The DOI matches its Crossref record; 44 of the 44 references it cites were found in a registry or an index.
Self-management in adolescents with chronic illness. What does it mean and how can it be achieved
Abstract
The concept of self-management is based on the notion that it will improve wellbeing and strengthen self-determination and participation in health care, while reducing health care utilisation and health costs. Increasing self-management is a desirable goal for the 15%-20% of children and adolescents who have a significant ongoing health care need related to a chronic health condition. Promoting self-management in young people with chronic illness can be difficult for parents and health care practitioners. Doctors can help parents recognise the potentially competing aspects of the parenting role--protecting young people's health while supporting their growing independence and autonomy. Optimal care may or may not be achievable, depending on a young person's level of development. As children mature through adolescence, they increasingly want their own voice to be heard, as well as the right to privacy and confidentiality in health care consultations. As well as listening to parents and supporting their roles, doctors should see young people alone for part of the consultation, taking a psychosocial history and carefully maintaining confidentiality.
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“In collaboration with healthcare professionals it is likely to improve treatment adherence 13 and disease outcomes 1,14 .”
From A Systematic review of self-management interventions for children and adolescents with inflammatory bowel disease (2019) · cites this paper as [14]
Citations
Cites
Higgins, S. M. F., Macken, A. P., Cullen, W., Saunders, J., Dunne, C. P., & O’Gorman, C. S. (2013) · PubMed · doi:10.34961/9953 · Cited by 4,807
Effective physician-patient communication and health outcomes: a review.
(1995) · Europe PMC (PubMed Central) · Cited by 4,085
Patient Self-management of Chronic Disease in Primary Care
Bodenheimer, T. (2002) · JAMA · doi:10.1001/jama.288.19.2469 · Cited by 3,598
Patient-centredness: a conceptual framework and review of the empirical literature
Mead, N., & Bower, P. (2000) · Social Science & Medicine · doi:10.1016/s0277-9536(00)00098-8 · Cited by 2,993
Doctor-patient communication: a review of the literature
Ong, L. M. L., de Haes, J. C. J. M., Hoos, A. M., & Lammes, F. B. (1995) · Social Science & Medicine · doi:10.1016/0277-9536(94)00155-m · Cited by 2,430
The burden of disease and injury in Australia 2003
Begg, S. J., Vos, T., Barker, B. M., Stevenson, C., Stanley, L., & López, A. D. (2007) · Deakin Research Online (Deakin University) · Cited by 1,285
Collaborative Management of Chronic Illness
Von Korff, M., Gruman, J., Schaefer, J., Curry, S. J., & Wagner, E. H. (1997) · Annals of Internal Medicine · doi:10.7326/0003-4819-127-12-199712150-00008 · Cited by 1,269
A Consensus Statement on Health Care Transitions for Young Adults With Special Health Care Needs
(2016) · American Academy of Pediatrics eBooks · doi:10.1542/9781610020190-part05-a_consensus · Cited by 918
Interventions for helping patients to follow prescriptions for medications
Haynes, R., McDonald, H., Garg, A., & Montague, P. (2002) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd000011 · Cited by 911
A Consensus Statement on Health Care Transitions for Young Adults With Special Health Care Needs
American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians-American Society of Internal Medicine (2002) · PEDIATRICS · doi:10.1542/peds.110.s3.1304 · Cited by 894
The burden of disease and injury in Australia
Mathers, C. D., Vos, T., & Stevenson, C. (2000) · Australian Health Review · doi:10.1071/ah000216 · Cited by 745
Transition to adult health care for adolescents and young adults with chronic conditions
Rosen, D. S., Blum, R. W., Britto, M. T., Sawyer, S. M., & Siegel, D. M. (2003) · Journal of Adolescent Health · doi:10.1016/s1054-139x(03)00208-8 · Cited by 636
An Epidemiologic Profile of Children With Special Health Care Needs
Newacheck, P. W., Strickland, B. B., Shonkoff, J. P., Perrin, J. M., McPherson, M. G., McManus, M. A., Lauver, C. B., Fox, H. B., & Arango, P. (1998) · PEDIATRICS · doi:10.1542/peds.102.1.117 · Cited by 571
Shah, S., Peat, J. K., Mazurski, E. J., Wang, H., Sindhusake, D., Bruce, C., Henry, R. L., & Gibson, P. G. (2001) · BMJ · doi:10.1136/bmj.322.7286.583 · Cited by 236
Chronic illness and disability
Yeo, M., & Sawyer, S. M. (2005) · BMJ · doi:10.1136/bmj.330.7493.721 · Cited by 228
Parent^chld relationships and the management of insulin-dependent diabetes mellitus.
