Epilepsy and stigma: an update and critical review

Stigma: Notes on the Management of Spoiled Identity

(1969) · Postgraduate Medical Journal · doi:10.1136/pgmj.45.527.642 · Cited by 14,251 · see citing works

The Handbook of Social Psychology

Gravatt, A. E., Lindzey, G. E., & Aronson, F. (1969) · The Family Coordinator · doi:10.2307/582242 · Cited by 12,518 · see citing works

Stigma: Notes on the Management of Spoiled Identity.

Seeman, M. S., & Goffman, E. (1964) · American Sociological Review · doi:10.2307/2091442 · Cited by 10,716 · see citing works

Conceptualizing Stigma

Link, B. G., & Phelan, J. C. (2001) · Annual Review of Sociology · doi:10.1146/annurev.soc.27.1.363 · Cited by 8,848 · see citing works

Handbook of social psychology

(2004) · Choice Reviews Online · doi:10.5860/choice.41-3182 · Cited by 4,740 · see citing works

The Social Psychology of Stigma

Major, B., & O'Brien, L. T. (2005) · Annual Review of Psychology · doi:10.1146/annurev.psych.56.091103.070137 · Cited by 3,114 · see citing works

Epilepsy: A Comprehensive Textbook

(2008) · JAMA · doi:10.1001/jama.300.4.443-a · Cited by 2,355 · see citing works

Social Stigma: The Psychology of Marked Relationships.

Hilbert, R. A., JONES, E. E., Farina, A., Hastorf, A. H., Markus, H. R., Miller, D. T., & Scott, R. A. (1985) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2071381 · Cited by 1,876 · see citing works

A multidimensional conceptualization of racism-related stress: Implications for the well-being of people of color.

Harrell, S. P. (2000) · American Journal of Orthopsychiatry · doi:10.1037/h0087722 · Cited by 1,589 · see citing works

Mental Health Correlates of Perceived Discrimination Among Lesbian, Gay, and Bisexual Adults in the United States

Mays, V. M., & Cochran, S. D. (2001) · American Journal of Public Health · doi:10.2105/ajph.91.11.1869 · Cited by 1,452 · see citing works

Racial discrimination and blood pressure: the CARDIA Study of young black and white adults

Krieger, N., & Sidney, S. (1996) · American Journal of Public Health · doi:10.2105/ajph.86.10.1370 · Cited by 1,296 · see citing works

Racial and gender discrimination: risk factors for high blood pressure?

Krieger, N. (1990) · Social Science & Medicine · doi:10.1016/0277-9536(90)90307-e · Cited by 929 · see citing works

Perceived Discrimination and Depression among Mexican-Origin Adults in California

Finch, B. K., Kolody, B., & Vega, W. A. (2000) · Journal of Health and Social Behavior · doi:10.2307/2676322 · Cited by 815 · see citing works

Design and use of questionnaires: a review of best practice applicable to surveys of health service staff and patients

McColl, E., Jacoby, A., Thomas, L., Soutter, J. L., Bamford, C. H., Steen, N., Thomas, R., Harvey, E., Garratt, A., & Bond, J. B. (2001) · Health Technology Assessment · doi:10.3310/hta5310 · Cited by 779 · see citing works

The Social Psychology of Stigma.

Chaiklin, H. (2001) · The Journal of Nervous and Mental Disease · doi:10.1097/00005053-200111000-00013 · Cited by 685 · see citing works

The Clinical Course of Epilepsy and Its Psychosocial Correlates: Findings from a U.K. Community Study

Jacoby, A., Baker, G. A., Steen, N., Potts, P., & Chadwick, D. W. (1996) · Epilepsia · doi:10.1111/j.1528-1157.1996.tb00006.x · Cited by 632 · see citing works

Felt versus enacted stigma: A concept revisited

Jacoby, A. (1994) · Social Science & Medicine · doi:10.1016/0277-9536(94)90396-4 · Cited by 607 · see citing works

Epilepsy and social identity: the stigma of a chronic neurological disorder

Jacoby, A., Snape, D., & Baker, G. A. (2005) · The Lancet Neurology · doi:10.1016/s1474-4422(05)01014-8 · Cited by 518 · see citing works

The Treatment Gap in Epilepsy: The Current Situation and Ways Forward

Meinardi, H., Scott, R. A., Reis, R., & Sander, J. W. A. S. (2001) · Epilepsia · doi:10.1046/j.1528-1157.2001.32800.x · Cited by 396 · see citing works

