Feasibility of Reidentifying Individuals in Large National Physical Activity Data Sets From Which Protected Health Information Has Been Removed With Use of Machine Learning
Open accessAbstract
Importance: Despite data aggregation and removal of protected health information, there is concern that deidentified physical activity (PA) data collected from wearable devices can be reidentified. Organizations collecting or distributing such data suggest that the aforementioned measures are sufficient to ensure privacy. However, no studies, to our knowledge, have been published that demonstrate the possibility or impossibility of reidentifying such activity data. Objective: To evaluate the feasibility of reidentifying accelerometer-measured PA data, which have had geographic and protected health information removed, using support vector machines (SVMs) and random forest methods from machine learning. Design, Setting, and Participants: In this cross-sectional study, the National Health and Nutrition Examination Survey (NHANES) 2003-2004 and 2005-2006 data sets were analyzed in 2018. The accelerometer-measured PA data were collected in a free-living setting for 7 continuous days. NHANES uses a multistage probability sampling design to select a sample that is representative of the civilian noninstitutionalized household (both adult and children) population of the United States. Exposures: The NHANES data sets contain objectively measured movement intensity as recorded by accelerometers worn during all walking for 1 week. Main Outcomes and Measures: The primary outcome was the ability of the random forest and linear SVM algorithms to match demographic and 20-minute aggregated PA data to individual-specific record numbers, and the percentage of correct matches by each machine learning algorithm was the measure. Results: A total of 4720 adults (mean [SD] age, 40.0 [20.6] years) and 2427 children (mean [SD] age, 12.3 [3.4] years) in NHANES 2003-2004 and 4765 adults (mean [SD] age, 45.2 [19.9] years) and 2539 children (mean [SD] age, 12.1 [3.4] years) in NHANES 2005-2006 were included in the study. The random forest algorithm successfully reidentified the demographic and 20-minute aggregated PA data of 4478 adults (94.9%) and 2120 children (87.4%) in NHANES 2003-2004 and 4470 adults (93.8%) and 2172 children (85.5%) in NHANES 2005-2006 (P < .001 for all). The linear SVM algorithm successfully reidentified the demographic and 20-minute aggregated PA data of 4043 adults (85.6%) and 1695 children (69.8%) in NHANES 2003-2004 and 4041 adults (84.8%) and 1705 children (67.2%) in NHANES 2005-2006 (P < .001 for all). Conclusions and Relevance: This study suggests that current practices for deidentification of accelerometer-measured PA data might be insufficient to ensure privacy. This finding has important policy implications because it appears to show the need for deidentification that aggregates the PA data of multiple individuals to ensure privacy for single individuals.
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Even when sensitive patient data are anonymized, certain algorithms can still identify individual patients.
“Other studies have shown that, even when sensitive patient data are anonymized, certain algorithms can still identify individual patients [189-191].”
From Multimodal Large Language Models in Health Care: Applications, Challenges, and Future Outlook. (2024) · cites this paper as [190]
The Discussion reports that machine-learning algorithms reidentified individuals from physical-activity data after protected health information was removed. The study tested NHANES participants, however, not anonymized patient records; the patient-data example in the Introduction is a proposed scenario rather than a tested result. Page numbers are not available in our copy. (LLM, conf=0.83)
Experimental — accuracy not yet measuredMultiple sets of anonymized data can be modeled to reidentify individuals.
“There is emerging research showing that multiple sets of anonymized data can be modeled to reidentify individuals [101,102].”
From Artificial Intelligence Chatbot Behavior Change Model for Designing Artificial Intelligence Chatbots to Promote Physical Activity and a Healthy Diet: Viewpoint (2020) · cites this paper as [101]
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- Authors
- Na, L., Yang, C., Lo, C.-C., Zhao, F., Fukuoka, Y., & Aswani, A.
- Affiliations
- Massachusetts Institute of Technology (US)
- University of California, Berkeley (US)
- Tsinghua–Berkeley Shenzhen Institute (CN)
- University of California, San Francisco (US)
- Corresponding author
- Aswani, Anil
- Venue
- JAMA Network Open
- Publisher
- American Medical Association (AMA)
- Published
- 2018-12-21
- Volume
- 1
- Issue
- 8
- Pages
- e186040
- ISSN
- 2574-3805 (ISSN-L)
- PMC
- PMC6324329
- OpenAlex
- W2905657479
- Cited by
- 161
- References
- 18
- Citations by year
- 2026: 19 · 2025: 22 · 2024: 21 · 2023: 25 · 2022: 17 · 2021: 22 · 2020: 22 · 2019: 11 · 2018: 2
- FWCI
- 8.02
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- JAMA Network Open (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- eScholarship (California Digital Library) (submittedVersion)
- Funders
- Center for Long-Term Cybersecurity, University of California Berkeley
- National Institute of Nursing Research (K24NR015812)
- Topics
- Physical Sciences › Computer Science › Artificial Intelligence › Privacy-Preserving Technologies in Data
- Physical Sciences › Computer Science › Information Systems › Thoreau and American Literature
- Social Sciences › Decision Sciences › Management Science and Operations Research › Data Quality and Management
- Keywords
- de-identification, re-identification, physical activity data, wearable accelerometers, privacy, protected health information, NHANES, random forest, support vector machine, children, adults, data aggregation, third-party data sharing
- MeSH terms
- Machine Learning, Fitness Trackers, Adolescent, Adult, Child, Confidentiality, Feasibility Studies, Female, Humans, Male, Medical Informatics, Middle Aged, Exercise, Databases, Factual, Computer Security, Young Adult, Biometric Identification, Support Vector Machine, Accelerometry
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