., Durkin, M. S., Giarelli, E., Morrier, M. J., Nicholas, J. S., Pinto-Martin, J. A., Shattuck, P. T., Thomas, K. C., Yeargin-Allsopp, M., & Kirby, R. S.
- Affiliations
- Centers for Disease Control and Prevention (US)
- David S. Mandell is with the Departments of Psychiatry and Pediatrics, University of Pennsylvania School of Medicine, Philadelphia. Lisa D. Wiggins and Marshalyn Yeargin-Allsopp are with the National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA. Laura Arnstein Carpenter is with the Division of Genetics and Developmental Pediatrics, Medical University of South Carolina, Charleston. Julie Daniels and Kathleen C. Thomas are with the Cecil G....
- ORCID
- Venue
- American Journal of Public Health
- Publisher
- American Public Health Association
- Published
- 2009-03
- Volume
- 99
- Issue
- 3
- Pages
- 493-498
- ISSN
- 0090-0036 (ISSN-L)
- 1541-0048
- PMC
- PMC2661453
- OpenAlex
- W1969090439
- Semantic Scholar
- 59cba7f725dca5ce2740257c42e605de326368e3
- Cited by
- 946
- References
- 48
- Citations by year
- 2026: 109 · 2025: 43 · 2024: 77 · 2023: 58 · 2022: 60 · 2021: 71 · 2020: 72 · 2019: 65 · 2018: 49 · 2017: 67 · 2016: 48 · 2015: 54 · 2014: 42 · 2013: 35 · 2012: 35
- FWCI
- 10.20
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- American Journal of Public Health (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- RePEc: Research Papers in Economics (submittedVersion)
- Funders
- National Institute of Mental Health (K01MH067628)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Keywords
- autism spectrum disorder, racial and ethnic disparities, underdiagnosis, children, Black children, Hispanic children, intellectual disability, developmental delay, IQ, professional education
- MeSH terms
- Autistic Disorder, Child, Cross-Sectional Studies, Ethnicity, Female, Humans, Male, Population Surveillance, United States, Confidence Intervals, Logistic Models, Odds Ratio, Risk Assessment, Racial Groups, Health Status Disparities
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review