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Cited by 11Palliative Care and End-of-Life IssuesPalliative and Oncologic CareGrief, Bereavement, and Mental Health

Parental Perspective in Paediatric Palliative Care: A Systematic Review of Literature Using the PRISMA Method

Open access
Srivastava, Rajashree, Srivastava, Shikha·2022·Indian Journal of Palliative Care
DOI 10.25259/ijpc_37_2021PMC PMC9168285
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Abstract

Research in Parental Perspectives are pivotal in gaining understanding of parents' experiences, issues, concerns and attitude in pediatric palliative care which affects their decision making. However only a limited number of such studies have included the first-person perspective of Parents. The aim of this article is to understand the contribution of previous research on parental perspectives in pediatric palliative care through a systematic review of literature. Nine articles that met the inclusion criteria were accessed and seven key themes emerged; Psychological perspective, parental concerns, parental needs, parental attitude, spiritual perspective, cultural perspective and financial perspective. This review highlights requirement of more research into parental perspective if possible, covering all key aspects along with additional research in cultural perspective and development of validated tools, checklists and psychometric questionnaires for the assessment of these perspectives in various domains: spiritual, financial, psychological, cultural and social.

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Crossref · 10.25259/ijpc_37_2021

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  • The literature has focused primarily on the impact for the mother caregiver.

    “This reality may also explain why the literature has focused primarily on the impact for the mother caregiver [17,18], although this study aims to include mothers and fathers.”

    From “The Key Is to Value Every Little Achievement”: A Qualitative Study of the Psychological Experience of Parent Caregivers in Paediatric Palliative Care (2023) · cites this paper as [18]

    The Results, under “Summary of literature” (page not available), identify two of nine reviewed studies as specifically examining mothers’ perspectives. That supports the observation that some research focuses on mothers, but does not establish that the literature focuses primarily on mother caregivers; the review also describes studies of both parents and other caregivers. (LLM, conf=0.86)

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Cites

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Research works printed but not linked: 2

  1. [36]Kongnetiman L Lai B Berg B Cultural Competency in Paediatric Palliative Care: A Literature Review Alberta Alberta Health Services 2008
  2. [39]Johnson CJ McGee M How Different Religions View Death and Afterlife Philadelphia, PA The Charles Press 1998

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Authors
Srivastava, R., & Srivastava, S.
Affiliations
Galgotias University (IN)
Corresponding author
Srivastava, Rajashree
ORCID
Srivastava, Shikha
Venue
Indian Journal of Palliative Care
Publisher
Scientific Scholar
Published
2022-03-03
Volume
28
Issue
2
Pages
199-215
ISSN
  • 0973-1075 (ISSN-L)
  • 1998-3735
DOI
10.25259/ijpc_37_2021
PMC
PMC9168285
OpenAlex
W4214869273
Cited by
11
References
46
Citations by year
2026: 7 · 2025: 3 · 2023: 1
FWCI
0.20
Type
journal article
Language
en
Open access
Licence
cc-by-nc-sa
Locations
  • Indian Journal of Palliative Care (publishedVersion, cc-by-nc-sa)
  • PubMed Central (publishedVersion, cc-by-nc-sa)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
  • Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
Keywords
parental attitudes, pediatric palliative care, parental experiences, parental decision-making, parental concerns, parental needs, spiritual perspective, cultural perspective, financial perspective

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