Experiencing Chronic Illness
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Out of Sight But Not Out of Mind: Managing Invisible Social Identities in the Workplace
Clair, J. A., Beatty, J. E., & Maclean, T. L. (2005) · Academy of Management Review · doi:10.5465/amr.2005.15281431 · Cited by 866 · see citing works
“They must either explain these differences or bear the negative reactions from others who think they are strange or simply lazy (e.g., Charmaz, 2000).”
Epilepsy and social identity: the stigma of a chronic neurological disorder
Jacoby, A., Snape, D., & Baker, G. A. (2005) · The Lancet Neurology · doi:10.1016/s1474-4422(05)01014-8 · Cited by 518 · see citing works
Scambler, G. (2004) · Social Theory & Health · doi:10.1057/palgrave.sth.8700012 · Cited by 315 · see citing works
The illness experience: state of knowledge and perspectives for research
Pierret, J. (2003) · Sociology of Health & Illness · doi:10.1111/1467-9566.t01-1-00337 · Cited by 285 · see citing works
Biddle, L., Donovan, J., Sharp, D., & Gunnell, D. (2007) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2007.01030.x · Cited by 261 · see citing works
“These data overlap with the sociological literature addressing experiences of chronic illness (Charmaz 2000) – in particular Bury’s (1982) notion of biographical disruption.”
ResultQuality of Life of Cancer Patients Treated with Chemotherapy
Lewandowska, A., Rudzki, G., Lewandowski, T., Próchnicki, M., Rudzki, S., Laskowska, B. J., & Brudniak, J. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17196938 · Cited by 281 · see citing works
Sandelowski, M., Lambe, C. E., & Barroso, J. V. (2004) · Journal of Nursing Scholarship · doi:10.1111/j.1547-5069.2004.04024.x · Cited by 256 · see citing works
Back pain and the resolution of diagnostic uncertainty in illness narratives
Lillrank, A. (2003) · Social Science & Medicine · doi:10.1016/s0277-9536(02)00479-3 · Cited by 216 · see citing works
Chronic illness, expert patients and care transition
Taylor, D. G., & Bury, M. R. (2007) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2007.00516.x · Cited by 203 · see citing works
An Ethnographic Study of Stigma and Ageism in Residential Care or Assisted Living
Dobbs, D., Eckert, J. K., Rubinstein, B., Keimig, L., Clark, L., Frankowski, A. C., & Zimmerman, S. (2008) · The Gerontologist · doi:10.1093/geront/48.4.517 · Cited by 204 · see citing works
“The state of being stigmatized contributes to a spoiled identity in which a person is seen to have a failing, shortcoming, or handicap (Charmaz, 2000; Goffman, 1963; Jones et al., 1984).”
BackgroundThe Work of Professional Football
Roderick, M. (2006) · Routledge eBooks · doi:10.4324/9780203014950 · Cited by 203 · see citing works
“For players with long-term injuries, the social conditions in which they exist contribute to their suffering a loss of self (Charmaz 2003).”
BackgroundThe stigmatisation of people with chronic back pain
Holloway, I., Sofaer-Bennett, B., & Walker, J. (2007) · Disability and Rehabilitation · doi:10.1080/09638280601107260 · Cited by 196 · see citing works
“Her experience was similar to one recorded by Charmaz in 1983 [36], suggesting that little had changed since then.”
BackgroundResultIllness representations and lived experience in early-stage dementia
Harman, G., & Clare, L. (2006) · Qualitative Health Research · doi:10.1177/1049732306286851 · Cited by 196 · see citing works
“The vulnerability of self in this context is also derived from potential devaluation by society, the “moral cast” of continuing illness (Charmaz, 2000).”
BackgroundTownsend, A. F., Wyke, S., & Hunt, K. (2006) · Chronic Illness · doi:10.1177/17423953060020031301 · Cited by 194 · see citing works
Bramley, N., & Eatough, V. (2005) · Psychology and Health · doi:10.1080/08870440412331296053 · Cited by 183 · see citing works
“individual’s experience of chronic illness (Charmaz, 2000).”
