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A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults
Open accessAbstract
Autistic people are more likely to: be diagnosed with a range of physical health conditions (i.e. cardio-vascular disease); experience premature mortality (for most disease categories); and experience barriers to effectively accessing healthcare. This systematic review sought to identify studies that report on barriers and facilitators to physical healthcare access for autistic people. A total of 3111 records were screened and six studies were included: two quantitative, two qualitative, and two mixed-methodology studies. Patient-provider communication, sensory sensitivities, and executive functioning/planning issues emerged as important barriers to healthcare. Recommendations for clinicians and those planning services are discussed.
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“Well-described difficulties accessing healthcare for autistic people include patient-provider communication challenges, sensory difficulties, and systemic factors such as resource and time constraints (Mason et al, 2019; Walsh et al, 2020).”
From Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings (2023) · cites this paper as Mason et al, 2019
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“A growing body of research describes the substantial barriers that autistic adults face in accessing physical healthcare, which include such diverse factors as inaccessible sensory environments; providers’ knowledge about and attitudes towards autism; and the complexity of healthcare systems (Mason et al., 2019; Nicolaidis et al., 2015).”
From Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science (2022) · cites this paper as Mason et al., 2019
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Self-citation
Metadata
- Authors
- Mason, D., Ingham, B., Urbanowicz, A., Michael, C., Birtles, H., Woodbury-Smith, M., Brown, T., James, I., Scarlett, C., Nicolaidis, C., & Parr, J. R.
- Affiliations
- Royal Victoria Infirmary (GB)
- Cumbria Northumberland Tyne and Wear NHS Foundation Trust (GB)
- RMIT University (AU)
- Newcastle University (GB)
- Newcastle Hospitals - Campus for Ageing and Vitality (GB)
- North Tyneside General Hospital (GB)
- Portland State University (US)
- Corresponding author
- Mason, David
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2019-05-23
- Volume
- 49
- Issue
- 8
- Pages
- 3387-3400
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- PMC
- PMC6647496
- OpenAlex
- W2945521062
- Cited by
- 291
- References
- 49
- Citations by year
- 2026: 55 · 2025: 38 · 2024: 41 · 2023: 52 · 2022: 42 · 2021: 45 · 2020: 17 · 2019: 1
- FWCI
- 3.28
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Gredos (University of Salamanca) (publishedVersion, cc-by-nc-nd)
- PDXScholar (Portland State University) (submittedVersion, cc-by)
- RMIT Research Repository (RMIT University Library) (submittedVersion)
- Figshare (submittedVersion, cc-by)
- Figshare (submittedVersion)
- Newcastle University ePrints (Newcastle Univesity) (cc-by)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Keywords
- autism spectrum disorder, autistic adults, barriers to care, patient-provider communication, sensory sensitivity, executive function, cardiovascular disease, premature mortality, health planning
- MeSH terms
- Adult, Autistic Disorder, Communication, Health Services Accessibility, Humans, Executive Function
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Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
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