The Care-Giving Needs of Carers of Persons with First Episode of Psychosis: Exploratory Qualitative Findings from India

Udgiri, Swarupa M.; Nirmala, B. P.; Thirthalli, Jagadisha

doi:10.1007/s40737-017-0094-9

Cited by 3Family Caregiving in Mental IllnessFamily Support in IllnessNursing care and research

The Care-Giving Needs of Carers of Persons with First Episode of Psychosis: Exploratory Qualitative Findings from India

Udgiri, Swarupa M., Nirmala, B. P., Thirthalli, Jagadisha·2017·Journal of Psychosocial Rehabilitation and Mental Health

DOI 10.1007/s40737-017-0094-9

Open this paper in CoChat — free account

Integrity signals

Registry

Crossref · 10.1007/s40737-017-0094-9

Cites

53 of 53 references verified0 citation errors · 0 not checkable

Statistics

Recomputing p-values needs the paper’s full text.

Claims the paper makes

We couldn’t retrieve this paper’s full text, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Indian studies tend to focus on the needs of caregivers, e.g., need for obtaining knowledge regarding illness, treatment, services, and benefits.
“Indian studies tend to focus on the needs of caregivers, e.g., need for obtaining knowledge regarding illness, treatment, services, and benefits (Kumar et al., 2019, Udgiri et al., 2017), and experiences and help-seeking amongst caregivers (Sadath et al., 2014).”
From Qualitative study to explore the perspectives and mental health experiences of first episode psychosis patients and their caregivers in North India (2024) · cites this paper as Udgiri et al., 2017

