The little things: Exploring perceptions and experiences of client and family-centred care through photovoice
Open accessAbstract
Healthcare in Canada is undergoing a paradigm shift, moving away from a prescriptive approach to care delivery to one that prioritizes clients and their families at the center of their care. In the homecare sector, this approach is commonly referred to as client- and family-centred care (CFCC), a philosophy emphasizing the need for point-of-care providers to partner with those receiving care and their families in a way that is respectful and attuned to their individual needs and goals. This philosophy helps homecare agencies like VHA Home HealthCare deliver care to families that embraces what is most important to them. At VHA Home HealthCare, CFCC is well established through education sessions delivered to staff. Despite these efforts, there is limited evidence to confirm whether this education aligns with what is important to clients and families. To address this gap, this study engaged a unique homecare population - parents of children with complex medical needs - to understand how they experience and perceive CFCC using an arts-based approach called photovoice. Through participants’ photographs and in-depth interviews, seven core themes were identified which we refer to as ‘the little things’ of CFCC. Results of our exploration show that in some cases there is alignment between parents’ perceptions of CFCC and the organization’s, but there are also many gaps that could be filled by incorporating the unique voices of participants into the organization’s educational curriculum. Experience Framework This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (http://bit.ly/ExperienceFramework) Access other PXJ articles related to this lens. Access other resources related to this lens.
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Other research has detailed the importance of consistent PSWs in building trusting relationships with clients and families and delivering tailored care to match client needs and preferences.
“Other research has detailed the importance of consistent PSWs in building trusting relationships with clients and families and delivering tailored care to match client needs and preferences [10, 43].”
From The hospital-to-home care transition experience of home care clients: an exploratory study using patient journey mapping (2023) · cites this paper as [43]
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“Other research has detailed the importance of consistent PSWs in building trusting relationships with clients and families and delivering tailored care to match client needs and preferences [10, 43].”
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Home Care Nurses’ Views on Remote Care Monitoring at the Pre-implementation Phase
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Self-citation
- Authors
- Nizzer, S., Ryan, S., & McKay, S. M.
- Affiliations
- VHA Home HealthCare (CA)
- Venue
- Patient Experience Journal
- Publisher
- The Beryl Institute
- Published
- 2020-04-28
- Volume
- 7
- Issue
- 1
- Pages
- 31-43
- ISSN
- 2372-0247 (ISSN-L)
- OpenAlex
- W3022429328
- Cited by
- 5
- References
- 28
- Citations by year
- 2026: 3 · 2023: 1 · 2022: 1
- FWCI
- 0.52
- Type
- journal article
- Language
- en
- Open access
- diamond
- doi.org
- Licence
- Locations
- Patient Experience Journal (publishedVersion, cc-by-nc-nd)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Topics
- Health Sciences › Health Professions › General Health Professions › Patient Satisfaction in Healthcare
- Social Sciences › Sociology and Political Science › Participatory Visual Research Methods
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- home health care, photovoice, arts-based research, employee training, patient and family involvement, caregiver experiences, home care agencies, patient experience
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