Care and support needs of children and young people with cancer and their parents
Abstract
The importance of psychosocial support services for children with cancer and their families is recognised but evaluation of such services is less well developed with little information available about different patterns of provision. This paper provides an overview of psychosocial support children and their families in the UK receive during and after treatment. It reports the results of a postal survey of 303 families, within which parents and children identified their satisfaction with support services and also areas of unmet need. Satisfaction was identified in a range of areas, including medical information and support from nurses and social workers. However, areas of unmet need were also highlighted, especially age appropriate facilities, emotional support and information in different formats. Although British government policy currently seeks to develop standards and guidelines of care throughout the National Health Service, this paper demonstrates that there is still a need to develop psychosocial support services and work towards recently established guidelines in order to ensure that families receive flexible but equitable packages of care and support, wherever treatment is received. Copyright © 2005 John Wiley & Sons, Ltd.
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Major themes of difficulty in the post-treatment period include fear of cancer recurrence, isolation, and loneliness, with substantial unmet needs for information about relapse surveillance and how to return to normality.
“Major themes of difficulty in the post-treatment period can include fear of cancer recurrence, isolation, and loneliness, with substantial unmet needs for information about relapse surveillance and how to ‘return to normality’ [10-12].”
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- Authors
- Mitchell, W., Clarke, S., & Sloper, P.
- Affiliations
- University of York (GB)
- Corresponding author
- Mitchell, Wendy
- Venue
- Psycho-Oncology
- Publisher
- Wiley
- Published
- 2005-12-19
- Volume
- 15
- Issue
- 9
- Pages
- 805-816
- ISSN
- 1057-9249 (ISSN-L)
- 1099-1611
- OpenAlex
- W2012459841
- Cited by
- 105
- References
- 29
- Citations by year
- 2026: 1 · 2025: 1 · 2024: 2 · 2023: 5 · 2022: 7 · 2021: 4 · 2020: 2 · 2019: 6 · 2018: 10 · 2017: 5 · 2016: 6 · 2015: 6 · 2014: 8 · 2013: 6 · 2012: 6
- FWCI
- 2.60
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Psycho-Oncology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- childhood cancer, psychosocial support, parents of children with cancer, family support, unmet care needs, service satisfaction, emotional support, medical information provision, social work, nursing support, care standards
- MeSH terms
- Adolescent, Adult, Child, Delivery of Health Care, Family, Health Services Needs and Demand, Humans, Neoplasms, Parent-Child Relations, Parents, Surveys and Questionnaires, Social Support, Children with Disabilities
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