Cited by 14

Clinical Data Warehousing: A Scoping Review

Wang, Zhan, Craven, Catherine, Syed, Mahanaz, Greer, Melody, Seker, Emel, Syed, Shorab, Zozus, Meredith Nahm·2024·Journal of the Society for Clinical Data Management

Abstract

INTRODUCTION: A clinical data warehouse (CDW) is a powerfulresource that supports clinical decision-making and secondary data use byintegrating and presenting heterogeneous data sources. Despite considerableeffort within healthcare organizations (HCOs) to develop CDWs, scientific literaturesurrounding clinical data warehousing methods is limited.OBJECTIVES: The scoping review aims to characterize thecurrent state of CDW methods within HCOs, to identify extant evidence forpractice recommendations, and ultimately to advance the design, implementation,and use of CDWs. METHODS: The review encompasses CDW articles publishedfrom 2011 through 2021 identified through a systematic PubMed search. Articleabstracts were systematically screened by two authors. Full-text articles werereviewed and abstracted independently by two authors with discrepanciesresolved through consensus. RESULTS: 137 articles, from 55 journals and 3conference proceedings, were categorized and analyzed. Areas for increased CDW focus include dataintegration of increased data types and sources; extract-transform-load (ETL)optimization; data quality improvement processes; semantic data representation;support tools/documentation and data literacy efforts for staff and end-users;data governance; business model/financial support for CDWs including staffing. CONCLUSION: Thestudy indicates the topics that have been significantly developed and theaspects needing additional focus and reporting in CDW between existing generaldata management best practices and recently articulated requirements forresearch data. Also, more multi-site and multi-aspect studies are needed tofoster maturity at CDWs.

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  • The Data Architecture Team uses ETL methods to load diverse data sources, including hospital EMR-sourced demographic, behavioral, and clinical data, geospatial data linked to patients' geographic identifiers, and census-tract level SDoH data.

    “The Data Architecture Team uses Extract, Transform, Load (ETL) methods29 to load diverse data sources, including hospital EMR-sourced demographic, behavioral, and clinical data, geospatial data linked to patients’ geographic identifiers, and census-tract level SDoH data.”

    From X-CART: a multimodal real-world data pipeline for explainable AI-driven patient navigation in radiation oncology (2026) · cites this paper as [29]

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  1. [1]Norton SL, Buchanan AV, Rossmann DL, Chakraborty R, Weiss KM. Data entry errors in an on-line operation. Comput Biomed Res. 1981; 14(2): 179– 98. DOI: 10.1016/0010-4809(81)90035-5 7273719 · DOI
  2. [3]MacKenzie SL, Wyatt MC, Schuff R, Tenenbaum JD, Anderson N. Practices and perspectives on building integrated data repositories: results from a 2010 CTSA survey. J Am Med Inform Assoc. 2012; 19(e1): e119– 24. DOI: 10.1136/amiajnl-2011-000508 22437072 PMC3392848 · DOI
  3. [4]Inmon WH. Building the data warehouse. John Wiley & Sons; 2005.
  4. [7]Arksey H, O’Malley L. Scoping studies: towards a methodological framework. International Journal of Social Research Methodology. 2005; 8(1): 19– 32. DOI: 10.1080/1364557032000119616 · DOI · Paper page
  5. [8]Levac D, Colquhoun H, O’Brien KK. Scoping studies: advancing the methodology. Implementation Science. 2010; 5(1): 1– 9. DOI: 10.1186/1748-5908-5-69 20854677 PMC2954944 · DOI · Paper page
  6. [9]National Institutes of Health. National Library of Medicine. National Center for Biotechnology Information. [cited 2022 Oct 4]. Available from: https://pubmed.ncbi.nlm.nih.gov/.
  7. [10]Fiorini N, Lipman DJ, Lu Z. Towards PubMed 2.0. Elife. 2017; 6. DOI: 10.7554/eLife.28801 PMC5662282 29083299 · DOI
  8. [14]Hu H, Correll M, Kvecher L, Osmond M, Clark J, Bekhash A, DW4TR: A data warehouse for translational research. J Biomed Inform. 2011; 44(6): 1004– 19. DOI: 10.1016/j.jbi.2011.08.003 21872681 · DOI
  9. [15]Post A, Kurc T, Overcash M, Cantrell D, Morris T, Eckerson K, A temporal abstraction-based extract, transform and load process for creating registry databases for research. AMIA Jt Summits Transl Sci Proc. 2011; 2011: 46– 50. 22211179 PMC3248751
  10. [16]Späth MB, Grimson J. Applying the archetype approach to the database of a biobank information management system. Int J Med Inform. 2011; 80(3): 205– 26. DOI: 10.1016/j.ijmedinf.2010.11.002 21131230 · DOI
  11. [17]Wade TD, Hum RC, Murphy JR. A dimensional bus model for integrating clinical and research data. J Am Med Inform Assoc. 2011; 18 Suppl 1(Suppl 1): i96– 102. DOI: 10.1136/amiajnl-2011-000339 21856687 PMC3241170 · DOI
  12. [18]de Mul M, Alons P, van der Velde P, Konings I, Bakker J, Hazelzet J. Development of a clinical data warehouse from an intensive care clinical information system. Comput Methods Programs Biomed. 2012; 105(1): 22– 30. DOI: 10.1016/j.cmpb.2010.07.002 20728956 · DOI
