Patient Portals and Patient Engagement: A State of the Science Review

Irizarry, Taya; DeVito Dabbs, Annette; Curran, Christine R

doi:10.2196/jmir.4255

Cited by 732Electronic Health Records SystemsHealth Literacy and Information AccessibilityPatient Satisfaction in Healthcare

Patient Portals and Patient Engagement: A State of the Science Review

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Irizarry, Taya, DeVito Dabbs, Annette, Curran, Christine R·2015·Journal of Medical Internet Research

DOI 10.2196/jmir.4255PMC PMC4526960

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Abstract

BACKGROUND: Patient portals (ie, electronic personal health records tethered to institutional electronic health records) are recognized as a promising mechanism to support greater patient engagement, yet questions remain about how health care leaders, policy makers, and designers can encourage adoption of patient portals and what factors might contribute to sustained utilization. OBJECTIVE: The purposes of this state of the science review are to (1) present the definition, background, and how current literature addresses the encouragement and support of patient engagement through the patient portal, and (2) provide a summary of future directions for patient portal research and development to meaningfully impact patient engagement. METHODS: We reviewed literature from 2006 through 2014 in PubMed, Ovid Medline, and PsycInfo using the search terms "patient portal" OR "personal health record" OR "electronic personal health record". Final inclusion criterion dictated that studies report on the patient experience and/or ways that patients may be supported to make competent health care decisions and act on those decisions using patient portal functionality. RESULTS: We found 120 studies that met the inclusion criteria. Based on the research questions, explicit and implicit aims of the studies, and related measures addressed, the studies were grouped into five major topics (patient adoption, provider endorsement, health literacy, usability, and utility). We discuss the findings and conclusions of studies that address the five topical areas. CONCLUSIONS: Current research has demonstrated that patients' interest and ability to use patient portals is strongly influenced by personal factors such age, ethnicity, education level, health literacy, health status, and role as a caregiver. Health care delivery factors, mainly provider endorsement and patient portal usability also contribute to patient's ability to engage through and with the patient portal. Future directions of research should focus on identifying specific populations and contextual considerations that would benefit most from a greater degree of patient engagement through a patient portal. Ultimately, adoption by patients and endorsement by providers will come when existing patient portal features align with patients' and providers' information needs and functionality.

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Greater knowledge of essential adjustments in health care provider workflow, roles, and responsibilities is needed.
“Moreover, it is shown that a greater knowledge of essential adjustments in health care provider workflow, roles, and responsibilities is needed [29].”
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Horvath, M. M., Levy, J., L'Engle, P., Carlson, B., Ahmad, A., & Ferranti, J. M. (2011) · Journal of Medical Internet Research · doi:10.2196/jmir.1702 · Cited by 66 · see citing works
Patient-generated secure messages and eVisits on a patient portal: are patients at risk?
North, F., Crane, S. J., Stroebel, R. J., Cha, S. S., Edell, E. S., & Tulledge-Scheitel, S. M. (2013) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2012-001208 · Cited by 66 · see citing works
Meaningful Use and the Patient Portal
