The DOI matches its Crossref record; 26 of the 26 references it cites were found in a registry or an index.
Patient Experiences With Full Electronic Access to Health Records and Clinical Notes Through the My HealtheVet Personal Health Record Pilot: Qualitative Study
Open accessAbstract
BACKGROUND: Full sharing of the electronic health record with patients has been identified as an important opportunity to engage patients in their health and health care. The My HealtheVet Pilot, the initial personal health record of the US Department of Veterans Affairs, allowed patients and their delegates to view and download content in their electronic health record, including clinical notes, laboratory tests, and imaging reports. OBJECTIVE: A qualitative study with purposeful sampling sought to examine patients' views and experiences with reading their health records, including their clinical notes, online. METHODS: Five focus group sessions were conducted with patients and family members who enrolled in the My HealtheVet Pilot at the Portland Veterans Administration Medical Center, Oregon. A total of 30 patients enrolled in the My HealtheVet Pilot, and 6 family members who had accessed and viewed their electronic health records participated in the sessions. RESULTS: Four themes characterized patient experiences with reading the full complement of their health information. Patients felt that seeing their records positively affected communication with providers and the health system, enhanced knowledge of their health and improved self-care, and allowed for greater participation in the quality of their care such as follow-up of abnormal test results or decision-making on when to seek care. While some patients felt that seeing previously undisclosed information, derogatory language, or inconsistencies in their notes caused challenges, they overwhelmingly felt that having more, rather than less, of their health record information provided benefits. CONCLUSIONS: Patients and their delegates had predominantly positive experiences with health record transparency and the open sharing of notes and test results. Viewing their records appears to empower patients and enhance their contributions to care, calling into question common provider concerns about the effect of full record access on patient well-being. While shared records may or may not impact overall clinic workload, it is likely to change providers' work, necessitating new types of skills to communicate and partner with patients.
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“Our findings further resonate with prior reports suggesting that most patients and families who read notes report that they understand them as they are currently written, and that sharing notes offers a tangible and scalable strategy for engaging and partnering with patients.10,40,41”
From A patient and family reporting system for perceived ambulatory note mistakes: experience at 3 U.S. healthcare centers (2019) · cites this paper as [41]
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“Our findings further resonate with prior reports suggesting that most patients and families who read notes report that they understand them as they are currently written, and that sharing notes offers a tangible and scalable strategy for engaging and partnering with patients.10,40,41”
From A patient and family reporting system for perceived ambulatory note mistakes: experience at 3 U.S. healthcare centers (2019) · cites this paper as [41]
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Cites
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Open Notes: Doctors and Patients Signing On
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Cited by
Patient Portals and Patient Engagement: A State of the Science Review
Irizarry, T., DeVito Dabbs, A., & Curran, C. R. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.4255 · Cited by 732
Kruse, C. S., Bolton, K., & Freriks, G. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.3171 · Cited by 379
Personal health record reach in the Veterans Health Administration: a cross-sectional analysis
Shimada, S. L., Brandt, C. A., Feng, H., McInnes, D. K., Rao, S. R., Rothendler, J. A., Haggstrom, D. A., Abel, E. A., Cioffari, L. S., & Houston, T. K. (2014) · Journal of Medical Internet Research · doi:10.2196/jmir.3751 · Cited by 48
Patients Who Share Transparent Visit Notes With Others: Characteristics, Risks, and Benefits
Jackson, S. L., Mejilla, R., Darer, J. D., Oster, N. V., Ralston, J. D., Leveille, S. G., Walker, J., Delbanco, T., & Elmore, J. G. (2014) · Journal of Medical Internet Research · doi:10.2196/jmir.3363 · Cited by 36
Bourgeois, F. C., Fossa, A., Gerard, M., Davis, M. E., Taylor, Y. J., Connor, C. D., Vaden, T., McWilliams, A., Spencer, M. D., Folcarelli, P., et al. (2019) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocz142 · Cited by 25
Metadata
- Authors
- Woods, S. S., Schwartz, E., Tuepker, A., Press, N. A., Nazi, K. M., Turvey, C. L., & Nichol, W. P.
- Venue
- Journal of Medical Internet Research
- Publisher
- JMIR Publications Inc.
- Published
- 2013-03-27
- Volume
- 15
- Issue
- 3
- Pages
- e65
- ISSN
- 1438-8871 (ISSN-L)
- OpenAlex
- W1973827617
- Cited by
- 268
- References
- 26
- FWCI
- 42.40
- Type
- journal article
- Language
- en
- Open access
- gold
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- Woods, S. S., Schwartz, E., Tuepker, A., Press, N. A., Nazi, K. M., Turvey, C. L., & Nichol, W. P. (2013). Patient Experiences With Full Electronic Access to Health Records and Clinical Notes Through the My HealtheVet Personal Health Record Pilot: Qualitative Study. Journal of Medical Internet Research. https://doi.org/10.2196/jmir.2356
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