  13. [19]Li Z, Wen J, Zhang X, Wu C, Li Z, Liu L. ClinData Express–a metadata driven clinical research data management system for secondary use of clinical data. AMIA Annu Symp Proc. 2012; 2012: 552– 7. 23304327 PMC3540469
  14. [20]Byrd JB, Vigen R, Plomondon ME, Rumsfeld JS, Box TL, Fihn SD, Data quality of an electronic health record tool to support VA cardiac catheterization laboratory quality improvement: the VA Clinical Assessment, Reporting, and Tracking System for Cath Labs (CART) program. Am Heart J. 2013; 165(3): 434– 40. DOI: 10.1016/j.ahj.2012.12.009 23453115 · DOI
  15. [21]Choi IY, Park S, Park B, Chung BH, Kim CS, Lee HM, Development of prostate cancer research database with the clinical data warehouse technology for direct linkage with electronic medical record system. Prostate Int. 2013; 1(2): 59– 64. DOI: 10.12954/PI.12015 24223403 PMC3814112 · DOI
  16. [22]Franke T, Gruetz R, Dickmann F. Functional requirements for a central research imaging data repository. Stud Health Technol Inform. 2013; 192: 298– 302. 23920564
  17. [23]Hong MK, Yao HH, Pedersen JS, Peters JS, Costello AJ, Murphy DG, Error rates in a clinical data repository: lessons from the transition to electronic data transfer–a descriptive study. BMJ Open. 2013; 3(5). DOI: 10.1136/bmjopen-2012-002406 PMC3657671 23793682 · DOI
  18. [24]Manning JD, Marciano BE, Cimino JJ. Visualizing the data – using lifelines2 to gain insights from data drawn from a clinical data repository. AMIA Jt Summits Transl Sci Proc. 2013; 2013: 168– 72. PMC3845771 24303258
  19. [25]Post AR, Kurc T, Cholleti S, Gao J, Lin X, Bornstein W, The analytic information warehouse (AIW): a platform for analytics using electronic health record data. J Biomed Inform. 2013; 46(3): 410– 24. DOI: 10.1016/j.jbi.2013.01.005 23402960 PMC3660520 · DOI
  20. [26]Weber GM. Federated queries of clinical data repositories: the sum of the parts does not equal the whole. J Am Med Inform Assoc. 2013; 20(e1): e155– 61. DOI: 10.1136/amiajnl-2012-001299 23349080 PMC3715334 · DOI
  21. [27]Ardini MA, Pan H, Qin Y, Cooley PC. Sample and data sharing: observations from a central data repository. Clin Biochem. 2014; 47(4–5): 252– 7. DOI: 10.1016/j.clinbiochem.2013.11.014 24291049 PMC3959283 · DOI
  22. [28]Cimino JJ, Remennick L. Adapting a Clinical Data Repository to ICD-10-CM through the use of a Terminology Repository. AMIA Annu Symp Proc. 2014; 2014: 405– 13. 25954344 PMC4419915
  23. [29]Danciu I, Cowan JD, Basford M, Wang X, Saip A, Osgood S, Secondary use of clinical data: the Vanderbilt approach. J Biomed Inform. 2014; 52: 28– 35. DOI: 10.1016/j.jbi.2014.02.003 24534443 PMC4133331 · DOI
  24. [30]Haque W, Urquhart B, Berg E, Dhanoa R. Using business intelligence to analyze and share health system infrastructure data in a rural health authority. JMIR Med Inform. 2014; 2(2): e16. DOI: 10.2196/medinform.3590 25599727 PMC4288065 · DOI
  25. [31]Horvath MM, Rusincovitch SA, Brinson S, Shang HC, Evans S, Ferranti JM. Modular design, application architecture, and usage of a self-service model for enterprise data delivery: the Duke Enterprise Data Unified Content Explorer (DEDUCE). J Biomed Inform. 2014; 52: 231– 42. DOI: 10.1016/j.jbi.2014.07.006 25051403 PMC4335712 · DOI
  26. [32]Laws R, Gillespie S, Puro J, Van Rompaey S, Quach T, Carroll J, The Community Health Applied Research Network (CHARN) Ddata warehouse: a resource for patient-centered outcomes research and quality improvement in underserved, safety net populations. eGEMS (Wash DC). 2014; 2(3): 1097. DOI: 10.13063/2327-9214.1097 25848623 PMC4371501 · DOI
  27. [33]Lozano-Rubí R, Pastor X, Lozano E. OWLing clinical data repositories with the ontology web language. JMIR Med Inform. 2014; 2(2): e14. DOI: 10.2196/medinform.3023 25599697 PMC4288111 · DOI
  28. [34]Ross TR, Ng D, Brown JS, Pardee R, Hornbrook MC, Hart G, The HMO research network virtual data warehouse: a public data model to support collaboration. eGEMS (Wash DC). 2014; 2(1): 1049. DOI: 10.13063/2327-9214.1049 25848584 PMC4371424 · DOI
  29. [35]Wang Y, Pakhomov S, Dale JL, Chen ES, Melton GB. Application of HL7/LOINC document ontology to a university-affiliated integrated health system research clinical data repository. AMIA Jt Summits Transl Sci Proc. 2014; 2014: 230– 4. 25954591 PMC4419769
  30. [36]Ghany A, Keshavjee K. A platform to collect structured data from multiple EMRs. Stud Health Technol Inform. 2015; 208: 142– 6. 25676963
  31. [37]Herbst K, Juvekar S, Bhattacharjee T, Bangha M, Patharia N, Tei T, The INDEPTH data repository: an international resource for longitudinal population and health data from health and demographic surveillance systems. J Empir Res Hum Res Ethics. 2015; 10(3): 324– 33. DOI: 10.1177/1556264615594600 26297754 PMC4547208 · DOI
