The DOI matches its Crossref record; 50 of the 53 references it cites were found in a registry or an index.
Experiences of Receiving a Diagnosis of Autism Spectrum Disorder: A Survey of Adults in the United Kingdom
Open accessAbstract
A total of 128 adults with high-functioning autism spectrum disorders were surveyed concerning the process they went through to obtain their diagnosis and the subsequent support they received. Results suggested that routes to diagnosis were quite heterogeneous and overall levels of satisfaction with the diagnostic process were mixed; 40 % of respondents were 'very/quite' dissatisfied, whilst 47 % were 'very/quite' satisfied. The extent of delays, number of professionals seen, quality of information given at diagnosis and levels of post-diagnostic support predicted overall satisfaction with the diagnostic process. Important areas and suggestions for improvement were noted for all stages of the diagnostic pathway. Respondents also displayed above average levels of depressed mood and anxiety, with greater support being requested in this area.
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“Referral via general practitioners (GP) and mainstream mental health professionals were common pathways to adult autism diagnosis, as shown by data from self-report surveys (Jones et al., 2014) and diagnostic service records (Happé et al., 2016; Hofvander et al., 2009; Nydén et al., 2010; Wilson et al., 2016).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al., 2014
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“Due to these issues, there is often a gap of several years between first concern, professional consultation, and diagnosis (Begeer et al., 2013; Jones et al., 2014).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al., 2014
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In the citing paper
“Adults and parents described that professionals not recognising signs of autism and multiple referrals resulted in delays before and during assessment (Bargiela et al., 2016; Griffith et al., 2012; Jones et al., 2014; Raymond-Barker et al., 2018).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al., 2014
The cited source says what the claim attributes to it.
In the citing paper
“Diagnosticians were often unable to provide follow-up due to pressure and lack of resources (Crane et al., 2018), leaving clients dissatisfied with the conclusion of their diagnosis experience (Jones et al., 2014).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al., 2014
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In the citing paper
“Over 50% of adults in a UK survey had expected the diagnosis (Jones et al., 2014), but others described it as a surprise (Crane et al., 2018).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al., 2014
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“A UK survey found that autistic adults' preferred forms of support were counselling (44.5%), social skills training (36.7%), and support groups (35.9%) (Jones et al., 2014).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al., 2014
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“Efficient diagnostic processes benefit adults undergoing autism assessment as longer duration was associated with reduced satisfaction (Jones et al., 2014).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al., 2014
The cited source says what the claim attributes to it.
In the citing paper
“Efficient diagnostic processes benefit adults undergoing autism assessment as longer duration was associated with reduced satisfaction (Jones et al., 2014).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al., 2014
The cited source says what the claim attributes to it.
In the citing paper
“Twenty studies examined the pathways and processes of adult autism diagnosis from service user (e.g. Jones et al., 2014) and provider (e.g. Rutherford et al., 2018) perspectives, as well as the impact of DSM-5 criteria on diagnosis (e.g. Wilson et al., 2013).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al., 2014
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“Adults often did not receive post-diagnosis support but would prefer counselling.”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al. (2014)
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“Adults experienced a delay of 3 years between initial concern and first consultation”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al. (2014)
The cited source says what the claim attributes to it.
In the citing paper
“Majority agreed with their diagnosis, but emotional reactions were mixed.”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al. (2014)
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In the citing paper
“and 2 more years before receiving a diagnosis”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Jones et al. (2014)
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Citations
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“Of the 120 respondents who completed the Autism Spectrum Quotient (AQ; Baron-Cohen et al., 2001), 103 (80.5”
InfluentialBaron-Cohen, S., & Wheelwright, S. (2004) · Journal of Autism and Developmental Disorders · doi:10.1023/b:jadd.0000022607.19833.00 · Cited by 4,093
Pervasive Developmental Disorders in preschool children
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Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom
Crane, L., Chester, J. W., Goddard, L., Henry, L. A., & Hill, E. L. (2015) · Autism · doi:10.1177/1362361315573636 · Cited by 593
Self-citationHowlin, P. (2003) · Journal of Autism and Developmental Disorders · doi:10.1023/a:1022270118899 · Cited by 563
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Cited by
Sorted by citations
Lai, M.-C., Kassee, C., Besney, R., Bonato, S., Hull, L., Mandy, W., Szatmari, P., & Ameis, S. H. (2019) · The Lancet Psychiatry · doi:10.1016/s2215-0366(19)30289-5 · Cited by 1,892
Hollocks, M. J., Lerh, J. W., Magiati, I., Meiser-Stedman, R., & Brugha, T. S. (2019) · Psychological Medicine · doi:10.1017/s0033291718002283 · Cited by 988
Understanding the reasons, contexts and costs of camouflaging for autistic adults
Cage, E., & Troxell-Whitman, Z. (2019) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-018-03878-x · Cited by 661
Risk markers for suicidality in autistic adults
Cassidy, S., Bradley, L., Shaw, R., & Baron-Cohen, S. (2018) · Molecular Autism · doi:10.1186/s13229-018-0226-4 · Cited by 621
Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom
Crane, L., Chester, J. W., Goddard, L., Henry, L. A., & Hill, E. L. (2015) · Autism · doi:10.1177/1362361315573636 · Cited by 593
Self-citation
Metadata
- Authors
- Jones, L., Goddard, L., Hill, E. L., Henry, L. A., & Crane, L.
- Affiliations
- Goldsmiths University of London (GB)
- City, University of London (GB)
- Corresponding author
- Crane, Laura
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2014-06-11
- Volume
- 44
- Issue
- 12
- Pages
- 3033-3044
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2032693111
- Cited by
- 204
- References
- 53
- Citations by year
- 2026: 11 · 2025: 25 · 2024: 21 · 2023: 24 · 2022: 22 · 2021: 28 · 2020: 19 · 2019: 16 · 2018: 15 · 2017: 6 · 2016: 8 · 2015: 9
- FWCI
- 4.28
- Type
- journal article
- Language
- en
- Open access
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Goldsmiths (University of London) (acceptedVersion)
- City Research Online (City University London) (submittedVersion)
- UCL Discovery (University College London) (submittedVersion)
- University of Birmingham Research Portal (University of Birmingham) (submittedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Social Sciences › Psychology › Clinical Psychology › Psychology and Mental Health
- Keywords
- autism spectrum disorder, high-functioning autism, diagnostic process, delayed diagnosis, patient satisfaction, post-diagnostic support, mental health, depression, anxiety, autistic adults
- MeSH terms
- Adolescent, Adult, Aged, Anxiety, Child Development Disorders, Pervasive, Data Collection, Depression, Female, United Kingdom, Humans, Male, Middle Aged, Patient Satisfaction, Young Adult
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