The DOI matches its Crossref record; 73 of the 73 references it cites were found in a registry or an index.
Evaluation of an internet support group for women with primary breast cancer
Open accessAbstract
BACKGROUND: Women with breast carcinoma commonly experience psychologic distress following their diagnosis. Women who participate in breast cancer support groups have reported significant reduction in their psychologic distress and pain and improvement in the quality of their lives. Web‐based breast cancer social support groups are widely used, but little is known of their effectiveness. Preliminary evidence suggests that women benefit from their participation in web‐based support groups. METHODS: Seventy‐two women with primary breast carcinoma were assigned randomly to a 12‐week, web‐based, social support group (Bosom Buddies). The group was semistructured, moderated by a health care professional, and delivered in an asynchronous newsgroup format. RESULTS: The results indicate that a web‐based support group can be useful in reducing depression and cancer‐related trauma, as well as perceived stress, among women with primary breast carcinoma. The effect sizes ranged from 0.38 to 0.54. Participants perceived a variety of benefits and high satisfaction from their participation in the intervention CONCLUSIONS: This study demonstrated that the web‐based program, Bosom Buddies, was effective in reducing participants' scores on depression, perceived stress, and cancer‐related trauma measures. The effect size of the intervention was in the moderate range. Although web‐based social support groups offer many advantages, this delivery mechanism presents a number of ethical issues that need to be addressed. Cancer 2003;97:1164–73. © 2003 American Cancer Society. DOI 10.1002/cncr.11174
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
In the citing paper
“In general, ISGs that are moderated by a clinician tend to show benefits (31).”
From Behavioral Intervention Technologies: Evidence review and recommendations for future research in mental health (2013) · cites this paper as [31]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
Statistical Power Analysis for the Behavioral Sciences
Muller, K. E., & Cohen, J. (1989) · Technometrics · doi:10.2307/1270020 · Cited by 99,603
The CES-D Scale: A Self-Report Depression Scale for Research in the General Population
Radloff, L. S. (1977) · Applied Psychological Measurement · doi:10.1177/014662167700100306 · Cited by 53,267
Statistical Power Analysis for the Behavioral Sciences (2nd ed.).
Lachenbruch, P. A., & Cohen, J. (1989) · Journal of the American Statistical Association · doi:10.2307/2290095 · Cited by 37,421
A Global Measure of Perceived Stress
Cohen, S., Kamarck, T., & Mermelstein, R. (1983) · Journal of Health and Social Behavior · doi:10.2307/2136404 · Cited by 32,807
(1970) · Cited by 24,983
Fawzy, F. I. (1993) · Archives of General Psychiatry · doi:10.1001/archpsyc.1993.01820210015002 · Cited by 1,030
Group Support for Patients With Metastatic Cancer: A Randomized Prospective Outcome Study
Spiegel, D. (1981) · Archives of General Psychiatry · doi:10.1001/archpsyc.1980.01780300039004 · Cited by 862
Measurement of depressive symptoms in cancer patients
Hann, D., Winter, K., & Jacobsen, P. (1999) · Journal of Psychosomatic Research · doi:10.1016/s0022-3999(99)00004-5 · Cited by 822
Who talks? The social psychology of illness support groups.
Davison, K. P., Pennebaker, J. W., & Dickerson, S. S. (2000) · American Psychologist · doi:10.1037/0003-066x.55.2.205 · Cited by 720
Can 40 Seconds of Compassion Reduce Patient Anxiety?
Fogarty, L., Curbow, B. A., Wingard, J. R., McDonnell, K. A., & Somerfield, M. R. (1999) · Journal of Clinical Oncology · doi:10.1200/jco.1999.17.1.371 · Cited by 545
Research works printed but not linked: 8
- 10.1046/j.1525-1497.2001.016007435.x · DOI · Paper page
- King SA, 1994, Analysis of electronic support groups for recovering addicts, Interpers Comput Technol Electron J 21st Century., 2, 47
- Mickelson KD, 1997, Culture of the internet, 157
- Classen C, 1993, Brief supportive‐expressive group therapy for women with primary breast cancer: ATX manual
- Kreshka MA, 1997, One in eight: women speaking to women, a breast cancer workbook‐journal
- KoopmanC AngellK KreshkaMA et al.Workbook‐journal significantly reduces posttraumatic stress disorder symptoms among rural women with primary breast cancer. Paper presented at the annual meeting of the Australian Psychological Society Adelaide Australia September 22–24 2001.
