Patient-Generated Health Data (PGHD) Interoperability: An Integrative Perspective
Open accessAbstract
With advances in Digital Health (DH) tools, it has become much easier to collect, use, and share patient-generated health data (PGHD). This wealth of data could be efficiently used in monitoring and controlling chronic illnesses as well as predicting health outcome. Although integrating PGHD into clinical practice is currently in a promising stage, there are several technical challenges and usage barriers that hinder the full utilization of the PGHD potential in clinical care and research. This paper aims to address PGHD opportunities and challenges while developing the DH-Convener project to integrate PGHD into the Electronic Health Record in Austria (ELGA). Accordingly, it provides an integrative technical-clinical-user approach for developing a fully functional health ecosystem for exchanging integrated data among patients, healthcare providers, and researchers.
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Healthcare interoperability allows health institutions to build the technology infrastructure needed to maximize the value of their EHR data and provide more comprehensive care.
“Approximately, healthcare interoperability allows health institutions to build the technology infrastructure needed to maximize the value of their EHR data and provide more comprehensive care [21].”
From Interoperability of heterogeneous health information systems: a systematic literature review (2023) · cites this paper as [21]
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Interoperability of heterogeneous health information systems: a systematic literature review
Torab-Miandoab, A., Samad-Soltani, T., Jodati, A., & Rezaei-Hachesu, P. (2023) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-023-02115-5 · Cited by 393 · see citing works
- Authors
- Hussein, R., Crutzen, R., Gutenberg, J., Kulnik, S. T., Sareban, M., & Niebauer, J.
- Affiliations
- Ludwig Boltzmann Institute for Digital Health and Prevention (AT)
- Maastricht University (NL)
- Paracelsus Medical University (AT)
- Venue
- Studies in Health Technology and Informatics
- Publisher
- IOS Press
- Published
- 2021-05-27
- Volume
- 281
- Pages
- 228-232
- ISSN
- 0926-9630 (ISSN-L)
- 1879-8365
- OpenAlex
- W3164696196
- Cited by
- 24
- References
- 9
- Citations by year
- 2026: 2 · 2025: 3 · 2024: 5 · 2023: 9 · 2022: 4 · 2021: 1
- FWCI
- 10.95
- Type
- book chapter
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Studies in health technology and informatics (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- Research Publications (Maastricht University) (publishedVersion, cc-by-nc)
- Research Publications (Maastricht University) (submittedVersion, other-oa)
- Topics
- Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Health Sciences › Health Professions › Health Information Management › Innovation in Digital Healthcare Systems
- Keywords
- patient-generated health data, interoperability, digital health, electronic health records, Elga, data integration, chronic disease management, health information exchange, healthcare ecosystem
- MeSH terms
- Austria, Humans, Ecosystem, Electronic Health Records
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