  32. [38]Li D, Rastegar Mojarad M, Li Y, Sohn S, Mehrabi S, Komandur Elayavilli R, A frequency-based strategy of obtaining sentences from clinical data repository for crowdsourcing. Stud Health Technol Inform. 2015; 216: 1033– 4. DOI: 10.1145/2808719.2808752 26262333 PMC5859924 · DOI
  33. [39]Marco-Ruiz L, Moner D, Maldonado JA, Kolstrup N, Bellika JG. Archetype-based data warehouse environment to enable the reuse of electronic health record data. Int J Med Inform. 2015; 84(9): 702– 14. DOI: 10.1016/j.ijmedinf.2015.05.016 26094821 · DOI
  34. [40]Mate S, Köpcke F, Toddenroth D, Martin M, Prokosch HU, Bürkle T, Ontology-based data integration between clinical and research systems. PLoS One. 2015; 10(1): e0116656. DOI: 10.1371/journal.pone.0116656 25588043 PMC4294641 · DOI
  35. [41]Pittman CA, Miranpuri AS. Neurosurgery clinical registry data collection utilizing Informatics for integrating biology and the bedside and electronic health records at the University of Rochester. Neurosurg Focus. 2015; 39(6): E16. DOI: 10.3171/2015.9.FOCUS15382 26621414 · DOI
  36. [42]Price LE, Shea K, Gephart S. The Veterans Affairs’s corporate data warehouse: uses and implications for nursing research and practice. Nurs Adm Q. 2015; 39(4): 311– 8. DOI: 10.1097/NAQ.0000000000000118 26340242 PMC10071958 · DOI
  37. [43]Weber GM. Federated queries of clinical data repositories: scaling to a national network. J Biomed Inform. 2015; 55: 231– 6. DOI: 10.1016/j.jbi.2015.04.012 25957825 PMC4464929 · DOI
  38. [44]Bauer CR, Ganslandt T, Baum B, Christoph J, Engel I, Löbe M, Integrated Data Repository Toolkit (IDRT). A suite of programs to facilitate health analytics on heterogeneous medical data. Methods Inf Med. 2016; 55(2): 125– 35. DOI: 10.3414/ME15-01-0082 26534843 · DOI
  39. [45]Chelico JD, Wilcox AB, Vawdrey DK, Kuperman GJ. Designing a clinical data warehouse architecture to support quality improvement initiatives. AMIA Annu Symp Proc. 2016; 2016: 381– 90. 28269833 PMC5333328
  40. [46]Haarbrandt B, Tute E, Marschollek M. Automated population of an i2b2 clinical data warehouse from an openEHR-based data repository. J Biomed Inform. 2016; 63: 277– 94. DOI: 10.1016/j.jbi.2016.08.007 27507090 · DOI
  41. [47]Kaspar M, Ertl M, Fette G, Dietrich G, Toepfer M, Angermann C, Data linkage from clinical to study databases via an R Data warehouse user interface. Experiences from a large clinical follow-up study. Methods Inf Med. 2016; 55(4): 381– 6. DOI: 10.3414/ME15-02-0015 27405886 · DOI
  42. [48]Langer SG. DICOM data warehouse: part 2. J Digit Imaging. 2016; 29(3): 309– 13. DOI: 10.1007/s10278-015-9830-4 26518194 PMC4879026 · DOI
  43. [49]Min L, Liu J, Lu X, Duan H, Qiao Q. An implementation of clinical data repository with openEHR approach: from data modeling to architecture. Stud Health Technol Inform. 2016; 227: 100– 5. 27440296
  44. [50]Turley CB, Obeid J, Larsen R, Fryar KM, Lenert L, Bjorn A, Leveraging a statewide clinical data warehouse to expand boundaries of the learning health system. eGEMS (Wash DC). 2016; 4(1): 1245. DOI: 10.13063/2327-9214.1245 28154834 PMC5226381 · DOI
  45. [51]Boussadi A, Zapletal E. A Fast Healthcare Interoperability Resources (FHIR) layer implemented over i2b2. BMC Med Inform Decis Mak. 2017; 17(1): 120. DOI: 10.1186/s12911-017-0513-6 28806953 PMC5557515 · DOI
  46. [52]Jiang G, Kiefer RC, Sharma DK, Prud’hommeaux E, Solbrig HR. A consensus-based approach for harmonizing the OHDSI common data model with HL7 FHIR. Stud Health Technol Inform. 2017; 245: 887– 91. 29295227 PMC5939955
  47. [53]Kim HS, Kim H, Jeong YJ, Kim TM, Yang SJ, Baik SJ, Development of clinical data mart of HMG-CoA reductase inhibitor for varied clinical research. Endocrinol Metab (Seoul). 2017; 32(1): 90– 8. DOI: 10.3803/EnM.2017.32.1.90 28256114 PMC5368128 · DOI
  48. [54]Majeed RW, Stöhr MR, Thiemann VS, Röhrig R, Günther A. Asynchronous query distribution between multiple i2b2 research data warehouses: Li2b2-SHRINE. Stud Health Technol Inform. 2017; 245: 1276. 29295361
  49. [55]Post AR, Ai M, Kalsanka Pai A, Overcash M, Stephens DS. Architecting the data loading process for an i2b2 research data warehouse: full reload versus incremental updating. AMIA Annu Symp Proc. 2017; 2017: 1411– 20. 29854210 PMC5977612
  50. [56]Thiemann VS, Xu T, Röhrig R, Majeed RW. Automated report generation for research data repositories: from i2b2 to PDF. Stud Health Technol Inform. 2017; 245: 1289. 29295374
  51. [57]Yamamoto K, Ota K, Akiya I, Shintani A. A pragmatic method for transforming clinical research data from the research electronic data capture “REDCap” to Clinical Data Interchange Standards Consortium (CDISC) Study Data Tabulation Model (SDTM): development and evaluation of REDCap2SDTM. J Biomed Inform. 2017; 70: 65– 76. DOI: 10.1016/j.jbi.2017.05.003 28487263 · DOI
  52. [58]Brundin-Mather R, Soo A, Zuege DJ, Niven DJ, Fiest K, Doig CJ, Secondary EMR data for quality improvement and research: A comparison of manual and electronic data collection from an integrated critical care electronic medical record system. J Crit Care. 2018; 47: 295– 301. DOI: 10.1016/j.jcrc.2018.07.021 30099330 · DOI
