Understanding the school experiences of children and adolescents with serious chronic illness: a systematic meta‐review
Abstract
Background: Serious chronic illness can have a detrimental effect on school attendance, participation and engagement, leaving affected students at risk of failing to meet their developmental potential. An improved understanding of factors that help to explain or mitigate this risk can help educators and health professionals deliver the most effective support. This meta‐review critiqued the available evidence examining the link between six chronic illnesses (asthma, cancer, chronic kidney diseases, heart diseases, cystic fibrosis and gastrointestinal diseases) and children's and adolescents' school experiences and outcomes, as well as investigating the medical, school, psychosocial and sociodemographic factors that are linked to poorer or better school outcomes. Methods: We searched CINAHL, Cochrane Database, EMBASE, ERIC, MEDLINE, ProQuest Theses and Dissertations, and PsycINFO (2000–2015). Systematic and narrative reviews, and meta‐analyses, of original studies examining students' subjective school experiences and objective school outcomes were eligible. We used the Preferred Reporting Items for Systematic Reviews and Meta‐analyses criteria to critically appraise all systematic reviews. The Grading of Recommendations Assessment, Development, and Evaluation system guided our recommendations for practice and research. Results: Eighteen reviews of 172 studies including more than 40 000 students were eligible. Therefore, we chose to conduct a meta‐review to provide an overview of the literature on the relationship between chronic illness and school experiences and outcomes. We also explored the associated medical, school, psychosocial and sociodemographic factors affecting the relationship between illness and school experiences and outcomes. Conclusion: Students with chronic illness demonstrate mixed school experiences and outcomes that are often worse than students without chronic illness. Modifiable factors, such as students' engagement with school, may be novel yet appropriate targets of educational support to ensure that these students reach their full schooling potential.
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Many researchers have demonstrated substantial heterogeneity across the two constructs of school refusal and truancy.
“Second, many researchers have demonstrated substantial heterogeneity across the two constructs.”
From Reconciling Contemporary Approaches to School Attendance and School Absenteeism: Toward Promotion and Nimble Response, Global Policy Review and Implementation, and Future Adaptability (Part 1) (2019) · cites this paper as Lum et al., 2017
Both school refusal and truancy have been associated with learning and health difficulties, effects from bullying, social interaction problems, maltreatment, chronic illness, and missing school.
“Both school refusal and truancy have been associated, for example, with learning and health difficulties, effects from bullying, social interaction problems, maltreatment, chronic illness, and, of course, missing school”
From Reconciling Contemporary Approaches to School Attendance and School Absenteeism: Toward Promotion and Nimble Response, Global Policy Review and Implementation, and Future Adaptability (Part 1) (2019) · cites this paper as Lum et al., 2017
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Tomberli, L., Vagnoli, L., Pavone, L., Amore, E., & Ciucci, E. (2026) · Journal of School Health · doi:10.1111/josh.70176
- Authors
- Lum, A., Wakefield, C. E., Donnan, B., Burns, M. A., Fardell, J. E., & Marshall, G. M.
- Affiliations
- UNSW Sydney (AU)
- Ronald McDonald House Charities (US)
- Corresponding author
- Lum, A.
- Venue
- Child: Care, Health and Development
- Publisher
- Wiley
- Published
- 2017-05-23
- Volume
- 43
- Issue
- 5
- Pages
- 645-662
- ISSN
- 0305-1862 (ISSN-L)
- 1365-2214
- OpenAlex
- W2618841618
- Semantic Scholar
- cf2d28ce19a105969f07d3cea11fdd4fc275fbf2
- Cited by
- 221
- References
- 103
- Citations by year
- 2026: 21 · 2025: 33 · 2024: 32 · 2023: 27 · 2022: 33 · 2021: 25 · 2020: 22 · 2019: 18 · 2018: 9 · 2013: 1
- FWCI
- 3.11
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Child Care Health and Development (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Australian Government Research Training Program Scholarship
- Kids Cancer Centre and Ronald McDonald House Charities
- Career Development Fellowship from the National Health and Medical Research Council of Australia (APP1067501)
- Kids with Cancer Foundation
- National Health and Medical Research Council of Australia, Cancer Institute New South Wales and Cancer Council New South Wales
- Topics
- Health Sciences › Health Professions › Speech and Hearing › School Health and Nursing Education
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Keywords
- school experience, educational outcomes, school attendance, school engagement, children and adolescents, asthma, cancer, chronic kidney disease, heart disease, cystic fibrosis, gastrointestinal diseases, psychosocial factors, sociodemographic factors, educational support
- MeSH terms
- Absenteeism, Academic Success, Adaptation, Psychological, Adolescent, Child, Chronic Disease, Humans, Interpersonal Relations, School Health Services, Schools, Students
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