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Cited by 118Autism Spectrum Disorder ResearchFamily and Disability Support ResearchPrenatal Screening and Diagnostics

The DOI matches its Crossref record; 55 of the 57 references it cites were found in a registry or an index.

Parents’ Perceptions of Autism Spectrum Disorder Etiology and Recurrence Risk and Effects of their Perceptions on Family Planning: Recommendations for Genetic Counselors

Selkirk, Christina G., McCarthy Veach, Patricia, Lian, Fengqin, Schimmenti, Lisa, LeRoy, Bonnie S.·2009·Journal of Genetic Counseling
DOI 10.1007/s10897-009-9233-0
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Abstract

Knowledge about the etiology of Autism Spectrum Disorders (ASDs) is increasing, but causes remain elusive for most cases. Genetic counselors are positioned to help families that have children with ASDs despite uncertainty regarding etiology. To determine how genetic counselors might best provide services, an anonymous survey was conducted with 255 parents whose children were diagnosed on the autism spectrum. Questions concerned: 1) their perceptions of ASD cause(s) and 2) recurrence risk, 3) whether perceived risk affected family planning decisions, 4) whether parents had received genetic services, and 5) how genetic counselors might assist families. The most prevalent perceived cause was genetic influences (72.6%). Most parents’ recurrence risk perceptions were inaccurately high and significantly affected family planning. Only 10% had seen a genetic professional related to an ASD. Parents provided several suggestions for genetic counselor best practices. Findings indicate the importance of genetic counselor awareness of parent perceptions in order to best help families who have children with ASDs.

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Crossref · 10.1007/s10897-009-9233-0

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Citations

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Show all 57 references

Research works printed but not linked: 3

  1. Jepson B., 2007, Changing the Course of Autism: A Scientific Approach for Parents and
  2. Rosen B., 2000, Surveying parents of children with autism: what is their understanding of the genetic basis for this disorder?, Journal of Genetic Counseling, 9, 547
  3. Smith A.C.M., 1998, A guide to genetic counseling, 99

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Metadata

Authors
Selkirk, C. G., McCarthy Veach, P., Lian, F., Schimmenti, L., & LeRoy, B. S.
Affiliations
  • Endeavor Health (US)
  • Department of Educational Psychology University of Minnesota Minneapolis MN USA
  • University of Minnesota (US)
Corresponding author
Selkirk, Christina G.
ORCID
Venue
Journal of Genetic Counseling
Publisher
Wiley
Published
2009-06-02
Volume
18
Issue
5
Pages
507-519
ISSN
  • 1059-7700 (ISSN-L)
  • 1573-3599
DOI
10.1007/s10897-009-9233-0
OpenAlex
W2093976142
Cited by
118
References
57
Citations by year
2025: 2 · 2024: 3 · 2023: 3 · 2022: 20 · 2021: 6 · 2020: 10 · 2019: 5 · 2018: 11 · 2017: 10 · 2016: 6 · 2015: 10 · 2014: 8 · 2013: 7 · 2012: 6
FWCI
2.74
Type
journal article
Language
en
Open access
closed
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations
  • Journal of Genetic Counseling (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Prenatal Screening and Diagnostics
Keywords
autism spectrum disorder, parental attitudes, etiology, recurrence risk, family planning, genetic counseling, genetic counselors, genetic services, risk perception
MeSH terms
Workforce, Adult, Autistic Disorder, Family Planning Services, Female, Genetic Counseling, Humans, Male, Middle Aged, Parents, Recurrence

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