The DOI matches its Crossref record; 49 of the 49 references it cites were found in a registry or an index.
A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults
Open accessAbstract
Autistic people are more likely to: be diagnosed with a range of physical health conditions (i.e. cardio-vascular disease); experience premature mortality (for most disease categories); and experience barriers to effectively accessing healthcare. This systematic review sought to identify studies that report on barriers and facilitators to physical healthcare access for autistic people. A total of 3111 records were screened and six studies were included: two quantitative, two qualitative, and two mixed-methodology studies. Patient-provider communication, sensory sensitivities, and executive functioning/planning issues emerged as important barriers to healthcare. Recommendations for clinicians and those planning services are discussed.
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“Well-described difficulties accessing healthcare for autistic people include patient-provider communication challenges, sensory difficulties, and systemic factors such as resource and time constraints (Mason et al, 2019; Walsh et al, 2020).”
From Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings (2023) · cites this paper as Mason et al, 2019
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“A growing body of research describes the substantial barriers that autistic adults face in accessing physical healthcare, which include such diverse factors as inaccessible sensory environments; providers’ knowledge about and attitudes towards autism; and the complexity of healthcare systems (Mason et al., 2019; Nicolaidis et al., 2015).”
From Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science (2022) · cites this paper as Mason et al., 2019
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Cites
Preferred Reporting Items for Systematic Reviews and Meta-Analyses: the PRISMA statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & for the PRISMA Group (2009) · BMJ · doi:10.1136/bmj.b2535 · Cited by 83,823
Preferred reporting items for systematic reviews and meta-analyses: the PRISMA Statement.
(2009) · PubMed Central · Cited by 44,859
Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & the PRISMA Group* (2009) · Annals of Internal Medicine · doi:10.7326/0003-4819-151-4-200908180-00135 · Cited by 37,554
Baron-Cohen, S., Wheelwright, S., Skinner, R., Martin, J., & Clubley, E. (2001) · Journal of Autism and Developmental Disorders · doi:10.1023/a:1005653411471 · Cited by 6,450 · cited 1×
“(2015) also allocated a portion of their sample to those who self-identified as being on the autism spectrum, with the autism quotient (AQ; Baron-Cohen et al. 2001) used as a screen to indicate autistic traits.”
Sensory Processing in Autism: A Review of Neurophysiologic Findings
MARCO, E. J., HINKLEY, L. B. N., HILL, S. S., & NAGARAJAN, S. S. (2011) · Pediatric Research · doi:10.1203/pdr.0b013e3182130c54 · Cited by 1,112
The health status of adults on the autism spectrum
Croen, L. A., Zerbo, O., Qian, Y., Massolo, M. L., Rich, S., Sidney, S., & Kripke, C. (2015) · Autism · doi:10.1177/1362361315577517 · Cited by 1,110 · cited 19×
“One study did not provide sample size data (Dern and Sappok 2016).”
BackgroundMethodInfluentialPremature mortality in autism spectrum disorder
Hirvikoski, T., Mittendorfer-Rutz, E., Boman, M., Larsson, H., Lichtenstein, P., & Bölte, S. (2016) · British Journal of Psychiatry · doi:10.1192/bjp.bp.114.160192 · Cited by 1,011
Taylor, J. L., & Seltzer, M. M. (2011) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-010-1070-3 · Cited by 735
Reviewing studies with diverse designs: the development and evaluation of a new tool
Sirriyeh, R., Lawton, R., Gardner, P., & Armitage, G. (2012) · Journal of Evaluation in Clinical Practice · doi:10.1111/j.1365-2753.2011.01662.x · Cited by 715
Sensory processing in adults with autism spectrum disorders.
Crane, L., Goddard, L., & Pring, L. (2009) · Autism · doi:10.1177/1362361309103794 · Cited by 602
Cited by
Sorted by citations
Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science
Pellicano, E., & den Houting, J. (2022) · Journal of Child Psychology and Psychiatry · doi:10.1111/jcpp.13534 · Cited by 744
“knowledge about and attitudes towards autism; and the complexity of healthcare systems (Mason et al., 2019; Nicolaidis et al., 2015).”
BackgroundTackling healthcare access barriers for individuals with autism from diagnosis to adulthood
Malik-Soni, N., Shaker, A., Luck, H., Mullin, A. E., Wiley, R. E., Lewis, M. E. S., Fuentes, J., & Frazier, T. W. (2022) · Pediatric Research · doi:10.1038/s41390-021-01465-y · Cited by 309
What factors affect patients’ ability to access healthcare? An overview of systematic reviews
Dawkins, B., Renwick, C., Ensor, T., Shinkins, B., Jayne, D. G., & Meads, D. M. (2021) · Tropical Medicine & International Health · doi:10.1111/tmi.13651 · Cited by 276
A capabilities approach to understanding and supporting autistic adulthood
Pellicano, E., Fatima, U., Hall, G., Heyworth, M., Lawson, W., Lilley, R., Mahony, J., & Stears, M. (2022) · Nature Reviews Psychology · doi:10.1038/s44159-022-00099-z · Cited by 237
Doherty, M., Neilson, S., O'Sullivan, J., Carravallah, L., Johnson, M., Cullen, W., & Shaw, S. C. K. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-056904 · Cited by 257
Metadata
- Authors
- Mason, D., Ingham, B., Urbanowicz, A., Michael, C., Birtles, H., Woodbury-Smith, M., Brown, T., James, I., Scarlett, C., Nicolaidis, C., & Parr, J. R.
- Affiliations
- Royal Victoria Infirmary (GB)
- Cumbria Northumberland Tyne and Wear NHS Foundation Trust (GB)
- RMIT University (AU)
- Newcastle University (GB)
- Newcastle Hospitals - Campus for Ageing and Vitality (GB)
- North Tyneside General Hospital (GB)
- Portland State University (US)
- Corresponding author
- Mason, David
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2019-05-23
- Volume
- 49
- Issue
- 8
- Pages
- 3387-3400
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- PMC
- PMC6647496
- OpenAlex
- W2945521062
- Cited by
- 291
- References
- 49
- Citations by year
- 2026: 55 · 2025: 38 · 2024: 41 · 2023: 52 · 2022: 42 · 2021: 45 · 2020: 17 · 2019: 1
- FWCI
- 3.28
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Gredos (University of Salamanca) (publishedVersion, cc-by-nc-nd)
- PDXScholar (Portland State University) (submittedVersion, cc-by)
- RMIT Research Repository (RMIT University Library) (submittedVersion)
- Figshare (submittedVersion, cc-by)
- Figshare (submittedVersion)
- Newcastle University ePrints (Newcastle Univesity) (cc-by)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Keywords
- autism spectrum disorder, autistic adults, barriers to care, patient-provider communication, sensory sensitivity, executive function, cardiovascular disease, premature mortality, health planning
- MeSH terms
- Adult, Autistic Disorder, Communication, Health Services Accessibility, Humans, Executive Function
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