Quality-of-life measures in chronic diseases of childhood
DOI 10.3310/hta5040
Cited by (871)
Items 601–700 of 871
- Health-Related Quality of Life after Pediatric Traumatic Brain Injury: A Quantitative Comparison between Children’s and Parents’ Perspectives of the QOLIBRI-KID/ADO QuestionnaireKatrin Cunitz, Ivana Holloway, Anne Harzendorf, Sven Greving, Marina Zeldovich, Ugne Krenz, Dagmar Timmermann, Inga Katharina Koerte, Michaela Bonfert, Steffen Berweck et al. · 2023 · Journal of Clinical Medicine
- Self-Reported Health-Related Quality of Life of Children with Spinal Muscular Atrophy: Preliminary Insights from a Nationwide Patient Registry in GermanyErik Landfeldt, Berenike Leibrock, Justine Hussong, Simone Thiele, Sophia C. Abner, Maggie Christine Walter, Eva Möhler, Michael Zemlin, Ulrich Dillmann, Marina Flotats‐Bastardas · 2023 · Journal of Neuromuscular Diseases
- Traducción y adaptación cultural al español de la versión Proxy del cuestionario EQ-5D-YPedro Rufino Olivares, Miguel Ángel Pérez-Sousa, Margarita Gozalo Delgado, Narcís Gusi · 2012 · Anales de Pediatría
- Impacts for Children Living with Genetic Muscle Disorders and their Parents – Findings from a Population-Based StudyKelly Jones, Gina L. O’Grady, Miriam J. Rodrigues, Annemarei Anna Ranta, Richard H Roxburgh, Donald R. Love, Alice Theadom, on behalf of the MD-PREV study group · 2018 · Journal of Neuromuscular Diseases
- Low-dose hydroxycarbamide therapy may offer similar benefit as maximum tolerated dose for children and young adults with sickle cell disease in low-middle-income settingsBaba P. D. Inusa, Wale Atoyebi, Abdul Aziz Hassan, Tushar Idhate, Livingstone Gayus Dogara, Ifeoma Ijei, Yewen Qin, Kofi A. Anie, Juliana O. Lawson, Lewis Li-yen Hsu · 2018 · F1000Research
- Impact of respite care on health-related quality of life in children with medical complexity: A parent proxy evaluationSeigo Suzuki, Kiyoko Kamibeppu · 2022 · Journal of Pediatric Nursing
- A struggle to survive: The experience of awaiting pediatric heart transplantationSamantha J. Anthony, David B. Nicholas, Cheryl Regehr, Lori J. West · 2014 · Pediatric Transplantation
- Measuring health-related quality of life in children: difficulties and challengesJ. Bruil, Symone B. Detmar · 2005 · Expert Review of Pharmacoeconomics & Outcomes Research
- Validation of a Portuguese version of a generic health quality-of-life questionnaire for children with neurological and neuropsychiatric disorders, including epilepsyHeber de Souza Maia Filho, Peter G. Hoare, Marleide da Mota Gomes · 2006 · Epilepsy & Behavior
- Health Outcomes in Atopic DermatitisBalvinder Rehal, April Wang Armstrong · 2011 · Dermatologic Clinics
- Measuring the benefits of growth hormone therapy in children: a role for preference-based approaches?Stavros Petrou, Emma McIntosh · 2008 · Archives of Disease in Childhood
- User-Centered Design and Usability of Voxe as a Pediatric Electronic Patient-Reported Outcome Measure Platform: Mixed Methods Evaluation StudySamantha J. Anthony, Sarah J. Pol, Enid K. Selkirk, Amarens Matthiesen, Robert J. Klaassen, Dorin Manase, A. P. S. Silva, Melanie A. Barwick, Jennifer Stinson, Alameen Damer et al. · 2024 · JMIR Human Factors
- Reliability and validity of the Japanese version of the Pediatric Quality of Life Inventory Infant ScalesIori Sato, Takafumi Soejima, Mari Ikeda, Kyoko Kobayashi, Ami Setoyama, Kiyoko Kamibeppu · 2022 · Journal of Patient-Reported Outcomes
- Health-related quality of life of children with spinal muscular atrophy in Sweden: A prospective cohort study in the era of disease-modifying therapyErik Landfeldt, Camilla Udo, Malin Lövgren, Thomas Sejersen, Ulrika C. Kreicbergs · 2023 · European Journal of Paediatric Neurology