BackgroundEnacting appreciations: beyond the patient perspective
Pols, J. (2005) · Health Care Analysis · doi:10.1007/s10728-005-6448-6 · Cited by 179 · see citing works
“They try to manage their different social and medical worlds by collecting stories from different (medical) practices (Charmaz, 2000).”
BackgroundBond, J., Dickinson, H. O., Matthews, F. E., Jagger, C., Brayne, C., & CFAS, M. (2006) · European Journal of Ageing · doi:10.1007/s10433-006-0039-8 · Cited by 155 · see citing works
“The third explanation is more likely since it is consistent with different meanings of health captured in sociological and psychological research and the increasing understanding of the ‘disability paradox’ (Albrecht and Devlieger 1999) which highlights the apparent discrepancy between reports of personal well being a…”
BackgroundWhelan, E. (2007) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2007.01024.x · Cited by 133 · see citing works
“As with many chronic illnesses (Barker 2005, Charmaz 2000, Garro 1994, Grace 1995, May, Doyle and Chew-Graham 1999, Rhodes McPhillips-Tangum, Markham and Klenk 1999, Ware 1992, Werner and Malterud 2003), the suffering caused by endometriosis is invisible and subject to social discreditation.”
BackgroundLay-led self-management in chronic illness: a review of the evidence
Newbould, J., Taylor, D. G., & Bury, M. R. (2006) · Chronic Illness · doi:10.1177/17423953060020040401 · Cited by 134 · see citing works
Roderick, M. (2006) · Work Employment and Society · doi:10.1177/0950017006064113 · Cited by 131 · see citing works
“Because a footballer’s sense of self is invested in their physical body, a bad injury is a disruption of the self that is the equivalent to the trauma of a chronic illness (Charmaz, 2003).”
BackgroundL'expertise profane dans les associations de patients, un outil de démocratie sanitaire
Akrich, M., & Rabeharisoa, V. (2012) · Santé Publique · doi:10.3917/spub.121.0069 · Cited by 130 · see citing works
“Au-delà, de nombreux travaux sur les malades chroniques [2] ont accrédité l’idée que les patients, confrontés quotidiennement à leur pathologie et aux problèmes qu’elle engendre, finissent par en devenir de véritables experts.”
BackgroundTalcott Parsons, the Sick Role and Chronic Illness
Varul, M. Z. (2010) · Body & Society · doi:10.1177/1357034x10364766 · Cited by 127 · see citing works
“Regaining the desired status as ‘valid adult’ (Charmaz, 2000: 282) requires, in capitalist societies, the acquisition of esteem through direct or indirect participation in the generalized reciprocity of economic exchange.”
BackgroundThe Problems and Needs of Patients Diagnosed with Cancer and Their Caregivers
Lewandowska, A., Rudzki, G., Lewandowski, T., & Rudzki, S. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18010087 · Cited by 118 · see citing works
Hudak, P. L., Clark, J., HAWKER, G. A., Coyte, P. C., Mahomed, N. N., Kreder, H. J., & Wright, J. G. (2002) · Medical Decision Making · doi:10.1177/0272989x0202200315 · Cited by 121 · see citing works
How to build an “active” patient? The work of AIDS associations in France
Barbot, J. (2005) · Social Science & Medicine · doi:10.1016/j.socscimed.2005.06.025 · Cited by 113 · see citing works
Waiting for a Liver Transplant
Brown, J. R., Sorrell, J. H., McClaren, J., & Creswell, J. W. (2005) · Qualitative Health Research · doi:10.1177/1049732305284011 · Cited by 113 · see citing works
The best experts: The narratives of those who have a genetic condition
Petersen, A. R. (2006) · Social Science & Medicine · doi:10.1016/j.socscimed.2005.11.068 · Cited by 108 · see citing works
Hancock, J., Liu, S. X., Luo, M., & Mieczkowski, H. (2022) · SSRN Electronic Journal · doi:10.2139/ssrn.4053961 · Cited by 101 · see citing works
O’Brien, R., Hart, G. J., & Hunt, K. (2007) · International Journal of Men s Health · doi:10.3149/jmh.0603.178 · Cited by 103 · see citing works
Cerebral implants and Parkinson's disease: A unique form of biographical disruption?