Neuner, J. M., Fedders, M., Caravella, M., Bradford, L., & Schapira, M. M. (2014) · American Journal of Medical Quality · doi:10.1177/1062860614523488 · Cited by 65 · see citing works
Personal Health Record
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Enhancing Patient Engagement and Blood Pressure Management for Renal Transplant Recipients via Home Electronic Monitoring and Web-Enabled Collaborative Care
Aberger, E. W., Migliozzi, D. R., Follick, M. J., Malick, T., & Ahern, D. K. (2014) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2013.0317 · Cited by 60 · see citing works
Implementing practice-linked pre-visit electronic journals in primary care: patient and physician use and satisfaction
Wald, J. S., Businger, A., Gandhi, T. K., Grant, R. W., Poon, E. G., Schnipper, J. L., Volk, L. A., & Blackford Middleton, A. (2010) · Journal of the American Medical Informatics Association · doi:10.1136/jamia.2009.001362 · Cited by 60 · see citing works
Many Physicians Are Willing To Use Patients’ Electronic Personal Health Records, But Doctors Differ By Location, Gender, And Practice
Wynia, M. K., Torres, G. W., & Lemieux, J. (2011) · Health Affairs · doi:10.1377/hlthaff.2010.0342 · Cited by 60 · see citing works
Parents' Perceptions of a Patient Portal for Managing Their Child's Chronic Illness
Britto, M. T., Hesse, E. A., Kamdar, O. J., & Munafo, J. K. (2013) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2013.02.041 · Cited by 60 · see citing works
Randomized Trial of an Electronic Personal Health Record for Patients With Serious Mental Illnesses
Druss, B. G., Ji, X., Glick, G. E., & von Esenwein, S. A. (2014) · American Journal of Psychiatry · doi:10.1176/appi.ajp.2013.13070913 · Cited by 59 · see citing works
Personal health records in a public hospital: experience at the HIV/AIDS clinic at San Francisco General Hospital
Kahn, J. S., Hilton, J. F., Nunnery, T. V., Leasure, S., Bryant, K., Hare, C. B., & Thom, D. H. (2010) · Journal of the American Medical Informatics Association · doi:10.1136/jamia.2009.000315 · Cited by 58 · see citing works
Virtualized healthcare delivery: Understanding users and their usage patterns of online medical consultations
Jung, C., & Padman, R. (2014) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2014.08.004 · Cited by 57 · see citing works
Improving Herpes Zoster Vaccination Rates Through Use of a Clinical Pharmacist and a Personal Health Record
Otsuka, S. H., Tayal, N. H., Porter, K. M., Embí, P. J., & Beatty, S. J. (2013) · The American Journal of Medicine · doi:10.1016/j.amjmed.2013.02.018 · Cited by 55 · see citing works
Patients’ Continuing Use of an Online Health Record: A Quantitative Evaluation of 14,000 Patient Years of Access Data
Phelps, R. G., Taylor, J., Simpson, K., Samuel, J., & Turner, N. (2014) · Journal of Medical Internet Research · doi:10.2196/jmir.3371 · Cited by 53 · see citing works
Patient-centred care: using online personal medical records in IVF practice
Tuil, W. S., ten Hoopen, A. J., Braat, D. D. M., Robbé, P. F. D. V., & Kremer, J. A. M. (2006) · Human Reproduction · doi:10.1093/humrep/del214 · Cited by 52 · see citing works
How patients want to engage with their personal health record: a qualitative study
Kerns, J. W., Krist, A. H., Longo, D. R., Kuzel, A. J., & Woolf, S. H. (2013) · BMJ Open · doi:10.1136/bmjopen-2013-002931 · Cited by 50 · see citing works
The military health system's personal health record pilot with Microsoft HealthVault and Google Health
Do, N., Barnhill, R. P., Heermann-Do, K. A., Salzman, K. L., & Gimbel, R. W. (2011) · Journal of the American Medical Informatics Association · doi:10.1136/jamia.2010.004671 · Cited by 50 · see citing works
Teen use of a patient portal: a qualitative study of parent and teen attitudes.
Bergman, D. A., Brown, N. L., & Wilson, S. (2008) · PubMed · Cited by 49 · see citing works
Family physicians' perspectives on personal health records: qualitative study.