- An Exploration of Proxy- and Self-Reported Adolescent Health in Low-Resource SettingsLaura B. Nolan · 2016 · Survey research methods
- Validation and Reliability of the Thai version of the Food Allergy Quality of Life Questionnaire-Parent Form (FAQLQ-PF)Wannaporn Limpitikul, Witchaya Srisuwatchari, Orathai Jirapongsananuruk, Nualanong Visitsunthorn, Punchama Pacharn · 2020 · Asian Pacific Journal of Allergy and Immunology
- Health-related quality of life of perinatally HIV-infected young people: a longitudinal studyAnne Marleen ter Haar, Malon Van den Hof, Henriëtte J. Scherpbier, Kim J. Oostrom, Lotte Haverman, Dasja Pajkrt · 2021 · AIDS Care
- Health-related quality of life assessment in hematologic diseaseSusan Kenyon Parsons, Deborah K. Mayer · 2004 · Hematology/Oncology Clinics of North America
- Mapping the PedsQL™ onto the CHU9D: An Assessment of External Validity in a Large Community-Based SampleChristine Mpundu‐Kaambwa, Gang Chen, Elisabeth K. Huynh, Remo Nunzio Russo, Julie Ratcliffe · 2019 · PharmacoEconomics
- International guidelines for self-report and proxy completion of paediatric health-related quality of life measures: a protocol for a systematic reviewChristine Mpundu‐Kaambwa, Gang Chen, Kim Dalziel, Nancy J. Devlin, Julie Ratcliffe · 2021 · BMJ Open
- Relationship among Ocular Diseases, Developmental Levels, and Clinical Characteristics of Children with Diplegic Cerebral PalsyAhmet Boyacı, Ali Akal, Ahmet Tutoğlu, Hasan Kandemır, İrfan Koca, İsmail Boyraz, Esra Çelen, Ufuk Ozkan · 2014 · Journal of Physical Therapy Science
- Navigating Adolescence with a Chronic Health Condition: A Perspective on the Psychological Effects of HAIR-AN Syndrome on Adolescent GirlsKimberly K. McClanahan, Hatim Α. Omar · 2006 · The Scientific World JOURNAL
- Measurement of Quality of Life in Pediatric Inflammatory Bowel DiseaseAnthony R. Otley · 2007 · Springer eBooks
- A Holistic Approach Towards Evaluating Upper Limb Function in Children with Unilateral Cerebral Palsy: A Narrative Review of Clinical Tools and Promising Technologies for Comprehensive AssessmentGiovanna De Luca, Alexandra Kalkantzi, Lisa Mailleux, Rocío Palomo‐Carrión, Hilde Feys, Roslyn Nancy Boyd, Elena Beani, Matteo Cianchetti, Silvia Filogna, Giuseppe Prencipe et al. · 2025 · Journal of Clinical Medicine
- French adaptation and validation of parents’ evaluation of aural/oral performance of children (PEACH) scale in childrenStéphane Gargula, François Simon, Charlotte Célérier, Vincent Couloigner, Nicolas Leboulanger, Natalie Loundon, Françoise Denoyelle · 2022 · International Journal of Audiology
- Measuring leadership in sport: Development and validation of the Identity Leadership Inventory – Youth (ILI-Y)Radhika Butalia, Anthony J. Miller, Niklas K. Steffens, S. Alexander Haslam, Mark W. Bruner, Colin D. McLaren, Filip Boen, Matthew J. Slater, Kyle Dunn, Katrien Fransen · 2024 · Psychology of sport and exercise
- Recommendations for measuring health‐related quality of life in children on anticoagulationA.K. Bruce, Mary Elisabeth Bauman, Sophie Jones, Mary Patricia Massicotte, Paul Monagle · 2012 · Journal of Thrombosis and Haemostasis
- Validity and reliability of a quality-of-life assessment instrument in children aged between 6 and 11 yearsNilüfer Demirsoy, Ömür Şaylıgil · 2016 · Annals of Saudi Medicine
- KRONİK HASTALIĞA SAHİP ÇOCUK-ERGEN VE EBEVEYNLERİNİN YAŞAM KALİTESİ ALGILARITufan Aslı Sezer, Sibel ERKAL İLHAN · 2019 · STED / Sürekli Tıp Eğitimi Dergisi
- Developing and testing a cognitive bolt-on for the EQ-5D-Y (Youth)Kristina Ludwig, Bastian Surmann, Eva Räcker, Wolfgang Greiner · 2021 · Quality of Life Research
