The DOI matches its Crossref record; 8 of the 8 references it cites were found in a registry or an index.
Characteristics of personal health records: findings of the Medical Library Association/National Library of Medicine Joint Electronic Personal Health Record Task Force
Open accessAbstract
OBJECTIVES: The Medical Library Association (MLA)/National Library of Medicine (NLM) Joint Electronic Personal Health Record Task Force examined the current state of personal health records (PHRs). METHODS: A working definition of PHRs was formulated, and a database was built with fields for specified PHR characteristics. PHRs were identified and listed. Each task force member was assigned a portion of the list for data gathering. Findings were recorded in the database. RESULTS: Of the 117 PHRs identified, 91 were viable. Almost half were standalone products. A number used national standards for nomenclature and/or record structure. Less than half were mobile device enabled. Some were publicly available, and others were offered only to enrollees of particular health plans or employees at particular institutions. A few were targeted to special health conditions. CONCLUSIONS: The PHR field is very dynamic. While most PHR products have some common elements, their features can vary. PHRs can link their users with librarians and information resources. MLA and NLM have taken an active role in making this connection and in encouraging librarians to assume this assistance role with PHRs.
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“These existing studies in emergency access for PHR without blockchain are the traditional system, and also there are some studies based on blockchain but not access to PHR in an emergency condition.”
From EACMS: Emergency Access Control Management System for Personal Health Record Based on Blockchain (2019) · cites this paper as [39]
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Personal Health Records: Definitions, Benefits, and Strategies for Overcoming Barriers to Adoption
Tang, P. C., Ash, J. S., Bates, D. W., Overhage, J. M., & Sands, D. Z. (2005) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m2025 · Cited by 1,424
A Research Agenda for Personal Health Records (PHRs)
Kaelber, D. C., Jha, A. K., Johnston, D., Middleton, B., & Bates, D. W. (2008) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m2547 · Cited by 415
Early Experiences with Personal Health Records
Halamka, J. D., Mandl, K. D., & Tang, P. C. (2007) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m2562 · Cited by 355
Weitzman, E. R., Kaci, L., & Mandl, K. D. (2009) · Journal of Medical Internet Research · doi:10.2196/jmir.1187 · Cited by 117
Exploring Technology Impacts of Healthcare 2.0 Initiatives
Randeree, E. (2009) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2008.0093 · Cited by 68
Governance for Personal Health Records
Reti, S. R., Feldman, H. J., & Safran, C. (2008) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m2854 · Cited by 46
Future vision: is family medicine ready for patient-directed care?
Scherger, J. E. (2009) · PubMed · Cited by 31
Rise of the Personal Health Record: Panacea or Pitfall for Health Information
Coffield, R. L., & DeLoss, G. E. (2008) · Cited by 10
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- Moore J. Preface. In: iPHR Market Report. Cambridge, MA: Chilmark Research; 2008.
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Cooper, I. D. (2015) · Journal of the Medical Library Association JMLA · doi:10.3163/1536-5050.103.3.001
Metadata
- Authors
- Jones, D. A., Shipman, J. P., Plaut, D. A., & Selden, C. R.
- Affiliations
- Louisiana State University Health Sciences Center Shreveport (US)
- Kaiser Permanente (US)
- National Institutes of Health (US)
- ORCID
- Shipman, Jean P
- Venue
- Journal of the Medical Library Association : JMLA
- Published
- 2010-07
- Volume
- 98
- Issue
- 3
- Pages
- 243-249
- ISSN
- 1536-5050 (ISSN-L)
- 1558-9439
- PMC
- PMC2900995
- OpenAlex
- W1986298963
- Cited by
- 101
- References
- 8
- Citations by year
- 2025: 2 · 2024: 1 · 2023: 2 · 2022: 5 · 2021: 5 · 2020: 3 · 2019: 8 · 2018: 5 · 2017: 13 · 2016: 5 · 2015: 13 · 2014: 12 · 2013: 7 · 2012: 11
- FWCI
- 16.13
- Type
- journal article
- Language
- en
- Open access
- diamond
- doi.org
- Licence
- cc-by
- Locations
- Journal of the Medical Library Association JMLA (publishedVersion, cc-by)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Medical Library Association
- Vanderbilt University
- Vanderbilt University Medical Center
- U.S. National Library of Medicine
- Topics
- Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Social Sciences › Library and Information Sciences › Web and Library Services
- Keywords
- personal health records, electronic health records, nomenclature standards, mobile health, health plan enrollees, Medical Library Association, National Library of Medicine
- MeSH terms
- Confidentiality, Humans, Libraries, Medical, Library Associations, National Library of Medicine (U.S.), United States, Medical Records Systems, Computerized, Program Development, Health Insurance Portability and Accountability Act, Professional Role, Consumer Health Information, Electronic Health Records
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