Health equity and quantifying the patient experience: A case study.
Open accessAbstract
The COVID-19 pandemic has invigorated efforts to address health inequities disproportionately burdened by racial/ethnic groups and individuals of low socioeconomic status. Measuring and monitoring patient experience is crucial to understanding why the gaps exist and identifying mechanisms necessary to close them. Electronic health records and digital health tools hold much promise in this regard and can lead to change. We present a case study describing the innovative efforts undertaken at Sutter Health, a large integrated health network in Northern California, to quantify gaps in health equity using electronic platforms and visualization modalities. More work is needed to identify and address barriers rooted in social context and structural inequities and ultimately impact health equity. Experience Framework This article is associated with the Policy & Measurement lens of The Beryl Institute Experience Framework. (https://www.theberylinstitute.org/ExperienceFramework). Access other PXJ articles related to this lens. Access other resources related to this lens.
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Scales or items developed to measure experiences of care with a health equity lens often focus primarily on racialized groups and groups experiencing financial strain.
“Scales or items developed to measure experiences of care that strive to use a health equity lens often focus primarily on racialized groups (e.g., based on a mix of geographic origin, skin colour, and identity), and on groups experiencing financial strain [14, 17, 18].”
From Using a health equity lens to measure patient experiences of care in diverse health care settings (2024) · cites this paper as [17]
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Cites
Adherence to Long-Term Therapies: Evidence for Action
Geest, S. D., & Sabate, E. J. (2003) · European Journal of Cardiovascular Nursing · doi:10.1016/s1474-5151(03)00091-4 · Cited by 6,274 · see citing works
Social conditions as fundamental causes of disease.
Link, B. G., & Phelan, J. (1995) · Journal of Health and Social Behavior · doi:10.2307/2626958 · Cited by 5,722 · see citing works
Capps, L. (2003) · JAMA · doi:10.1001/jama.290.18.2487-b · Cited by 4,558 · see citing works
Phelan, J. C., Link, B. G., & Tehranifar, P. (2010) · Journal of Health and Social Behavior · doi:10.1177/0022146510383498 · Cited by 2,533 · see citing works
American Academy of Family Physicians
(1966) · New England Journal of Medicine · doi:10.1056/nejm196611172752014 · Cited by 1,947 · see citing works
COVID-19 exacerbating inequalities in the US
Dorn, A. V., Cooney, R. E., & Sabin, M. L. (2020) · The Lancet · doi:10.1016/s0140-6736(20)30893-x · Cited by 1,315 · see citing works
Daviglus, M. L., Talavera, G. A., Avilés-Santa, L. M., Allison, M., Cai, J., Criqui, M. H., Gellman, M. D., Giachello, A. L. M., Gouskova, N., Kaplan, R. C., et al. (2012) · JAMA · doi:10.1001/jama.2012.14517 · Cited by 911 · see citing works
Racial/ethnic disparities in pregnancy-related deaths — United States, 2007–2016
Petersen, E. E., Davis, N. L., Goodman, D., Cox, S., Syverson, C., Seed, K., Shapiro-Mendoza, C., Callaghan, W. M., & Barfield, W. (2019) · MMWR Morbidity and Mortality Weekly Report · doi:10.15585/mmwr.mm6835a3 · Cited by 880 · see citing works
Communities in Action: Pathways to Health Equity
Patton-López, M. M. (2022) · Journal of Nutrition Education and Behavior · doi:10.1016/j.jneb.2021.09.012 · Cited by 759 · see citing works
Prevalence of Diabetes by Race and Ethnicity in the United States, 2011-2016
Cheng, Y. J., Kanaya, A. M., Araneta, M. R. G., Saydah, S. H., Kahn, H. S., Gregg, E. W., Fujimoto, W. Y., & Imperatore, G. (2019) · JAMA · doi:10.1001/jama.2019.19365 · Cited by 713 · see citing works
Haider, A. H., Scott, V. K., Rehman, K. A., Velopulos, C., Bentley, J. M., Cornwell, E. E., & Al-Refaie, W. (2013) · Journal of the American College of Surgeons · doi:10.1016/j.jamcollsurg.2012.11.014 · Cited by 593 · see citing works
Racial and ethnic differences in cardiovascular disease risk factors: a systematic review.
Kurian, A. K., & Cardarelli, K. (2007) · PubMed · doi:10.13016/rsqw-ztls · Cited by 557 · see citing works
Doctor-patient communication and satisfaction with care in oncology
dart, A. B., Bouleuc, C., & Dolbeault, S. (2005) · Current Opinion in Oncology · doi:10.1097/01.cco.0000167734.26454.30 · Cited by 332 · see citing works
Patients in context--EHR capture of social and behavioral determinants of health
Adler, N. E., & Stead, W. W. (2015) · New England Journal of Medicine · doi:10.1056/nejmp1413945 · Cited by 317 · see citing works
Patients in context--EHR capture of social and behavioral determinants of health.