- Self-esteem in patients with venous thromboembolism predicts time trade-off values for own healthPeep F. M. Stalmeier, E.E. Volmeijer · 2022 · Health and Quality of Life Outcomes
- French adaptation and validation of the Speech, Spatial and Qualities of Hearing scale for Parents (SSQ-P) and for Children (SSQ-Ch)Stéphane Gargula, François Simon, Charlotte Célérier, Vincent Couloigner, Nicolas Leboulanger, Natalie Loundon, Françoise Denoyelle · 2022 · International Journal of Audiology
- Translation and Validation of Urdu Version of Pediatric Quality of Life Inventory Generic Core Scale for Neoplase ChildrenManayer Sajid, Shoaib Waqas, Muhammad Tariq, Asifa Javaid, Hafiz Muhammad Asim · 2022 · Pakistan Journal of Medical and Health Sciences
- Who Should Fill Out a Pediatric PROM? Psychometric Assessment From a Clinical Perspective in 567 Children With a CleftSaranda Ombashi, Victor L. van Roey, Jolanda M. E. Okkerse, Mariska van Veen-van der Hoek, Esther E. B. van Oers-Hazelzet, Aebele B. Mink van der Molen, Sarah Lisa Versnel · 2023 · FACE
- Qualidade de vida infantil: limites e possibilidades das questões teórico-metodológicasHelena Bazanelli Prebianchi, Érika Hansen Barbarini · 2009 · Psico-USF
- Assessing children's quality of life in health and social services: meeting challenges and adding valueSuzanne M. Skevington, Fiona Gillison · 2006 · Journal of Children s Services
- Quality of Life in Childhood Epilepsy: The Role of an Education Program on the DiseaseSuzan Balkan, Sanem Yılmaz, Burcu Özbaran, Serpil Erermiş, Sarenur Gökben, Hasan Tekgül, Gül Serdaroğlu · 2015 · The Journal of Pediatric Research
- Patient Preferences for Treatments of Neuromuscular Diseases: A Systematic Literature ReviewErik Landfeldt, Josefin Edström, Peter Lindgren, Hanns Lochmüller · 2017 · Journal of Neuromuscular Diseases
- Using Animation to Self-Report Health: A Randomized Experiment with ChildrenCarla Guerriero, Neus Abrines Jaume, Karla Diaz‐Ordaz, Kate Brown, Jo Wray, Joan Ashworth, Matt Abbiss, John Cairns · 2019 · Patient
- Complete resolution of urinary incontinence with treatment improved the health-related quality of life of children with functional daytime urinary incontinence: a prospective studyHirokazu Ikeda, Chisato Oyake, Yuta Oonuki, Masaki Fuyama, Tsuneki Watanabe, Takashi Kyoda, Setuko Tamura · 2020 · Health and Quality of Life Outcomes
- The Correlation of Health-Related Quality of Life with Cystic Fibrosis Severity Markers in Chest CT Scan and 6-Minute Walk Test: A Cross-Sectional StudyMohammadreza Modaresi, Zahra Roshanzamir, Rohola Shirzadi · 2021 · The Indian Journal of Pediatrics
- Quality of life of methylphenidate treatment‐responsive adolescents with attention‐deficit/hyperactivity disorderPinchen Yang, For‐Wey Lung, Shyh‐Shin Chiou, Cheng‐Fang Yen, Jong‐Ling Fuh · 2012 · The Kaohsiung Journal of Medical Sciences
- Validação e reprodutibilidade de uma escala de auto-eficácia para adesão ao tratamento anti-retroviral em pais ou cuidadores de crianças e adolescentes vivendo com HIV/AIDSLuciana Scarlazzari Costa, Maria do Rosário Dias de Oliveira Latorre, Mariliza Henrique da Silva, Daniela Vinhas Bertolini, Daisy Maria Machado, Sidnei Rana Pimentel, Heloísa Helena de Sousa Marques · 2008 · Jornal de Pediatria
- What can we learn from other illnesses?Christine Eiser · 2003 · Journal of Cystic Fibrosis
- Development of a Questionnaire for Measuring Health-related Quality of Life among Children and Adolescents with Mouth BreathingRossana Barbosa Leal, Monalisa Cesarino Gomes, Ana Flávia Granville‐Garcia, Paulo Sávio Angeiras de Góes, Valdenice Aparecida de Menezes · 2015 · American Journal of Rhinology and Allergy