A General Inductive Approach for Analyzing Qualitative Evaluation Data
Thomas, D. R. (2006) · American Journal of Evaluation · doi:10.1177/1098214005283748 · Cited by 10,858 · see citing works
Qualitative research in health care: Analysing qualitative data
Pope, C. (2000) · BMJ · doi:10.1136/bmj.320.7227.114 · Cited by 8,131 · see citing works
Enhancing the quality and credibility of qualitative analysis.
(1999) · PubMed Central · Cited by 4,133 · see citing works
Qualitative Research: Rigour and qualitative research
Mays, N., & Pope, C. (1995) · BMJ · doi:10.1136/bmj.311.6997.109 · Cited by 2,715 · see citing works
The clinical global impressions scale: applying a research tool in clinical practice.
Busner, J., & Targum, S. D. (2007) · PubMed Central · Cited by 1,952 · see citing works
Indian family systems, collectivistic society and psychotherapy
Chadda, R., & Deb, K. (2013) · Indian Journal of Psychiatry · doi:10.4103/0019-5545.105555 · Cited by 602 · see citing works
Qualitative Research: Observational methods in health care settings
Mays, N., & Pope, C. (1995) · BMJ · doi:10.1136/bmj.311.6998.182 · Cited by 491 · see citing works
First steps in qualitative data analysis: transcribing
Bailey, J. (2008) · Family Practice · doi:10.1093/fampra/cmn003 · Cited by 480 · see citing works
The ABC schizophrenia study: a preliminary overview of the results
Häfner, H., Maurer, K., Löffler, W., der Heiden, W. A., Munk‐Jørgensen, P., Hambrecht, M., & Riecher‐Rössler, A. (1998) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s001270050069 · Cited by 253 · see citing works
Courtesy stigma
Angermeyer, M. C., Schulze, B., & Dietrich, S. (2003) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s00127-003-0680-x · Cited by 249 · see citing works
Caring for the family caregivers of persons with mental illness
Chadda, R. (2014) · Indian Journal of Psychiatry · doi:10.4103/0019-5545.140616 · Cited by 245 · see citing works
Clinical and social determinants of duration of untreated psychosis in the ÆSOP first-episode psychosis study
Morgan, C., Abdul-Al, R., Lappin, J., Jones, P. B., Fearon, P., Leese, M., Croudace, T. J., Morgan, K. D., Dazzan, P., Craig, T., et al. (2006) · The British Journal of Psychiatry · doi:10.1192/bjp.bp.106.021303 · Cited by 200 · see citing works
The first episode of psychosis: the experience of relatives
Addington, J., Coldham, E. L., Jones, B., Ko, T., & Addington, D. E. (2003) · Acta Psychiatrica Scandinavica · doi:10.1034/j.1600-0447.2003.00153.x · Cited by 193 · see citing works
Cultural and Temporal Variations in Schizophrenia: A Speculation on the Importance of Industrialization
Cooper, J., & Sartorius, N. (1977) · The British Journal of Psychiatry · doi:10.1192/bjp.130.1.50 · Cited by 166 · see citing works
Psychological distress, perceived burden and quality of life in caregivers of persons with schizophrenia
Stanley, S., Balakrishnan, S., & Ilangovan, S. (2017) · Journal of Mental Health · doi:10.1080/09638237.2016.1276537 · Cited by 155 · see citing works
Experience of caregiving: relatives of people experiencing a first episode of psychosis
Tennakoon, L., Fannon, D. G., Doku, V. C. K., O’Ceallaigh, S., Soni, W., Santamaria, M., Kuipers, E., & Sharma, T. (2000) · The British Journal of Psychiatry · doi:10.1192/bjp.177.6.529 · Cited by 153 · see citing works
First-Time Primary Caregivers' Experience of Caring for Young Adults With First-Episode Psychosis
McCann, T. V., Lubman, D. I., & Clark, E. (2009) · Schizophrenia Bulletin · doi:10.1093/schbul/sbp085 · Cited by 150 · see citing works
Psychological distress in carers of people with mental disorders.
Shah, A. J., Wadoo, O., & Latoo, J. (2010) · British journal of medical practitioners · Cited by 146 · see citing works
The role of family work in early psychosis
Addington, J., Collins, A. A., McCleery, A., & Addington, D. E. (2005) · Schizophrenia Research · doi:10.1016/j.schres.2005.01.013 · Cited by 122 · see citing works
Telephone-delivered psychosocial intervention reduces burden in dementia caregivers
Tremont, G. N., Davis, J. D., Bishop, D. S., & Fortinsky, R. H. (2008) · Dementia · doi:10.1177/1471301208096632 · Cited by 121 · see citing works
Three-year outcome of family work in an early psychosis program
Addington, J., McCleery, A., & Addington, D. E. (2005) · Schizophrenia Research · doi:10.1016/j.schres.2005.03.019 · Cited by 116 · see citing works
Psychosocial telephone intervention for dementia caregivers: A randomized, controlled trial
Tremont, G., Davis, J. D., Papandonatos, G. D., Ott, B. R., Fortinsky, R. H., Gozalo, P., Yue, M. S., Bryant, K., Grover, C., & Bishop, D. S. (2015) · Alzheimer's & Dementia · doi:10.1016/j.jalz.2014.05.1752 · Cited by 114 · see citing works
Updating Income Ranges for Kuppuswamy’s Socio-Economic Status Scale for the Year 2014
Oberoi, S. (2015) · Indian Journal of Public Health · doi:10.4103/0019-557x.157540 · Cited by 113 · see citing works
A Grounded Theory of Families Responding to Mental Illness
Rose, L. E., Mallinson, R. K., & Walton‐Moss, B. (2002) · Western Journal of Nursing Research · doi:10.1177/019394590202400505 · Cited by 99 · see citing works
Telephone-delivered psychoeducational intervention for Hong Kong Chinese dementia caregivers: a single-blinded randomized controlled trial
Kwok, T. C. Y., Wong, B., Ip, I. N., Chui, K. C. M., Young, D. K. W., & Ho, F. (2013) · Clinical Interventions in Aging · doi:10.2147/cia.s48264 · Cited by 91 · see citing works
Siblings of Patients With Schizophrenia: Sibling Bond, Coping Patterns, and Fear of Possible Schizophrenia Heredity
Stålberg, G., Ekerwald, H., & Hultman, C. M. (2004) · Schizophrenia Bulletin · doi:10.1093/oxfordjournals.schbul.a007091 · Cited by 90 · see citing works
Finding Meaning in First Episode Psychosis: Experience, Agency, and the Cultural Repertoire
LARSEN, J. A. (2004) · Medical Anthropology Quarterly · doi:10.1525/maq.2004.18.4.447 · Cited by 88 · see citing works
Siblings' Coping Strategies and Mental Health Services: A National Study of Siblings of Persons With Schizophrenia
Friedrich, R. M., Lively, S., & Rubenstein, L. M. (2008) · Psychiatric Services · doi:10.1176/ps.2008.59.3.261 · Cited by 78 · see citing works
Care Giving of People with Severe Mental Illness: An Indian Experience
