The DOI matches its Crossref record; 53 of the 53 references it cites were found in a registry or an index.
Ethical Justification for Conducting Public Health Surveillance Without Patient Consent
Open accessAbstract
Public health surveillance by necessity occurs without explicit patient consent. There is strong legal and scientific support for maintaining name-based reporting of infectious diseases and other types of public health surveillance. We present conditions under which surveillance without explicit patient consent is ethically justifiable using principles of contemporary clinical and public health ethics. Overriding individual autonomy must be justified in terms of the obligation of public health to improve population health, reduce inequities, attend to the health of vulnerable and systematically disadvantaged persons, and prevent harm. In addition, data elements collected without consent must represent the minimal necessary interference, lead to effective public health action, and be maintained securely.
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“They showed that SHAP explanations to class probability did not improve the decision-making.”
From Explainable, trustworthy, and ethical machine learning for healthcare: A survey (2022) · cites this paper as [171]
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Cites
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Cited by
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Items 101–109 of 109
Ambient Intelligence as a Public Good in Healthcare: What Public Health Ethics Can Teach Us
Luenprakansit, K., & Schulman, K. A. (2026) · The American Journal of Bioethics · doi:10.1080/15265161.2026.2618231
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Durodolu, O. O., Shaibu, A. J., Babatunde, V. O., & Yusuff, S. R. (2026) · Journal of Information Communication and Ethics in Society · doi:10.1108/jices-10-2025-0279
Trust, Transparency, and the Fragile Promise of Data Governance in the Era of Modernization
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Metadata
- Authors
- Lee, L. M., Heilig, C. M., & White, A.
- Affiliations
- Western University (CA)
- Venue
- American Journal of Public Health
- Publisher
- American Public Health Association
- Published
- 2012-01
- Volume
- 102
- Issue
- 1
- Pages
- 38-44
- ISSN
- 0090-0036 (ISSN-L)
- 1541-0048
- PMC
- PMC3490562
- OpenAlex
- W2021917448
- Cited by
- 108
- References
- 53
- Citations by year
- 2026: 10 · 2025: 4 · 2024: 7 · 2023: 11 · 2022: 9 · 2021: 8 · 2020: 13 · 2019: 9 · 2018: 8 · 2017: 6 · 2016: 5 · 2015: 4 · 2014: 5 · 2013: 6 · 2012: 3
- FWCI
- 4.40
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- American Journal of Public Health (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Public Health Policies and Education
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Keywords
- disease surveillance, patient consent, moral justification, individual autonomy, infectious disease surveillance, population health, health disparities, vulnerable populations, harm prevention, data security
- MeSH terms
- Bioethics, Humans, Informed Consent, Population Surveillance, Public Health, Risk, Social Responsibility, United States
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