Gisquet, E. (2008) · Social Science & Medicine · doi:10.1016/j.socscimed.2008.09.026 · Cited by 103 · see citing works
“Consequently, chronic illness forces an individual to reflect on the meaning of physical and social existence, and thus causes new facets of his identity to emerge (Charmaz, 1983, 2000).”
BackgroundWatkins-Hayes, C., Pittman-Gay, L., & Beaman, J. (2012) · Social Science & Medicine · doi:10.1016/j.socscimed.2012.02.001 · Cited by 99 · see citing works
“Unlike acute illnesses, chronic illnesses exhibit an “unfolding” or “emergent” quality in which sufferers must continuously negotiate how they understand their conditions and reconcile these beliefs with their health management behaviors (Bury, 1982, 1991; Charmaz, 2000).”
BackgroundInfluentialAdding insult to injury: workplace injury in English professional football
Roderick, M. (2006) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2006.00483.x · Cited by 97 · see citing works
The Routledge Handbook of Disability Activism
Berghs, M. J., Chataika, T., El-Lahib, Y., & Dube, K. (2019) · Routledge eBooks · doi:10.4324/9781351165082 · Cited by 91 · see citing works
"I'm just providing for my family": A qualitative study of stay-at-home fathers.
Rochlen, A. B., Suizzo, M., McKelley, R. A., & Scaringi, V. (2008) · Psychology of Men & Masculinity · doi:10.1037/a0012510 · Cited by 89 · see citing works
Armstrong, N., Koteyko, N., & Powell, J. (2011) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/1363459311425514 · Cited by 86 · see citing works
“Blood glucose levels featured prominently as an indicator of control in many of the messages posted as participants reported unexpectedly high or low levels and described (sometimes at length) their attempts to understand the symptoms they were experiencing and regain some feeling of control (Charmaz, 2000).”
BackgroundDeveloping a Personal and Social Identity With Type 1 Diabetes During Adolescence
COMMISSARIAT, P. V., Kenowitz, J., Ilkowitz, J. T., Heptulla, R. A., & Gonzalez, J. S. (2016) · Qualitative Health Research · doi:10.1177/1049732316628835 · Cited by 86 · see citing works
“Themes related to the extent to which the adolescent integrated T1DM into their identities were consistent with the frameworks of identity by Christiansen (1999) and identity development with a chronic illness (Charmaz, 1995, 2000).”
BackgroundMethodThe Nature of Communication Work During Cancer: Advancing the Theory of Illness Trajectories
Donovan-Kicken, E., Tollison, A. C., & Goins, E. S. (2011) · Health Communication · doi:10.1080/10410236.2011.629405 · Cited by 80 · see citing works
Nicholls, S. (2009) · Journal of Health Psychology · doi:10.1177/1359105308100201 · Cited by 78 · see citing works
Boswell, G. H., Kahana, E. F., & Dilworth‐Anderson, P. (2006) · Journal of Religion and Health · doi:10.1007/s10943-006-9060-7 · Cited by 77 · see citing works
“This issue associated with self-image could compound the stress of having a chronic illness (Charmaz, 2000).”
Resko, S. M., Ellis, J. D., Early, T. J., et al. (2019) · Substance Use & Misuse · doi:10.1080/10826084.2018.1543327 · Cited by 68 · see citing works
“This approach allowed our literature review to serve as a departure point from which to study the data (Charmaz, 2000).”