- Weathers FW, 1991, PCL‐C for DSM‐IV
- Watson M, 1989, Mental Adjustment to Cancer (MAC) scale: users' manual
Cited by
Sorted by citations
Items 201–300 of 484
Yoo, W., Shah, D. V., Shaw, B. R., Kim, E., Smaglik, P., Roberts, L. J., Hawkins, R. P., Pingree, S., McDowell, H., & Gustafson, D. H. (2014) · Journal of Health Communication · doi:10.1080/10810730.2013.864723 · Cited by 29
“These groups have been found to improve participants’ psychological and psychosocial well-being (Gustafson et al., 2001; Gustafson et al., 2005; Lieberman et al., 2003; Shaw, McTavish, Hawkins, Gustafson, & Pingree, 2000; Winzelberg et al., 2003).”
BackgroundBreast cancer survivorship needs: a qualitative study
Khajoei, R., Azadeh, P., Anboohi, S. Z., Ilkhani, M., & Nabavi, F. H. (2024) · BMC Cancer · doi:10.1186/s12885-024-11834-5 · Cited by 29
“The high use of the Internet by patients with cancer suggests that healthcare providers may not be adequately meeting patients’ information needs [53].”
BackgroundPractical multidisciplinary approaches to heart failure management for improved patient outcome
Riley, J. P., & Masters, J. (2016) · European Heart Journal Supplements · doi:10.1093/eurheartj/suw046 · Cited by 30
Wallace, S. J., Kothari, J., Jayasekera, A., Tointon, J., Baiyewun, T., & Shrubsole, K. (2021) · Brain Impairment · doi:10.1017/brimp.2021.5 · Cited by 28
Shepherd, L., Goldstein, D., Olver, I., & Parle, M. (2008) · Australian Health Review · doi:10.1071/ah080423 · Cited by 28
Mishra, M. V., Bennett, M., Vincent, A., Lee, O. T., Lallas, C. D., Trabulsi, E. J., Gomella, L. G., Dicker, A. P., & Showalter, T. N. (2013) · PLoS ONE · doi:10.1371/journal.pone.0068563 · Cited by 27
Psychosocial Support in Adolescents and Young Adults With Cancer
Penn, A., & Kuperberg, A. (2018) · The Cancer Journal · doi:10.1097/ppo.0000000000000339 · Cited by 27
Impact of electronic diabetes registry ‘Meaningful Use’ on quality of care and hospital utilization
Han, W., Sharman, R., Heider, A. R., Maloney, N., Yang, M., & Singh, R. K. P. G. (2015) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocv040 · Cited by 28
Harbeck, N., & Haidinger, R. (2007) · Breast Cancer Research and Treatment · doi:10.1007/s10549-007-9703-8 · Cited by 28
“At the same time, patients began to organize effectively and expand their access to knowledge of new drugs and treatment paradigms [35–37].”
BackgroundFergus, K. D., Ahmad, S., McLeod, D. L., Stephen, J. E., Gardner, S. L., Pereira, A., Warner, E., & Carter, W. (2015) · Trials · doi:10.1186/s13063-014-0534-8 · Cited by 28
“Participation in internet-based support groups has been associated with reductions in social isolation, depression, and cancer-related trauma, and increased feelings of personal empowerment and self-esteem [62,64-70].”
BackgroundThe Internet, Social Media, and Health Decision-Making
Graham, A. L., Cobb, C. O., & Cobb, N. K. (2016) · Springer eBooks · doi:10.1007/978-1-4939-3486-7_24 · Cited by 28
Computer-Mediated Social Support for Physical Activity: A Content Analysis
Stragier, J., Mechant, P., Marez, L. D., & Cardon, G. (2017) · Health Education & Behavior · doi:10.1177/1090198117703055 · Cited by 27
“The prevalence of “esteem support” in OFCs, compared with “information support” being more common in online health communities (Coulson, 2005; Winzelberg, 1997; Winzelberg et al., 2003), demonstrates the difference between the two types of online communities in terms of type of received support.”
BackgroundOnline Support of Patients and Survivors of Cancer
Im, E. (2011) · Seminars in Oncology Nursing · doi:10.1016/j.soncn.2011.04.008 · Cited by 26
Barua, A., Ram, S., & Narayanasamy, R. (2013) · Indian Journal of Palliative Care · doi:10.4103/0973-1075.110234 · Cited by 26
“[21] assigned 72 women with primary breast carcinoma randomly to a 12‑week, web‑based social support group and it showed that web‑based social support group was useful in reducing depression and cancer‑related trauma.”
Patient-to-Patient Communication: Support Groups and Virtual Communities
Eysenbach, G. (2005) · Springer eBooks · doi:10.1007/0-387-27652-1_8 · Cited by 26
“The most impressive study to date, a randomized controlled trial with participants of a breast cancer mailing list, suggests that a Web-based support group can be useful in reducing depression and cancer-related trauma, as well as perceived stress [ 36 ].”