Adler, N., & Stead, W. (2015) · New England Journal of Medicine · doi:10.1097/01.ogx.0000465303.29687.97 · Cited by 305 · see citing works
Social Determinants of Health 101 for Health Care: Five Plus Five
Magnan, S. J. (2017) · NAM Perspectives · doi:10.31478/201710c · Cited by 263 · see citing works
Newell, S., & Jordan, Z. (2015) · The JBI Database of Systematic Reviews and Implementation Reports · doi:10.11124/jbisrir-2015-1072 · Cited by 187 · see citing works
Collecting and applying data on social determinants of health in health care settings.
Gottlieb, L., Sandel, M., & Adler, N. (2013) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2013.560 · Cited by 182 · see citing works
Gauthier, G. R., Smith, J. A., García, C., García, M. A., & Thomas, P. A. (2020) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbaa117 · Cited by 159 · see citing works
White/black racial differences in risk of end-stage renal disease and death.
Choi, A. I., Rodriguez, R. A., Bacchetti, P., Bertenthal, D., Hernandez, G. T., & O'Hare, A. M. (2009) · The American Journal of Medicine · doi:10.1016/j.amjmed.2008.11.021 · Cited by 139 · see citing works
Patient Self-Management Support: Novel Strategies in Hypertension and Heart Disease
Bosworth, H. B., Powers, B. J., & Oddone, E. Ž. (2010) · Cardiology Clinics · doi:10.1016/j.ccl.2010.07.003 · Cited by 95 · see citing works
Sex and race factors in early-onset COPD
Kamil, F., Pinzon, I., & Foreman, M. G. (2013) · Current Opinion in Pulmonary Medicine · doi:10.1097/mcp.0b013e32835d903b · Cited by 75 · see citing works
Measuring the Effect of Social Determinants on Patient Outcomes: A Systematic Literature Review
Knighton, A. J., Stephenson, B., & Savitz, L. A. (2018) · Journal of Health Care for the Poor and Underserved · doi:10.1353/hpu.2018.0009 · Cited by 70 · see citing works
Mostow, C., Crosson, J., Gordon, S., Chapman, S. E., Gonzalez, P., Hardt, E., Delgado, L., James, T. L., & David, M. M. (2010) · Journal of General Internal Medicine · doi:10.1007/s11606-010-1274-4 · Cited by 56 · see citing works
Nonresponse to Health-Related Social Needs Screening Questions
Ray, K. N., Gitz, K. M., Hu, A., Davis, A. A., & Miller, E. P. (2020) · PEDIATRICS · doi:10.1542/peds.2020-0174 · Cited by 49 · see citing works
Race and Sex Differences in Modifiable Risk Factors and Incident Heart Failure
Kubicki, D. M., Xu, M., Akwo, E. A., Dixon, D., Muñoz, D., Blot, W. J., Wang, T. J., Lipworth, L. P., & Gupta, D. K. (2019) · JACC Heart Failure · doi:10.1016/j.jchf.2019.11.001 · Cited by 38 · see citing works
Food Insecurity Screening in Pediatric Clinical Settings: A Caregivers’ Perspective
Barnidge, E. K., Krupsky, K. L., LaBarge, G., & Arthur, J. (2019) · Maternal and Child Health Journal · doi:10.1007/s10995-019-02785-6 · Cited by 37 · see citing works
Kim, H., Meath, T. H. A., Tran, F. W., Quiñones, A. R., McConnell, K. J., & Ibrahim, S. A. (2020) · JAMA Network Open · doi:10.1001/jamanetworkopen.2020.14475 · Cited by 27 · see citing works
Aseltine, R. H., Yan, J., Gruss, C. B., Wagner, C., & Katz, M. H. G. (2015) · PubMed · Cited by 12 · see citing works
Pilipenko, N., & Vivar-Ramon, C. (2020) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-020-09746-0 · Cited by 4 · see citing works
Listening To The Voice Of All Patients To Help Heal Health Disparities In A Post-COVID-19 World
(2021) · Forefront Group · doi:10.1377/forefront.20210430.456198 · Cited by 3 · see citing works
Flagged first, then by citations
Research works printed but not linked: 7
- Khatana SA, Groeneveld PW. Health disparities and coronavirus disease 2019 pandemic in the USA. JGIM 35(8):2431-2. May 27, 2020.