Yau, G. L., Williams, A. S., & Brown, J. B. (2011) · PubMed · Cited by 49 · see citing works
Patient-To-Physician Messaging: Volume Nearly Tripled As More Patients Joined System, But Per Capita Rate Plateaued
Crotty, B. H., Tamrat, Y., Mostaghimi, A., Safran, C., & Landon, B. E. (2014) · Health Affairs · doi:10.1377/hlthaff.2013.1145 · Cited by 49 · see citing works
History and Trends of "Personal Health Record" Research in PubMed
Kim, J., Jung, H., & Bates, D. W. (2011) · Healthcare Informatics Research · doi:10.4258/hir.2011.17.1.3 · Cited by 46 · see citing works
Collaborative development of an electronic Personal Health Record for people with severe and enduring mental health problems
Ennis, L., Robotham, D., Denis, M., Pandit, N., Newton, D., Rose, D. S., & Wykes, T. (2014) · BMC Psychiatry · doi:10.1186/s12888-014-0305-9 · Cited by 46 · see citing works
Meeting the Health Information Needs of Prostate Cancer Patients Using Personal Health Records
Pai, H. H., Lau, F., Barnett, J., & Jones, S. (2013) · Current Oncology · doi:10.3747/co.20.1584 · Cited by 44 · see citing works
Patient-Provider Internet Portals—Patient Outcomes and Use
Shaw, R. J., & Ferranti, J. M. (2011) · CIN Computers Informatics Nursing · doi:10.1097/ncn.0b013e318224b597 · Cited by 43 · see citing works
Internet portal use in an academic multiple sclerosis center
Nielsen, A. S., Halamka, J. D., & Kinkel, R. P. (2011) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2011-000177 · Cited by 42 · see citing works
Comparing Electronic Health Record Portals to Obtain Patient-Entered Family Health History in Primary Care
Murray, M., Giovanni, M. A., Klinger, E. V., George, E., Marinacci, L. X., Getty, G., Brawarsky, P., Rocha, B., Orav, E., Bates, D., et al. (2013) · Journal of general internal medicine · doi:10.1007/s11606-013-2442-0 · Cited by 42 · see citing works
Development of interactive empowerment services in support of personalised medicine
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Who are portal users vs. early e-Visit adopters? A preliminary analysis.
Jung, C., Padman, R., Shevchik, G. J., & Paone, S. (2011) · PubMed Central · Cited by 39 · see citing works
Prospective Personal Health Record Use Among Different User Groups: Results of a Multi-wave Study
Lafky, D. B., & Horan, T. A. (2008) · Proceedings of the ... Annual Hawaii International Conference on System Sciences/Proceedings of the Annual Hawaii International Conference on System Sciences · doi:10.1109/hicss.2008.363 · Cited by 39 · see citing works
Giving rheumatology patients online home access to their electronic medical record (EMR): advantages, drawbacks and preconditions according to care providers
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Patient-Centered Design of an Information Management Module for a Personally Controlled Health Record
Sox, C. M., Gribbons, W. M., Loring, B. A., Mandl, K. D., Batista, R. M., & Porter, S. C. (2010) · Journal of Medical Internet Research · doi:10.2196/jmir.1269 · Cited by 37 · see citing works
Rapid Growth in Use of Personal Health Records in New York, 2012–2013
Ancker, J. S., Silver, M. D., & Kaushal, R. (2014) · Journal of General Internal Medicine · doi:10.1007/s11606-014-2792-2 · Cited by 36 · see citing works
Modeling Factors That Influence Personal Health Records Adoption
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The Effect of a Patient Portal With Electronic Messaging on Patient Activation Among Chronically Ill Patients: Controlled Before-and-After Study
Riippa, I., Linna, M., & Rönkkö, I. (2014) · Journal of Medical Internet Research · doi:10.2196/jmir.3462 · Cited by 33 · see citing works
Consistency of Patient Preferences About a Secure Internet-Based Patient Communications Portal
Wakefield, D. S., Kruse, R. L., Wakefield, B. J., Koopman, R. J., Keplinger, L. E., Canfield, S. M., & Mehr, D. R. (2012) · American Journal of Medical Quality · doi:10.1177/1062860611436246 · Cited by 33 · see citing works
Internet Access and Patient Portal Readiness Among Patients in a Group of Inner-City Safety-Net Practices
Sanders, M., Winters, P., Fortuna, R. J., Mendoza, M., Berliant, M. N., Clark, L., & Fiscella, K. A. (2013) · Journal of Ambulatory Care Management · doi:10.1097/jac.0b013e31829702f9 · Cited by 32 · see citing works
Usage patterns of a personal health record by elderly and disabled users.
