Women's narratives on experiences of work ability and functioning in fibromyalgia
Abstract
Background: Fibromyalgia is a significant health problem for women of working age. However, little is known about the long‐term effects of fibromyalgia in everyday life or on work ability. Methods: A narrative interview study was conducted to explore the experiences of work ability and functioning of patients with a long history of fibromyalgia. Twenty women, aged 34–65 years, were purposively chosen for the interviews, to reach a wide range of patients with different social and professional backgrounds. Results: Four types of experience concerning work ability were identified in the narratives: confusion, coping with fluctuating symptoms, being ‘in between’ and being over the edge of exhaustion. Severe pain and fatigue symptoms, combined with a demanding life situation and ageing, seemed to lead to substantial decrease in work ability and functioning over the long term. In the narratives, vocational rehabilitation or adjustments to work tasks were rarely seen or were started too late to be effective. Conclusions: Exploring the life stories of women with fibromyalgia can reveal the perceived causes and consequences of fibromyalgia related to work ability or disability, which can be utilized in developing client‐centred rehabilitation approaches and effective interventions to support work ability and avoid premature retirement in fibromyalgia patients. Copyright © 2009 John Wiley & Sons, Ltd.
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Interview studies have indicated that the severity of symptoms and psychosocial and environmental factors influence work disability in women with fibromyalgia.
“Interview studies have indicated that the severity of symptoms and psychosocial and environmental factors influence work disability in women with FM [3,8,11-14].”
From Which aspects of health differ between working and nonworking women with fibromyalgia? A cross-sectional study of work status and health (2012) · cites this paper as [11]
Self-rated disability and unmarried status have been associated with work disability in fibromyalgia.
“as well as self rated disability and unmarried status [10,11].”
From Which aspects of health differ between working and nonworking women with fibromyalgia? A cross-sectional study of work status and health (2012) · cites this paper as [11]
Severe pain and fatigue combined with a demanding life situation and ageing have been associated with work disability in fibromyalgia.
“Severe pain and fatigue combined with a demanding life situation and ageing have been associated with work disability in FM”
From Which aspects of health differ between working and nonworking women with fibromyalgia? A cross-sectional study of work status and health (2012) · cites this paper as [11]
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- Authors
- Sallinen, M., Kukkurainen, M. L., Peltokallio, L., & Mikkelsson, M.
- Affiliations
- Satakunta University of Applied Sciences (FI)
- Reumasäätiön sairaala (FI)
- University of Jyväskylä (FI)
- Päijät-Hämeen Keskussairaala (FI)
- Corresponding author
- Sallinen, Merja
- Venue
- Musculoskeletal Care
- Publisher
- Wiley
- Published
- 2009-10-21
- Volume
- 8
- Issue
- 1
- Pages
- 18-26
- ISSN
- 1478-2189 (ISSN-L)
- 1557-0681
- OpenAlex
- W2162892625
- Semantic Scholar
- 7af11e8b208fb42dde4e33259640a6f04655d112
- Cited by
- 50
- References
- 31
- Citations by year
- 2026: 1 · 2025: 1 · 2024: 2 · 2023: 2 · 2022: 2 · 2021: 5 · 2020: 2 · 2019: 5 · 2018: 1 · 2017: 6 · 2016: 4 · 2015: 5 · 2014: 5 · 2013: 3 · 2012: 2
- FWCI
- 1.24
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Musculoskeletal Care (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Fibromyalgia and Chronic Fatigue Syndrome Research
- Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Medical Practices and Rehabilitation
- Health Sciences › Health Professions › Occupational Therapy › Occupational Therapy Practice and Research
- Keywords
- fibromyalgia, work ability, functioning, women, lived experience, long-term effects, symptom fluctuation, fatigue, pain, aging, vocational rehabilitation, work adjustment, early retirement, disability
- MeSH terms
- Adaptation, Psychological, Adult, Aged, Communication, Female, Fibromyalgia, Humans, Interviews as Topic, Middle Aged, Pain, Social Environment, Time, Work, Life
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