  53. [59]Huser V, Kahn MG, Brown JS, Gouripeddi R. Methods for examining data quality in healthcare integrated data repositories. Pac Symp Biocomput. 2018; 23: 628– 33. DOI: 10.1142/9789813235533_0059 29218922 PMC13463562 · DOI
  54. [60]Klann JG, Phillips LC, Herrick C, Joss MAH, Wagholikar KB, Murphy SN. Web services for data warehouses: OMOP and PCORnet on i2b2. J Am Med Inform Assoc. 2018; 25(10): 1331– 8. DOI: 10.1093/jamia/ocy093 30085008 PMC6188504 · DOI
  55. [61]Linkov F, Silverstein JC, Davis M, Crocker B, Hao D, Schneider A, Integration of cancer registry data into the text information extraction system: leveraging the structured data import tool. J Pathol Inform. 2018; 9: 47. DOI: 10.4103/jpi.jpi_38_18 30662793 PMC6319041 · DOI
  56. [62]Cossin S, Lebrun L, Aymeric N, Mougin F, Lambert M, Diallo G, SmartCRF: A prototype to visualize, search and annotate an electronic health record from an i2b2 clinical data warehouse. Stud Health Technol Inform. 2019; 264: 1445– 6. 31438173
  57. [63]Dietrich G, Krebs J, Liman L, Fette G, Ertl M, Kaspar M, Replicating medication trend studies using ad hoc information extraction in a clinical data warehouse. BMC Med Inform Decis Mak. 2019; 19(1): 15. DOI: 10.1186/s12911-018-0729-0 30658633 PMC6339317 · DOI
  58. [64]Gabetta M, Mirabelli M, Klersy C, Musella V, Rizzo G, Pedrazzoli P, An extension of the i2b2 data warehouse to support REDCap dynamic data pull. Stud Health Technol Inform. 2019; 258: 21– 5. 30942706
  59. [65]Gardner BJ, Pedersen JG, Campbell ME, McClay JC. Incorporating a location-based socioeconomic index into a de-identified i2b2 clinical data warehouse. J Am Med Inform Assoc. 2019; 26(4): 286– 93. DOI: 10.1093/jamia/ocy172 30715327 PMC6402306 · DOI
  60. [66]Henley-Smith S, Boyle D, Gray K. Improving a secondary use health data warehouse: proposing a multi-level data quality framework. eGEMS (Wash DC). 2019; 7(1): 38. DOI: 10.5334/egems.298 31531384 PMC6676919 · DOI
  61. [67]Looten V, Kong Win Chang L, Neuraz A, Landau-Loriot MA, Vedie B, Paul JL, What can millions of laboratory test results tell us about the temporal aspect of data quality? Study of data spanning 17 years in a clinical data warehouse. Comput Methods Programs Biomed. 2019; 181: 104825. DOI: 10.1016/j.cmpb.2018.12.030 30612785 · DOI
  62. [68]Xafis V, Labude MK. Openness in big data and data repositories: the application of an ethics framework for big data in health and research. Asian Bioeth Rev. 2019; 11(3): 255– 73. DOI: 10.1007/s41649-019-00097-z 33717315 PMC7747413 · DOI
  63. [69]Antonio MG, Schick-Makaroff K, Doiron JM, Sheilds L, White L, Molzahn A. Qualitative data management and analysis within a data repository. West J Nurs Res. 2020; 42(8): 640– 8. DOI: 10.1177/0193945919881706 31665999 · DOI
  64. [70]Broekstra R, Aris-Meijer J, Maeckelberghe E, Stolk R, Otten S. Trust in centralized large-scale data repository: a qualitative analysis. J Empir Res Hum Res Ethics. 2020; 15(4): 365– 78. DOI: 10.1177/1556264619888365 31738093 PMC7488827 · DOI
  65. [71]Campion TR, Craven CK, Dorr DA, Knosp BM. Understanding enterprise data warehouses to support clinical and translational research. J Am Med Inform Assoc. 2020; 27(9): 1352– 8. DOI: 10.1093/jamia/ocaa089 32679585 PMC7647350 · DOI
  66. [72]Cancé C, Madiot PE, Lenne C, Artemova S, Cohard B, Bodin M, Cohort creation and visualization using graph model in the PREDIMED health data warehouse. Stud Health Technol Inform. 2020; 270: 108– 12. 32570356
  67. [73]González L, Pérez-Rey D, Alonso E, Hernández G, Serrano P, Pedrera M, Building an i2b2-based population repository for clinical research. Stud Health Technol Inform. 2020; 270: 78– 82. 32570350
  68. [74]Greenwood AK, Montgomery KS, Kauer N, Woo KH, Leanza ZJ, Poehlman WL, The AD knowledge portal: a repository for multi-omic data on Alzheimer’s disease and aging. Curr Protoc Hum Genet. 2020; 108(1): e105. DOI: 10.1002/cphg.105 33085189 PMC7587039 · DOI · Paper page
  69. [75]Kaspar M, Liman L, Ertl M, Fette G, Seidlmayer LK, Schreiber L, Unlocking the PACS DICOM domain for its use in clinical research data warehouses. J Digit Imaging. 2020; 33(4): 1016– 25. DOI: 10.1007/s10278-020-00334-0 32314069 PMC7522145 · DOI
  70. [76]Liu S, Wang Y, Wen A, Wang L, Hong N, Shen F, Implementation of a cohort retrieval system for clinical data repositories using the observational medical outcomes partnership common data model: proof-of-concept system validation. JMIR Med Inform. 2020; 8(10): e17376. DOI: 10.2196/17376 33021486 PMC7576539 · DOI
  71. [77]Moore SM, Musil CM, Alder ML, Pignatiello G, Higgins P, Webel A, Building a research data repository for chronic condition self-management using harmonized data. Nurs Res. 2020; 69(4): 254– 63. DOI: 10.1097/NNR.0000000000000435 32205788 · DOI
  72. [78]O’Neil ME, Harik JM, McDonagh MS, Cheney TP, Hsu FC, Cameron DC, Development of the PTSD-repository: a publicly available repository of randomized controlled trials for posttraumatic stress disorder. J Trauma Stress. 2020; 33(4): 410– 9. DOI: 10.1002/jts.22520 32667076 · DOI