- Schutzfaktoren für die psychische Gesundheit von Kindern und JugendlichenS Bettge · 2005 · DepositOnce
- Planning Clinical TrialsMarvin Zelen · 2003
- French-language questionnaires in ENT: Inventory and reviewStéphane Gargula, E. Babin, Maria‐Pia Tuset, Mary Daval, A. Mattei, D. Ayache · 2024 · European Annals of Otorhinolaryngology Head and Neck Diseases
- Quality of Life in Children and Adolescents with Cancer.Jung Won Lee, Ji Eun Han, Ho Ran Park · 2013 · Child Health Nursing Research
- La calidad de vida infantil y sus dimensiones: percepción de escolaresLia Machado Fiúza Fialho, José Rogério Santana, Cristine Brandenburg · 2015 · Barbarói
- Tinnitus in ChildrenDerek James Hoare, Harriet L. Smith, Veronica Kennedy, Kathryn Fackrell · 2024 · Journal of the Association for Research in Otolaryngology
- Health-related quality of life in children with severe hemophilia A on emicizumab prophylaxisAhmed S. Hassan, Laila Metwaly Sherief, Mona Mohamed Hamdy, Ahmed M. Abbas, Osama A. Elagamy · 2024 · The Egyptian Journal of Haematology
- The Perception of the Quality of Life in Turkish Children Who Have Undergone Surgical Correction of a Congenital Gastrointestinal and Abdominal AnomalyYusuf Hakan Çavuşoğlu, Özden Şükran Üneri, Beytullah Yağız, Ayşe Karaman, Derya Erdoğan, Íbrahím Karaman, İsmet Faruk Özgüner · 2012 · Turkiye Klinikleri Journal of Medical Sciences
- Complementary and Alternative Medicine Use in Juvenile Idiopathic Arthritis: A Systematic Review of Prevalence and EvidenceMark Anthony Ferro, Kathy N. Speechley · 2008 · Journal of Complementary and Integrative Medicine
- Development of a quality of life measure for children and young people with speech, language, and communication needsChris M. Markham, Darren L. van Laar, Taraneh Dean · 2011 · Evidence-Based Communication Assessment and Intervention
- Age and African-American race impact the validity and reliability of the asthma control test in persistent asthmaticsAllison J. Burbank, Krista Todoric, Pamela H. Steele, Jonathan D. Rosen, Haibo Zhou, Marcia Frye, Ceila E. Loughlin, Sally S. Ivins, Katherine H. Mills, Lauren Massey et al. · 2018 · Respiratory Research
- Water Quality Monitoring of Tigris River by Using (GIS)-Based Physicochemical Parameters in Baghdad, IraqNadia Nazhat Sabeeh, Waleed M. Sh. Alabdraba, Ghadah Hasan Mohamed, Zainab Bahaa Mohammed · 2018 · International Journal of Engineering & Technology
- Measuring health-related quality of life in Duchenne muscular dystrophy: Current perspectives and recommendationsErik Landfeldt · 2023 · Journal of the Neurological Sciences
- A new tool for the assessment of speech understanding and spatial hearing difficulties in children: the Kid-SSQ questionnaireAurélie Coudert, Karen T. Reilly, Éric Truy, Annie M. Moulin, Valérie Gaveau · 2023 · European Archives of Oto-Rhino-Laryngology
- From diagnosis to routine care in type 1 diabetes in children: Parents’ experiencesGéraldine Heilporn, Maude Laberge, André Côté, Monia Rekik · 2019 · Patient Experience Journal
- Patient-reported outcomes in clinical trials of inhaled asthma medications: systematic review and research needsGeoff K Frampton, Jonathan Shepherd · 2010 · Quality of Life Research
- Assessment Tools in Pediatric Chronic Pain: Reliability and ValidityThomas R. Vetter · 2011 · Springer eBooks
- Measuring adolescent well-being: the development of a standardized measure for adolescents participating in orphans and vulnerable children programmingShannon Senefeld, Susan Strasser, James Campbell, Paul Clayton Perrin · 2011 · Vulnerable Children and Youth Studies