- Kressin NR, Chapman SE, Magnani JW. A Tale of Two Patients: Patient-Centered Approaches to Adherence as a Gateway to Reducing Disparities PMC 2017 Jun 14. Published in final edited form as: Circulation. 2016 Jun 14; 133(24): 2583-2592.
- Cooper LA. A 41-year-old African American Man with Poorly Controlled Hypertension: Review of patient and physician factors related to hypertension treatment adherence. JAMA. 2009;301:1260-1272.
- Mead N, Bower P. Patient-centered consultations and outcomes in primary care: A review of the literature. Patient Education and Counseling. 2002;48:51-61.
- Ibrahim SA. Racial variations in the utilization of knee and hip joint replacement: an introduction and review of the most recent literature. Curr Orthop Pract. 2010 MAR-APR; 21(2): 126-131.
- Oribhabor GI, Nelson ML, Buchanan-Peart KR, Cancarevic I. A Mother's Cry: A Race to Eliminate Patient Experience Journal, Volume 8, Issue 2 -2021 the Influence of Racial Disparities on Maternal Morbidity and Mortality Rates Among Black Women in America. Cureus. 2020 Jul; 12(7): e9207.
- Bryant AS, Washington S, Kuppermann M, Cheng YW, Caughey AB. Quality and equality in obstetric care: racial and ethnic differences in cesarean section delivery rates. Paediatric and PerinatalEpidemiology. 2009 Sep;23(5):454-62.
Cited by
Sorted by citations
Using a health equity lens to measure patient experiences of care in diverse health care settings
Browne, A. J., Varcoe, C., Ford-Gilboe, M., Wathen, C. N., Wilson, E., Bungay, V., & Perrin, N. (2024) · PLOS ONE · doi:10.1371/journal.pone.0297721 · Cited by 17 · see citing works
Investing in the Bottom Line: The Value Case for Improving Human Experience in Healthcare
Wolf, J. A., Bhalla, V., Carlson, B., Carron, J., Dixon, L., Oehlert, J. K., & Oliver, B. J. (2024) · Patient Experience Journal · doi:10.35680/2372-0247.1938 · Cited by 8 · see citing works
Adams, C., Schembri, A. M., Chauhan, A., Walpola, R. L., & Harrison, R. (2023) · Journal of Patient Experience · doi:10.1177/23743735231218867 · Cited by 4 · see citing works
Four commitments for the future of healthcare: Reflecting on a decade of Patient Experience Journal
Wolf, J. A. (2023) · Patient Experience Journal · doi:10.35680/2372-0247.1900 · Cited by 1 · see citing works
Kuhn, D. M., Harrison, N. E., Musey, P. I., Crandall, D., Pang, P. S., Welch, J. L., & Harle, C. A. (2024) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2024.105748 · Cited by 1 · see citing works
Wolf, J. A. (2021) · Patient Experience Journal · doi:10.35680/2372-0247.1629
Hicks, C. D., Barnett, H. M., Shi, J., Velonjara, J., Escobar, M. A., Evans, D., Fisher, J. W., Klugh, A., Morgan, K. M., Richards, M. K., et al. (2025) · Cureus · doi:10.7759/cureus.81036
Smart Environment and Patient Experience: A Systematic Literature Review
Khizzou, N. B., Aarabe, M., Bouizgar, M., Alla, L., & Benjelloun, A. S. (2025) · Lecture notes in networks and systems · doi:10.1007/978-3-031-90921-4_45
- Authors
- Moreno, M. R., Sherrets, B., Roberts, D. J., & Azar, K.
- Affiliations
- Sutter Health (US)
- Venue
- Patient Experience Journal
- Publisher
- The Beryl Institute
- Published
- 2021-08-04
- Volume
- 8
- Issue
- 2
- Pages
- 94-99
- ISSN
- 2372-0247 (ISSN-L)
- OpenAlex
- W3187268837
- Cited by
- 8
- References
- 31
- Citations by year
- 2025: 2 · 2024: 3 · 2023: 2 · 2021: 1
- FWCI
- 1.69
- Type
- journal article
- Language
- en
- Open access
- diamond
- doi.org
- Licence
- Locations
- Patient Experience Journal (publishedVersion, cc-by-nc-nd)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Topics
- Health Sciences › Health Professions › General Health Professions › Patient Satisfaction in Healthcare
- Social Sciences › Health › Health disparities and outcomes
- Social Sciences › Sociology and Political Science › Cultural Competency in Health Care
- Keywords
- health equity, patient experience, health disparities, COVID-19 pandemic, racial and ethnic disparities, socioeconomic status, electronic health records, digital health tools, data visualization, health equity measurement, Sutter Health, integrated health networks, structural inequality
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