BackgroundThe Internet and the Experience of Illness
Conrad, P., & Stults, C. D. (2010) · Vanderbilt University Press eBooks · doi:10.2307/j.ctv16h2n9s.14 · Cited by 68 · see citing works
Dunne, E. A., & Quayle, E. (2001) · Journal of Health Psychology · doi:10.1177/135910530100600606 · Cited by 64 · see citing works
“In common with other people who become chronically ill, the women were required to re-frame their sense of personal identity (Charmaz, 2000).”
Background“We're Going to be Survivors”: Couples' Identity Challenges During and After Cancer Treatment
Miller, L. E., & Caughlin, J. P. (2012) · Communication Monographs · doi:10.1080/03637751.2012.739703 · Cited by 64 · see citing works
“As Charmaz (2000) noted, ‘‘People with chronic illnesses must repeatedly rethink how they live and who they are becoming’’ (p. 286).”
BackgroundBad Girls and Fallen Women: Chronic STD Diagnoses as Gateways to Tribal Stigma
Nack, A. (2002) · Symbolic Interaction · doi:10.1525/si.2002.25.4.463 · Cited by 64 · see citing works
Nothing and Everything: Fibromyalgia as a Diagnosis of Exclusion and Inclusion
Boulton, T. (2018) · Qualitative Health Research · doi:10.1177/1049732318804509 · Cited by 63 · see citing works
Nowakowski, A. C. H. (2014) · Health and Quality of Life Outcomes · doi:10.1186/s12955-014-0141-0 · Cited by 62 · see citing works
“Conversely, people in strained relationships may find that their partners become distant and unsupportive as their health declines [54,83].”
BackgroundRoutines in medication management: the perspective of people with chronic conditions
Haslbeck, J. W., & Schaeffer, D. (2009) · Chronic Illness · doi:10.1177/1742395309339873 · Cited by 62 · see citing works
‘Doctors Just Say “Rest and Take Ibuprofen”’
Pike, E. C. J. (2005) · International Review for the Sociology of Sport · doi:10.1177/1012690205057199 · Cited by 58 · see citing works
“Similarly, interactionist approaches have been used to examine experiences of health care (Charmaz, 2000; Curry, 1993; Goffman, 1961, 1963).”
BackgroundMethodFinlay, L., & Molano-Fisher, P. (2007) · Medicine Health Care and Philosophy · doi:10.1007/s11019-007-9116-9 · Cited by 57 · see citing works
Studying the Experience of Chronic Illness through Grounded Theory
Charmaz, K. C. (2010) · Palgrave Macmillan UK eBooks · doi:10.1057/9780230297432_2 · Cited by 57 · see citing works
Self-citationMS and me: exploring the impact of multiple sclerosis on perceptions of self
Mozo-Dutton, L., Simpson, J., & Boot, J. S. (2011) · Disability and Rehabilitation · doi:10.3109/09638288.2011.638032 · Cited by 55 · see citing works
“Many spoke of their frustration and anger at ‘not being able to do things’ and in accordance with existing research, threats to a person’s independence were particularly difficult to manage [53].”
BackgroundInfluentialGilbert, L., & Walker, L. (2009) · Health & Place · doi:10.1016/j.healthplace.2009.06.006 · Cited by 55 · see citing works
“Gilbert and Walker (2002) demonstrate that HIV/AIDS in South Africa reflects both historical and ongoing social inequalities of race, class, gender and place—this is confirmed by more recent studies.”
BackgroundRebman, A. W., Aucott, J. N., Weinstein, E. R., et al. (2015) · Qualitative Health Research · doi:10.1177/1049732315619380 · Cited by 53 · see citing works
“In this framework, chronic illness can be a significant event—a specific type of biographical disruption (Bury, 1982) that “challenges prior meanings, ways of living that have been taken for granted, and ways of knowing self” (Charmaz, 2000, p. 277).”
