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Cited by 872Health Systems, Economic Evaluations, Quality of LifeChildhood Cancer Survivors' Quality of LifePediatric Pain Management Techniques

Quality-of-life measures in chronic diseases of childhood

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Eiser, C., Morse, R.·2001·Health Technology Assessment
DOI 10.3310/hta5040
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Abstract

SCOPE OF THE REPORT: This report is concerned with the evaluation of measures broadly designed to measure quality of life (QoL) in children and adolescents, either by self-report or proxy raters. Four research questions were identified: (1) To what extent are adult measures used in the evaluation of healthcare interventions in children? (2) How appropriate are adult measures for use with children? (3) To what extent do child self-reports correspond with assessments made by parents and carers? (4) How feasible and reliable are proxy measures of QoL in different disease contexts? OBJECTIVES: (1) To review the state of the art with regard to measurement of QoL for children. (2) To make recommendations regarding the value of currently available measures for different purposes. (3) To identify further research needs. METHOD: Electronic databases were searched for the period 1980-July 1999 for articles relating to measures of QoL, health status or well-being in children (under 18 years) with chronic disease. Handsearching of relevant journals and cross-referencing with reference lists in identified articles was also carried out. Key workers in the field were contacted for additional information, and the Internet was searched for relevant websites. RESULTS: Forty-three measures were identified (19 generic and 24 disease-specific). Sixteen measures allowed for completion by children and parent/caregiver; seven only allowed for completion by a proxy, and the remainder (n = 17) allowed only for child completion. The measures were described as QoL (n = 30), health status, (n = 2), perception of illness (n = 1), life satisfaction (n = 1) and quality of well-being (n = 1). RESULTS - TO WHAT EXTENT ARE ADULT MEASURES USED IN THE EVALUATION OF HEALTHCARE INTERVENTIONS IN CHILDREN?: Three studies were identified where adult measures were used with very few changes made for children. In 11 studies involving nine separate measures of QoL, adult measures were used as a model for work with children. RESULTS - HOW APPROPRIATE ARE ADULT MEASURES FOR USE WITH CHILDREN?: Adult measures may fail to tap the specific aspects of QoL that are important to the child. Measures based on adult work impose considerable response burden for children, in terms of length, reading skills and response scale. Wording and format of adult measures may need to be modified to account for children's cognitive and language skills. More basic research is needed to determine the level of response burden that children of different ages can manage. Assessments of difficulty (e.g. reading age) need to be routinely included with information about new measures. RESULTS - TO WHAT EXTENT DO CHILD SELF-REPORTS CORRESPOND WITH ASSESSMENTS MADE BY PARENTS AND CARERS?: Fourteen studies were identified in which concor-dance between child and parent was investigated, often as part of the development of a new measure. There was some evidence for greater concordance between child and parent for physical functioning compared with social and emotional domains, but greater heterogeneity in the latter measures may contribute to inconsistent results. There was no simple relationship between concordance and moderating variables such as age, gender and illness, but this conclusion was addressed only very rarely. RESULTS - HOW FEASIBLE AND RELIABLE ARE PROXY MEASURES OF QOL IN DIFFERENT DISEASE CONTEXTS?: Only five papers fulfilled the review criteria. Evaluation is difficult because authors fail to justify their choice of measures, and do not report critical information such as completion rates or missing data. Use of existing measures can potentially eliminate the time and expense required to develop a comprehensive measure of QoL, but a full battery of standardised tests may be expensive in terms of time for administration and scoring. In addition, battery measures tend to be lengthy and therefore demanding for sick patients. They are not recommended for work with children. RECOMMENDATIONS FOR RESEARCH - MINIMUM CRITERIA FOR NEW MEASURES: A set of procedures needs to be established for the development of new measures. These need to draw on the experience gained in development of child and adult measures to date. Basic research to enhance understanding of how children interpret questions in QoL measures is recommended. We need to understand the differences in meaning of items between children and adults, and between children of different ages. Some attempt to develop measures for children of 6 years or more have been reported, and these should be further developed. (ABSTRACT TRUNCATED)

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  • In a recent review of quality-of-life measures for children, the PedsQL emerged as a feasible and valid tool widely used in cancer and chronic disease.

    “In a recent review of QoL measures for children, the PedsQL emerged as a feasible and valid tool that is widely used in cancer and chronic disease [63].”

    From Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: study protocol for a randomised controlled trial. (2015) · cites this paper as [63]

    The Summary (page unavailable) lists the PedsQL with construct and clinical validity evidence. Choice in relation to purpose (page unavailable) calls it one of the more thoroughly developed measures and identifies modules for oncology, asthma and diabetes. The review does not establish that the PedsQL is widely used, and its discussion of a need for brief, easy-to-administer measures does not directly establish the PedsQL's feasibility. (LLM, conf=0.85)

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Authors
Eiser, C., & Morse, R.
Affiliations
University of Sheffield (GB)
Venue
Health Technology Assessment
Publisher
National Institute for Health and Care Research
Published
2001
Volume
5
Issue
4
Pages
1-157
ISSN
  • 1366-5278 (ISSN-L)
  • 2046-4924
DOI
10.3310/hta5040
OpenAlex
W2314780373
Cited by
872
References
184
Citations by year
2026: 2 · 2025: 17 · 2024: 16 · 2023: 27 · 2022: 29 · 2021: 30 · 2020: 18 · 2019: 33 · 2018: 22 · 2017: 24 · 2016: 35 · 2015: 32 · 2014: 44 · 2013: 34 · 2012: 46
FWCI
61.67
Type
journal article
Language
en
Open access
Licence
Locations
  • Health Technology Assessment (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders
Health Technology Assessment programme (96/48/02)
Topics
  • Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
Keywords
quality of life, children with chronic illness, quality of life indicators, proxy reporting, child self-report, response burden, measurement reliability, health assessment, life satisfaction, well-being, generic health status measures, child health policy
MeSH terms
Adolescent, Child, Child, Preschool, Chronic Disease, Female, United Kingdom, Health Services Research, Health Status Indicators, Humans, Male, Quality of Life, Self-Assessment, Children with Disabilities, Disabled Children

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