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Multidimensional Burden on Family Caregivers of Adults with Autism Spectrum Disorder: a Scoping Review

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The Monetary Value of Informal Care: Obtaining Pure Time Valuations Using a Discrete Choice Experiment

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A validation study of the CarerQol instrument in informal caregivers of people with dementia from eight European countries

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Care-related Quality of Life of informal caregivers of the elderly after a hip fracture

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Close-Person Spill-Overs in End-of-Life Care: Using Hierarchical Mapping to Identify Whose Outcomes to Include in Economic Evaluations

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Quality of life of caregivers of breast cancer patients: a cross-sectional evaluation

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Effects of family nursing conversations on families in home health care: A controlled before‐and‐after study

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The Validity of the EuroQol Health and Wellbeing Short Version (EQ-HWB-S) Instrument in Parents of Children With and Without Health Conditions

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Clinical and cost-effectiveness of a New psychosocial intervention to support Independence in Dementia (NIDUS-family) for family carers and people living with dementia in their own homes: a randomised controlled trial

Burton, A., Rapaport, P., Palomo, M., Lord, K., Budgett, J., Barber, J., Hunter, R. M., Butler, L. T., Vickerstaff, V., Rockwood, K. J., et al. (2021) · Trials · doi:10.1186/s13063-021-05851-z · Cited by 21 · see citing works

Impact of neurofibromatosis type 1 with plexiform neurofibromas on the health-related quality of life and work productivity of adult patients and caregivers in the UK: a cross-sectional survey

Yoo, H. K., Porteous, A., Ng, A., Haria, K., Griffiths, A., Lloyd, A. J., Yang, X., Kazeem, G., & Barut, V. (2023) · BMC Neurology · doi:10.1186/s12883-023-03429-7 · Cited by 20 · see citing works

Estimating Informal Caregiving Time from Patient EQ-5D Data: The Informal CARE Effect (iCARE) Tool

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Decreased quality of life and societal impact of cryopyrin-associated periodic syndrome treated with canakinumab: a questionnaire based cohort study

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Parent Preferences for Health Outcomes Associated with Autism Spectrum Disorders

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The cost-effectiveness of specialized nursing interventions for people with Parkinson’s disease: the NICE-PD study protocol for a randomized controlled clinical trial

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Burden on Informal Caregivers of Elderly Cancer Survivors: Risk Versus Resilience

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‘Dual Sensory Loss Protocol’ for Communication and Wellbeing of Older Adults With Vision and Hearing Impairment – A Randomized Controlled Trial

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Technology‐based support for stroke caregiving: A rapid review of evidence

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Psychometric evaluation of the Mental Health Quality of Life (MHQoL) instrument in seven European countries

Enzing, J. J., van Krugten, F. C. W., Sabat, I., Neumann‐Böhme, S., Boer, B., Knies, S., Brouwer, W. B. F., Barros, P. P., van Exel, J. N. A., Schreyögg, J., et al. (2022) · Health and Quality of Life Outcomes · doi:10.1186/s12955-022-02041-6 · Cited by 14 · see citing works

A blended psychosocial support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: Protocol of a randomized controlled trial

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The CarerQol Instrument: A Systematic Review, Validity Analysis, and Generalization Reliability Study

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Caregiving Situation as a Predictor of Subjective Caregiver Burden: Informal Caregivers of Older Adults during the COVID-19 Pandemic

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Caregiver Burden and Quality of Life Across Alzheimer’s Disease Severity Stages

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Perseverance time of informal caregivers for people with dementia: construct validity, responsiveness and predictive validity

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Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary

Baji, P., Brouwer, W. B. F., van Exel, J. N. A., Golicki, D., Rupel, V. P., Zrubka, Z., Gulàcsi, L., Brodszky, V., Rencz, F., & Péntek, M. (2020) · Quality of Life Research · doi:10.1007/s11136-020-02662-8 · Cited by 13 · see citing works

Can telerehabilitation services combined with caregiver-mediated exercises improve early supported discharge services poststroke? A study protocol for a multicentre, observer-blinded, randomized controlled trial