- Anksiyete Bozukluğu Olan Çocuk ve Ergenlerde Sertralin Tedavisinin Yaşam Kalitesi Üzerine EtkisiNursu Çakın Memik, İşık Karakaya, Özlem YILDIZ, Şahika Gülen Şişmanlar, Çiğdem Çağlayan, Belma Ağaoğlu · 2014 · Nöro Psikiyatri Arşivi
- Sleep Problems and Quality of Life in Children with Epilepsy Without Neurodevelopmental DisordersKotaro Yazaki, Satoru Sakuma, Yuuto Shirokihara, Kayo Inutsuka, Takuji Imamura, T. Mihara, N. Tachibana, Kyoko Kondo, W. Fukushima, Takashi Hamazaki · 2024 · Journal of Clinical Medicine
- Agreement Between Child Self- and Parent Proxy-Reports of Health-Related Quality of Life in Spinal Muscular Atrophy: Preliminary Insights from a Nationwide Patient Registry in GermanyErik Landfeldt, Berenike Leibrock, Justine Hussong, Simone Thiele, Maggie Christine Walter, Eva Möhler, Michael Zemlin, Ulrich Dillmann, Marina Flotats‐Bastardas · 2025 · Patient Related Outcome Measures
- Qualidade de vida e diabetes mellitus: autopercepção de adolescentes de uma cidade do sul do BrasilMARINA SANTOS MENEZES, Léo Lynce Valle de Lacerda, Jaqueline Borella, Talya Pedron Alves · 2019 · Psicologia Teoria e Pesquisa
- La qualité de vie d’enfants avec le syndrome de Gilles de la Tourette1Gabrielle J.-Nolin, Julie B. Leclerc · 2021 · Revue québécoise de psychologie
- The impact of CNS-directed treatment on quality of life in childhood cancer survivorsKeagan G. Lipak, Joseph R. Rausch, Rachel S. Fisher, Kemar V. Prussien, Olivia E. Clark, Ansley E. Kenney, Alexandra C. Himelhoch, Randal S. Olshefski, Leena Nahata, Kathryn A. Vannatta et al. · 2021 · Quality of Life Research
- Outcome MeasuresNamrata Grampurohit, Mary Jane Mulcahey · 2019 · Elsevier eBooks
- Assessment of face validity of a disease model of nonsense mutation Duchenne muscular dystrophy: a multi-national Delphi panel studyErik Landfeldt, Rongrong Zhang, Anne‐Marie Childs, Jessika Johannsen, Declan O’Rourke, Thomas Sejersen, Jurģis Strautmanis, Ulrike Schara, M. Tulinius, Maggie Christine Walter et al. · 2022 · Journal of Medical Economics
- A review of health—related quality of life issues in children suffering from certain key otolaryngological illnessesLechoslaw Pawel Chmielik, Grażyna Mielnik–Niedzielska, Anna Kasprzyk, Artur Niedzielski · 2023 · Frontiers in Pediatrics
- Calidad de vida relacionada con la salud de niños con enfermedades crónicas alojados en un hospedaje integral en la Ciudad de Buenos AiresCamila Sánchez, Alfredo M Eymann, Carmen Laura De Cunto · 2014 · Archivos Argentinos de Pediatria
- Quality-of-life considerations in substitute decision-making for severely disabled neonates: The problem of developing awarenessEike‐Henner W. Kluge · 2009 · Metamedicine
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- Quality of Life of Children with Cerebral Palsy: Accumulative Effect of Physiotherapy Intervention in North Central and Southwest NigeriaMohammed Jimoh Saka, M. A. Odunewu, Aysin Saka, S.G. Akinwale, O.U. Anjorin · 1970 · African Journal of Physiotherapy and Rehabilitation Sciences
- A subjective sense of the quality of life in adolescents from the Świętokrzyskie VoivodshipMałgorzata Jasińska, Marek Sikorski, Tomasz Wójcik, Jaroslaw Piotr Chmielewski, Magdalena Florek-Łuszczki, Radosław Sierpiński, Monika Szpringer, Grażyna Nowak-Starz · 2020 · International Journal of Occupational Medicine and Environmental Health
- Challenges and opportunities in measuring the pediatric quality of life: exemplified by research in pediatric gastroenterologyKatherine Lamparyk, Kimberly M. Burkhart, Jessica Buzenski, Miranda A.L. van Tilburg · 2021 · Expert Review of Pharmacoeconomics & Outcomes Research
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