Miller, S., Emery, R. E., Marvin, R. S., Clarke, W. R., & al, E. (1994) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.62.3.603 · Cited by 225
Gabe, J., Olumide, G., & Bury, M. R. (2004) · Social Science & Medicine · doi:10.1016/j.socscimed.2003.09.035 · Cited by 205
Kyngäs, H. A., Hentinen, M., & Barlow, J. H. (1998) · Journal of Advanced Nursing · doi:10.1046/j.1365-2648.1998.00608.x · Cited by 176
Health Care Preferences and Priorities of Adolescents With Chronic Illnesses
Britto, M. T., DeVellis, R. F., Hornung, R., DeFriese, G. H., Atherton, H. D., & Slap, G. B. (2004) · PEDIATRICS · doi:10.1542/peds.2003-1134-l · Cited by 172
Goldenring, J. M., & Cohen, E. D. (1988) · Contemporary pediatrics · Cited by 148
Parent-child relationships and the management of insulin-dependent diabetes mellitus.
Miller, S., Emery, R. E., Marvin, R. S., Clarke, W. R., Lovinger, R. D., & Martin, M. (1994) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.62.3.603 · Cited by 148
Commentary: applying the BMJ's guidelines on educational interventions.
Ker, J. (2000) · PubMed · Cited by 140
Petrie, K. J., & Reynolds, L. (2001) · Cambridge University Press eBooks · doi:10.1017/cbo9780511543579.011 · Cited by 139
Quality of Care at a Children's Hospital
Homer, C. J., Marino, B. L., Cleary, P. D., Alpert, H. R., Smith, B., Ganser, C. C., Brustowicz, R. M., & Goldmann, D. A. (1999) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.153.11.1123 · Cited by 127
The Role of Peer Support in Facilitating Psychosocial Adjustment to Chronic Illness in Adolescence
Olsson, C. A., Boyce, M. F., Toumbourou, J. W., & Sawyer, S. M. (2005) · Clinical Child Psychology and Psychiatry · doi:10.1177/1359104505048793 · Cited by 99
Garth, B., & Aroni, R. (2003) · Disability & Society · doi:10.1080/0968759032000097825 · Cited by 90
Sawyer, S. M., & Aroni, R. (2003) · Journal of Paediatrics and Child Health · doi:10.1046/j.1440-1754.2003.00081.x · Cited by 88
Childhood asthma and other wheezing disorders
Silverman, M. E. (1995) · Medical Entomology and Zoology · Cited by 83
Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care
Zack, J., Jacobs, C. P., Keenan, P. M., Harney, K. M., Woods, E. R., Colin, A. A., & Emans, S. J. (2003) · Pediatric Pulmonology · doi:10.1002/ppul.10342 · Cited by 75
Health care delivery: Perspectives of young people with chronic illness and their parents
Farrant, B., & Watson, P. (2004) · Journal of Paediatrics and Child Health · doi:10.1111/j.1440-1754.2004.00333.x · Cited by 70
Confidential health care for adolescents: reconciling clinical evidence with family values
Sanci, L. A., Sawyer, S. M., Haller, D. M., Patton, G. C., & Kang, M. S. (2005) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.2005.tb07104.x · Cited by 69
Implications for Estimates of Disability in Children: A Comparison of Definitional Components
Westbrook, L. E., Silver, E. J., & Stein, R. E. K. (1998) · PEDIATRICS · doi:10.1542/peds.101.6.1025 · Cited by 52
Adolescent Chronic Illness: A Qualitative Study of Psychosocial Adjustment
Olsson, C. A., Bond, L. M., Johnson, M., Forer, D., Boyce, M. W., & Sawyer, S. M. (2003) · Annals of the Academy of Medicine Singapore · doi:10.47102/annals-acadmedsg.v32n1p43 · Cited by 51
Smoothing the transition to adult care
Bennett, D., Towns, S. J., & Steinbeck, K. S. (2005) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.2005.tb06751.x · Cited by 42
Adolescence on the health agenda
Sawyer, S. M., & Bowes, G. (1999) · The Lancet · doi:10.1016/s0140-6736(99)90256-8 · Cited by 39
Viner, R. (2005) · UCL Discovery (University College London) · Cited by 35
The role of self-help groups in chronic illness management: A qualitative study
Coppa, K., & Boyle, F. M. (2003) · Australian Journal of Primary Health · doi:10.1071/py03026 · Cited by 30
Sawyer, S. M. (2003) · Pediatric Pulmonology · doi:10.1002/ppul.10369 · Cited by 20
Arthritis patient education standards: a model for the future
Lorig, K. R., & Visser, A. P. (1994) · Patient Education and Counseling · doi:10.1016/0738-3991(94)90023-x · Cited by 19
Childhood Asthma and Other Wheezing Disorders
Sheikh, A. (2003) · Journal of the Royal Society of Medicine · doi:10.1258/jrsm.96.2.100 · Cited by 10
Asthma self-management: What do we really mean?