BackgroundPaul, C. L., Carey, M. L., Hall, A. E., Lynagh, M., Sanson‐Fisher, R., & Henskens, F. A. (2011) · Journal of Medical Internet Research · doi:10.2196/jmir.1894 · Cited by 25
“A small group of studies have explored the effectiveness of Web-based psychosocial support for cancer survivors using robust randomized controlled designs [13-17], with mixed findings for psychosocial outcomes.”
BackgroundLiu, W., Chen, X., Lu, X., & Fan, X. (2021) · Frontiers in Psychology · doi:10.3389/fpsyg.2021.612030 · Cited by 25
Crook, B., Glowacki, E. M., Love, B., Jones, B. L., Macpherson, C. F., & Johnson, R. H. (2015) · Journal of Cancer Survivorship · doi:10.1007/s11764-015-0465-8 · Cited by 27
“While some evidence suggests that online communities can be helpful for survivors seeking support and sharing opportunities [10–12], scant data exists about why some individuals within support communities fail to receive support in the form of replies to their original posts.”
BackgroundLewallen, A. C., Owen, J. E., Bantum, E. O., & Stanton, A. L. (2014) · Psycho-Oncology · doi:10.1002/pon.3477 · Cited by 27
“Online interventions result in improvements in depressive symptoms [10,8] and quality of life [11], as well as increases in perceived social support and information competence [12].”
BackgroundEngagement with a Social Networking Intervention for Cancer-Related Distress
Owen, J. E., Bantum, E. O., Gorlick, A., & Stanton, A. L. (2014) · Annals of Behavioral Medicine · doi:10.1007/s12160-014-9643-6 · Cited by 24
“several cancer-specific Internet interventions, engagement is positively associated with treatment outcomes [7, 9, 15, 16].”
BackgroundCharacterizing Social Networks and Communication Channels in a Web-Based Peer Support Intervention
Owen, J. E., Curran, M., Bantum, E. O., & Hanneman, R. A. (2016) · Cyberpsychology Behavior and Social Networking · doi:10.1089/cyber.2015.0359 · Cited by 24
Büdenbender, B., Köther, A. K., Grüne, B., Michel, M. S., KRIEGMAIR, M. C., & Alpers, G. W. (2023) · Health Expectations · doi:10.1111/hex.13699 · Cited by 26
Self-citationPoudel, P. G., Horan, M. R., Brinkman, T. M., Wang, Z., Robison, L. L., Hudson, M. M., & Huang, I. (2023) · Cancers · doi:10.3390/cancers15194710 · Cited by 28
Building Virtual Communities of Practice
Nagy, P. G., Kahn, C. E., Boonn, W. W., Siddiqui, K., Meenan, C., Knight, N., & Safdar, N. M. (2006) · Journal of the American College of Radiology · doi:10.1016/j.jacr.2006.06.005 · Cited by 24
Buis, L. R., & Whitten, P. S. (2011) · CIN Computers Informatics Nursing · doi:10.1097/ncn.0b013e318214093b · Cited by 24
Lepore, S. J., Buzaglo, J. S., Lieberman, M. A., Golant, M., & Davey, A. (2011) · BMC Cancer · doi:10.1186/1471-2407-11-379 · Cited by 24
Codifying Online Social Support for Breast Cancer Patients: Retrospective Qualitative Assessment
Mikal, J. P., Grande, S. W., & Beckstrand, M. J. (2019) · Journal of Medical Internet Research · doi:10.2196/12880 · Cited by 25
“This includes data gathered from controlled or condition-specific sites [6-8], single snapshots of data or cross-sectional research design [9,10], or qualitative accounts of support exchange during times of health transition [11,12].”
Stephen, J. E., Christie, G., Flood, K., Golant, M., Rahn, M., Rennie, H., Speca, M., Taylor‐Brown, J., & Turner, J. (2010) · Psycho-Oncology · doi:10.1002/pon.1791 · Cited by 23
Support needs of Chinese immigrant cancer patients
Leng, J. C. F., Lee, T., Li, Y., Stern, C. H., Chen, M. H., Winkel, G. H., & Gany, F. M. (2013) · Supportive Care in Cancer · doi:10.1007/s00520-013-1950-0 · Cited by 23
“Randomized studies investigating the impact of online groups are few [34, 38, 39], as are studies inclusive of minorities [33, 38].”