The stigma of epilepsy: a European perspective

Baker, G. A., Brooks, J., Buck, D., & Jacoby, A. (2000) · Epilepsia · doi:10.1111/j.1528-1157.2000.tb01512.x · Cited by 357 · see citing works

Social stigma for adults and children with epilepsy

Jacoby, A., & AUSTIN, J. K. (2007) · Epilepsia · doi:10.1111/j.1528-1167.2007.01391.x · Cited by 286 · see citing works

The Falling Sickness

Bickerstff, E. R. (1975) · BMJ · doi:10.1136/bmj.1.5950.157-b · Cited by 248 · see citing works

A Survey of Public Attitudes Toward Epilepsy in 1979 with an Indication of Trends over the Past Thirty Years

Caveness, W. F., & Gallup, G. H. (1980) · Epilepsia · doi:10.1111/j.1528-1157.1980.tb04302.x · Cited by 245 · see citing works

Public Knowledge, Private Grief: A Study of Public Attitudes to Epilepsy in the United Kingdom and Implications for Stigma

Jacoby, A., Gorry, J., Gamble, C. L., & Baker, G. A. (2004) · Epilepsia · doi:10.1111/j.0013-9580.2004.02904.x · Cited by 216 · see citing works

Why people stigmatize: Toward a biocultural framework.

Neuberg, S. L., Smith, D., & Asher, T. (2000) · Cited by 196 · see citing works

Measuring stigma in children with epilepsy and their parents: instrument development and testing

AUSTIN, J. K., MacLeod, J. R., Dunn, D. W., Shen, J., & Perkins, S. M. (2004) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2004.04.008 · Cited by 191 · see citing works

Development of the Child Attitude Toward Illness Scale

AUSTIN, J. K., & Huberty, T. J. (1993) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/18.4.467 · Cited by 168 · see citing works

The social and economic impact of epilepsy in Zambia: a cross-sectional study

Birbeck, G. L., Chomba, E., Atadzhanov, M., Mbewe, E. K., & Haworth, A. (2006) · The Lancet Neurology · doi:10.1016/s1474-4422(06)70629-9 · Cited by 161 · see citing works

Generating a model of epileptic stigma: The role of qualitative analysis

Scambler, G., & Hopkins, A. P. (1990) · Social Science & Medicine · doi:10.1016/0277-9536(90)90258-t · Cited by 136 · see citing works

'He hath the French pox': stigma, social value and social exclusion

Reidpath, D. D., Chan, K. Y., Gifford, S. M., & Allotey, P. A. (2005) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2005.00452.x · Cited by 129 · see citing works

Diagnosis and stigma and identity amongst HIV positive Black Africans living in the UK

Flowers, P., Davis, M., Hart, G. J., Rosengarten, M., Frankis, J. S., & Imrie, J. C. (2005) · Psychology and Health · doi:10.1080/14768320500286286 · Cited by 120 · see citing works

Mental Illness Stigma: Problem of Public Health or Social Justice?

Corrigan, P. W., Watson, A. C., Byrne, P., & Davis, K. E. (2005) · Social Work · doi:10.1093/sw/50.4.363 · Cited by 105 · cited 1× · see citing works

Zambian health care workers’ knowledge, attitudes, beliefs, and practices regarding epilepsy

Chomba, E., Haworth, A., Atadzhanov, M., Mbewe, E. K., & Birbeck, G. L. (2006) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.08.012 · Cited by 104 · see citing works

Meanings of epilepsy in its sociocultural context and implications for stigma: Findings from ethnographic studies in local communities in China and Vietnam

Jacoby, A., Wang, W., Trung, D. V., Wu, J., Snape, D., Aydemir, N., Parr, J. R., Reis, R., Begley, C. E., de Boer, H., et al. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.10.006 · Cited by 102 · see citing works

Perspectives of people with enduring mental ill health from a community-based qualitative study.

Kai, J., & Crosland, A. (2001) · PubMed · Cited by 97 · see citing works

Religious beliefs about causes and treatment of epilepsy.

Ismail, H., Wright, J., Rhodes, P., & Small, N. (2005) · Europe PMC (PubMed Central) · Cited by 92 · see citing works

Epilepsy in Laos: Knowledge, attitudes, and practices in the community

Tran, D.-S., Odermatt, P., Singphuoangphet, S., Druet‐Cabanac, M., Preux, P., Strobel, M., & Barennes, H. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.02.018 · Cited by 89 · see citing works

Social Prejudice and the Adjustment of People with Epilepsy

Bagley, C. (1972) · Epilepsia · doi:10.1111/j.1528-1157.1972.tb04547.x · Cited by 80 · see citing works

Women with Onset of Epilepsy Prior to Marriage: Disclose or Conceal?