Mulder, M., Nikamp, C. D. M., Nijland, R. H. M., van Wegen, E. E. H., Prinsen, E. C., Vloothuis, J. D. M., Buurke, J. H., & Kwakkel, G. (2022) · BMC Neurology · doi:10.1186/s12883-021-02533-w · Cited by 12 · see citing works

Assessment of burden and needs of family caregivers for the elderly, a scoping review

LETOULLEC, E., Gagne, A. L., Leblong, É., Somat, A., & Piette, P. (2025) · Frontiers in Aging · doi:10.3389/fragi.2025.1578911 · Cited by 11 · see citing works

Cost-utility of a new psychosocial goal-setting and manualised support intervention for independence in dementia (NIDUS-Family) versus goal setting and routine care: an economic evaluation embedded within a randomised controlled trial

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“Body & Brain”: effects of a multicomponent exercise intervention on physical and cognitive function of adults with dementia - study protocol for a quasi-experimental controlled trial

Carvalho, J., Borges‐Machado, F., Barros, D. G. M., Sampaio, A., Marques‐Aleixo, I., Bohn, L., Pizarro, A. I. N., Teixeira, L., Magalhães, J., & Ribeiro, Ó. M. (2021) · BMC Geriatrics · doi:10.1186/s12877-021-02104-1 · Cited by 11 · see citing works

An Investigation of the Interaction Patterns of Peer Patrons on an Online Peer-Support Portal for Informal Caregivers of Alzheimer’s Patients

Narasimha, S., Wilson, M. K., Dixon, E., Davis, N., & Madathil, K. C. (2019) · Journal of Consumer Health on the Internet · doi:10.1080/15398285.2019.1682757 · Cited by 11 · see citing works

Effectiveness of an innovative treatment protocol for misophonia in children and adolescents: Design of a randomized controlled trial

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‘Value-based methodology for person-centred, integrated care supported by Information and Communication Technologies’ (ValueCare) for older people in Europe: study protocol for a pre-post controlled trial

Bally, E., van Grieken, A., Ye, L., Ferrando, M., Fernández-Salido, M., Dix, R., Zanutto, O., Gallucci, M., Vasiljev, V., Carroll, Á. M., et al. (2022) · BMC Geriatrics · doi:10.1186/s12877-022-03333-8 · Cited by 11 · see citing works

PROTEA study: a protocol for a randomised controlled trial evaluating the efficacy, immune effects and cost-effectiveness of oral bacterial lysate therapy to protect moderate–late preterm infants from respiratory tract infections and wheezing

van Duuren, I. C., Smits, H. H., Duijts, L., Penders, J., & Tramper‐Stranders, G. A. (2024) · ERJ Open Research · doi:10.1183/23120541.00591-2024 · Cited by 8 · see citing works

An economic incentive package to support the wellbeing of caregivers of adolescents living with HIV during the COVID-19 pandemic in South Africa: a feasibility study protocol for a pilot randomised trial

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Implementation of guidelines on Family Involvement for persons with Psychotic disorders: a pragmatic cluster randomized trial. Effect on relatives’ outcomes and family interventions received

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Symptom burden in patients with idiopathic multicentric Castleman disease and its impact on daily life: an international patient and caregiver survey

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Evaluating the CARE4Carer Blended Care Intervention for Partners of Patients With Acquired Brain Injury: Protocol for a Randomized Controlled Trial

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What’s important when caring for a loved one? Population-based preference weights for the Adult Social Care Outcomes Toolkit for informal carers (ASCOT-Carer) for Austria

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Validity and Reliability of the EQ-HWB in Parents of Children With Health Conditions

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Psychometric validation and cultural adaptation of the Chinese version of the CarerQol-7D instrument

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Comparison of a home-based (multi) systemic intervention to promoting Medication AdheRence and Self-management among kidney transplant recipients with care-as-usual: the MARS randomized controlled trial protocol

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Costs and benefits of investing in transformative care policy packages

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A validation study of the Caregiver Mastery Scale for partners of patients with acquired brain injury