Gäebel, W., Großimlinghaus, I., Mucić, D., Maercker, A. R. A., Zielasek, J., & Kerst, A. (2017) · European Psychiatry · doi:10.1016/j.eurpsy.2017.01.001 · Cited by 23
“…persons Limitations: no clinician-administered clinical PTSD diagnosis, waiting-list control condition, no information on power calculation I Winzelberg et al., 2003 [35] Randomized controlled trial Web-based social support group for breast cancer patients (therapist-moderated) vs.…”
MethodAdmiraal, J. M., Bouma, G., Schroeder, C. P., de Vries, E. G. E., Walenkamp, A., & Reyners, A. K. L. (2014) · University of Groningen research database (University of Groningen / Centre for Information Technology) · Cited by 22
Modeling the temporal evolution of an online cancer forum
Durant, K. T., McCray, A. T., & Safran, C. (2010) · International Health Informatics Symposium · doi:10.1145/1882992.1883042 · Cited by 22
Whitten, P. S., Smith, S. W., Munday, S., & LaPlante, C. (2008) · Journal of Computer-Mediated Communication · doi:10.1111/j.1083-6101.2008.00423.x · Cited by 22
A Randomized Intervention Study for Breast Cancer Survivors in Japan
Miyashita, M. (2005) · Cancer Nursing · doi:10.1097/00002820-200501000-00011 · Cited by 22
Effects of disease and leader type on moderators in online support groups
Lieberman, M. A. (2008) · Computers in Human Behavior · doi:10.1016/j.chb.2008.02.018 · Cited by 22
Self‐reported efficacy of an online dental anxiety support group: a pilot study
Coulson, N., & Buchanan, H. (2007) · Community Dentistry And Oral Epidemiology · doi:10.1111/j.1600-0528.2007.00349.x · Cited by 20
Returning to Work After Breast Cancer: A Critical Review
Park, J., & Shubair, M. M. (2013) · International Journal of Disability Management · doi:10.1017/idm.2012.7 · Cited by 20
“Successful support groups are comprised of survivors who are at different stages of breast cancer treatment (Winzelberg et al., 2003).”
BackgroundWhat models of peer support do people with colorectal cancer prefer?
Ieropoli, S., WHITE, V. M., Jefford, M., & Akkerman, D. (2010) · European Journal of Cancer Care · doi:10.1111/j.1365-2354.2010.01218.x · Cited by 20
Wang, Y., Huang, M., Jiao, J., Wu, Y., Ouyang, T., Huang, J., Liu, S.-S., & Li, C.-L. (2014) · Medical Oncology · doi:10.1007/s12032-014-0921-8 · Cited by 20
“There are many interventions such as cognitive behavioral therapy [56, 61], counseling/psychotherapy [63], counseling/relaxation [64], computer-based assessment and individually tailored care plans [65, 66], supportive interventions [67–69], and multi-component interventions [70, 71].”
BackgroundChronically ill rural women: self-identified management problems and solutions
Cudney, S. A., Sullivan, T., Winters, C. A., Paul, L. C., & Oriet, P. (2005) · Chronic Illness · doi:10.1177/17423953050010010301 · Cited by 20
Thompson, H. S., Shelton, R. C., Mitchell, J. A., Eaton, T. A., Valera, P. A., & Katz, A. (2013) · JNCI Monographs · doi:10.1093/jncimonographs/lgt031 · Cited by 20
Yang, Y., Huang, Y., Dong, N., Zhang, L., & Zhang, S. (2022) · Journal of Telemedicine and Telecare · doi:10.1177/1357633x221122727 · Cited by 21
“40 However, internet-based telehealth interventions are poor due to the limitations of the internet itself 41 (e.g. network connectivity, internet speed, etc.).”
Distance art groups for women with breast cancer: guidelines and recommendations
Collie, K., Bottorff, J. L., Long, B. C., & Conati, C. (2006) · Supportive Care in Cancer · doi:10.1007/s00520-005-0012-7 · Cited by 19
“The effect sizes in this study were similar to those found in studies of in-person groups [66].”
ResultPsychosocial correlates of sleep quality and architecture in women with metastatic breast cancer
Aldridge-Gerry, A. A., Zeitzer, J. M., Palesh, O. G., Jo, B., Nouriani, B., Neri, E., & Spiegel, D. (2013) · Sleep Medicine · doi:10.1016/j.sleep.2013.07.012 · Cited by 19
“001) [26,29].”