Kim, E.-H., Stolyar, A., Lober, W. B., Herbaugh, A. L., Shinstrom, S. E., Zierler, B. K., SOH, C. B., & Kim, Y. M. (2007) · PubMed Central · Cited by 31 · see citing works
Differences Between Diabetes Patients Who Are Interested or Not in the Use of a Patient Web Portal
Ronda, M. C. M., Dijkhorst-Oei, L.-T., Gorter, K. J., Beulens, J. W. J., & Rutten, G. E. H. M. (2013) · Diabetes Technology & Therapeutics · doi:10.1089/dia.2013.0023 · Cited by 31 · see citing works
User-driven prioritization of features for a prospective InterPersonal Health Record: Perceptions from the Italian context
Cabitza, F., Simone, C., & Michelis, G. D. (2014) · Computers in Biology and Medicine · doi:10.1016/j.compbiomed.2014.03.009 · Cited by 31 · see citing works
Integrated Information Systems for Electronic Chemotherapy Medication Administration
Levy, M. A., Giuse, D. A., Eck, C., Holder, G., Lippard, G., Cartwright, J., & Rudge, N. K. (2011) · Journal of Oncology Practice · doi:10.1200/jop.2011.000259 · Cited by 30 · see citing works
Variations in patient portal adoption in four primary care practices.
Wald, J. S. (2010) · PubMed · Cited by 29 · see citing works
Patient portal doldrums: does an exam room promotional video during an office visit increase patient portal registrations and portal use?
North, F., Hanna, B. K., Crane, S. J., Smith, S. A., Tulledge‐Scheitel, S. M., & Stroebel, R. J. (2011) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2011-000381 · Cited by 28 · see citing works
Sharing electronic laboratory results in a patient portal--a feasibility pilot.
Wald, J. S., Burk, K. E., Gardner, K., Feygin, R., Nelson, E., Epstein, M., Poon, E. G., & Blackford Middleton, A. (2007) · PubMed · Cited by 27 · see citing works
Parent Intention to Use a Patient Portal as Related to Their Children Following a Facilitated Demonstration
Ahlers‐Schmidt, C. R., & Nguyen, M. V. L. (2013) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2013.0041 · Cited by 27 · see citing works
Applying Usability Methods to Identify Health Literacy Issues: An Example Using a Personal Health Record
Monkman, H., & Kushniruk, A. W. (2013) · Studies in health technology and informatics · doi:10.3233/978-1-61499-203-5-179 · Cited by 24 · see citing works
Survey analysis of patient experience using a practice-linked PHR for type 2 diabetes mellitus.
Wald, J. S., Grant, R. W., Schnipper, J. L., Gandhi, T. K., Poon, E. G., Businger, A., Orav, E. J., Williams, D. H., Volk, L. A., & Blackford Middleton, A. (2009) · PubMed Central · Cited by 23 · see citing works
Increasing Patient Engagement: Patients’ Responses to Viewing Problem Lists Online
Feblowitz, J. C., Maloney, F. L., Henkin, S., Ramelson, H. Z., Feltman, J., Bates, D. W., & Wright, A. T. (2014) · Applied Clinical Informatics · doi:10.4338/aci-2014-07-ra-0057 · Cited by 23 · see citing works
Triaging patients at risk of influenza using a patient portal
Rosenbloom, S. T., Daniels, T. L., Talbot, T. R., McClain, T., Hennes, R., Stenner, S. P., Muse, S., Jirjis, J. N., & Jackson, G. P. (2011) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2011-000382 · Cited by 23 · see citing works
Integrating Personalized Health Information from MedlinePlus in a Patient Portal
Borbolla, D. A., Fiol, G. D., Taliercio, V., Otero, C., Campos, F., Marcela, M., Luna, D. R., & Fernan, Q. (2014) · Studies in health technology and informatics · doi:10.3233/978-1-61499-432-9-348 · Cited by 21 · see citing works
Exploring Three Perspectives on Feasibility of a Patient Portal for Older Adults
Barron, J. S., Bedra, M., Jeffrey, W., & Finkelstein, J. (2014) · Studies in health technology and informatics · doi:10.3233/978-1-61499-423-7-181 · Cited by 21 · see citing works
Sociotechnical Challenges of Developing an Interoperable Personal Health Record
Longhurst, C., Slayton, R. M., Das, A. K., & Gaskin, G. (2011) · Applied Clinical Informatics · doi:10.4338/aci-2011-06-ra-0035 · Cited by 20 · see citing works
Personal Health Record Use and Association with Immunizations and Well-Child Care Visits Recommendations
Tom, J. O., Chen, C., & Zhou, Y. (2013) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2013.08.046 · Cited by 19 · see citing works
Consumer perspectives on personal health records: a 4-community study.