BackgroundMethodGood care : enacting a complex ideal in long-term psychiatry
Pols, J. J. (2004) · University of Twente Research Information · Cited by 52 · see citing works
Biographical work and returning to employment following a spinal cord injury
Ville, I. (2005) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2005.00445.x · Cited by 51 · see citing works
“…manage illness and stigma in everyday life, try to regain continuity in their disrupted lives and sometimes become innovators by building new meanings and values (among others: Strauss and Glaser 1975, Bury 1982, William 1984, Charmaz and Paterniti, 1999, Charmaz, 2000, Pierret 2003).”
BackgroundLiving with unexplained chest pain
Jerlock, M., Gaston‐Johansson, F., & Danielson, E. (2005) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2005.01195.x · Cited by 51 · see citing works
Multiplicity in Scientific Medicine: The Experience of HIV-Positive Patients
Barbot, J., & Dodier, N. (2002) · Science Technology & Human Values · doi:10.1177/016224390202700304 · Cited by 50 · see citing works
“…the end of the 1960s onward, a number of studies of chronic illness opened up a new approach to the experience of health care, placing the emphasis on the full range of social worlds that, in the patient’s existence, interfere with the worlds of medicine (Baszanger 1986; Conrad 1987; Charmaz 1999).”
BackgroundMeaning and coherence of self and health: An approach based on narratives of life events
Ville, I., & Khlat, M. (2006) · Social Science & Medicine · doi:10.1016/j.socscimed.2006.10.014 · Cited by 49 · see citing works
“…give meaning and coherence to their life history, sometimes innovating by adopting new representations and new values (among others: Bury, 1982; Charmaz, 1983, 1991, 2000; Corbin & Strauss, 1988; Lawton, 2003; Pierret, 2003; Strauss & Glaser, 1975; Ville, 2005; Ville & Paicheler, 2000;…”
BackgroundJones, M., & Pietilä, I. (2020) · Sociology of Health & Illness · doi:10.1111/1467-9566.13064 · Cited by 48 · see citing works
Beyond Models: Understanding the Complexity of Disabled People’s Lives
Shakespeare, T., & Watson, N. (2010) · Palgrave Macmillan UK eBooks · doi:10.1057/9780230297432_4 · Cited by 49 · see citing works
An analysis over time (1990–2000) of the experiences of living with HIV
Pierret, J. (2007) · Social Science & Medicine · doi:10.1016/j.socscimed.2007.06.017 · Cited by 47 · see citing works
On parallel tracks: newly home from hospital—people with stroke describe their expectations
Wottrich, A. W., Åström, K., & Löfgren, M. (2011) · Disability and Rehabilitation · doi:10.3109/09638288.2011.640381 · Cited by 47 · see citing works
“A chronic illness can create a “disruption of the lifeline” [30], the person in the present is separated from his or her history, and his or her conceived self-image for the future is smashed.”
BackgroundBreast Cancer: Exploring the Facts and Holistic Needs during and beyond Treatment
Ng, Z., Ong, M. X., Jegadeesan, T., Deng, S., & Yap, C. T. (2017) · Healthcare · doi:10.3390/healthcare5020026 · Cited by 46 · see citing works
Illness intrusion and psychological adjustment to rheumatic diseases: A social identity framework
Abraído‐Lanza, A. F., & Revenson, T. A. (2006) · Arthritis Care & Research · doi:10.1002/art.21849 · Cited by 45 · see citing works
“Because of these illness-related stressors, chronic diseases such as rheumatic disorders present a number of threats to the self concept, which can adversely affect psychological well-being (3).”
BackgroundContaining acute childhood illness within family life: a substantive grounded theory
Neill, S. (2010) · Journal of Child Health Care · doi:10.1177/1367493510380078 · Cited by 44 · see citing works
“…illness management as ‘back stage’ work in Goffman’s (1959) dramaturgical analysis terms, keeping it concealed within family life, echoing the private nature of suffering identified in research around chronic illness (Charles and Harris, 2007; Charmaz, 1983, 2000, 2002; Williams 1993, 2000).”