The lived experience during the peri-diagnostic period of breast cancer: A scoping review
Rogers, C. C., Pope, S., Whitfield, F., Cohn, W. F., & Valdez, R. S. (2021) · Patient Education and Counseling · doi:10.1016/j.pec.2021.06.017 · Cited by 20
Factors affecting online health community participation behavior in patients with thyroid cancer
Park, K. A., Eum, S. Y., Oh, H., Cho, M. H., Chang, H., Lee, Y. S., Kim, S., & Park, C. S. (2020) · PLoS ONE · doi:10.1371/journal.pone.0235056 · Cited by 18
“Peer-support not only helps patients cope effectively with stressful situations, but it can also reduce depression and improves health status [46,47].”
BackgroundOnline Cancer Services: Types of Services Offered and Associated Health Outcomes
Doolittle, G. C., & Spaulding, A. (2005) · Journal of Medical Internet Research · doi:10.2196/jmir.7.3.e35 · Cited by 18
Ma, Z., Shi, Y., Yao, S., Lu, N., & Cheng, F. (2023) · Supportive Care in Cancer · doi:10.1007/s00520-023-08052-3 · Cited by 17
Psychosocial Interventions in Cancer
Benedict, C., Walsh, E. A., & Penedo, F. J. (2022) · Springer eBooks · doi:10.1007/978-3-030-85702-8_10 · Cited by 19
Health-Promotion Behaviors That Promote Self-Healing
O'Donnell, M. P. (2004) · The Journal of Alternative and Complementary Medicine · doi:10.1089/acm.2004.10.s-49 · Cited by 17
“69”
The experiences of individuals with Multiple Sclerosis in the Western Cape, South Africa
Pretorius, C., & Joubert, N. (2014) · Health SA Gesondheid · doi:10.4102/hsag.v19i1.756 · Cited by 17
“Online support groups afford the individual more anonymity than face-to-face support groups; this could make the process of self-disclosure easier and also assist the individual in offering their opinion without the fear of worry or embarrassment that might be present in a face-toface support group (Coulson 2005; Coul…”
Linguistic Adaptation in Conversation Threads: Analyzing Alignment in Online Health Communities
Wang, Y., Reitter, D., & Yen, J. (2014) · Cited by 17
Ajmera, P., Miraj, M., Kalra, S., Goyal, R. K., Chorsiya, V., Shaik, R. A., Alzhrani, M., Alanazi, A., Alqahtani, M., Miraj, S. A., et al. (2023) · Frontiers in Oncology · doi:10.3389/fonc.2022.1017343 · Cited by 17
“4 Winzelberg et al, 2004 (33) USA NM N=72 Age: 49.”
BackgroundMethodInfluentialSocial network analysis of an online melanoma discussion group.
Durant, K. T., McCray, A. T., & Safran, C. (2010) · PubMed · Cited by 16
Durant, K. T., McCray, A. T., & Safran, C. (2012) · PLoS ONE · doi:10.1371/journal.pone.0049169 · Cited by 17
Psychosocial Issues in Adolescent and Young Adult Patients and Survivors
Penn, A., Kuperberg, A., & Zebrack, B. (2016) · Pediatric oncology · doi:10.1007/978-3-319-33679-4_23 · Cited by 16
Rohrs-Cordes, K., & Paule-Koba, A. L. (2018) · Journal for the Study of Sports and Athletes in Education · doi:10.1080/19357397.2018.1529651 · Cited by 16
“Although their effectiveness after sport career termination have not been studied, online support groups are helpful interventions that improve the quality of life during the transitional phases experienced by cancer patients (Osei et al., 2013; Winzelberg et al., 2003).”
BackgroundTrachtenberg, L., Wong, J., Rennie, H., McLeod, D. L., Leung, Y. W., Warner, E., & Esplen, M. J. (2019) · Psycho-Oncology · doi:10.1002/pon.5288 · Cited by 16
“Research on text-based groups in psychooncology have also shown efficacy.(7,12,13) While evidence has suggested that text-based therapies are feasible, limited data have been published, especially within the context of body image concerns.”
BackgroundResultWeb-based 5-Step Method for affected family members
Ibanga, A. (2010) · Drugs Education Prevention and Policy · doi:10.3109/09687637.2010.514810 · Cited by 16
“Some others, particularly those who are embarrassed or stigmatized by their condition are more willing to receive support and treatment in this format with its increased anonymity rather than seek traditional treatment (Low et al., 2006; Winzelberg et al., 2003; Zabinski, Celio, Wilfley, & Taylor, 2003).”