Santosh, D., Kumar, T. S., Sarma, P. S., & Radhakrishnan, K. (2007) · Epilepsia · doi:10.1111/j.1528-1167.2007.01040.x · Cited by 77 · see citing works

Zambian teachers: What do they know about epilepsy and how can we work with them to decrease stigma?

Birbeck, G. L., Chomba, E., Atadzhanov, M., Mbewe, E., & Haworth, A. (2006) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.06.005 · Cited by 71 · see citing works

‘What really annoys me is people take it like it's a disability’, epilepsy, disability and identity among people of Pakistani origin living in the UK

Rhodes, P., Small, N., Ismail, H., & Wright, J. (2007) · Ethnicity and Health · doi:10.1080/13557850701803031 · Cited by 66 · see citing works

Immigration, ‘ethnic minorities’, and ‘social exclusion’ in the European union: a critical perspective

Samers, M. E. (1998) · Geoforum · doi:10.1016/s0016-7185(98)00003-7 · Cited by 66 · see citing works

Experience of Stigma by Families with Mentally Ill Members

Muhlbauer, S. (2002) · Journal of the American Psychiatric Nurses Association · doi:10.1067/mpn.2002.125222 · Cited by 61 · see citing works

Prejudice towards chronic diseases: Comparison among epilepsy, AIDS and diabetes

Fernandes, P. T., Salgado, P. C. B., Noronha, A. L. A., Barbosa, F. D., de Souza, E. A. P., Sander, J. W. A. S., & Li, L. M. (2007) · Seizure · doi:10.1016/j.seizure.2007.01.008 · Cited by 60 · see citing works

Public awareness of, attitudes toward, and understanding of epilepsy in Isparta, Turkey

Demirci, S., Dönmez, C. M., Gündoğar, D., & Baydar, Ç. L. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.08.005 · Cited by 57 · see citing works

Epilepsy patients’ perceptions about stigma, education, and awareness: Preliminary responses based on a community participatory approach

Paschal, A. M., Hawley, S. R., Romain, T. S., Liow, K. K., Molgaard, C. A., Sly, J. R., & Sadler, T. L. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.06.007 · Cited by 56 · see citing works

Epilepsy: Public knowledge and attitude in a slum area of Karachi, Pakistan

Shafiq, M., Tanwir, M., Tariq, A., Kasi, P. M., Zafar, M., Saleem, A., Rehman, R., Zaidi, S., Taj, F., Khuwaja, A., et al. (2007) · Seizure · doi:10.1016/j.seizure.2007.02.002 · Cited by 55 · see citing works

Epilepsy stigma perception in an urban area of a limited-resource country

Fernandes, P. T., Salgado, P. C. B., Noronha, A. L. A., de Boer, H. M., Prilipko, L. L., Sander, J. W. A. S., & Li, L. M. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.02.020 · Cited by 53 · see citing works

Teachers perception about epilepsy

Fernandes, P. T., Noronha, A. L. A., de Araújo, U. F., Cabral, P., Pataro, R. P., de Boer, H. M., Prilipko, L. L., Sander, J. W. A. S., & Li, L. M. (2007) · Arquivos de Neuro-Psiquiatria · doi:10.1590/s0004-282x2007001000005 · Cited by 50 · see citing works

Epilepsy, Culture, Identity and Well-being

Allotey, P. A., & Reidpath, D. D. (2007) · Journal of Health Psychology · doi:10.1177/1359105307076231 · Cited by 44 · see citing works

Knowledge, attitudes, behaviors, and practices regarding epilepsy among Zambian clerics

Atadzhanov, M., Chomba, E. N., Haworth, A., Mbewe, E. K., & Birbeck, G. L. (2006) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.03.012 · Cited by 42 · see citing works

Does attitude toward epilepsy mediate the relationship between perceived stigma and mental health outcomes in children with epilepsy?

Funderburk, J. A., McCormick, B. P., & AUSTIN, J. K. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.04.006 · Cited by 38 · see citing works

ILAE/WHO “Out of the Shadows Campaign” Stigma: does the flag identify the cargo?