Aron, R., r, S. S., n, M. A., t, K. S., Fidalgo Robson, N., n, D. G., & S., J. (2003) · Australian Journal of Primary Health · doi:10.1071/py03018 · Cited by 9
Guest Editorial: Self-management - A new era dawns...
Frendin, S. (2003) · Australian Journal of Primary Health · doi:10.1071/py03031 · Cited by 4
Editorial: Chronic illness: policies and paradoxes
Aroni, R., & Swerissen, H. (2003) · Australian Journal of Primary Health · doi:10.1071/py03016 · Cited by 1
Research works printed but not linked: 3
- Murray CJL, 1996, The global burden of disease
- Walker C, 2003, Chronic illness: new perspectives and new directions, 53
- Patterson JM, 1998, Diabetes and the adolescent, 3
Cited by
Sorted by citations
Adolescents with a chronic condition: challenges living, challenges treating
Sawyer, S. M., Drew, S., Yeo, M. S., & Britto, M. T. (2007) · The Lancet · doi:10.1016/s0140-6736(07)60370-5 · Cited by 656
Review of Adherence-Related Issues in Adolescents and Young Adults With Cancer
Butow, P. N., Palmer, S., Pai, A. L. H., Goodenough, B., Luckett, T., & King, M. T. (2010) · Journal of Clinical Oncology · doi:10.1200/jco.2009.22.2802 · Cited by 257
A Systematic Review of Internet-based Self-Management Interventions for Youth with Health Conditions
Stinson, J., Wilson, R., Gill, N., Yamada, J., & Holt, J. (2009) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsn115 · Cited by 238
Young Australians: their health and wellbeing 2007
Pieris‐Caldwell, I., Hotstone, C., & Eldridge, D. (2007) · Cited by 189
Health Literacy in Adolescents and Young Adults: An Updated Review
Sansom‐Daly, U. M., Lin, M., Robertson, E. G., Wakefield, C. E., McGill, B. C., Girgis, A., & Cohn, R. J. (2016) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2015.0059 · Cited by 176
Metadata
- Authors
- Sawyer, S. M., & Aroni, R. A.
- Affiliations
- Royal Children's Hospital (AU)
- Monash University (AU)
- Venue
- Medical Journal of Australia
- Publisher
- Wiley
- Published
- 2005-10
- Volume
- 183
- Issue
- 8
- Pages
- 405-409
- ISSN
- 0025-729X (ISSN-L)
- 1326-5377
- OpenAlex
- W2112011443
- Cited by
- 200
- References
- 44
- Citations by year
- 2026: 3 · 2025: 10 · 2024: 6 · 2023: 7 · 2022: 11 · 2021: 10 · 2020: 5 · 2019: 8 · 2018: 10 · 2017: 15 · 2016: 13 · 2015: 10 · 2014: 12 · 2013: 17 · 2012: 13
- FWCI
- 17.40
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- Locations
- The Medical Journal of Australia (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Ethics and Legal Issues in Pediatric Healthcare
- Keywords
- self-management, adolescents, chronic disease, parental role, patient autonomy, confidentiality, psychosocial history, doctor-patient consultation, health care utilization, self-determination
- MeSH terms
- Adolescent, Adult, Australia, Chronic Disease, Female, Humans, Health Knowledge, Attitudes, Practice, Male, Parent-Child Relations, Physician-Patient Relations, Self Care, Social Support, Adolescent Health Services, Adolescent Development
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