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Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children’s Health 2016
Abstract
Utilizing the 2016 National Survey of Children's Health, this study illustrates that children with ASD have nearly 4 times higher odds of unmet health care needs compared to children without disabilities, whereas children with other disabilities had nearly 2 times higher odds of unmet health care needs compared to children without disabilities. Applying Andersen's Behavioral Model of health care utilization, this study estimates that enabling factors (e.g., access to health insurance, quality of health insurance, access to family-centered care, family-level stress, exposure to adverse childhood experiences, and parental employment) improved prediction of regression model for unmet health care needs by 150%. Policy and program implications are discussed and a new framework for responding to observed disparities is discussed.
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“However, a significant proportion of children with autism also experience co- occurring medical concerns requiring access to healthcare services unrelated to their diagnosis (Chiri & Warfield, 2012; Karpur et al., 2019; Kohane et al., 2012).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Karpur et al., 2019
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Metadata
- Authors
- Karpur, A., Lello, A., Frazier, T., Dixon, P. J., & Shih, A. J.
- Affiliations
- Autism Speaks (US)
- Corresponding author
- Karpur, Arun
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2018-12-14
- Volume
- 49
- Issue
- 4
- Pages
- 1652-1664
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2904829968
- Cited by
- 121
- References
- 62
- Citations by year
- 2026: 8 · 2025: 15 · 2024: 20 · 2023: 19 · 2022: 18 · 2021: 25 · 2020: 14 · 2019: 2
- FWCI
- 6.11
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism spectrum disorder, health disparities, unmet health needs, children with disabilities, Andersen Behavioral Model, health insurance access, family-centered care, adverse childhood experiences, parental employment, family stress, health care utilization
- MeSH terms
- Child Health, Autism Spectrum Disorder, Adverse Childhood Experiences, Adolescent, Child, Child Health Services, Child, Preschool, Female, Health Services Accessibility, Health Services Needs and Demand, Humans, Insurance, Health, Male, Parents, Surveys and Questionnaires, Socioeconomic Factors, United States, Healthcare Disparities
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