  73. [79]Ozaydin B, Zengul F, Oner N, Feldman SS. Healthcare research and analytics data infrastructure solution: a data warehouse for health services research. J Med Internet Res. 2020; 22(6): e18579. DOI: 10.2196/18579 32496199 PMC7303827 · DOI
  74. [80]Reimer AP, Milinovich A. Using UMLS for electronic health data standardization and database design. J Am Med Inform Assoc. 2020; 27(10): 1520– 8. DOI: 10.1093/jamia/ocaa176 32940707 PMC7647352 · DOI
  75. [81]Samra H, Li A, Soh B. GENE2D: A NoSQL integrated data repository of genetic disorders data. Healthcare (Basel). 2020; 8(3). DOI: 10.3390/healthcare8030257 PMC7551627 32781728 · DOI
  76. [82]Uddin MA, Stranieri A, Gondal I, Balasubramanian V. Rapid health data repository allocation using predictive machine learning. Health Informatics J. 2020; 26(4): 3009– 36. DOI: 10.1177/1460458220957486 32969296 · DOI
  77. [83]Yu YW, Weber GM. Balancing accuracy and privacy in federated queries of clinical data repositories: algorithm development and validation. J Med Internet Res. 2020; 22(11): e18735. DOI: 10.2196/18735 33141090 PMC7671849 · DOI
  78. [84]Zubke M, Katzensteiner M, Bott OJ. Integration of unstructured data into a clinical data warehouse for kidney transplant screening – challenges & solutions. Stud Health Technol Inform. 2020; 270: 272– 6. 32570389
  79. [85]Das S, Abou-Haidar R, Rabalais H, Sun S, Rosli Z, Chatpar K, The C-BIG repository: an institution-level open science platform. Neuroinformatics; 2021. DOI: 10.1007/s12021-021-09516-9 PMC9537233 34003431 · DOI
  80. [86]Epstein RH, Hofer IS, Salari V, Gabel E. Successful implementation of a perioperative data warehouse using another hospital’s published specification from Epic’s electronic health record system. Anesth Analg. 2021; 132(2): 465– 74. DOI: 10.1213/ANE.0000000000004806 32332291 · DOI
  81. [87]Fleuren LM, Dam TA, Tonutti M, de Bruin DP, Lalisang RCA, Gommers D, The Dutch data warehouse, a multicenter and full-admission electronic health records database for critically ill COVID-19 patients. Crit Care. 2021; 25(1): 304. DOI: 10.1186/s13054-021-03733-z 34425864 PMC8381710 · DOI
  82. [88]Lenert LA, Ilatovskiy AV, Agnew J, Rudsill P, Jacobs J, Weatherston D, Automated production of research data marts from a canonical Fast Healthcare Interoperability Resource (FHIR) data repository: applications to COVID-19 research. medRxiv; 2021. DOI: 10.1101/2021.03.11.21253384 PMC8243354 33993254 · DOI
  83. [89]Liaw ST, Guo JGN, Ansari S, Jonnagaddala J, Godinho MA, Borelli AJ, Quality assessment of real-world data repositories across the data life cycle: a literature review. J Am Med Inform Assoc. 2021; 28(7): 1591– 9. DOI: 10.1093/jamia/ocaa340 33496785 PMC8475229 · DOI
  84. [90]Mahdi A, Błaszczyk P, Dłotko P, Salvi D, Chan TS, Harvey J, OxCOVID19 database, a multimodal data repository for better understanding the global impact of COVID-19. Sci Rep. 2021; 11(1): 9237. DOI: 10.1038/s41598-021-88481-4 33927237 PMC8084933 · DOI
  85. [91]Majeed RW, Fischer P, Günther A. Accessing OMOP common data model repositories with the i2b2 webclient – algorithm for automatic query translation. Stud Health Technol Inform. 2021; 278: 251– 9. DOI: 10.3233/SHTI210077 34042902 · DOI
  86. [92]Majeed RW, Stöhr MR, Günther A. HIStream-Import: a generic ETL framework for processing arbitrary patient data collections or hospital information systems into HL7 FHIR bundles. Stud Health Technol Inform. 2021; 278: 75– 9. DOI: 10.3233/SHTI210053 34042878 · DOI
  87. [93]Schaaf J, Chalmers J, Omran H, Pennekamp P, Sitbon O, Wagner TOF, The registry data warehouse in the European reference network for rare respiratory diseases – background, conception and implementation. Stud Health Technol Inform. 2021; 278: 41– 8. DOI: 10.3233/SHTI210049 34042874 · DOI
  88. [94]Shahid A, Nguyen TN, Kechadi MT. Big data warehouse for healthcare-sensitive data applications. Sensors (Basel). 2021; 21(7). DOI: 10.3390/s21072353 PMC8037603 33800574 · DOI
  89. [95]Guerriero L, Ferdeghini EM, Viola SR, Porro I, Testi A, Bedini R. Telematic integration of health data: a practicable contribution. Inform Health Soc Care. 2011; 36(3): 147– 60. DOI: 10.3109/17538157.2011.584997 21848451 · DOI
  90. [96]Bellazzi R, Masseroli M, Murphy S, Shabo A, Romano P. Clinical bioinformatics: challenges and opportunities. BMC Bioinformatics. 2012; 13 Suppl 14(Suppl 14): S1. DOI: 10.1186/1471-2105-13-S14-S1 PMC3439676 23095472 · DOI
  91. [97]Hulse NC, Galland J, Borsato EP. Evolution in clinical knowledge management strategy at Intermountain Healthcare. AMIA Annu Symp Proc. 2012; 2012: 390– 9. 23304309 PMC3540533
  92. [98]Taggart J, Liaw ST, Dennis S, Yu H, Rahimi A, Jalaludin B, The University of NSW electronic practice based research network: disease registers, data quality and utility. Stud Health Technol Inform. 2012; 178: 219– 27. 22797045
