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The CarerQol instrument: A new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations
Abstract
The societal perspective in economic evaluations dictates that costs and effects of informal care are included in the analyses. However, this incorporation depends on practically applicable, reliable and valid methods to register the impact of informal care. This paper presents the conceptualisation and a first test of the CarerQol instrument, aimed at measuring care-related quality of life in informal caregivers. The instrument combines the information density of a burden instrument (encompassing seven important burden dimensions) with a valuation component (a VAS scale for happiness). The instrument was tested in a Dutch sample of heterogeneous caregivers (n=175) approached through regional caregiver support centres. This first test describes the feasibility as well as convergent and clinical validity of the CarerQol instrument. The seven burden dimensions related well with differences in VAS scores. In all instances, the average CarerQol-VAS scores decreased as the severity of problems increased. Multivariate analyses showed that the seven burden dimensions explained 37-43% of the variation in CarerQol-VAS scores, depending on the model used. The CarerQol seems a promising new instrument to register the impact of informal caregivers in economic evaluations.
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“The psychometric properties of the CarerQol were shown to be satisfactory [48–50].”
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“Instead, more recently developed specific measures of carer QoL such as the Carer Experience Scale (Al-Janabi et al. , 2008) and the Care Related Quality of Life (CarerQol) (Brouwer et al. , 2006) (e.g., the assessment of activities outside caring, carer-recipient relationship) may be more appropriate as it can detect the broader impact of caring on a carers' life (Jones et al. , 2012).”
From Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. (2018) · cites this paper as Brouwer et al., 2006
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Metadata
- Authors
- Brouwer, W. B. F., van Exel, N. J. A., van Gorp, B., & Redekop, W. K.
- Affiliations
- Erasmus MC (NL)
- Corresponding author
- Brouwer, W. B. F.
- ORCID
- Brouwer, W. B. F.
- Venue
- Quality of Life Research
- Published
- 2006-08
- Volume
- 15
- Issue
- 6
- Pages
- 1005-1021
- ISSN
- 0962-9343 (ISSN-L)
- 1573-2649
- OpenAlex
- W2000091611
- Cited by
- 452
- References
- 44
- Citations by year
- 2026: 38 · 2025: 37 · 2024: 48 · 2023: 31 · 2022: 44 · 2021: 25 · 2020: 30 · 2019: 31 · 2018: 25 · 2017: 21 · 2016: 23 · 2015: 11 · 2014: 20 · 2013: 11 · 2012: 17
- FWCI
- 17.53
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Quality of Life Research (publishedVersion)
- PubMed (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
- Topics
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- informal caregivers, care-related quality of life, caregiver burden, economic evaluation, societal perspective, assessment validity
- MeSH terms
- Aged, Feasibility Studies, Female, Health Status Indicators, Home Nursing, Humans, Male, Mental Health, Middle Aged, Psychometrics, Quality of Life, Surveys and Questionnaires, Caregivers, Cost of Illness
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