Cited by 13Nursing care and researchCancer survivorship and careIntergenerational Family Dynamics and Caregiving

The experiences of older caregivers of cancer patients following hospital discharge

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Schwartz, Abby J., Riedel, Richard F., LeBlanc, Thomas W., Desai, Devi, Jenkins, Carol, Mahoney, Ellen, Humphreys, Janice, Hendrix, Cristina C.·2019·Supportive Care in Cancer

Abstract

Purpose This study addressed the experiences of older caregivers of cancer patients in the 2 weeks following a hospital discharge. It sought to understand the challenges they face in providing supportive care to patients at home.Methods Qualitative descriptive interviews with a narrative approach were conducted with each caregiver at 1 and 2 weeks following the patient's discharge from the hospital. A thematic analysis approach was used to identify the themes that emerged from the caregiver interviews.Results Caregivers were primarily Caucasian (77%), were mostly 68 years of age or older (62%), and were primarily caring for a spouse (69%). Three key themes emerged from the qualitative analysis: caregiver and patient wellness are connected, caregivers' struggle with control issues, and challenges in communication with health professionals.Conclusions These findings highlight psychosocial changes that caregivers experience over the 2-week time period following hospital discharge. Implications include the need to identify interventions to better prepare caregivers for the post-discharge period.

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Authors
Schwartz, A. J., Riedel, R. F., LeBlanc, T. W., Desai, D., Jenkins, C., Mahoney, E., Humphreys, J., & Hendrix, C. C.
Affiliations
  • East Carolina University (US)
  • Duke University (US)
  • Duke University Hospital (US)
  • Boston College (US)
Corresponding author
Schwartz, Abby J.
Venue
Supportive Care in Cancer
Published
2018-07-19
Volume
27
Issue
2
Pages
609-616
ISSN
  • 0941-4355 (ISSN-L)
  • 1433-7339
OpenAlex
W2884596712
Cited by
13
References
42
Citations by year
2024: 3 · 2023: 2 · 2022: 3 · 2020: 1 · 2019: 3 · 2018: 1
FWCI
2.48
Type
journal article
Language
en
Open access
Locations
  • Supportive Care in Cancer (publishedVersion)
  • PubMed (publishedVersion)
  • Europe PMC (PubMed Central) (acceptedVersion)
  • PubMed Central (acceptedVersion)
Funders
  • National Institutes of Health (T32AG000029)
  • The Reed Foundation, Ruth Landes Memorial Research Fund
Topics
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Health Sciences › Medicine › Oncology › Cancer survivorship and care
  • Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
Keywords
older caregivers, cancer patients, hospital discharge, home care, caregiver experiences, caregiver well-being, health worker communication, spousal caregivers, psychosocial changes
MeSH terms
Aged, Humans, Male, Middle Aged, Neoplasms, Patient Discharge, Caregivers, Qualitative Research

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