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Perceived Support Among Families Deciding About Organ Donation for Their Loved Ones: Donor Vs Nondonor Next Of Kin
Abstract
Background: Families’ experiences in the hospital influence their decisions about donating organs of brain-dead relatives. Meeting families’ support needs during this traumatic time is an obligation and a challenge for critical care staff. Objectives: (1) To elicit family members’ accounts of various types of support received and perceived quality of care for themselves and their loved ones when they made the donation decision, and (2) to examine the relationship between these factors and the families’ donation decision. Methods: Retrospective telephone interviews of 199 families from different regions of the country were completed. Aside from demographic data, the survey addressed perceptions of informational, emotional, and instrumental support and quality of care. Results: One hundred fifty-four study participants consented to donation; 45 declined. White next of kin were significantly more likely than African Americans to consent. Specific elements of reported support were significantly associated with consent to donate. Donor and nondonor families had differing perceptions of quality care for themselves and their loved ones. Receiving understandable information about organ donation was the strongest predictor of consent. Conclusions: Specific supportive behaviors by staff as recounted by family members of potential donors were significantly associated with consent to donation. These behaviors lend themselves to creative training and educational programs for staff. Such interventions are essential not only for next of kin of brain-dead patients, but also for staff and ultimately for the public as a whole.
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The contradiction between surrogates' aggressive choices and their own understanding of patient preferences may reflect confusion of personal and patient perspectives, conflation of medical care intensity and quality, prioritization of immediate patient well-being over likely long-term outcome, reluctance in the face of prognostic uncertainty to consider withdrawal of a treatment that will likely,
“This contradiction may reflect confusion of personal and patient perspectives (39), conflation of medical care intensity and quality (40), prioritization of immediate patient well-being over likely long-term outcome (41), reluctance in the face of prognostic uncertainty to consider withdrawal of a treatment that will likely result in death (42), or simply an inadequate mechanization of the values”
From Effects of a Personalized Web-Based Decision Aid for Surrogate Decision Makers of Patients With Prolonged Mechanical Ventilation (2019) · cites this paper as [40]
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Metadata
- Authors
- Jacoby, L., & Jaccard, J.
- Affiliations
- Florida International University (US)
- Corresponding author
- Jacoby, Liva
- Venue
- American Journal of Critical Care
- Publisher
- AACN Publishing
- Published
- 2010-09-01
- Volume
- 19
- Issue
- 5
- Pages
- e52-e61
- ISSN
- 1062-3264 (ISSN-L)
- 1937-710X
- OpenAlex
- W2100399158
- Cited by
- 93
- References
- 41
- Citations by year
- 2026: 1 · 2025: 4 · 2024: 3 · 2023: 5 · 2022: 6 · 2021: 3 · 2020: 9 · 2019: 7 · 2018: 6 · 2017: 11 · 2016: 2 · 2015: 13 · 2014: 8 · 2013: 8 · 2012: 4
- FWCI
- 4.78
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- American Journal of Critical Care (publishedVersion)
- PubMed (publishedVersion)
- DigitalGeorgetown (Georgetown University Library) (submittedVersion)
- Funders
- Centers for Disease Control and Prevention (1 H39 OT 00119, 1 H39 OT 00007)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Organ Donation and Transplantation
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Critical Care and Intensive Care Medicine › Family and Patient Care in Intensive Care Units
- Keywords
- organ donation, brain death, family decision-making, next of kin, perceived support, emotional support, information support, instrumental support, quality of care, racial differences, employee training, organ procurement
- MeSH terms
- Adolescent, Adult, Aged, Aged, 80 and over, Black or African American, Child, Child, Preschool, Family, Female, Humans, Infant, Infant, Newborn, Interviews as Topic, Health Knowledge, Attitudes, Practice, Male, Middle Aged, Tissue and Organ Procurement, Quality of Health Care, Terminal Care, Tissue Donors, Patient Satisfaction, White People, Young Adult
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