BackgroundPreparing for Disaster: An Examination of Public Health Emergency Information on Local TV Web Sites
Tanner, A. H., Friedman, D. B., Barr, D., & Koskan, A. M. (2008) · Electronic News · doi:10.1080/19312430802453953 · Cited by 16
Sugimoto, S. (2013) · TSpace (University of Toronto) · Cited by 16
Brusadelli, E., Ferrari, L. D., Benetti, M., Bruzzese, S., Tonelli, G. M., & Gullo, S. (2021) · Research in Psychotherapy Psychopathology Process and Outcome · doi:10.4081/ripppo.2020.501 · Cited by 20
“Positive outcomes have been collected regarding, for example, the internet-based group support to cancer depressive patients (Gustafson et al., 2001; Winzelberg et al., 2003).”
BackgroundHemming, L., Duijts, S. F. A., Zomerdijk, N., Cockburn, C., Yuen, E., Hardman, R. J., Vuuren, J. V., Farrugia, T., Wilson, C., & Spelten, E. R. (2024) · Orphanet Journal of Rare Diseases · doi:10.1186/s13023-024-03477-3 · Cited by 15
“Nearly half of included studies (k = 12) focussed on women with breast cancer [30–33, 38, 40–42, 44, 46, 47, 49, 50].”
InfluentialLumbar Spine Fusion Patients’ Use of an Internet Support Group: Mixed Methods Study
Strøm, J., Høybye, M. T., Laursen, M., Jørgensen, L. B., & Nielsen, C. V. (2019) · Journal of Medical Internet Research · doi:10.2196/jmir.9805 · Cited by 15
“During the last decade, the body of literature exploring the use of ISG in cancer patients, patients with depression, patients with HIV/AIDS or other long-term conditions has grown [3-9].”
Digital Interventions for PTSD Symptoms in the General Population: a Review
Stefanopoulou, E., Lewis, D., Mughal, A., & Larkin, J. (2020) · Psychiatric Quarterly · doi:10.1007/s11126-020-09745-2 · Cited by 16
Supportive‐Expressive Group Psychotherapy
Classen, C. C., & Spiegel, D. (2011) · Wiley eBooks · doi:10.1002/9780470975176.ch10 · Cited by 15
Self-citationMishra, M. V., Bennett, M., Vincent, A., Lee, O. T., Lallas, C. D., Trabulsi, E. J., Gomella, L. G., Dicker, A. P., & Showalter, T. N. (2013) · PLoS ONE · doi:10.1371/annotation/88e8da00-ddc9-4855-8d00-4490e1f3b4fd · Cited by 15
Tollow, P., Williams, V. S., Harcourt, D. M., & Paraskeva, N. (2019) · Psycho-Oncology · doi:10.1002/pon.5086 · Cited by 14
“Peer support groups are widely regarded as a valuable resource, with existing research suggesting that internet‐mediated support groups allow patients to access practical and experiential information,(14,15) foster communities of peer support,(16) and may lead to improved psychological well‐being.(17,18) This study ha…”
BackgroundScherer, K. A., Büdenbender, B., Blum, A. K., Grüne, B., KRIEGMAIR, M. C., Michel, M. S., & Alpers, G. W. (2025) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-025-02938-4 · Cited by 15
“Online self-help groups can further reduce negative attitudes [100].”
Self-citationThe Internet as Collateral Informant
Neimark, G. B., Hurford, M. O., & DiGiacomo, J. (2006) · American Journal of Psychiatry · doi:10.1176/ajp.2006.163.10.1842 · Cited by 14
Psychosocial Rehabilitation in Cancer Care
McQuellon, R. P., & Danhauer, S. C. (2007) · Springer eBooks · doi:10.1007/978-0-387-68265-5_18 · Cited by 14
Martin, S. C., Wolters, P. L., Baldwin, A. M., Roderick, M. C., Toledo‐Tamula, M. A., Gillespie, A., & Widemann, B. C. (2014) · Journal of Genetic Counseling · doi:10.1007/s10897-014-9688-5 · Cited by 14
“ISGs have been shown to be helpful in patients with a variety of conditions, including cancer (Winzelberg et al. 2003), diabetes (Merkel and Wright 2012), HIV (Mo and Coulson 2013), and Huntington’s disease (Coulson et al. 2007).”
BackgroundInternet research and informed consent: An ethical model for using archived emails
Watson, M., Jones, D., & Burns, L. (2007) · International Journal of Therapy and Rehabilitation · doi:10.12968/ijtr.2007.14.9.24580 · Cited by 14
Lieberman, M. A. (2007) · CyberPsychology & Behavior · doi:10.1089/cpb.2007.9956 · Cited by 12
A Content Analysis of the Discussions about Clinical Trials on A Cancer-dedicated Online Forum
Peng, W., Occa, A., McFarlane, S. J., & Morgan, S. E. (2019) · Journal of Health Communication · doi:10.1080/10810730.2019.1688895 · Cited by 14
“As a result, patients have improved their physical and psychosocial well-being with increased empowerment to selfmanage their conditions (Gustafson et al., 2005; Høybye et al., 2005; Rodgers & Chen, 2005; Shaw, McTavish, Hawkins, Gustafson, & Pingree, 2000; Winzelberg et al., 2003).”