  93. [99]Huser V, Cimino JJ. Desiderata for healthcare integrated data repositories based on architectural comparison of three public repositories. AMIA Annu Symp Proc. 2013; 2013: 648– 56. 24551366 PMC3900207
  94. [100]Jefferys BR, Nwankwo I, Neri E, Chang DC, Shamardin L, Hänold S, Navigating legal constraints in clinical data warehousing: a case study in personalized medicine. Interface Focus. 2013; 3(2): 20120088. DOI: 10.1098/rsfs.2012.0088 24427531 PMC3638485 · DOI
  95. [101]Takecian PL, Oikawa MK, Braghetto KR, Rocha P, Lucena F, Kavounis K, Methodological guidelines for reducing the complexity of data warehouse development for transactional blood bank systems. Decis Support Syst. 2013; 55(3): 728– 39. DOI: 10.1016/j.dss.2013.02.008 23729945 PMC3665424 · DOI
  96. [102]Branescu I, Purcarea VL, Dobrescu R. Solutions for medical databases optimal exploitation. J Med Life. 2014; 7(1): 109– 18. 24653769 PMC3956088
  97. [103]Yoo S, Kim S, Lee KH, Jeong CW, Youn SW, Park KU, Electronically implemented clinical indicators based on a data warehouse in a tertiary hospital: its clinical benefit and effectiveness. Int J Med Inform. 2014; 83(7): 507– 16. DOI: 10.1016/j.ijmedinf.2014.04.001 24867195 · DOI
  98. [104]Chosy J, Benson K, Belen D, Starr R, Lowery St John T, Starr RR, Insights in public health: for the love of data! The Hawai’i health data warehouse. Hawaii J Med Public Health. 2015; 74(11): 382– 5. 26568903 PMC4642500
  99. [105]Cohen B, Vawdrey DK, Liu J, Caplan D, Furuya EY, Mis FW, Challenges associated with using large data sets for quality assessment and research in clinical settings. Policy Polit Nurs Pract. 2015; 16(3–4): 117– 24. DOI: 10.1177/1527154415603358 26351216 PMC4679583 · DOI
  100. [106]Pecoraro F, Luzi D, Ricci FL. Data warehouse design from HL7 clinical document architecture schema. Stud Health Technol Inform. 2015; 213: 139– 42. 26152975
  101. [107]Pecoraro F, Luzi D, Ricci FL. Designing ETL tools to feed a data warehouse based on electronic healthcare record infrastructure. Stud Health Technol Inform. 2015; 210: 929– 33. 25991292
  102. [108]Plazzotta F, Mayan JC, Storani FD, Ortiz JM, Lopez GE, Gimenez GM, Multimedia health records: user-centered design approach for a multimedia uploading service. Stud Health Technol Inform. 2015; 210: 474– 8. 25991192
  103. [109]Teixeira JW, Annibal LP, Felipe JC, Ciferri RR, Ciferri CD. A similarity-based data warehousing environment for medical images. Comput Biol Med. 2015; 66: 190– 208. DOI: 10.1016/j.compbiomed.2015.08.019 26414378 · DOI
  104. [110]Wyllie D, Davies J. Role of data warehousing in healthcare epidemiology. J Hosp Infect. 2015; 89(4): 267– 70. DOI: 10.1016/j.jhin.2015.01.005 25737091 · DOI
  105. [111]Aziz HA. Handling big data in modern healthcare. Lab Med. 2016; 47(4): e38– e41. DOI: 10.1093/labmed/lmw038 27708172 · DOI
  106. [112]Haarbrandt B, Wilschko A, Marschollek M. Modelling of operative report documents for data Integration into an openEHR-based enterprise data warehouse. Stud Health Technol Inform. 2016; 228: 407– 11. 27577414
  107. [113]Wanderer JP, Poler SM, Rothman BS. Show me the data! A perioperative data warehouse of Epic Proportions. Anesth Analg. 2016; 122(6): 1742– 3.DOI: 10.1213/ANE.0000000000001321 27195619 · DOI
  108. [114]Foran DJ, Chen W, Chu H, Sadimin E, Loh D, Riedlinger G, Roadmap to a comprehensive clinical data warehouse for precision medicine applications in oncology. Cancer Inform. 2017; 16: 1176935117694349. DOI: 10.1177/1176935117694349 28469389 PMC5392017 · DOI
  109. [115]Jannot AS, Zapletal E, Avillach P, Mamzer MF, Burgun A, Degoulet P. The Georges Pompidou University Hospital clinical data warehouse: A 8-years follow-up experience. Int J Med Inform. 2017; 102: 21– 8. DOI: 10.1016/j.ijmedinf.2017.02.006 28495345 · DOI
  110. [116]Karami M, Rahimi A, Shahmirzadi AH. Clinical data warehouse: an effective tool to create intelligence in disease management. Health Care Manag (Frederick). 2017; 36(4): 380– 4. DOI: 10.1097/HCM.0000000000000113 28938242 · DOI
  111. [117]Kortüm KU, Müller M, Kern C, Babenko A, Mayer WJ, Kampik A, Using electronic health records to build an ophthalmologic data warehouse and visualize patients’ data. Am J Ophthalmol. 2017; 178: 84– 93. DOI: 10.1016/j.ajo.2017.03.026 28365240 · DOI
  112. [118]Wagholikar KB, Mandel JC, Klann JG, Wattanasin N, Mendis M, Chute CG, SMART-on-FHIR implemented over i2b2. J Am Med Inform Assoc. 2017; 24(2): 398– 402. DOI: 10.1093/jamia/ocw079 27274012 PMC5391721 · DOI
  113. [119]Dietrich G, Krebs J, Fette G, Ertl M, Kaspar M, Störk S, Ad hoc information extraction for clinical data warehouses. Methods Inf Med. 2018; 57(1): e22– e9. DOI: 10.3414/ME17-02-0010 29801178 PMC6193399 · DOI
  114. [120]Fette G, Kaspar M, Liman L, Dietrich G, Ertl M, Krebs J, Exporting data from a clinical data warehouse. Stud Health Technol Inform. 2018; 248: 88– 93. 29726423
  115. [121]Mullin S, Zhao J, Sinha S, Lee R, Song B, Elkin PL. Clinical data warehouse query and learning tool using a human-centered participatory design process. Stud Health Technol Inform. 2018; 251: 59– 62. 29968601 PMC6599591
