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Cited by 101Electronic Health Records SystemsHealth Literacy and Information AccessibilityWeb and Library Services

The DOI matches its Crossref record; 8 of the 8 references it cites were found in a registry or an index.

Characteristics of personal health records: findings of the Medical Library Association/National Library of Medicine Joint Electronic Personal Health Record Task Force

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Jones, Dixie A, Shipman, Jean P, Plaut, Daphne A, Selden, Catherine R·2010·Journal of the Medical Library Association : JMLA
DOI 10.3163/1536-5050.98.3.013PMC PMC2900995
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Abstract

OBJECTIVES: The Medical Library Association (MLA)/National Library of Medicine (NLM) Joint Electronic Personal Health Record Task Force examined the current state of personal health records (PHRs). METHODS: A working definition of PHRs was formulated, and a database was built with fields for specified PHR characteristics. PHRs were identified and listed. Each task force member was assigned a portion of the list for data gathering. Findings were recorded in the database. RESULTS: Of the 117 PHRs identified, 91 were viable. Almost half were standalone products. A number used national standards for nomenclature and/or record structure. Less than half were mobile device enabled. Some were publicly available, and others were offered only to enrollees of particular health plans or employees at particular institutions. A few were targeted to special health conditions. CONCLUSIONS: The PHR field is very dynamic. While most PHR products have some common elements, their features can vary. PHRs can link their users with librarians and information resources. MLA and NLM have taken an active role in making this connection and in encouraging librarians to assume this assistance role with PHRs.

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Crossref · 10.3163/1536-5050.98.3.013

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Figure 1 Personal health records (PHRs) integrated with electronic health records (n 5 91)
Figure 1 Personal health records (PHRs) integrated with electronic health records (n 5 91)CC-BY · From the PDF
Figure 2 PHRs with consumer health information (CHI) (n 5 91)
Figure 2 PHRs with consumer health information (CHI) (n 5 91)CC-BY · From the PDF
Figure 3 PHRs on mobile devices (n 5 91)
Figure 3 PHRs on mobile devices (n 5 91)CC-BY · From the PDF

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Show all 8 references

Research works printed but not linked: 6

  1. MLA/NLM Joint Electronic Personal Health Record Task Force update and survey-please participate! MLA-FOCUS [Internet]. 2008 Feb 14 (special edition) [cited 27 Aug 2009]. ,http://www.mlanet.org/members/mla-focus/2008/ mla-focus-20080214sf.html..
  2. Friends of the National Library of Medicine. 2009 conference: video, speakers, presentations, and program: personal electronic health records: from biomedical research to people's health [Internet] The Friends; 2009 [cited 28 Dec 2009]. ,http://www.fnlm.org/Events-2009-Conf.html..
  3. Mault JR. Experiences with connected care [Internet]. Presented at Friends of the National Library of Medicine 2009 Conference ''Personal Electronic Health Records: From Biomedical Research to People's Health.'' Microsoft Health Solutions Group; 20 May 2009 [cited 28 Aug 2009]. ,http:// www.fnlm.org/pdfs/May20/05_James_Mault.pdf..
  4. Spector A. Our search for great value in personal healthcare records [Internet]. Presented at Friends of the National Library of Medicine 2009 Conference ''Personal Electronic Health Records: From Biomedical Research to People's Health.'' Google; 20 May 2009 [cited 28 Aug 2009]. ,http://www.fnlm.org/pdfs/May20/06_Alfred_Spector .pdf..
  5. Department of Health and Human Services. Agency information collection request; 30-day public comment request. Fed Regist. 2009 May 22;74(98):24012-3.
  6. Moore J. Preface. In: iPHR Market Report. Cambridge, MA: Chilmark Research; 2008.

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Metadata

Authors
Jones, D. A., Shipman, J. P., Plaut, D. A., & Selden, C. R.
Affiliations
  • Louisiana State University Health Sciences Center Shreveport (US)
  • Kaiser Permanente (US)
  • National Institutes of Health (US)
ORCID
Shipman, Jean P
Venue
Journal of the Medical Library Association : JMLA
Publisher
University Library System, University of Pittsburgh
Published
2010-07
Volume
98
Issue
3
Pages
243-249
ISSN
  • 1536-5050 (ISSN-L)
  • 1558-9439
DOI
10.3163/1536-5050.98.3.013
PMC
PMC2900995
OpenAlex
W1986298963
Cited by
101
References
8
Citations by year
2025: 2 · 2024: 1 · 2023: 2 · 2022: 5 · 2021: 5 · 2020: 3 · 2019: 8 · 2018: 5 · 2017: 13 · 2016: 5 · 2015: 13 · 2014: 12 · 2013: 7 · 2012: 11
FWCI
16.13
Type
journal article
Language
en
Open access
Licence
cc-by
Locations
  • Journal of the Medical Library Association JMLA (publishedVersion, cc-by)
  • PubMed Central (publishedVersion)
  • PubMed (publishedVersion)
Funders
  • Medical Library Association
  • Vanderbilt University
  • Vanderbilt University Medical Center
  • U.S. National Library of Medicine
Topics
  • Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
  • Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
  • Social Sciences › Library and Information Sciences › Web and Library Services
Keywords
personal health records, electronic health records, nomenclature standards, mobile health, health plan enrollees, Medical Library Association, National Library of Medicine
MeSH terms
Confidentiality, Humans, Libraries, Medical, Library Associations, National Library of Medicine (U.S.), United States, Medical Records Systems, Computerized, Program Development, Health Insurance Portability and Accountability Act, Professional Role, Consumer Health Information, Electronic Health Records

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