BackgroundAdolescents’ and young adults’ experiences of a prototype cancer smartphone app
Hanghøj, S., Boisen, K. A., Hjerming, M., & Pappot, H. (2021) · Digital Health · doi:10.1177/2055207621997258 · Cited by 12
Gardiner, P. M., D'Amico, S., Luo, M., & Haas, N. M. (2020) · JMIR mhealth and uhealth · doi:10.2196/14768 · Cited by 13
“Furthermore, internet-delivered interventions would enhance accessibility for patients with chronic pain in rural areas that have difficulty with transportation or other physical limitations [58-61].”
BackgroundDong, M., Huang, Y., Zhang, X., Wu, L., Ghazal, L., & Cao, F. (2025) · Psycho-Oncology · doi:10.1002/pon.70166 · Cited by 12
“The certainty of the pooled evidence was rated using Grading of Recommendations Assessment, Development and Evaluation (GRADE) covering five domains: limitations in design, inconsistency, imprecision, indirectness and publication bias [24].”
Identifying Temporal Changes and Topics that Promote Growth Within Online Communities
Durant, K. T., McCray, A. T., & Safran, C. (2011) · International Journal of Computational Models and Algorithms in Medicine · doi:10.4018/jcmam.2011040101 · Cited by 13
Högberg, K. M., Sandman, L., Nyström, M., Stockelberg, D., & Broström, A. (2013) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2013.01.005 · Cited by 12
“A few studies (Gustafson et al., 2001; Winzelberg et al., 2003; Owen et al., 2005) have focused on health outcomes from psychosocial support through the use of the Internet.”
BackgroundSupporting Health Promotion in Adults With Cancer
Coward, D. D. (2006) · Family & Community Health · doi:10.1097/00003727-200601001-00009 · Cited by 12
Social support and mental health
Ki, E., & Jang, J. (2018) · Journal of Asian Pacific Communication · doi:10.1075/japc.00011.ki · Cited by 12
Rituals of introduction and revolving roles: Socialization in an online breast cancer community
Rubenstein, E. L. (2015) · Library & Information Science Research · doi:10.1016/j.lisr.2015.11.005 · Cited by 12
Mihuta, M. E., & Green, H. J. (2017) · Supportive Care in Cancer · doi:10.1007/s00520-017-3855-9 · Cited by 11
Hanghøj, S., Bentsen, L., Hjerming, M., Borup, A., Thycosen, M., Bergmann, M. B., Godiksen, D. Ø., & Pappot, H. (2023) · Seminars in Oncology Nursing · doi:10.1016/j.soncn.2023.151408 · Cited by 11
Heron‐Speirs, H. A., Harvey, S. T., & Baken, D. (2012) · Clinical Psychology Science and Practice · doi:10.1111/j.1468-2850.2012.01274.x · Cited by 16
Overberg, R. I., Toussaint, P. J., & Zwetsloot-Schonk, B. (2005) · Patient Education and Counseling · doi:10.1016/j.pec.2005.05.010 · Cited by 11
“Web-based exchange of illness experiences reduced breast cancer patients’ scores on depression [9,10], perceived stress, cancer related trauma measures [9], and reactions to pain [10], and is found helpful by breast cancer patients [11].”
BackgroundOsuch, E. A., & Engel, C. C. (2004) · The Journal of Alternative and Complementary Medicine · doi:10.1089/acm.2004.10.s-211 · Cited by 11
“89 In addition, there are recent studies of internet interventions, 90,91 group interventions, 92 and (cid:210)writing(cid:211) therapy 93 for PTSD in the conventional literature.”
La intervención psicológica en pacientes oncológicos: una revisión de la literatura (2000-2014)
Villoria, E., Fernández, C., Padierna, C., & González, S. (2015) · Psicooncología · doi:10.5209/rev_psic.2015.v12.n2-3.51005 · Cited by 11
Psychosocial Interventions in Cancer
Benedict, C., & Penedo, F. J. (2012) · Springer eBooks · doi:10.1007/978-1-4614-4866-2_14 · Cited by 13
Lehardy, E. N., & Fowers, B. J. (2018) · Current Psychology · doi:10.1007/s12144-018-9841-7 · Cited by 10
Coffey, N. J., Weinstein, A. A., Cai, C., Cassese, J., Jones, R., Shaewitz, D., & Garfinkel, S. (2016) · Journal of Patient Experience · doi:10.1177/2374373516667007 · Cited by 11
“Although previous studies found web-based peer support groups can improve mental health symptoms such as depression, our study population generally favored health-related websites over web-based support group sites and discussion boards (20,21).”
