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Personal stigma in schizophrenia spectrum disorders: a systematic review of prevalence rates, correlates, impact and interventions
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A systematic electronic PubMed, Medline and Web of Science database search was conducted regarding the prevalence, correlates, and effects of personal stigma (i.e., perceived and experienced stigmatization and self‐stigma) in patients with schizophrenia spectrum disorders. Of 54 studies (n=5,871), published from 1994 to 2011, 23 (42.6%) reported on prevalence rates, and 44 (81.5%) reported on correlates and/or consequences of perceived or experienced stigmatization or self‐stigma. Only two specific personal stigma intervention studies were found. On average, 64.5% (range: 45.0–80.0%) of patients perceived stigma, 55.9% (range: 22.5–96.0%) actually experienced stigma, and 49.2% (range: 27.9–77.0%) reported alienation (shame) as the most common aspect of self‐stigma. While socio‐demographic variables were only marginally associated with stigma, psychosocial variables, especially lower quality of life, showed overall significant correlations, and illness‐related factors showed heterogeneous associations, except for social anxiety that was unequivocally associated with personal stigma. The prevalence and impact of personal stigma on individual outcomes among schizophrenia spectrum disorder patients are well characterized, yet measures and methods differ significantly. By contrast, research regarding the evolution of personal stigma through the illness course and, particularly, specific intervention studies, which should be conducted utilizing standardized methods and outcomes, are sorely lacking.
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“Four articles (Farrer et al., 2012; Gulliver et al., 2012; Kiropoulos et al., 2011; Taylor-Rodgers & Batterham, 2014) related to personal stigma, which is a concept that incorporates perceived stigma, experienced stigma and selfstigma (Gerlinger et al., 2013).”
From Self-help interventions to reduce self-stigma in people with mental health problems: A systematic literature review (2020) · cites this paper as Gerlinger et al., 2013
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Metadata
- Authors
- Gerlinger, G., Hauser, M., De Hert, M., Lacluyse, K., Wampers, M., & Correll, C. U.
- Affiliations
- Charité – Universitätsmedizin Berlin (DE)
- Northwell Health (US)
- University Psychiatric Center campus Kortenberg, Catholic University Leuven Kortenberg Belgium
- KU Leuven (BE)
- Albert Einstein College of Medicine (US)
- Venue
- World Psychiatry
- Publisher
- Wiley
- Published
- 2013-06
- Volume
- 12
- Issue
- 2
- Pages
- 155-164
- ISSN
- 1723-8617 (ISSN-L)
- 2051-5545
- PMC
- PMC3683268
- OpenAlex
- W2052634465
- Cited by
- 383
- References
- 85
- Citations by year
- 2026: 25 · 2025: 37 · 2024: 40 · 2023: 33 · 2022: 42 · 2021: 29 · 2020: 23 · 2019: 33 · 2018: 25 · 2017: 29 · 2016: 28 · 2015: 19 · 2014: 17 · 2013: 3
- FWCI
- 2.93
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- World Psychiatry (publishedVersion)
- Europe PMC (PubMed Central) (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Lirias (submittedVersion, other-oa)
- Funders
- National Institute of Mental Health (P30MH090590)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Mental Health Treatment and Access
- Health Sciences › Medicine › Psychiatry and Mental health › Schizophrenia research and treatment
- Social Sciences › Arts and Humanities › Philosophy › Mental Health and Psychiatry
- Keywords
- personal stigma, schizophrenia spectrum disorders, self-stigma, perceived stigma, experienced stigma, stigma prevalence, quality of life, social anxiety, shame, stigma reduction interventions, clinical course
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