BackgroundTo work or not to work? The occupational trajectories of wheelchair users
Ville, I., & Winance, M. (2006) · Disability and Rehabilitation · doi:10.1080/09638280500192561 · Cited by 41 · see citing works
Cox, C. L., Zhu, L., Ojha, R. P., Li, C., Srivastava, D. K., Riley, B., Hudson, M. M., & Robison, L. L. (2016) · Journal of Cancer Survivorship · doi:10.1007/s11764-016-0520-0 · Cited by 42 · see citing works
“Chronic illness post-cancer in adults can cause feelings of loss of control, anger, sadness, guilt, and confusion [46, 47].”
Only when I Cough? Adults’ Disclosure of Cystic Fibrosis
Lowton, K. (2004) · Qualitative Health Research · doi:10.1177/1049732303260675 · Cited by 42 · see citing works
“The impact of felt (perceived) or enacted (experienced) stigma in chronic illness has also received much attention (see, for example, Charmaz, 2000; Jacoby, 1994; Scambler & Hopkins, 1986, 1988).”
BackgroundLong‐term ill‐health, poverty and ethnicity
Harriss, K., & Salway, S. (2009) · Ethnicity and Inequalities in Health and Social Care · doi:10.1108/17570980200900022 · Cited by 41 · see citing works
“These findings are consistent with Charmaz’s (2000) assertion that people need to learn what a health condition means in order to adapt to it.”
BackgroundResultInfluentialPerceived Stigma Among People With Chronic Health Conditions
Brown, R. L. (2014) · Research on Aging · doi:10.1177/0164027514533133 · Cited by 39 · see citing works
“…can supplant the negative effects of even severe functional restraints (Cahill & Eggleston, 1995; Joachim & Acorn, 2000; Lock & Scheper-Hughes, 1996) and help to counteract discriminatory experiences among people with chronic health conditions (Charmaz, 2000; Joachim & Acorn, 2000).”
BackgroundMethodInfluentialScheinfeld, E. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18137179 · Cited by 38 · see citing works
“Charmaz elaborates on these ideas of shame and stigma since illness makes people vulnerable to negative social identifications, but also their own selfdefinitions [37].”
BackgroundMiller, L. E. (2015) · Southern Communication Journal · doi:10.1080/1041794x.2014.936971 · Cited by 37 · see citing works
How do You Feel Doctor? An Analysis of Emotional Aspects of Routine Professional Medical Work
Nettleton, S., Burrows, R., & Watt, I. S. (2008) · Social Theory & Health · doi:10.1057/palgrave.sth.8700112 · Cited by 37 · see citing works
Neill, S., Cowley, S. A., & Williams, C. (2011) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2011.11.007 · Cited by 36 · see citing works
Lai, J., Garcia, S. F., Salsman, J. M., Rosenbloom, S. K., & Cella, D. F. (2011) · Quality of Life Research · doi:10.1007/s11136-011-9935-2 · Cited by 35 · see citing works
Perceptions of cause and control in people with Parkinson's disease
Eccles, F. J. R., Murray, C. D., & Simpson, J. (2010) · Disability and Rehabilitation · doi:10.3109/09638288.2010.533241 · Cited by 34 · see citing works
“For instance, PD could be ‘at the back of your mind’ (Frances) without necessarily dwelling on it and certain illness related tasks, such as taking medication or avoiding certain foods became normalised [11].”
BackgroundChecton, M. G., Magsamen‐Conrad, K., Venetis, M. K., & Greene, K. L. (2014) · Health Education & Behavior · doi:10.1177/1090198114557121 · Cited by 35 · see citing works
“There are likely differences in how various cultural groups appraise chronic illness and its management (Charmaz, 2000).”