  116. [122]Rinner C, Gezgin D, Wendl C, Gall W. A clinical data warehouse based on OMOP and i2b2 for Austrian health claims data. Stud Health Technol Inform. 2018; 248: 94– 9. 29726424
  117. [123]Solbrig HR, Hong N, Murphy SN, Jiang G. Automated population of an i2b2 clinical data warehouse using FHIR. AMIA Annu Symp Proc. 2018; 2018: 979– 88. 30815141 PMC6371332
  118. [124]Tute E, Steiner J. Modeling of ETL-processes and processed information in clinical data warehousing. Stud Health Technol Inform. 2018; 248: 204– 11. DOI: 10.2196/13917 29726438 · DOI
  119. [125]Lelong R, Soualmia LF, Grosjean J, Taalba M, Darmoni SJ. Building a semantic health data warehouse in the context of clinical trials: development and usability study. JMIR Med Inform. 2019; 7(4): e13917. 31859675 PMC6942180
  120. [126]Madec J, Bouzillé G, Riou C, Van Hille P, Merour C, Artigny ML, eHOP Clinical data warehouse: from a prototype to the creation of an inter-regional clinical data centers network. Stud Health Technol Inform. 2019; 264: 1536– 7. 31438219
  121. [127]Oliveira PH, Scabora LC, Cazzolato MT, Oliveira WD, Paixao RS, Traina AJM, Employing domain indexes to efficiently query medical data from multiple repositories. IEEE J Biomed Health Inform. 2019; 23(6): 2220– 9. DOI: 10.1109/JBHI.2018.2881381 30452381 · DOI
  122. [128]Zohner J, Marquardt K, Schneider H, Michel Backofen A. Challenges and opportunities in changing data structures of clinical document archives from HL7-V2 to FHIR-based archive solutions. Stud Health Technol Inform. 2019; 264: 492– 5. 31437972
  123. [129]Gavrilov G, Vlahu-Gjorgievska E, Trajkovik V. Healthcare data warehouse system supporting cross-border interoperability. Health Informatics J. 2020; 26(2): 1321– 32. DOI: 10.1177/1460458219876793 31581924 · DOI
  124. [130]Pavlenko E, Strech D, Langhof H. Implementation of data access and use procedures in clinical data warehouses. A systematic review of literature and publicly available policies. BMC Med Inform Decis Mak. 2020; 20(1): 157. DOI: 10.1186/s12911-020-01177-z 32652989 PMC7353743 · DOI
  125. [131]Ronaldson A, Chandakas E, Kang Q, Brennan K, Akande A, Ebyarimpa I, Cohort profile: the East London Health and Care Partnership Data Repository: using novel integrated data to support commissioning and research. BMJ Open. 2020; 10(9): e037183. DOI: 10.1136/bmjopen-2020-037183 PMC7511638 32948559 · DOI
  126. [132]Park J, You SC, Jeong E, Weng C, Park D, Roh J, A framework (SOCRATex) for hierarchical annotation of unstructured electronic health records and integration into a standardized medical database: development and usability study. JMIR Med Inform. 2021; 9(3): e23983. DOI: 10.2196/23983 33783361 PMC8044740 · DOI
  127. [133]Klann JG, McCoy AB, Wright A, Wattanasin N, Sittig DF, Murphy SN. Health care transformation through collaboration on open-source informatics projects: integrating a medical applications platform, research data repository, and patient summarization. Interact J Med Res. 2013; 2(1): e11. DOI: 10.2196/ijmr.2454 23722634 PMC3668611 · DOI
  128. [134]Rizi SA, Roudsari A. Development of a public health reporting data warehouse: lessons learned. Stud Health Technol Inform. 2013; 192: 861– 5. 23920680
  129. [135]Cimino JJ, Ayres EJ, Remennik L, Rath S, Freedman R, Beri A, The National Institutes of Health’s Biomedical Translational Research Information System (BTRIS): design, contents, functionality and experience to date. J Biomed Inform. 2014; 52: 11– 27. DOI: 10.1016/j.jbi.2013.11.004 24262893 PMC4026354 · DOI
  130. [136]Marés J, Shamardin L, Weiler G, Anguita A, Sfakianakis S, Neri E, p-medicine: A medical informatics platform for integrated large scale heterogeneous patient data. AMIA Annu Symp Proc. 2014; 2014: 872– 81. 25954394 PMC4419910
  131. [137]Pang X, Kozlowski N, Wu S, Jiang M, Huang Y, Mao P, Construction and management of ARDS/sepsis registry with REDCap. J Thorac Dis. 2014; 6(9): 1293– 9. 25276372 PMC4178117
  132. [138]Schreiweis B, Schneider G, Eichner T, Bergh B, Heinze O. Health Information Research Platform (HIReP)–an architecture pattern. Stud Health Technol Inform. 2014; 205: 773– 7. 25160292
  133. [139]Walji MF, Kalenderian E, Stark PC, White JM, Kookal KK, Phan D, BigMouth: a multi-institutional dental data repository. J Am Med Inform Assoc. 2014; 21(6): 1136– 40. DOI: 10.1136/amiajnl-2013-002230 24993547 PMC4215035 · DOI
  134. [140]Kunjan K, Toscos T, Turkcan A, Doebbeling BN. A multidimensional data warehouse for community health centers. AMIA Annu Symp Proc. 2015; 2015: 1976– 84. 26958297 PMC4765670
  135. [141]Narra L, Sahama T, Stapleton P. Clinical data warehousing for evidence based decision making. Stud Health Technol Inform. 2015; 210: 329– 33. 25991160
  136. [142]Shenvi EC, Meeker D, Boxwala AA. Understanding data requirements of retrospective studies. Int J Med Inform. 2015; 84(1): 76– 84. DOI: 10.1016/j.ijmedinf.2014.10.004 25453276 PMC6626658 · DOI
