Cited by 78Ethics in Clinical ResearchRace, Genetics, and SocietyCultural Competency in Health Care

Underrepresentation of Hispanics and Other Minorities in Clinical Trials: Recruiters’ Perspectives

Occa, Aurora, Morgan, Susan E., Potter, JoNell E.·2018·Journal of Racial and Ethnic Health Disparities

Abstract

Clinical trials and research studies often fail to recruit participants from the minorities, hampering the generalizability of results. In order to mitigate this problem, the present study investigated how race/ethnicity affects the process of recruiting people from racial and ethnic minority groups, by conducting 11 focus groups with professional recruiters. Several themes emerged, such as how to adapt to potential participants' language competency and literacy levels, the importance to engage in culturally appropriate verbal and non-verbal communication, and to establish a sense of homophily between recruiters and patients. In addition, recruiters pointed out possible solutions to accommodate socioeconomic concerns, to adapt to contextual factors-including immigration status-and ultimately to respond to potential participants' mistrust of medical research. These findings are discussed, and future recommendations are provided.

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Crossref · 10.1007/s40615-017-0373-x

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43 of 43 references verified0 citation errors · 0 not checkable

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Authors
Occa, A., Morgan, S. E., & Potter, J. E.
Affiliations
University of Miami (US)
Corresponding author
Occa, Aurora
Venue
Journal of Racial and Ethnic Health Disparities
Published
2017-04-27
Volume
5
Issue
2
Pages
322-332
ISSN
  • 2196-8837 (ISSN-L)
  • 2197-3792
OpenAlex
W2607917317
Cited by
78
References
43
Citations by year
2026: 5 · 2025: 11 · 2024: 12 · 2023: 15 · 2022: 15 · 2021: 9 · 2020: 2 · 2019: 7 · 2018: 2
FWCI
2.83
Type
journal article
Language
en
Open access
closed
Locations
  • Journal of Racial and Ethnic Health Disparities (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
  • Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Race, Genetics, and Society
  • Social Sciences › Sociology and Political Science › Cultural Competency in Health Care
Keywords
clinical trial recruitment, racial and ethnic minorities, Hispanic population, underrepresentation in research, language barriers, literacy, culturally appropriate communication, homophily, socioeconomic barriers, immigration status, health disparities
MeSH terms
Literacy, Black or African American, Clinical Trials as Topic, Communication, Communication Barriers, Ethnicity, Female, Hispanic or Latino, Humans, Male, Minority Groups, Research Personnel, Socioeconomic Factors, Focus Groups, Patient Selection, Trust, Biomedical Research, Cultural Competency

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