BackgroundNowakowski, A. C. H., & Sumerau, J. E. (2019) · Sociology of Health & Illness · doi:10.1111/1467-9566.12849 · Cited by 36 · see citing works
Maley, M., Warren, B. S., & Devine, C. M. (2013) · Journal of Nutrition Education and Behavior · doi:10.1016/j.jneb.2012.10.009 · Cited by 33 · see citing works
Handbook of Medical Sociology, Sixth Edition
Conrad, P., Bird, C., Fremont, A., & Timmermans, S. (2010) · Vanderbilt University Press eBooks · doi:10.2307/j.ctv16h2n9s · Cited by 35 · see citing works
Wouters, E. (2012) · Social Theory & Health · doi:10.1057/sth.2012.12 · Cited by 31 · see citing works
Resilience in low-income African American women living and aging with HIV
Subramaniam, S., Camacho, L. M., Carolan, M., & López‐Zerón, G. (2016) · Journal of Women & Aging · doi:10.1080/08952841.2016.1256735 · Cited by 32 · see citing works
“In essence, they were able to make the transformation from being a “sick” person to incorporating the illness status into their identity (Charmaz, 2000).”
BackgroundControlling DeathCompromising Life: Chronic Disease, Prognostication, and the New Biotechnologies
Maynard, R. J. (2006) · Medical Anthropology Quarterly · doi:10.1525/maq.2006.20.2.212 · Cited by 32 · see citing works
Viswanathan, H. N., & Lambert, B. L. (2005) · Research in Social and Administrative Pharmacy · doi:10.1016/j.sapharm.2004.12.007 · Cited by 32 · see citing works
Nilsson, C., Bartfai, A., & Löfgren, M. (2010) · Disability and Rehabilitation · doi:10.3109/09638288.2010.528141 · Cited by 31 · see citing works
“Research has shown how a crisis of a sudden illness throws people out of their ordinary life: the controllable becomes uncontrollable [27].”
BackgroundResultInfluentialFranklin, M., Lewis, S. C., Willis, K. F., Rogers, A. E., Venville, A., & Smith, L. D. (2019) · Social Science & Medicine · doi:10.1016/j.socscimed.2019.05.031 · Cited by 30 · see citing works
Self, agency and the surgical collective: detachment
Moreira, T. (2004) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2004.00377.x · Cited by 31 · see citing works
Coming Back Normal: The Process of Self-Recovery in Those With Schizophrenia
Shea, J. M. (2010) · Journal of the American Psychiatric Nurses Association · doi:10.1177/1078390309359197 · Cited by 30 · see citing works
“Being labeled with a stigmatizing illness can have devastating consequences for the individual’s self-identity, which in turn may also affect the course of illness (Charmaz, 2000; Grytten & Maseide, 2006; Lee, Kochman, & Sikkema, 2002).”
BackgroundHealth Information on the Internet
Rozenkranz, N., Eckhardt, A., Kühne, M., & Rosenkranz, C. (2013) · Business & Information Systems Engineering · doi:10.1007/s12599-013-0274-4 · Cited by 29 · see citing works
“This is also highlighted by studies which identify a connection between the management of chronic illnesses and a heightened need for information of those affected (Allen et al. 2004; Charmaz 2000; Coulter and Fitzpatrick 2000).”
BackgroundAtkin, K. M., Stapley, S., & Easton, A. (2010) · Social Science & Medicine · doi:10.1016/j.socscimed.2010.04.011 · Cited by 28 · see citing works
“This process, however, is not simply a reflection of individual agency; beliefs about illness are constructed in relation to broader social, cultural andmoral values (Charmaz, 2000).”
BackgroundBewältigung chronischer Krankheit
Schaeffer, D., & Haslbeck, J. W. (2016) · Springer eBooks · doi:10.1007/978-3-658-11010-9_16 · Cited by 30 · see citing works
Jefferson, L., Atkin, K. M., Sheridan, R., Oliver, S. E., Macleod, U., Hall, G. D., Forbes, S., Green, T., Allgar, V. L., & Knapp, P. (2019) · British Journal of General Practice · doi:10.3399/bjgp19x706625 · Cited by 28 · see citing works
“33 Individual agency is realised socially 34 and experience is defined and realised through social negotiation, which includes social and economic barriers.”