Abramson, E. L., Patel, V., Edwards, A., & Kaushal, R. (2014) · PubMed · Cited by 18 · see citing works
Understanding adoption of a personal health record in rural health care clinics: revealing barriers and facilitators of adoption including attributions about potential patient portal users and self-reported characteristics of early adopting users.
Butler, J. M., Carter, M., Hayden, C. L., Gibson, B., Weir, C. R., Snow, L. A., Morales, J., Smith, A., Bateman, K. A., Gundlapalli, A. V., et al. (2013) · Europe PMC (PubMed Central) · Cited by 17 · see citing works
Will Electronic Personal Health Records Benefit Providers and Patients in Rural America?
Hargreaves, J. S. (2010) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2009.0063 · Cited by 17 · see citing works
Direct-to-patient disclosure of results of mismatch repair screening for Lynch syndrome via electronic personal health record: a feasibility study
Hall, M. J., Herda, M. M., Handorf, E. A., Rybak, C., Keleher, C. A., Siemon, M., & Daly, M. B. (2014) · Genetics in Medicine · doi:10.1038/gim.2014.42 · Cited by 15 · see citing works
Propensity of people with long-term conditions to use personal health records
Gu, Y., & Day, K. (2013) · Studies in health technology and informatics · doi:10.3233/978-1-61499-266-0-46 · Cited by 15 · see citing works
Patterns of Response to Patient-Centered Decision Support Through a Personal Health Record
Hess, R., Fischer, G. S., Sullivan, S. M., Dong, X., Weimer, M. B., Zeith, C., Clark, S., & Roberts, M. S. (2014) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2013.0332 · Cited by 13 · see citing works
Personal Health Record Design: Qualitative Exploration of Issues Inhibiting Optimal Use
Fuji, K. T., Abbott, A. A., & Galt, K. A. (2013) · Diabetes Care · doi:10.2337/dc13-1630 · Cited by 12 · see citing works
Use of electronic personal health record systems to encourage HIV screening: an exploratory study of patient and provider perspectives
McInnes, D. K., Solomon, J., Bokhour, B. G., Asch, S. M., Ross, D. W., Nazi, K. M., & Gifford, A. L. (2011) · BMC Research Notes · doi:10.1186/1756-0500-4-295 · Cited by 10 · see citing works
Context Mediated Usability Testing
Kuziemsky, C. E., & Kushniruk, A. W. (2014) · Studies in health technology and informatics · doi:10.3233/978-1-61499-432-9-905 · Cited by 8 · see citing works

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[116]Schnipper Jeffrey L Gandhi Tejal K Wald Jonathan S Grant Richard W Poon Eric G Volk Lynn A Businger Alexandra Williams Deborah H Siteman Elizabeth Buckel Lauren Middleton Blackford Effects of an online personal health record on medication accuracy and safety: a cluster-randomized trial J Am Med Inform Assoc 2012 19 5 728 34 10.1136/amiajnl-2011-000723 22556186 amiajnl-2011-000723 22556186 PMC3422826 · DOI

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Electronic health record adoption in US hospitals: the emergence of a digital “advanced use” divide
Adler-Milstein, J., Holmgren, A. J., Kralovec, P., Worzala, C., Searcy, T., & Patel, V. (2017) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocx080 · Cited by 392 · see citing works
Differences in Access to and Preferences for Using Patient Portals and Other eHealth Technologies Based on Race, Ethnicity, and Age: A Database and Survey Study of Seniors in a Large Health Plan
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Patient Portals Facilitating Engagement With Inpatient Electronic Medical Records: A Systematic Review
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Patients' perspectives on digital health tools
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The Impact of E-Visits on Visit Frequencies and Patient Health: Evidence from Primary Care
