Nephrologists’ Changing Practices in Reported End-of-Life Decision-Making
Abstract
Because the dialysis patient population is increasingly composed of older patients with high symptom burden, shortened life expectancy, and multiple comorbid conditions, nephrologists often engage in end-of-life decision-making with their patients. In the 1990s, reported practices of nephrologists' end-of-life decision-making showed much variability. In part as a reaction to that variability, the Renal Physicians Association (RPA) and the American Society of Nephrology (ASN) developed a clinical practice guideline on end-of-life decision-making. To determine whether nephrologists' attitudes and reported practices had changed over time, survey responses from 296 nephrologists completing an online survey in 2005 were compared with 318 nephrologists who completed a similar mailed survey in 1990. In 2005, less variability was noted in reported practices to withhold dialysis from a permanently unconscious patient (90% would withhold in 2005 versus 83% who would withhold in 1990, P < 0.001) and to stop dialysis in a severely demented patient (53% in 2005 would stop versus 39% in 1990, P < 0.00001). In 2005, significantly more dialysis units were reported to have written policies on cardiopulmonary resuscitation (86% in 2005 versus 31% in 1990, P < 0.0001) and withdrawal of dialysis (30% in 2005 versus 15% in 1990, P < 0.0002); nephrologists were also more likely to honor a dialysis patient's do-not-resuscitate order (83% in 2005 versus 66%, P < 0.0002) and to consider consulting a Network ethics committee (52% in 2005 versus 39%, P < 0.001). Nephrologists' reported practices in end-of-life care have changed significantly over the 15 years separating the two surveys, suggesting that the development of the clinical practice guideline was worthwhile.
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In the Davison and Torgunrud model, the aim is to make end-of-life care match patient preferences rather than to complete advance directives.
“In this model, the focus is on ensuring that end-of-life care is consistent with patient preferences, rather than on completing advance directives.”
From Should there be an expanded role for palliative care in end-stage renal disease? (2010) · cites this paper as [33]
Davison and Torgunrud described a patient-centered advance care planning model for ESRD.
“A patient-centered advance care planning model for ESRD has been described by Davison and Torgunrud [33].”
From Should there be an expanded role for palliative care in end-stage renal disease? (2010) · cites this paper as [33]
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- Authors
- Holley, J. L., Davison, S. N., & Moss, A. H.
- Affiliations
- West Virginia University (US)
- Corresponding author
- Holley, Jean L.
- Venue
- Clinical Journal of the American Society of Nephrology
- Published
- 2007-01
- Volume
- 2
- Issue
- 1
- Pages
- 107-111
- ISSN
- 1555-9041 (ISSN-L)
- OpenAlex
- W2150981683
- Cited by
- 62
- References
- 15
- Citations by year
- 2025: 1 · 2024: 1 · 2023: 6 · 2022: 2 · 2020: 1 · 2019: 3 · 2018: 1 · 2017: 1 · 2016: 7 · 2015: 4 · 2014: 3 · 2013: 7 · 2012: 7
- FWCI
- 3.66
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Clinical Journal of the American Society of Nephrology (publishedVersion)
- PubMed (publishedVersion)
- DigitalGeorgetown (Georgetown University Library) (submittedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Nephrology › Dialysis and Renal Disease Management
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- end-of-life decisions, dialysis, do-not-resuscitate orders, dialysis withdrawal, American Society of Nephrology, ethics consultation
- MeSH terms
- Attitude of Health Personnel, Decision Making, Renal Dialysis, Humans, Kidney Failure, Chronic, Health Knowledge, Attitudes, Practice, Middle Aged, Nephrology, Professional Practice, Terminal Care, Resuscitation Orders, Ethics Committees, Health Care Surveys, Guideline Adherence
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