Reis, R., & Meinardi, H. (2002) · Epilepsy & Behavior · doi:10.1016/s1525-5050(02)00546-2 · Cited by 33 · see citing works

Epilepsy-related knowledge, attitudes, and practices among Zambian police officers

Mbewe, E. K., Haworth, A., Atadzhanov, M., Chomba, E., & Birbeck, G. L. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.12.010 · Cited by 28 · see citing works

Stigma and attitudes on epilepsy a study: with secondary school students

Renó, B. A., Fernandes, P. T., Bell, G. S., Sander, J. W. A. S., & Li, L. M. (2007) · Arquivos de Neuro-Psiquiatria · doi:10.1590/s0004-282x2007001000008 · Cited by 27 · see citing works

People with epilepsy are often perceived as violent

Collins, T. B. K., CAMFIELD, P. R., Camfield, C., & Lee, K. H. (2006) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.10.008 · Cited by 21 · see citing works

Listening to children and young people affected by parental HIV: Findings from a Scottish study

Cree, V. E., Kay, H., Tisdall, E. K. M., & Wallace, J. (2005) · AIDS Care · doi:10.1080/09540120500161793 · Cited by 19 · see citing works

Stress and Stigma: Explanation and Evidence in the Sociology of Crime and Illness.

Suchar, C. S., Gerhardt, U. E., & Wadsworth, M. E. J. (1986) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2071677 · Cited by 16 · see citing works

Stress and Stigma Explanations of Illness

Gerhardt, U. E. (1985) · Palgrave Macmillan UK eBooks · doi:10.1007/978-1-349-07800-4_9 · Cited by 7 · see citing works

Stress and Stigma

(1985) · Palgrave Macmillan UK eBooks · doi:10.1007/978-1-349-07800-4 · Cited by 5 · see citing works

The impact of epilepsy on patients' lives

Kerr, M. P. (2012) · Acta Neurologica Scandinavica · doi:10.1111/ane.12014 · Cited by 154 · see citing works

The Stigma of Migraine

Young, W. B., Park, J. E., Tian, I. X., & Kempner, J. (2013) · PLoS ONE · doi:10.1371/journal.pone.0054074 · Cited by 138 · see citing works

Social–cultural aspects of epilepsy in Kilimanjaro Region, Tanzania: Knowledge and experience among patients and carers

Mushi, D., Hunter, E., Mtuya, C. C., Mshana, G. H., Aris, E. A., & Walker, R. W. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2010.11.016 · Cited by 91 · see citing works

Genetic testing in the epilepsies—developments and dilemmas

Poduri, A., Sheidley, B. R., Shostak, S., & Ottman, R. (2014) · Nature Reviews Neurology · doi:10.1038/nrneurol.2014.60 · Cited by 83 · see citing works

Peer support groups as an intervention to decrease epilepsy-associated stigma

Elafros, M. A., Mulenga, J., Mbewe, E. K., Haworth, A., Chomba, E., Atadzhanov, M., & Birbeck, G. L. (2013) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.01.005 · Cited by 82 · see citing works

Health related quality of life and its correlates among people with depression attending outpatient department in ethiopia: a cross sectional study

Shumye, S., Belayneh, Z., & Mengistu, N. (2019) · Health and Quality of Life Outcomes · doi:10.1186/s12955-019-1233-7 · Cited by 79 · see citing works

Self-compassion and depression, anxiety, and resilience in adults with epilepsy

Baker, D. A., Caswell, H. L., & Eccles, F. J. R. (2018) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2018.11.025 · Cited by 81 · see citing works

Correlates of stigma in adults with epilepsy: A systematic review of quantitative studies

Baker, D., Eccles, F. J. R., & Caswell, H. L. (2018) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2018.02.016 · Cited by 77 · see citing works

Epilepsy-associated stigma in Zambia: What factors predict greater felt stigma in a highly stigmatized population?

Atadzhanov, M., Haworth, A., Chomba, E., Mbewe, E. K., & Birbeck, G. L. (2010) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2010.08.017 · Cited by 76 · see citing works

Validity of the Neurology Quality-of-Life (Neuro-QoL) measurement system in adult epilepsy

Victorson, D. E., Cavazos, J. E., Holmes, G. L., Reder, A. T., Wojna, V., Nowinski, C. J., Miller, D. M., Buono, S. K., Mueller, A., Moy, C. S., et al. (2013) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.11.008 · Cited by 69 · see citing works

Coping style and quality of life in patients with epilepsy: a cross-sectional study

Westerhuis, W., Zijlmans, M., Fischer, K., van Andel, J., & Leijten, F. S. S. (2010) · Journal of Neurology · doi:10.1007/s00415-010-5677-2 · Cited by 69 · see citing works

Determinants of felt stigma in epilepsy

Aydemir, N., Kaya, B., Yıldız, G., Öztura, İ., & Baklan, B. (2016) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2016.03.008 · Cited by 63 · see citing works

A prospective service evaluation of acceptance and commitment therapy for patients with refractory epilepsy

Dewhurst, E., Novakova, B., & Reuber, M. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.01.010 · Cited by 55 · see citing works