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Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review
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Using Patient Portals to Improve Patient Outcomes: Systematic Review
Han, H., Gleason, K. T., Sun, C., Miller, H., Kang, S. J., Chow, S., Anderson, R., Nagy, P. G., & Bauer, T. (2019) · JMIR Human Factors · doi:10.2196/15038 · Cited by 182 · see citing works
Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group
Harrington, R. L., Hanna, M., Oehrlein, E. M., Camp, R., Wheeler, R., Cooblall, C., Tesoro, T., Scott, A., von Gizycki, R., Nguyen, F., et al. (2020) · Value in Health · doi:10.1016/j.jval.2020.01.019 · Cited by 179 · see citing works
Understanding the patient privacy perspective on health information exchange: A systematic review
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Patient Portals as a Tool for Health Care Engagement: A Mixed-Method Study of Older Adults With Varying Levels of Health Literacy and Prior Patient Portal Use
Irizarry, T., Shoemake, J. D., Nilsen, M. L., Czaja, S. J., Beach, S. R., & Dabbs, A. D. (2017) · Journal of Medical Internet Research · doi:10.2196/jmir.7099 · Cited by 157 · see citing works
Self-citation
Perspectives of Patients About Immediate Access to Test Results Through an Online Patient Portal
Steitz, B. D., Turer, R. W., Lin, C., MacDonald, S. T., Salmi, L., Wright, A. T., Lehmann, C. U., Langford, K., McDonald, S., Reese, T. J., et al. (2023) · JAMA Network Open · doi:10.1001/jamanetworkopen.2023.3572 · Cited by 153 · see citing works
Spotlight on the Patient Health Engagement model (PHE model): a psychosocial theory to understand people’s meaningful engagement in their own health care
Graffigna, G., & Barello, S. (2018) · Patient Preference and Adherence · doi:10.2147/ppa.s145646 · Cited by 139 · see citing works
Digital Divide in Perceived Benefits of Online Health Care and Social Welfare Services: National Cross-Sectional Survey Study
Heponiemi, T., Jormanainen, V. J., Leemann, L., Manderbacka, K., Aalto, A., & Hyppönen, H. (2020) · Journal of Medical Internet Research · doi:10.2196/17616 · Cited by 139 · see citing works
The State of Evidence in Patient Portals: Umbrella Review
Antonio, M. G., Petrovskaya, O., & Lau, F. (2020) · Journal of Medical Internet Research · doi:10.2196/23851 · Cited by 137 · see citing works
Shared Decision-Making and Patient Empowerment in Preventive Cardiology
Kambhampati, S., Ashvetiya, T., Stone, N., Blumenthal, R., & Martin, S. (2016) · Current Cardiology Reports · doi:10.1007/s11886-016-0729-6 · Cited by 109 · see citing works
The psychological burden of waiting for procedures and patient‐centred strategies that could support the mental health of wait‐listed patients and caregivers during the COVID‐19 pandemic: A scoping review
Gagliardi, A. R., Yip, C. Y. Y., Irish, J. C., Wright, F. C., Rubin, B. B., Ross, H. J., Green, R., Abbey, S. E., McAndrews, M. P., & Stewart, D. E. (2021) · Health Expectations · doi:10.1111/hex.13241 · Cited by 122 · see citing works
Patient Portals
Skinner, A. C., Thornhill, J., Weinberger, M., & Griffin, A. C. (2016) · Applied Clinical Informatics · doi:10.4338/aci-2016-01-ra-0003 · Cited by 121 · see citing works
eHealth Literacy: Patient Engagement in Identifying Strategies to Encourage Use of Patient Portals Among Older Adults
Price‐Haywood, E. G., Harden-Barrios, J., Ulep, R. D., & Luo, Q. (2017) · Population Health Management · doi:10.1089/pop.2016.0164 · Cited by 118 · see citing works
An Evaluation of the Effectiveness of the Modalities Used to Deliver Electronic Health Interventions for Chronic Pain: Systematic Review with Network Meta-Analysis
Slattery, B. W., Haugh, S., O'Connor, L., Francis, K., Dwyer, C. P., O'Higgins, S., Egan, J., & McGuire, B. E. (2019) · Journal of Medical Internet Research · doi:10.2196/11086 · Cited by 115 · see citing works
