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The psychosocial well-being of parents of children with cerebral palsy: a comparison study
Abstract
PURPOSE: Parents of children with cerebral palsy (CP) may be at risk from poor psychosocial well-being, compared with parents of children without a long-term health condition (LTHC). However, research has produced some conflicting findings on the topic and no comparison studies have been conducted in the UK. Furthermore, studies have only used measures of negative psychosocial well-being. The aim of this study was to conduct a comparative study of parents of children with CP and parents of children without a LTHC in the UK. METHOD: Seventy parents of children with CP and 70 parents of children without a LTHC completed self-administered questionnaires, comprising measures of psychosocial distress and positive psychosocial well-being. RESULTS: This study demonstrated that parents of children with CP have significantly poorer psychosocial well-being compared with parents of children without a LTHC: parents of children with CP had lower satisfaction with life and higher levels of anxious and depressed mood. CONCLUSIONS: These results suggest caring for a child with CP may put parents at risk from poor psychosocial well-being. Interventions to improve parental well-being are urgently needed.
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“Parents of children with CP are at risk for poorer psychological adjustment compared with mothers of typically developing children10–12 including depressive and anxious symptoms,13 14 parental stress15 and reduced quality of life.11”
From Early Parenting Acceptance and Commitment Therapy ‘Early PACT’ for parents of infants with cerebral palsy: a study protocol of a randomised controlled trial (2020) · cites this paper as [10]
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Opoku, M. P., Kyeremateng, J. D. A., Elhoweris, H., Dogbe, J. A., Nketsia, W., Hammond, C. K., & Belbase, S. (2023) · Advances in Neurodevelopmental Disorders · doi:10.1007/s41252-023-00341-6 · Cited by 1
Villanueva-Vilchis, M. D. C., Almanza-Aranda, K. E., Gaitán-Cepeda, L. A., Rangel-Salazar, R., Ramírez‐Trujillo, M. D. L. Á., Aguilar-Díaz, F. D. C., & de la Fuente‐Hernández, J. (2024) · Healthcare · doi:10.3390/healthcare12161659 · Cited by 1
Metadata
- Authors
- Cheshire, A., Barlow, J. H., & Powell, L. A.
- Affiliations
- Coventry University (GB)
- ORCID
- Cheshire, Anna
- Venue
- Disability and Rehabilitation
- Publisher
- Informa UK Limited
- Published
- 2010-01
- Volume
- 32
- Issue
- 20
- Pages
- 1673-1677
- ISSN
- 0963-8288 (ISSN-L)
- 1464-5165
- OpenAlex
- W1982879106
- Cited by
- 128
- References
- 32
- Citations by year
- 2026: 4 · 2025: 11 · 2024: 7 · 2023: 16 · 2022: 8 · 2021: 11 · 2020: 9 · 2019: 14 · 2018: 7 · 2017: 8 · 2016: 2 · 2015: 6 · 2014: 6 · 2013: 9 · 2012: 5
- FWCI
- 6.67
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Disability and Rehabilitation (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Rehabilitation › Cerebral Palsy and Movement Disorders
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Keywords
- cerebral palsy, parents of children with disabilities, psychosocial distress, anxious mood, depressive mood, life satisfaction, chronic disease, parental stress
- MeSH terms
- Adaptation, Psychological, Adult, Anxiety, Cerebral Palsy, Child, Depression, Female, United Kingdom, Humans, Male, Parents, Personal Satisfaction, Case-Control Studies
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