  137. [143]Obeid JS, Tarczy-Hornoch P, Harris PA, Barnett WK, Anderson NR, Embi PJ, Sustainability considerations for clinical and translational research informatics infrastructure. J Clin Transl Sci. 2018; 2(5): 267– 75. DOI: 10.1017/cts.2018.332 30828467 PMC6390401 · DOI
  138. [144]Afshar M, Dligach D, Sharma B, Cai X, Boyda J, Birch S, Development and application of a high throughput natural language processing architecture to convert all clinical documents in a clinical data warehouse into standardized medical vocabularies. J Am Med Inform Assoc. 2019; 26(11): 1364– 9. DOI: 10.1093/jamia/ocz068 31145455 PMC7647210 · DOI
  139. [145]Artemova S, Madiot PE, Caporossi A, Mossuz P, Moreau-Gaudry A. PREDIMED: clinical data warehouse of Grenoble Alpes University Hospital. Stud Health Technol Inform. 2019; 264: 1421– 2. 31438161
  140. [146]Chen YA, Tripathi LP, Fujiwara T, Kameyama T, Itoh MN, Mizuguchi K. The TargetMine data warehouse: enhancement and updates. Front Genet. 2019; 10: 934. DOI: 10.3389/fgene.2019.00934 31649722 PMC6794636 · DOI
  141. [147]Juárez D, Schmidt EE, Stahl-Toyota S, Ückert F, Lablans M. A generic method and implementation to evaluate and improve data quality in distributed research networks. Methods Inf Med. 2019; 58(2–3): 86– 93. DOI: 10.1055/s-0039-1693685 31514209 · DOI
  142. [148]Post A, Chappidi N, Gunda D, Deshpande N. A method for EHR phenotype management in an i2b2 data warehouse. AMIA Jt Summits Transl Sci Proc. 2019; 2019: 92– 101. 31258960 PMC6568136
  143. [149]Gagalova KK, Leon Elizalde MA, Portales-Casamar E, Görges M. What you need to know before implementing a clinical research data warehouse: comparative review of integrated data repositories in health care institutions. JMIR Form Res. 2020; 4(8): e17687. DOI: 10.2196/17687 32852280 PMC7484778 · DOI
  144. [150]Williams M, Bagwell J, Zozus MN. Data management plans: the missing perspective. Journal of Biomedical Informatics. 2017; 71: 130– 42. DOI: 10.1016/j.jbi.2017.05.004 28499952 PMC6697079 · DOI
  145. [151]Keralis S, Stark S, Halbert M, Moen WE. Research data management in policy and practice: the dataRes project. Research data management: principles, practice, and prospects. Council on Library and Information Resources. 2013; 160: 16– 38.
  146. [153]Kimball R, Ross M. The data warehouse toolkit: the complete guide to dimensional modeling: John Wiley & Sons; 2011.
  147. [154]Ross M, Kimball R. The data warehouse toolkit: the definitive guide to dimensional modeling: John Wiley & Sons; 2013.
  148. [155]Blaisure JC, Ceusters WM. Improving the ‘fitness for purpose’ of common data models through realism based ontology. AMIA Annu Symp Proc. 2017; 2017: 440– 7. 29854108 PMC5977618
  149. [156]McGinnis JM, Olsen L, Goolsby WA, Grossmann C. Clinical data as the basic staple of health learning: creating and protecting a public good: workshop summary. National Academies Press; 2011. 21595112
  150. [157]Gardner SP. Ontologies and semantic data integration. Drug Discovery Today. 2005; 10(14): 1001– 7. DOI: 10.1016/S1359-6446(05)03504-X 16023059 · DOI
  151. [158]Meystre SM, Lovis C, Bürkle T, Tognola G, Budrionis A, Lehmann CU. Clinical data reuse or secondary use: current status and potential future progress. Yearbook of Medical Informatics. 2017; 26(1): 38– 52. DOI: 10.15265/IY-2017-007 28480475 PMC6239225 · DOI · Paper page
  152. [159]Liyanage H, Krause P, Lusignan Sd. Using ontologies to improve semantic interoperability in health data. BMJ Health & Care Informatics. 2015; 22(2): 309– 15. DOI: 10.14236/jhi.v22i2.159 26245245 · DOI
  153. [160]Wang KC. Standard lexicons, coding systems and ontologies for interoperability and semantic computation in imaging. J Digit Imaging. 2018; 31(3): 353– 60. DOI: 10.1007/s10278-018-0069-8 29725962 PMC5959830 · DOI
  154. [161]Takai-Igarashi T, Akasaka R, Suzuki K, Furukawa T, Yoshida M, Inoue K, On experiences of i2b2 (Informatics for integrating biology and the bedside) database with Japanese clinical patients’ data. Bioinformation. 2011; 6(2): 86– 90. DOI: 10.6026/97320630006086 21544172 PMC3082863 · DOI
  155. [162]Cimino JJ. Review paper: coding systems in health care. Methods Inf Med. 1996; 35(4–5): 273– 84. DOI: 10.1055/s-0038-1634682 9019091 · DOI

Cited by

Sorted by citations

Authors
Wang, Z., Craven, C., Syed, M., Greer, M., Seker, E., Syed, S., & Zozus, M. N.
Affiliations
  • Population Health Sciences, uthscsa
  • Population Health Science and Policy, Icahn School of Medicine
  • Population Health Sciences, University of Texas Health Science Center at San Antonio
  • UAMS
  • UALR
  • Department of Population Health Sciences, University of Texas for Health Sciences San Antonio
  • The Joe R. and Teresa Lozano Long School of Medicine, University of Texas Health Science Center San Antonio
Venue
Journal of the Society for Clinical Data Management
Published
2024-08-28
Volume
5
Issue
2
ISSN
2694-1473
Cited by
14
References
2

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