Changing stigmatisation of leprosy: an exploratory, qualitative life course study in Western Nigeria

Ebenso, B., Newell, J. N., Emmel, N. D., Adeyemi, G., & Ola, B. A. (2019) · BMJ Global Health · doi:10.1136/bmjgh-2018-001250 · Cited by 53 · see citing works

Stigma and functional disability in relation to marriage and employment in young people with epilepsy in rural Tanzania

Goodall, J., Salem, S., Walker, R. W., Gray, W. K., Burton, K., Hunter, E., Rogathi, J. J., Shali, E. P., Mohin, A., Mushi, D. L., et al. (2017) · Seizure · doi:10.1016/j.seizure.2017.11.016 · Cited by 49 · see citing works

Factors contributing to the development of perceived stigma in people with newly diagnosed epilepsy: A one-year longitudinal study

Lee, G.-H., Lee, S., No, S.-K., Lee, S., Ryu, J.-Y., Jo, K.-D., Kwon, J., Kim, O.-J., Park, H.-K., Kwon, O.-Y., et al. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.10.024 · Cited by 47 · see citing works

Knowledge, attitudes, and practice toward epilepsy (KAPE): A survey of Chinese and Vietnamese adults in the United States

Chung, K., Ivey, S. L., Guo, W., Chung, K., Nguyen, C., Nguyen, C. P., Chung, C., & Tseng, W. (2010) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2009.11.023 · Cited by 46 · see citing works

Quality of life in epilepsy (QOLIE): Insights about epilepsy and support groups from people with epilepsy (San Francisco Bay Area, USA)

Chung, K., Liu, Y., Ivey, S. L., Huang, D., Chung, C., Guo, W., Tseng, W., & Ma, D. (2012) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2012.02.003 · Cited by 46 · see citing works

Quality of life among people with epilepsy: a cross-sectional study from rural southern India.

S, R. P., Ramesh, R., Rachel, P., Chanda, R., Satish, N., & Mohan, V. R. (2012) · PubMed · Cited by 45 · see citing works

Self-perception of stigma in persons with epilepsy in Tehran, Iran

Ghanean, H., Jacobsson, L. H., & Nojoomi, M. (2013) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.04.009 · Cited by 42 · see citing works

Stigma and psychiatric morbidity among mothers of children with epilepsy in Zambia

Elafros, M. A., Sakubita-Simasiku, C., Atadzhanov, M., Haworth, A., Chomba, E. N., & Birbeck, G. L. (2013) · International Health · doi:10.1093/inthealth/iht028 · Cited by 40 · see citing works

Epilepsy-associated levels of perceived stigma, their associations with treatment, and related factors: A cross-sectional study in urban and rural areas in Ecuador

Luna, J., Nizard, M., Becker, D. A., Gérard, D., Cruz, A., Ratsimbazafy, V., Dumas, M., Cruz, M., & Preux, P. (2017) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2016.12.026 · Cited by 40 · see citing works

Stigma experience of people with epilepsy in Mexico and views of health care providers

Espínola-Nadurille, M., Crail‐Meléndez, D., & Sánchez-Guzmán, M. A. (2014) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.12.007 · Cited by 36 · see citing works

Cross‐Cultural Validation of a Measure of Felt Stigma in People with Intellectual Disabilities

Kock, E., Molteno, C. D., Mfiki, N., Kidd, M., Ali, A., King, M., & Strydom, A. (2011) · Journal of Applied Research in Intellectual Disabilities · doi:10.1111/j.1468-3148.2011.00644.x · Cited by 35 · see citing works

Stigma of people with epilepsy in China: Views of health professionals, teachers, employers, and community leaders

Yang, R., Wang, W., Snape, D., Chen, G., Zhang, L., Wu, J.-Z., Baker, G. A., Zheng, X., & Jacoby, A. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.04.001 · Cited by 34 · see citing works

Stigma in psychogenic nonepileptic seizures

Karakis, I., Janocko, N. J., Morton, M. L., Groover, O., Teagarden, D. L., Villarreal, H. K., Loring, D. W., & Drane, D. L. (2020) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2020.107269 · Cited by 32 · see citing works

Development of the Adult Epilepsy Self-Management Measurement Instrument (AESMMI)

Escoffery, C., Bamps, Y. A., LaFrance, W. C., Jr., STOLL, S. C., Shegog, R., Buelow, J. M., Shafer, P. O., Thompson, N. J., McGee, R. E., & Hatfield, K. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.07.025 · Cited by 31 · see citing works

Quality of life in epileptic patients compared with healthy people.