Janardhana, N., Raghunandan, S., Naidu, D. M., Saraswathi, L., & Seshan, V. (2015) · Indian Journal of Psychological Medicine · doi:10.4103/0253-7176.155619 · Cited by 77 · see citing works
Mediators and moderators in early intervention research
Breitborde, N. J. K., Srihari, V. H., Pollard, J., Addington, D. E., & Woods, S. W. (2010) · Early Intervention in Psychiatry · doi:10.1111/j.1751-7893.2010.00177.x · Cited by 77 · see citing works
Future Involvement of Siblings in the Lives of Persons with Mental Illness
Hatfield, A. B., & Lefley, H. P. (2005) · Community Mental Health Journal · doi:10.1007/s10597-005-5005-y · Cited by 74 · see citing works
Families' Experience With Seeking Treatment for Recent-Onset Psychosis
Gerson, R. S., Davidson, L., Booty, A., McGlashan, T. H., Malespina, D., Pincus, H. A., & Corcoran, C. M. (2009) · Psychiatric Services · doi:10.1176/ps.2009.60.6.812 · Cited by 74 · see citing works
Understanding the experiences and service needs of siblings of individuals with first‐episode psychosis: a phenomenological study
Sin, J., Moone, N., Harris, P., Scully, E., & Wellman, N. A. (2011) · Early Intervention in Psychiatry · doi:10.1111/j.1751-7893.2011.00300.x · Cited by 73 · see citing works
Developing services for the carers of young adults with early-onset psychosis – listening to their experiences and needs
SIN, J., MOONE, N., & WELLMAN, N. (2005) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/j.1365-2850.2005.00883.x · Cited by 71 · see citing works
What users and relatives want from mental health services
Noble, L., & Douglas, B. (2004) · Current Opinion in Psychiatry · doi:10.1097/01.yco.0000133832.42167.76 · Cited by 68 · see citing works
Applying mobile technologies to mental health service delivery in South Asia
Aggarwal, N. K. (2012) · Asian Journal of Psychiatry · doi:10.1016/j.ajp.2011.12.009 · Cited by 60 · see citing works
A Qualitative Study On the Needs of Caregivers of Inpatients With Schizophrenia in India
Jagannathan, A., Thirthalli, J., Hamza, A., et al. (2010) · International Journal of Social Psychiatry · doi:10.1177/0020764009347334 · Cited by 59 · see citing works
Self-citation
Evaluating Religious Influences on the Utilization of Maternal Health Services among Muslim and Christian Women in North-Central Nigeria
Al-Mujtaba, M., Cornelius, L. J., Galadanci, H. S., Erekaha, S. C., Okundaye, J. N., Adeyemi, O. A., & Sam-Agudu, N. A. (2016) · BioMed Research International · doi:10.1155/2016/3645415 · Cited by 53 · see citing works
Mobile phone consultation for community health care in rural north India
Bali, S., & Singh, A. J. (2007) · Journal of Telemedicine and Telecare · doi:10.1258/135763307783064421 · Cited by 52 · see citing works
What do relatives experience when supporting someone in early psychosis?
Wainwright, L. D., Glentworth, D., Haddock, G., Bentley, R., & Lobban, F. A. (2014) · Psychology and Psychotherapy Theory Research and Practice · doi:10.1111/papt.12024 · Cited by 51 · see citing works
Caregiving and caregivers: Challenges and opportunities in India
Murthy, R. (2016) · Indian Journal of Social Psychiatry · doi:10.4103/0971-9962.176761 · Cited by 49 · see citing works
Developing services for the carers of young adults with early‐onset psychosis – implementing evidence‐based practice on psycho‐educational family intervention
Sin, J., Moone, N., & Newell, J. (2007) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/j.1365-2850.2007.01075.x · Cited by 44 · see citing works
Addressing the needs of carers during early psychosis
Jones, K. (2009) · Early Intervention in Psychiatry · doi:10.1111/j.1751-7893.2009.00127.x · Cited by 40 · see citing works
“Worried about relapse”: Family members’ experiences and perspectives of relapse in first‐episode psychosis
Lal, S., MALLA, A. K., Marandola, G., et al. (2017) · Early Intervention in Psychiatry · doi:10.1111/eip.12440 · Cited by 38 · see citing works
Cost implications of specific and non‐specific treatment for young persons at ultra high risk of developing a first episode of psychosis
Phillips, L., Cotton, S., Mihalopoulos, C., Shih, S. T. F., Yung, A. R., Carter, R., & McGorry, P. D. (2009) · Early Intervention in Psychiatry · doi:10.1111/j.1751-7893.2008.00106.x · Cited by 37 · see citing works
Asian in-patient and carer views of mental health care. Asian views of mental health care
Greenwood, N., Hussain, F. A., Burns, T. R., & Raphael, F. J. (2000) · Journal of Mental Health · doi:10.1080/jmh.9.4.397.408 · Cited by 36 · see citing works
Information sharing concerning schizophrenia in a family member: Adult siblings' perspectives
Main, M. C., Gerace, L. M., & Camilleri, D. D. (1993) · Archives of Psychiatric Nursing · doi:10.1016/0883-9417(93)90041-t · Cited by 29 · see citing works
Caregiving and Help Seeking in First Episode Psychosis: A Qualitative Study
Sadath, A., Muralidhar, D., Varambally, S., Jose, J. P., & Gangadhar, B. N. (2014) · Journal of Psychosocial Rehabilitation and Mental Health · doi:10.1007/s40737-014-0013-2 · Cited by 26 · see citing works
Factors Related to Perceived Needs of Primary Caregivers of Patients with Schizophrenia
Yeh, L., Hwu, H., Chen, C., Chen, C., & Wu, A. C.-C. (2008) · Journal of the Formosan Medical Association · doi:10.1016/s0929-6646(08)60182-5 · Cited by 26 · see citing works
Concerns reported by family members of individuals with first‐episode psychosis
Iyer, S., Loohuis, H., Pawliuk, N., Joober, R., & Malla, A. (2011) · Early Intervention in Psychiatry · doi:10.1111/j.1751-7893.2011.00265.x · Cited by 25 · see citing works
The Help-Seeking Experiences of Parents of Children with a First-Episode of Psychosis
Skubby, D., Bonfine, N., Tracy, H., et al. (2015) · Community Mental Health Journal · doi:10.1007/s10597-015-9877-1 · Cited by 16 · see citing works
Assessing the needs of siblings of persons with schizophrenia: A qualitative study from India
Amaresha, A. C., Joseph, B., Agarwal, S. M., Narayanaswamy, J. C., Venkatasubramanian, G., Muralidhar, D., & Subbakrishna, D. K. (2015) · Asian Journal of Psychiatry · doi:10.1016/j.ajp.2015.07.011 · Cited by 14 · see citing works
An interpretive phenomenological account of the experiences of family carers of the elderly
Kenny, C., Sarma, K. M., & Egan, J. (2012) · The Irish Journal of Psychology · doi:10.1080/03033910.2012.677994 · Cited by 10 · see citing works

