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Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children’s Health 2016

Karpur, Arun, Lello, Angela, Frazier, Thomas, Dixon, Pamela J., Shih, Andy J.·2019·Journal of Autism and Developmental Disorders

DOI 10.1007/s10803-018-3862-9

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Abstract

Utilizing the 2016 National Survey of Children's Health, this study illustrates that children with ASD have nearly 4 times higher odds of unmet health care needs compared to children without disabilities, whereas children with other disabilities had nearly 2 times higher odds of unmet health care needs compared to children without disabilities. Applying Andersen's Behavioral Model of health care utilization, this study estimates that enabling factors (e.g., access to health insurance, quality of health insurance, access to family-centered care, family-level stress, exposure to adverse childhood experiences, and parental employment) improved prediction of regression model for unmet health care needs by 150%. Policy and program implications are discussed and a new framework for responding to observed disparities is discussed.

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Andersen, R. M. (1995) · Journal of Health and Social Behavior · doi:10.2307/2137284 · Cited by 9,831
Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014
Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., Kurzius-Spencer, M., Zahorodny, W., Robinson, C., Rosenberg, et al. (2018) · MMWR. Surveillance Summaries · doi:10.15585/mmwr.ss6706a1 · Cited by 6,078
Morbidity and mortality weekly report
Gay, N., Gay, N., & Day, A. (1997) · The American Journal of Medicine · doi:10.1016/s0002-9343(97)89440-5 · Cited by 4,684
The American Statistician
(1947) · The American Statistician · doi:10.1080/00031305.1947.10501534 · Cited by 3,745
Surveillance for Foodborne Disease Outbreaks—United States, 2006
Gould, L. H., Walsh, K. A., Vieira, A. R., Herman, K., Williams, I. T., Hall, A. J., & Cole, D. J. (2009) · Annals of Emergency Medicine · doi:10.1016/j.annemergmed.2009.11.004 · Cited by 2,372
“Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions
Hull, L., Petrides, K. V., Allison, C., Smith, P., Baron-Cohen, S., Lai, M.-C., & Mandy, W. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3166-5 · Cited by 1,365
Premature mortality in autism spectrum disorder
Hirvikoski, T., Mittendorfer-Rutz, E., Boman, M., Larsson, H., Lichtenstein, P., & Bölte, S. (2016) · British Journal of Psychiatry · doi:10.1192/bjp.bp.114.160192 · Cited by 1,011
Cautionary Note aboutR2
Kvålseth, T. O. (1985) · The American Statistician · doi:10.1080/00031305.1985.10479448 · Cited by 992
A Consensus Statement on Health Care Transitions for Young Adults With Special Health Care Needs
(2016) · American Academy of Pediatrics eBooks · doi:10.1542/9781610020190-part05-a_consensus · Cited by 918
Coefficients of Determination in Logistic Regression Models—A New Proposal: The Coefficient of Discrimination
Tjur, T. (2009) · The American Statistician · doi:10.1198/tast.2009.08210 · Cited by 916

Show all 62 references

Research works printed but not linked: 1

GAO. (2016). Youth with autism: Round table views of service needed during the transition into adulthood. Washington, DC: GAO.

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Authors: Karpur, A., Lello, A., Frazier, T., Dixon, P. J., & Shih, A. J.
Affiliations: Autism Speaks (US)
Corresponding author: Karpur, Arun
ORCID: Karpur, Arun
Frazier, Thomas
Shih, Andy J.
Venue: Journal of Autism and Developmental Disorders
Publisher: Springer Science and Business Media LLC
Published: 2018-12-14
Volume: 49
Issue: 4
Pages: 1652-1664
ISSN: 0162-3257 (ISSN-L)
1573-3432
DOI: 10.1007/s10803-018-3862-9
OpenAlex: W2904829968
Cited by: 121
References: 62
Citations by year: 2026: 8 · 2025: 15 · 2024: 20 · 2023: 19 · 2022: 18 · 2021: 25 · 2020: 14 · 2019: 2
FWCI: 6.11
Type: journal article
Language: en
Open access: closed
Licence: www.springer.com/tdm (tdm)
Locations: Journal of Autism and Developmental Disorders (publishedVersion)
PubMed (publishedVersion)
Topics: Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
Keywords: autism spectrum disorder, health disparities, unmet health needs, children with disabilities, Andersen Behavioral Model, health insurance access, family-centered care, adverse childhood experiences, parental employment, family stress, health care utilization
MeSH terms: Child Health, Autism Spectrum Disorder, Adverse Childhood Experiences, Adolescent, Child, Child Health Services, Child, Preschool, Female, Health Services Accessibility, Health Services Needs and Demand, Humans, Insurance, Health, Male, Parents, Surveys and Questionnaires, Socioeconomic Factors, United States, Healthcare Disparities

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Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children’s Health 2016

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