Gholami, A., Salarilak, S., Lotfabadi, P., Kiani, F., Rajabi, A., Mansori, K., & Jahromi, Z. M. (2016) · PubMed Central · Cited by 31 · see citing works

Knowledge of, attitudes toward, and perceptions of epilepsy among college students in Trinidad and Tobago

Youssef, F. F., Dial, S., Jaggernauth, N., Jagdeo, C.-L., Pascall, A., Ramessar, L., Ramnarine, M., Ramsawak, R., & Simon, T. (2009) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2009.01.027 · Cited by 31 · see citing works

Understanding the Role of Stigma and Misconceptions in the Experience of Epilepsy in India: Findings From a Mixed-Methods Study

Gosain, K., & Samanta, T. (2022) · Frontiers in Sociology · doi:10.3389/fsoc.2022.790145 · Cited by 32 · see citing works

Exploring loss and replacement of loss for understanding the impacts of epilepsy onset: A qualitative investigation

Jacoby, A., Ring, A., Whitehead, M. M., Marson, A. G., & Baker, G. A. (2014) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2014.02.015 · Cited by 29 · see citing works

“The brain is such a delicate thing”: an exploration of fear and seizures among young people with epilepsy

Ryan, S., & Räisänen, U. (2012) · Chronic Illness · doi:10.1177/1742395312449666 · Cited by 25 · see citing works

Recent changes in attitudes of US adults toward people with epilepsy — Results from the 2005 SummerStyles and 2013 FallStyles surveys

Cui, W., Kobau, R., Zack, M. M., Buelow, J. M., & AUSTIN, J. K. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.08.040 · Cited by 25 · see citing works

Measuring stigma after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Stigma item bank and short form

Kisala, P. A., Tulsky, D. S., Pace, N. M., Victorson, D. E., Choi, S. W., & Heinemann, A. W. (2015) · Journal of Spinal Cord Medicine · doi:10.1179/1079026815z.000000000410 · Cited by 24 · see citing works

Reexamining epilepsy-associated stigma: validation of the Stigma Scale of Epilepsy in Zambia

Elafros, M. A., Bowles, R. P., Atadzhanov, M., Mbewe, E. K., Haworth, A., Chomba, E., & Birbeck, G. L. (2014) · Quality of Life Research · doi:10.1007/s11136-014-0868-4 · Cited by 22 · see citing works

Development of the perceived stigma scale and the concealment of epilepsy scale for the Turkish population

Aydemir, N., Kaya, B., & Yıldız, G. (2018) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2017.11.032 · Cited by 22 · see citing works

Geriatric epilepsy: Research and clinical directions for the future

Roberson, E. D., Hope, O. A., Martin, R. C., & Schmidt, D. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.04.005 · Cited by 20 · see citing works

Perceived quality of life and associated factors among patients with severe mental illness in Ethiopia: a cross-sectional study

Shumye, S., Amare, T., Derajew, H., Endris, M., Molla, W., & Mengistu, N. (2021) · BMC Psychology · doi:10.1186/s40359-021-00664-w · Cited by 20 · see citing works

Social aspects of epilepsy and rehabilitation

Thorbecke, R., & Pfäfflin, M. (2012) · Handbook of clinical neurology · doi:10.1016/b978-0-444-52899-5.00042-3 · Cited by 19 · see citing works

Association between knowledge and attitudes of school nurses towards epilepsy and the risk of accidents in Greek schools

Toli, T., Sourtzi, P., Tsoumakas, K., & Kalokerinou‐Anagnostopoulou, A. (2013) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.01.027 · Cited by 19 · see citing works

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Simon, U. K., Gesslbauer, L., & Fink, A. (2016) · PLoS ONE · doi:10.1371/journal.pone.0150014 · Cited by 18 · see citing works

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Nováková, B., Harris, P. R., Rawlings, G. H., & Reuber, M. (2019) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2019.03.002 · Cited by 17 · see citing works

Quality of life and stigma in Lebanese people with epilepsy taking medication

Mroueh, L., Boumédiène, F., Jost, J., Ratsimbazafy, V., Preux, P., Salameh, P., & Al‐Hajje, A. (2020) · Epilepsy Research · doi:10.1016/j.eplepsyres.2020.106437 · Cited by 17 · see citing works

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Dayapoğlu, N., AYYILDIZ, N. İ., & Şeker, D. (2020) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2020.107539 · Cited by 15 · see citing works

A peer support group intervention to decrease epilepsy-related stigma in an onchocerciasis-endemic area in Mahenge, Tanzania: A pilot study

