The DOI matches its Crossref record; 61 of the 62 references it cites were found in a registry or an index.
Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children’s Health 2016
Abstract
Utilizing the 2016 National Survey of Children's Health, this study illustrates that children with ASD have nearly 4 times higher odds of unmet health care needs compared to children without disabilities, whereas children with other disabilities had nearly 2 times higher odds of unmet health care needs compared to children without disabilities. Applying Andersen's Behavioral Model of health care utilization, this study estimates that enabling factors (e.g., access to health insurance, quality of health insurance, access to family-centered care, family-level stress, exposure to adverse childhood experiences, and parental employment) improved prediction of regression model for unmet health care needs by 150%. Policy and program implications are discussed and a new framework for responding to observed disparities is discussed.
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“However, a significant proportion of children with autism also experience co- occurring medical concerns requiring access to healthcare services unrelated to their diagnosis (Chiri & Warfield, 2012; Karpur et al., 2019; Kohane et al., 2012).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Karpur et al., 2019
Citations
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A Vaccine Clinic for Individuals With Neurodevelopmental Disabilities
Ma, V. K., Roseborough, E., Tuss, V., Mello, M., Owens, K. H., Stahmer, A. C., & Akins, R. S. (2024) · PEDIATRICS · doi:10.1542/peds.2023-064034
A Medical Neighborhood Model for Chronic Autism Care: A Compassionate Systems Perspective
Cameron, M. J., Lipschultz, J. L., Yang, Z., & Arabian, M. (2024) · Autism and child psychopathology series · doi:10.1007/978-3-031-64499-3_9
Mgaieth, F., Palmer, M. L., Charman, T., & Simonoff, E. A. (2024) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-024-06656-0
Stacey, K., Gosse, N., & Pushkarenko, K. (2025) · Adapted Physical Activity Quarterly · doi:10.1123/apaq.2024-0077
Oral health indicators in a sample of Hispanic patients diagnosed with autism spectrum disorder
Seda, M. S., Pérez-Ríos, N., Rivas‐Tumanyan, S., Negrón, D. M., & del Valle, L. M. L. (2025) · Revista de Odontopediatría Latinoamericana · doi:10.47990/njr9j726
Linking System of Care Services to Flourishing in School-Aged Children with Autism
Zhang, W., & Reszka, S. S. (2025) · Disabilities · doi:10.3390/disabilities5020057
Stress and mental health in parents of autistic and gender diverse adolescents
Nelson, K., Marinković, M. D., & Jobin, A. (2025) · Research in Autism · doi:10.1016/j.reia.2025.202667
Telehealth Caregiver Coaching for Families of Children with ASD: a Pilot RCT
Gerow, S., McGinnis, K., Exline, E., Costello, A. M., Liu, R., Davis, T. N., Hitchcock, J. H., & Adachi, E. (2025) · Journal of Developmental and Physical Disabilities · doi:10.1007/s10882-025-10026-8
Parent Training and Family Support
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Early Development and Disability
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Oulton, K., Wray, J., Foo-Caballero, M., Flynn, S., Harniess, P., Rao, A., & Gibson, F. (2025) · PLoS ONE · doi:10.1371/journal.pone.0333020
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Additional file 1 of Physical health of autistic girls and women: a scoping review
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Adams, T. M., Canizares, M. F., Silva, S. D., & Shore, B. J. (2026) · Journal of the Pediatric Orthopaedic Society of North America · doi:10.1016/j.jposna.2026.100349
Embedding an Autism-Friendly Hospital Initiative into a Pediatric Healthcare Enterprise
Bernabe, E., Colantuono, V., Freedman, B. H., Grau, D. M., Harrison, M., & Sciolla, J. (2026) · Behavior Analysis in Practice · doi:10.1007/s40617-026-01179-9
Martin, A. M., Perez, G., Battle, E. F., Saunders, A., Pozuelos, S., Ciccarelli, M. R., Paxton, A., Leathers, C., & Keehn, R. M. (2026) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2026.1834721
Bernhard, F. B., Skubik-Peplaski, C., & Dorich, J. M. (2026) · Disability and Rehabilitation · doi:10.1080/09638288.2026.2750252
Metadata
- Authors
- Karpur, A., Lello, A., Frazier, T., Dixon, P. J., & Shih, A. J.
- Affiliations
- Autism Speaks (US)
- Corresponding author
- Karpur, Arun
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2018-12-14
- Volume
- 49
- Issue
- 4
- Pages
- 1652-1664
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2904829968
- Cited by
- 121
- References
- 62
- Citations by year
- 2026: 8 · 2025: 15 · 2024: 20 · 2023: 19 · 2022: 18 · 2021: 25 · 2020: 14 · 2019: 2
- FWCI
- 6.11
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism spectrum disorder, health disparities, unmet health needs, children with disabilities, Andersen Behavioral Model, health insurance access, family-centered care, adverse childhood experiences, parental employment, family stress, health care utilization
- MeSH terms
- Child Health, Autism Spectrum Disorder, Adverse Childhood Experiences, Adolescent, Child, Child Health Services, Child, Preschool, Female, Health Services Accessibility, Health Services Needs and Demand, Humans, Insurance, Health, Male, Parents, Surveys and Questionnaires, Socioeconomic Factors, United States, Healthcare Disparities
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