Sociological theory and chronic illness: Current perspectives and debates
Bury, M. R. (2002) · Österreichische Zeitschrift für Soziologie · doi:10.1007/s11614-002-0017-0 · Cited by 28 · see citing works
Fostering Recovery from Life-transforming Mental Health Disorders: A Synthesis and Model
Green, C. A. (2004) · Social Theory & Health · doi:10.1057/palgrave.sth.8700036 · Cited by 27 · see citing works
“Common responses to initial illness symptoms, to receiving diagnoses, and to functional limitations and impairments include complicated processes of denial, acceptance, and adaptation, although not necessarily in that order (Charmaz, 1991; 1995; 2000).”
BackgroundThe Structure of Lay Consultation Networks:
Stoller, E. P., & Wisniewski, A. A. (2003) · Journal of Aging and Health · doi:10.1177/0898264303253504 · Cited by 28 · see citing works
Swell Foundations: Fundamental Social Causes and Chronic Inflammation
Nowakowski, A. C. H., & Sumerau, J. E. (2015) · Sociological Spectrum · doi:10.1080/02732173.2014.1000554 · Cited by 27 · see citing works
“Likewise, people who have lived with specific health conditions for long periods of time may gain valuable understanding of how to manage their diseases (Bury 1991; Charmaz 2000).”
BackgroundSensemaking through the storm: How postpartum depression shapes personal work–family narratives.
Gabriel, A. S., Ladge, J. J., Little, L. M., MacGowan, R. L., & Stillwell, E. E. (2023) · Journal of Applied Psychology · doi:10.1037/apl0001125 · Cited by 29 · see citing works
Löfvenmark, I., Norrbrink, C., Nilsson-Wikmar, L. B., et al. (2015) · Disability and Rehabilitation · doi:10.3109/09638288.2015.1106596 · Cited by 26 · see citing works
“However, some people tend to demonstrate more resistance and can develop positive self-identities and beneficial coping strategies [33] despite or even because of their injuries.”
BackgroundPsychosocial experiences and needs of women diagnosed with cervical cancer in Ethiopia
Kebede, W., & Kebede, K. (2016) · International Social Work · doi:10.1177/0020872815617993 · Cited by 26 · see citing works
“Chronic illness can bring feelings of guilt, loss of control, anger, sadness, confusion, and fear (Charmaz, 2000; Stanton et al., 2001).”
BackgroundPols, J. J. (2012) · Cited by 24 · see citing works
- Authors
- Charmaz, K.
- Corresponding author
- Charmaz, Kathy
- ORCID
- Charmaz, Kathy
- Venue
- Handbook of Social Studies in Health and Medicine
- Publisher
- SAGE Publications Ltd
- Published
- 2000
- Pages
- 277-292
- OpenAlex
- W2487022057
- Cited by
- 352
- References
- 0
- Citations by year
- 2026: 8 · 2025: 7 · 2024: 9 · 2023: 17 · 2022: 14 · 2021: 7 · 2020: 62 · 2019: 19 · 2018: 10 · 2017: 9 · 2016: 20 · 2015: 11 · 2014: 15 · 2013: 13 · 2012: 14
- FWCI
- 26.85
- Type
- book chapter
- Language
- en
- Open access
- closed
- Locations
- SAGE Publications Ltd eBooks (publishedVersion)
- Topics
- Health Sciences › Medicine › Epidemiology › Chronic Disease Management Strategies
- Health Sciences › Medicine › Psychiatry and Mental health › Medicine, History, and Philosophy
- Social Sciences › Education › Qualitative research in health
- Keywords
- chronic disease, lived experience, patient experience
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