Bhwana, D. K., Das, L., Fodjo, J. N. S., Francis, F. T., Challe, D. P., Makunde, H. W., Mmbando, B. P., & Colebunders, R. (2021) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2021.108372 · Cited by 13 · see citing works

School children's stigmatising attitude towards peers with epilepsy in Nigeria

Ani, C. C., Ola, B. A., & Coker, R. (2011) · Vulnerable Children and Youth Studies · doi:10.1080/17450128.2011.630491 · Cited by 13 · see citing works

In vitro Oscillation Patterns Throughout the Hippocampal Formation in a Rodent Model of Epilepsy

Marafiga, J. R., Pasquetti, M. V., & Calcagnotto, M. E. (2021) · Neuroscience · doi:10.1016/j.neuroscience.2021.10.020 · Cited by 12 · see citing works

Epilepsy Postings on YouTube: Exercising Individuals' and Organizations' Right to Appear

Kerson, T. S. (2012) · Social Work in Health Care · doi:10.1080/00981389.2012.712634 · Cited by 10 · see citing works

The psychosocial impact of COVID-19 within the first six months of the pandemic on youth with epilepsy and their caregivers

Modi, A. C., Patel, A. D., Stevens, J. H., Smith, G. M., Huszti, H. C., Guilfoyle, S. M., Mara, C. A., Schmidt, M., & Wagner, J. L. (2021) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2021.107855 · Cited by 8 · see citing works

The Stigma of Epilepsy among Outpatients in a Tertiary Hospital in South-East Nigeria

Achor, J. U., Ezeala‐Adikaibe, B., Obayi, O., Ezeruigbo, C., Ekenze, O. S., & Onodugo, O. D. (2017) · Open Journal of Psychiatry · doi:10.4236/ojpsych.2017.74029 · Cited by 6 · see citing works

The First Seizure Clinic: psychosocial characteristics of patients and the effect of an epilepsy support program

Panelli, R. J. (2024) · Swinburne figshare (Swinburne University of Technology) · doi:10.25916/sut.26294635 · Cited by 4 · see citing works

Psychological self-security and self-concept among Saudi epilepsy patients at a tertiary care center in KSA

Aldosary, W. S., Heena, H., & El-Bakri, N. (2021) · Journal of Family Medicine and Primary Care · doi:10.4103/jfmpc.jfmpc_261_18 · Cited by 3 · see citing works

Public Awareness of Epilepsy and Social Attitude Toward Persons With Epilepsy Among the General Population in Makkah, Saudi Arabia

Algahtani, R. M., Khateeb, F., Khateb, F., Alhazmi, A. S., Alshareef, B., & Fatani, B. A. (2024) · Cureus · doi:10.7759/cureus.57398 · Cited by 3 · see citing works

Quality of Life, Its Determinants, and Psychiatric Comorbidities in Juvenile Myoclonic Epilepsy: A Cross-Sectional Observational Study From North India

Choudhury, C., Sahib, A., Chaudhry, N., Gupta, M., Chandan, S. K., & Laskar, S. (2024) · Cureus · doi:10.7759/cureus.69228 · Cited by 2 · see citing works

Narratives of Living with Epilepsy Diagnosed in Adulthood

Brosh, L. (2011) · University of Hertfordshire Research Archive (University of Hertfordshire) · Cited by 2 · see citing works

A Historical Review on Stigma of Epilepsy and its Interactive Factors

Kotsaki, K. (2022) · Global Journal of Intellectual & Developmental Disabilities · doi:10.19080/gjidd.2022.09.555771 · Cited by 1 · see citing works

The role of neutrophil-lymphocyte ratio in predicting alcohol withdrawal-induced seizures in patients with alcohol use disorder

Ramakan, E. D., Büyükakça, E., Coskun, C. N., & Alnıak, İ. (2025) · Journal of Dependence · doi:10.51982/bagimli.1581177 · Cited by 1 · see citing works

Advocacy and reduction of stigma

Okpaku, S. O. (2014) · Cambridge University Press eBooks · doi:10.1017/cbo9781139136341.009 · Cited by 1 · see citing works

Children's access to medicines

Alkahtani, S. A., Cherrill, J., Tambe, P., Millward, C., Hilliam, R., Sammons, H. M., & Choonara, I. (2012) · Archives of Disease in Childhood · doi:10.1136/archdischild-2012-301728.39 · Cited by 1 · see citing works

The Enigma of Stigma

Wagner, J. L. (2014) · Contemporary Psychology · doi:10.1037/a0036360 · Cited by 1 · see citing works

Social and economic aspects of epilepsy

Dubelt, J., Zienkiewicz, E., & Koncewicz, R. (2014) · Cited by 1 · see citing works

Epilepsy and the weight of words

Gennaro, G. D., Ciullo, I., D’Aniello, A., Grammaldo, L. G., Panzini, C., Quarato, P. P., Salamone, E. M., & Tomasini, A. (2026) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2026.111096 · Cited by 1 · see citing works

Studies on the perception of mental illness and epilepsy in Tehran, Iran : a study in stigma and discrimination

Ghanean, H. (2013) · KTH Publication Database DiVA (KTH Royal Institute of Technology)

Kwaliteit van leven bij epilepsie: zijn het de aanvallen of is het de aanpassing?