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The Burden of a Multiple Myeloma Diagnosis on Patients and Caregivers in the First Year: Western European Findings

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The Effects of a Blended Care Intervention in Partners of Patients With Acquired Brain Injury – Results of the CARE4Carer Randomized Controlled Trial

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A scoping review of preference-based instruments for measuring carer outcomes in economic evaluations

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Self-Report Measures Assessing Aspects of Personal Recovery in Relatives and Other Informal Carers of Those With Psychosis: A Systematic Review

Hilton, C., Jones, S. H., Akers, N., Panagaki, K., & Sellwood, W. (2022) · Frontiers in Psychology · doi:10.3389/fpsyg.2022.926981 · Cited by 4 · see citing works

When Is Self-perceived Burden an Acceptable Reason to Hasten Death?

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Parental Stress in Caring for Children with Disability

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Towards a Better Understanding of the Lived Experience of Carers of People With Bipolar Disorder: A Mixed‐Methods Study

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Effectiveness of temperament based therapy with support: a randomized controlled trial study protocol

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Families’ healthcare experiences for children with inherited metabolic diseases: protocol for a mixed methods cohort study

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A Virtual Music-Assisted Wellness Workshop for Family Caregivers: A Pilot Study

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Health‐related quality of life instrument with 8 items to measure health‐related quality of life among family caregivers of people with dementia: A pilot validation study

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Informal care provision for mental versus somatic disorders in the Netherlands: a cross-sectional investigation of caregiving context and quality of life outcomes

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Using a cash transfer plus SMS nudge package to improve the wellbeing among caregivers of adolescents living with HIV during the COVID-19 epidemic in South Africa: A pilot randomised controlled trial

Carries, S., Mkhwanazi, Z., Sithole, N., Sigwadhi, L. N., Moshabela, M., Nyirenda, M., Goudge, J., Davids, E. L., & Govindasamy, D. (2025) · PLOS Global Public Health · doi:10.1371/journal.pgph.0003799 · Cited by 1 · see citing works

Empowering community volunteers improves the well-being of family caregivers of musculoskeletal disorder patients: a randomized controlled trial

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Understanding how informal dementia caregiver networks are assessed in the literature: results from a scoping review

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Measuring what matters: evaluating the psychometric properties of goal attainment scaling in a psychosocial dementia trial

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Additional file 1 of Psychometric evaluation of the Mental Health Quality of Life (MHQoL) instrument in seven European countries

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Additional file 2 of Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature

Shah, R., Ali, F. M., Finlay, A. Y., & Salek, M. S. (2021) · Figshare · doi:10.6084/m9.figshare.15123826

Additional file 1 of Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature

Shah, R., Ali, F. M., Finlay, A. Y., & Salek, M. S. (2021) · Figshare · doi:10.6084/m9.figshare.15123820

Additional file 1 of Impact of neurofibromatosis type 1 with plexiform neurofibromas on the health-related quality of life and work productivity of adult patients and caregivers in the UK: a cross-sectional survey

Yoo, H. K., Porteous, A., Ng, A., Haria, K., Griffiths, A., Lloyd, A., Yang, X., Kazeem, G., & Barut, V. (2023) · Figshare · doi:10.6084/m9.figshare.24630240

Beyond Family Care: How Home- and Community-Based Services Complement Family Care to Reduce Unmet Care Needs and Enhance the Well-Being Among Older Adults With Disabilities

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Expressed emotions and caregiving appraisals among relatives of patients with psychotic disorders: a cross-sectional study

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From a caregiver perspective: Quality of life of children with epilepsy and autism spectrum disorder – a single site case-control study

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Multidimensionale Belastungen informell pflegender Angehöriger von Menschen mit Autismus-Spektrum-Störung: Eine Mixed-methods-Studie

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New Test of the Construct Validity of the CarerQol Instrument: Measuring the Impact of Informal Care Giving. Copyright: Hoefman, R. J.; van Exel, N. J.; Looren de Jong, S.; Redekop, W. K.; Brouwer, W. B.

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