Informed Consent in Biomedical Research
Dankar, F. K., Gergely, M., & Dankar, S. K. (2019) · Computational and Structural Biotechnology Journal · doi:10.1016/j.csbj.2019.03.010 · Cited by 114 · see citing works
Factors that affect the use of electronic personal health records among patients: A systematic review
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Use and the Users of a Patient Portal: Cross-Sectional Study
Hoogenbosch, B., Postma, J., Ginkel, J. M. D. M., Tiemessen, N. A., van Delden, J. J. M., & van Os‐Medendorp, H. (2018) · Journal of Medical Internet Research · doi:10.2196/jmir.9418 · Cited by 107 · see citing works
The Promise of Information and Communication Technology in Healthcare: Extracting Value From the Chaos
Mamlin, B. W., & Tierney, W. M. (2016) · The American Journal of the Medical Sciences · doi:10.1016/j.amjms.2015.10.015 · Cited by 105 · see citing works
Primary Care Providers’ Views of Patient Portals: Interview Study of Perceived Benefits and Consequences
MILLER, D. P., Latulipe, C., Melius, K., Quandt, S. A., & Arcury, T. A. (2016) · Journal of Medical Internet Research · doi:10.2196/jmir.4953 · Cited by 98 · see citing works
Mobile Phone, Computer, and Internet Use Among Older Homeless Adults: Results from the HOPE HOME Cohort Study
Raven, M., Kaplan, L. M., Rosenberg, M. W., Tieu, L., Guzman, D., & Kushel, M. (2018) · JMIR mHealth and uHealth · doi:10.2196/10049 · Cited by 70 · see citing works
Visual analogies, not graphs, increase patients' comprehension of changes in their health status
Turchioe, M. R., Liu, L. G., Myers, A., Baik, D., Goyal, P., & Creber, R. M. (2019) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocz217 · Cited by 95 · see citing works
Lessons Learned From a Living Lab on the Broad Adoption of eHealth in Primary Health Care
Swinkels, I. C. S., Huygens, M. W. J., Schoenmakers, T. M., Oude Nijeweme-D'Hollosy, W., van Velsen, L., Vermeulen, J., Schoone-Harmsen, M., Jansen, Y. J., van Schayck, O. C., Friele, R., et al. (2018) · Journal of Medical Internet Research · doi:10.2196/jmir.9110 · Cited by 90 · see citing works
“Moreover, it is shown that a greater knowledge of essential adjustments in health care provider workflow, roles, and responsibilities is needed [29].”
Background
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Authors: Irizarry, T., DeVito Dabbs, A., & Curran, C. R.
Affiliations: University of Pittsburgh (US)
Corresponding author: Irizarry, Taya
ORCID: Irizarry, Taya
Venue: Journal of Medical Internet Research
Publisher: JMIR Publications Inc.
Published: 2015-06-23
Volume: 17
Issue: 6
Pages: e148
ISSN: 1438-8871 (ISSN-L)
DOI: 10.2196/jmir.4255
PMC: PMC4526960
OpenAlex: W1884436451
Cited by: 732
References: 137
Citations by year: 2026: 35 · 2025: 54 · 2024: 71 · 2023: 71 · 2022: 63 · 2021: 78 · 2020: 79 · 2019: 88 · 2018: 92 · 2017: 57 · 2016: 38 · 2015: 5
FWCI: 6.93
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
Locations: Journal of Medical Internet Research (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders: National Institute of Nursing Research (2NR008857, T32NR008857)
Topics: Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
Health Sciences › Health Professions › General Health Professions › Patient Satisfaction in Healthcare
Keywords: patient portals, patient engagement, electronic personal health records, patient adoption, health literacy, usability, patient decision-making, caregiver role, patient information needs
MeSH terms: Age Factors, Educational Status, Ethnicity, Health Services Needs and Demand, Health Status, Humans, Patient Participation, Research, Caregivers, Health Records, Personal, Health Literacy, Electronic Health Records

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