Flagged first, then by citations

Sorted by citations

Qualitative study to explore the perspectives and mental health experiences of first episode psychosis patients and their caregivers in North India
Sood, M., Chadda, R. K., Chawla, N., Shukla, T., Patil, V., Ratra, D., Rajhans, P., Padmavati, R., Thara, R., Raghavan, V., et al. (2024) · Asian Journal of Psychiatry · doi:10.1016/j.ajp.2024.104121 · Cited by 5 · see citing works

Psychosocial Needs among Indonesian Women Diagnosed with Breast Cancer
Fitri, S. U. R., Maneewat, K., & Sangchan, H. (2017) · GSTF Journal of Nursing and Health Care · doi:10.5176/2345-718x_4.2.146 · Cited by 2 · see citing works
Psychosocial needs of low-income people with cancer in Korea
Yi, M., Park, K., & Park, E. Y. (2014) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2014.07.005 · Cited by 7 · see citing works
4.5 Family-Based Psychosocial Assessment and Intervention in Pediatric Oncology
Kazak, A. E. (2017) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2017.07.536 · Cited by 1 · see citing works
Meeting the Psychosocial needs of Students with Hearing Impairment through Counselling Services
Ishiah, O., & Aderibigbe, S. A. (2013) · African Journal for the Psychological Study of Social Issues · Cited by 2 · see citing works
The Meaning,Content and Level of Needs of the People's Livehood
Chen, H. (2010) · Journal of Huaiyin Teachers College

Authors: Udgiri, S. M., Nirmala, B. P., & Thirthalli, J.
Affiliations: National Institute of Mental Health and Neurosciences (IN)
Corresponding author: Udgiri, Swarupa M.
ORCID: Thirthalli, Jagadisha
Venue: Journal of Psychosocial Rehabilitation and Mental Health
Publisher: Springer Science and Business Media LLC
Published: 2017-08-03
Volume: 4
Issue: 2
Pages: 159-170
ISSN: 2198-963X (ISSN-L)
2198-9834
DOI: 10.1007/s40737-017-0094-9
OpenAlex: W2742901199
Cited by: 3
References: 53
Citations by year: 2024: 1 · 2023: 1 · 2021: 1
FWCI: 0.00
Type: journal article
Language: en
Open access: closed
Licence: www.springer.com/tdm (unspecified)
Locations: Journal of Psychosocial Rehabilitation and Mental Health (publishedVersion)
Topics: Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Social Sciences › Sociology and Political Science › Family Support in Illness
Health Sciences › Health Professions › Pharmacy › Nursing care and research
Keywords: caregiver needs, first-episode psychosis, family caregivers, caregiver burden, follow-up care, financial need, illness management, socio-occupational functioning, psychosocial interventions, India

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review

The Care-Giving Needs of Carers of Persons with First Episode of Psychosis: Exploratory Qualitative Findings from India

Integrity signals

Claims the paper makes

Claims other papers make about this one

Cites

Cited by

Related

Record

About these checks