The DOI matches its Crossref record; 42 of the 44 references it cites were found in a registry or an index.
The CarerQol instrument: A new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations
Abstract
The societal perspective in economic evaluations dictates that costs and effects of informal care are included in the analyses. However, this incorporation depends on practically applicable, reliable and valid methods to register the impact of informal care. This paper presents the conceptualisation and a first test of the CarerQol instrument, aimed at measuring care-related quality of life in informal caregivers. The instrument combines the information density of a burden instrument (encompassing seven important burden dimensions) with a valuation component (a VAS scale for happiness). The instrument was tested in a Dutch sample of heterogeneous caregivers (n=175) approached through regional caregiver support centres. This first test describes the feasibility as well as convergent and clinical validity of the CarerQol instrument. The seven burden dimensions related well with differences in VAS scores. In all instances, the average CarerQol-VAS scores decreased as the severity of problems increased. Multivariate analyses showed that the seven burden dimensions explained 37-43% of the variation in CarerQol-VAS scores, depending on the model used. The CarerQol seems a promising new instrument to register the impact of informal caregivers in economic evaluations.
Overview
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
In the citing paper
“The psychometric properties of the CarerQol were shown to be satisfactory [48–50].”
In the citing paper
“Instead, more recently developed specific measures of carer QoL such as the Carer Experience Scale (Al-Janabi et al. , 2008) and the Care Related Quality of Life (CarerQol) (Brouwer et al. , 2006) (e.g., the assessment of activities outside caring, carer-recipient relationship) may be more appropriate as it can detect the broader impact of caring on a carers' life (Jones et al. , 2012).”
From Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. (2018) · cites this paper as Brouwer et al., 2006
Citations
Cites
EuroQol: a new facility for the measurement of health-related quality of life
(1990) · Health Policy · doi:10.1016/0168-8510(90)90421-9 · Cited by 15,736
Relatives of the Impaired Elderly: Correlates of Feelings of Burden
Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980) · The Gerontologist · doi:10.1093/geront/20.6.649 · Cited by 5,810
(1997) · doi:10.1097/00005650-199711000-00002 · Cited by 4,544
Does Economic Growth Improve the Human Lot? Some Empirical Evidence
EASTERLIN, R. A. (1974) · Nations and Households in Economic Growth · doi:10.1016/b978-0-12-205050-3.50008-7 · Cited by 4,474
What Can Economists Learn from Happiness Research?
Frey, B. S., & Stutzer, A. (2002) · Journal of Economic Literature · doi:10.1257/002205102320161320 · Cited by 3,783
Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study
Schulz, R., & Beach, S. R. (1999) · JAMA · doi:10.1001/jama.282.23.2215 · Cited by 3,340
Will raising the incomes of all increase the happiness of all
Easterlin, R. (1995) · Journal of Economic Behavior & Organization · doi:10.1016/0167-2681(95)00003-b · Cited by 3,202
What Can Economists Learn from Happiness Research?
Frey, B. S., & Stutzer, A. (2002) · Journal of Economic Literature · doi:10.1257/jel.40.2.402 · Cited by 2,228
Validation of a Caregiver Strain Index
Robinson, B. C. (1983) · Journal of Gerontology · doi:10.1093/geronj/38.3.344 · Cited by 1,426 · cited 3×
“Perceived burden was assessed using the Caregiver Strain Index (CSI; [18]), the Self-Rated Burden scale (SRB; [20]) and Process Utility (PU; [32]).”
MethodApplication of a multidimensional caregiver burden inventory
Novak, M., & Guest, C. (1989) · The Gerontologist · doi:10.1093/geront/29.6.798 · Cited by 1,205
Research works printed but not linked: 5
- 1996, Cost-Effectiveness in Health and Medicine
- GW Torrance, 2001, Med Dec Making, 21, 329, 10.1177/02729890122062622 · DOI
- Ferrer-i-Carbonell MA, Frijters P. How important is methodology for the estimates of the determinants of happiness? Econ J, 2004; 114(july):641–659. · DOI
- C Brugge, 1999, Stroke, 20, 1517
- Van den Berg B, Brouwer WBF, van Exel NJA, Koopmanschap MA, van den Bos GAM, Rutten FFH. The opportunity cost method and the proxy good method applied in informal caregivers. Soc Sci & Med, in press.
Cited by
Sorted by citations
Speech and language therapy for aphasia following stroke
Brady, M. C., Kelly, H., Godwin, J., Enderby, P., & Campbell, P. (2016) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd000425.pub4 · Cited by 1,159
Speech and language therapy for aphasia following stroke
Brady, M., Kelly, H., Godwin, J., & Enderby, P. (2012) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd000425.pub3 · Cited by 291
An Overview of Methods and Applications to Value Informal Care in Economic Evaluations of Healthcare
Koopmanschap, M. A., van Exel, J. N. A., van den Berg, B., & Brouwer, W. B. F. (2008) · PharmacoEconomics · doi:10.2165/00019053-200826040-00001 · Cited by 262
Self-citationCaring for and caring about: Disentangling the caregiver effect and the family effect
Bobinac, A., van Exel, J. N. A., Rutten, F., & Brouwer, W. B. F. (2010) · Journal of Health Economics · doi:10.1016/j.jhealeco.2010.05.003 · Cited by 240
Self-citationGraessel, E., Berth, H., Lichte, T., & Grau, H. (2014) · BMC Geriatrics · doi:10.1186/1471-2318-14-23 · Cited by 245
Metadata
- Authors
- Brouwer, W. B. F., van Exel, N. J. A., van Gorp, B., & Redekop, W. K.
- Affiliations
- Erasmus MC (NL)
- Corresponding author
- Brouwer, W. B. F.
- ORCID
- Brouwer, W. B. F.
- Venue
- Quality of Life Research
- Published
- 2006-08
- Volume
- 15
- Issue
- 6
- Pages
- 1005-1021
- ISSN
- 0962-9343 (ISSN-L)
- 1573-2649
- OpenAlex
- W2000091611
- Cited by
- 452
- References
- 44
- Citations by year
- 2026: 38 · 2025: 37 · 2024: 48 · 2023: 31 · 2022: 44 · 2021: 25 · 2020: 30 · 2019: 31 · 2018: 25 · 2017: 21 · 2016: 23 · 2015: 11 · 2014: 20 · 2013: 11 · 2012: 17
- FWCI
- 17.53
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Quality of Life Research (publishedVersion)
- PubMed (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
- Topics
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- informal caregivers, care-related quality of life, caregiver burden, economic evaluation, societal perspective, assessment validity
- MeSH terms
- Aged, Feasibility Studies, Female, Health Status Indicators, Home Nursing, Humans, Male, Mental Health, Middle Aged, Psychometrics, Quality of Life, Surveys and Questionnaires, Caregivers, Cost of Illness
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