ResultCarter, W., Fergus, K., Ahmad, S., McLeod, D., & Stephen, J. (2015) · JMIR Cancer · doi:10.2196/cancer.3887 · Cited by 10
“There has been a steady increase in the number of Internet-delivered psychological interventions addressing a range of different issues that include chronic medical conditions (see [1,2]), eating disorders [3-5], substance use (see [6] for review), depression and anxiety [7-9], and cancer (eg, [10,11]).”
BackgroundComputer-mediated and face-to-face communication in metastatic cancer support groups
Vilhauer, R. P. (2013) · Palliative & Supportive Care · doi:10.1017/s1478951513000126 · Cited by 11
“…online support groups or computer-mediated support groups (CMSGs) for various populations (Andersson et al., 2005; 2006; Devineni & Blanchard, 2005; Winzelberg et al., 2003; Vilhauer, 2009) and on communication patterns within them (Coulson, 2005; Coulson, Buchanan & Aubeeluck, 2007; Rimer et…”
BackgroundA Structured Approach to Understanding Recovery and Relapse in AA
Zhang, Y., Ramesh, A., Golbeck, J., Sridhar, D., & Getoor, L. (2018) · The Web Conference · doi:10.1145/3178876.3186019 · Cited by 9
“There is also a growing body of literature on analyzing data from health support forums [11, 41].”
BackgroundAssi, S. A., Torrington, E., Cheema, E. U., & Hamid, A. A. (2020) · Journal of Oncology Pharmacy Practice · doi:10.1177/1078155220915767 · Cited by 10
“Patients sought knowledge and emotional support from the online discussion forums mainly to deal with anxiety, depression and stress experienced as a result of their disease.(6,7) The knowledge acquired from online discussion forums was perceived as more valuable to the patients as it had been obtained directly from a…”
BackgroundWootten, A. C., Abbott, J.-A., Chisholm, K., Austin, D., Klein, B., McCabe, M. P., Meyer, D., Costello, A. J., & Murphy, D. G. (2014) · BMC Cancer · doi:10.1186/1471-2407-14-83 · Cited by 10
Anthony, K. E., Reif-Stice, C. E., Iverson, J. O., & Venette, S. J. (2020) · Wiley eBooks · doi:10.1002/9781119399926.ch42 · Cited by 10
Xiao, Y., Yang, Y., Xu, H., & Li, S. (2024) · Data and Information Management · doi:10.1016/j.dim.2024.100080 · Cited by 9
Post-traumatic stress disorder—prevalent and persistent
Palesh, O. G., & Koopman, C. (2013) · Nature Reviews Clinical Oncology · doi:10.1038/nrclinonc.2013.49 · Cited by 9
Self-citation
Metadata
- Authors
- Winzelberg, A. J., Classen, C., Alpers, G. W., Roberts, H., Koopman, C., Adams, R. E., Ernst, H., Dev, P., & Taylor, C. B.
- Affiliations
- Stanford Medicine (US)
- Corresponding author
- Winzelberg, Andrew J.
- Venue
- Cancer
- Publisher
- Wiley
- Published
- 2003-02-20
- Volume
- 97
- Issue
- 5
- Pages
- 1164-1173
- ISSN
- 0008-543X (ISSN-L)
- 1097-0142
- OpenAlex
- W2035352836
- Cited by
- 485
- References
- 71
- Citations by year
- 2026: 7 · 2025: 7 · 2024: 11 · 2023: 17 · 2022: 14 · 2021: 16 · 2020: 18 · 2019: 19 · 2018: 22 · 2017: 24 · 2016: 16 · 2015: 24 · 2014: 40 · 2013: 44 · 2012: 28
- FWCI
- 8.68
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Cancer (publishedVersion)
- PubMed (publishedVersion)
- MADOC (University of Mannheim) (submittedVersion)
- Topics
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Women's cancer prevention and management
- Keywords
- breast cancer, online social support, psychological distress, depression, perceived stress, newsgroups, quality of life, patient satisfaction
- MeSH terms
- Adult, Aged, Breast Neoplasms, Depression, Female, Humans, Middle Aged, Psychiatric Status Rating Scales, Self-Help Groups, Stress Disorders, Post-Traumatic, Patient Satisfaction, Internet
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review