Westerhuis, W., van Andel, J., & Zijlmans, M. (2011) · Neuropraxis · doi:10.1007/s12474-011-0010-0

Programs to reduce stigma in epilepsy and HIV/AIDS

Thom, R. (2014) · Cambridge University Press eBooks · doi:10.1017/cbo9781139136341.015

Current knowledge about epilepsy and associated psychosocial conditions

Talarska, D., Stanisławska, J., Strugała, M., & Talarska, P. (2014) · Journal of Epileptology · doi:10.1515/joepi-2015-0012

Stygmatyzm padaczki a praca zawodowa - opis przypadku Stigma of Epilepsy and Ability to Work - Case Study

Zachwieja, J. (2013)

Evaluation of the quality of life of patients with epilepsy and patients with physchogenic non-epileptic seizures

Škrijelj, F. (2013) · doi:10.2298/kg20131024skrijelj

Reducing Epilepsy-Related Stigma: Teachers' Implementation of an Epilepsy Education Program

Gibson, G. M. (2013) · Scholarship@Western (Western University)

Experiences of living with epilepsy

Eastman, E. (2019) · Unisa Institutional Repository (University of South Africa)

The Quality of life among adult Sudanese patients with epilepsyPreprint

Siddig, A., Ahmed, A. H. M., Ahmed, K. A. H. M., & Omer, M. E. A. (2021) · Research Square · doi:10.21203/rs.3.rs-646638/v1

The quality of life among Sudanese Patients with Epilepsy, Khartoum, SudanPreprint

Ibrahim, E. A. A., Ali, L. H. M., Ahmed, K. A. H. M., & Omer, M. E. A. (2021) · Research Square · doi:10.21203/rs.3.rs-900915/v1

Quality Of Life and Associated Factors among Patients with Major Depression on Follow Up At Amanuel Mental Specialized Hospital, Addis Ababa, EthiopiaPreprint

enkoyee, D. K., Angaw, D. A., Gebreheat, G., Ayalew, G. D., & Wondifraw, A. Z. (2019) · doi:10.21203/rs.2.16048/v1

Epilepsy

Scharfman, H. E., Peterson, A. R., & Binder, D. K. (2022) · Elsevier eBooks · doi:10.1016/b978-0-323-85654-6.00060-5

Social Considerations in Epilepsy

Haynes, J., Patel, K., & Baca, C. B. (2024) · Springer eBooks · doi:10.1007/978-3-031-77741-7_13

The role of psychological well-being in the effect of spirituality on stigma in individuals with epilepsy

Sarpdağı, Y., Kiraz, M., Örün, M. O., Sir, Ö., Kaplan, E., Atan, K., Çiftçi, N., & Yıldız, M. (2025) · Seizure · doi:10.1016/j.seizure.2025.10.005

Sociocultural aspects and different types of stigmatization in epilepsy

Parfenova, E. V., Rider, F. K., & Gersamia, A. (2018) · Neurology neuropsychiatry Psychosomatics · doi:10.14412/2074-2711-2018-1s-89-95 · Cited by 10 · see citing works

Stigma in Epilepsy

Fiest, K. M., Birbeck, G. L., Jacoby, A., & Jetté, N. (2014) · Current Neurology and Neuroscience Reports · doi:10.1007/s11910-014-0444-x · Cited by 121 · see citing works

Being epileptic: coming to terms with stigma

Scambler, G., & Hopkins, A. P. (1986) · Sociology of Health & Illness · doi:10.1111/1467-9566.ep11346455 · Cited by 777 · see citing works

Interventions to reduce epilepsy-associated stigma

Birbeck, G. L. (2006) · Psychology Health & Medicine · doi:10.1080/13548500600595343 · Cited by 40 · see citing works

Risk and protective factors related to stigma among people with epilepsy: An integrative review

Lee, H., Choi, E. K., Park, H. B., & Yang, S. H. (2020) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2020.106908 · Cited by 37 · see citing works