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Cited by 237Autism Spectrum Disorder ResearchDisability Rights and RepresentationFamily and Disability Support Research

A capabilities approach to understanding and supporting autistic adulthood

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Pellicano, Elizabeth, Fatima, Unsa, Hall, Gabrielle, Heyworth, Melanie, Lawson, Wenn, Lilley, Rozanna, Mahony, Joanne, Stears, Marc·2022·Nature Reviews Psychology
DOI 10.1038/s44159-022-00099-zPMC PMC9443657
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Abstract

There is little comprehensive research into autistic adulthood, and even less into the services and supports that are most likely to foster flourishing adult autistic lives. This limited research is partly because autism is largely conceived as a condition of childhood, but this focus of research has also resulted from the orthodox scientific approach to autism, which conceptualizes autistic experience almost entirely as a series of biologically derived functional deficits. Approaching autism in this way severely limits what is known about this neurodevelopmental difference, how research is conducted and the services and supports available. In this Review, we adopt an alternative research strategy: we apply Martha Nussbaum's capabilities approach, which focuses on ten core elements of a thriving human life, to research on autistic adulthood. In doing so, we identify areas where autistic adults thrive and where they often struggle, and highlight issues to which researchers, clinicians and policymakers should respond. The resulting picture is far more complex than conventional accounts of autism imply. It also reveals the importance of engaging autistic adults directly in the research process to make progress towards genuinely knowing autism and supporting flourishing autistic lives.

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Authors
Pellicano, E., Fatima, U., Hall, G., Heyworth, M., Lawson, W., Lilley, R., Mahony, J., & Stears, M.
Affiliations
  • University College London (GB)
  • Macquarie University (AU)
Corresponding author
Pellicano, Elizabeth
ORCID
Venue
Nature Reviews Psychology
Publisher
Springer Science and Business Media LLC
Published
2022-09-05
Volume
1
Issue
11
Pages
624-639
ISSN
2731-0574 (ISSN-L)
DOI
10.1038/s44159-022-00099-z
PMC
PMC9443657
OpenAlex
W4294631565
Cited by
237
References
291
Citations by year
2026: 109 · 2025: 44 · 2024: 50 · 2023: 29 · 2022: 4
FWCI
4.43
Type
journal article
Language
en
Open access
Licence
Locations
  • Nature Reviews Psychology (publishedVersion)
  • PubMed Central (publishedVersion)
  • PubMed (publishedVersion)
  • UCL Discovery (University College London) (submittedVersion)
Funders
  • Cooperative Research Centre for Living with Autism
  • Australian Government
  • International Society for Autism Research
  • Medical Research Council
  • Australian Research Council (FT190100077)
  • National Health and Medical Research Council
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Social Sciences › Safety Research › Disability Rights and Representation
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Keywords
capability approach, Martha Nussbaum, eudaimonia, neurodevelopmental differences, deficit model of autism, participatory research

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