Psychological functioning and quality of life in patients with mastocytosis

Translation, validation, and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations

Aaronson, N. K., Muller, M., Cohen, P. D. A., Essink-Bot, M.-L., Fekkes, M., Sanderman, R., Sprangers, M. A. G., te Velde, A., & Verrips, E. (1998) · Journal of Clinical Epidemiology · doi:10.1016/s0895-4356(98)00097-3 · Cited by 2,276 · see citing works

Mastocytosis: 2016 updated WHO classification and novel emerging treatment concepts

Valent, P., Akin, C., & Metcalfe, D. D. (2016) · Blood · doi:10.1182/blood-2016-09-731893 · Cited by 680 · see citing works

Systemic mastocytosis in 342 consecutive adults: survival studies and prognostic factors

Lim, K., Tefferi, A., Lasho, T. L., Finke, C. M., Patnaik, M. M., Butterfield, J. H., McClure, R. F., Li, C., & Pardanani, A. D. (2009) · Blood · doi:10.1182/blood-2009-02-205237 · Cited by 585 · see citing works

The neuroimmune basis of fatigue

Dantzer, R., Heijnen, C. J., Kavelaars, A., Laye, S., & Capuron, L. (2014) · Trends in Neurosciences · doi:10.1016/j.tins.2013.10.003 · Cited by 346 · see citing works

Co-occurrence and symptomatology of fatigue and depression

Corfield, E. C., Martin, N. G., & Nyholt, D. R. (2016) · Comprehensive Psychiatry · doi:10.1016/j.comppsych.2016.08.004 · Cited by 201 · see citing works

Proposed diagnostic algorithm for patients with suspected mastocytosis: a proposal of the European Competence Network on Mastocytosis

Valent, P., Escribano, L., Broesby‐Olsen, S., Hartmann, K., Grattan, C., Brockow, K., Niedoszytko, M., Nedoszytko, B., Oude Elberink, J. N. G., Kristensen, T., et al. (2014) · Allergy · doi:10.1111/all.12436 · Cited by 174 · see citing works

Case-Control Cohort Study of Patients' Perceptions of Disability in Mastocytosis

Hermine, O., Lortholary, O., Leventhal, P. S., Catteau, A., Soppelsa, F., Baude, C., Cohen-Akenine, A., Palmérini, F., Hanssens, K., Yang, Y., et al. (2008) · PLoS ONE · doi:10.1371/journal.pone.0002266 · Cited by 170 · see citing works

The mastocytosis society survey on mast cell disorders: patient experiences and perceptions

Jennings, S., Russell, N., Jennings, B., Slee, V., Sterling, L., Castells, M., Valent, P., & Akin, C. (2014) · The Journal of Allergy and Clinical Immunology: In Practice · doi:10.1016/j.jaip.2013.09.004 · Cited by 143 · see citing works

Mast cells' involvement in inflammation pathways linked to depression: evidence in mastocytosis

Georgin‐Lavialle, S., Moura, D. S., Salvador, A., Chauvet‐Gélinier, J., Launay, J., Damaj, G. L., Côté, F., Soucie, E. L., Chandesris, M., Barète, S., et al. (2016) · Molecular Psychiatry · doi:10.1038/mp.2015.216 · Cited by 84 · see citing works

Depression in Patients with Mastocytosis: Prevalence, Features and Effects of Masitinib Therapy

Moura, D., Sultan, S., Georgin-lavialle, S., Pillet, N., Montestruc, F., Gineste, P., Barete, S., Damaj, G., Moussy, A., Lortholary, O., et al. (2011) · PLoS ONE · doi:10.1371/journal.pone.0026375 · Cited by 81 · see citing works

Evidence for Cognitive Impairment in Mastocytosis: Prevalence, Features and Correlations to Depression

Moura, D. S., Sultan, S., Georgin‐Lavialle, S., Barète, S., Lortholary, O., Raphaël Gaillard, B., & Hermine, O. (2012) · PLoS ONE · doi:10.1371/journal.pone.0039468 · Cited by 74 · see citing works

Patient-reported disease-specific quality-of-life and symptom severity in systemic mastocytosis

van Anrooij, B., Kluin‐Nelemans, H. C., Safy‐Khan, M., Blok, B. M. J. F.-D., & Elberink, J. N. G. O. (2016) · Allergy · doi:10.1111/all.12920 · Cited by 59 · see citing works

Patient perceptions in mast cell disorders

Jennings, S. V., Slee, V. M., Zack, R. M., Verstovsek, S., George, T. I., Shi, H., Lee, P., & Castells, M. C. (2018) · Immunology and Allergy Clinics of North America · doi:10.1016/j.iac.2018.04.006 · Cited by 53 · see citing works

Mast cell mediators of significance in clinical practice in mastocytosis

Butterfield, J. H., Ravi, A., & Pongdee, T. (2018) · Immunology and Allergy Clinics of North America · doi:10.1016/j.iac.2018.04.011 · Cited by 48 · see citing works

Systemic mastocytosis: A cohort study on clinical characteristics of 136 patients in a large tertiary centre

Hermans, M. A. W., Rietveld, M. J. A., van Laar, J. A. M., Dalm, V. A. S. H., Verburg, M., Pasmans, S. G. M. A., van Wijk, R. G., van Hagen, P. M., & van Daele, P. L. A. (2016) · European Journal of Internal Medicine · doi:10.1016/j.ejim.2016.01.005 · Cited by 39 · see citing works

Prevalence of Chronic Health Conditions in Australian Adults with Depression and/or Anxiety

Stanton, R., Rosenbaum, S., Rebar, A. L., & Happell, B. (2019) · Issues in Mental Health Nursing · doi:10.1080/01612840.2019.1613701 · Cited by 30 · see citing works

Neuroimaging evidence of brain abnormalities in mastocytosis

Boddaert, N., Salvador, A., Chandesris, M., Lemaître, H., Grévent, D., Gauthier, C., Naggara, O. N., Georgin‐Lavialle, S., Moura, D. S., Munsch, F., et al. (2017) · Translational Psychiatry · doi:10.1038/tp.2017.137 · Cited by 27 · see citing works

Low frequency of acetyl salicylic acid hypersensitivity in mastocytosis: The results of a double‐blind, placebo‐controlled challenge study

Hermans, M. A. W., van der Vet, S. Q. A., van Hagen, P. M., van Wijk, R. G., & van Daele, P. L. A. (2018) · Allergy · doi:10.1111/all.13445 · Cited by 26 · see citing works

Everyday life and mastocytosis from a patient perspective—a qualitative study

Jensen, B., Broesby‐Olsen, S., Bindslev‐Jensen, C., & Nielsen, D. S. (2018) · Journal of Clinical Nursing · doi:10.1111/jocn.14676 · Cited by 25 · see citing works

SCL-90. Symptom Checklist;

Arrindell, W. A., & Ettema, J. H. (2003) · University of Groningen research database (University of Groningen / Centre for Information Technology) · Cited by 12 · see citing works

Fatigue is common and severe in patients with mastocytosis

Omdal, R., Skoie, I. M., & Grimstad, T. B. (2018) · International Journal of Immunopathology and Pharmacology · doi:10.1177/2058738418803252 · Cited by 11 · see citing works

Quality of life in patients with allergic and immunologic skin diseases: in the eye of the beholder

Agosta, E. D., Salvati, L., Corazza, M., Baiardini, I., Ambrogio, F., Angileri, L., Antonelli, E., Belluzzo, F., Bonamonte, D., Bonzano, L., et al. (2021) · Clinical and Molecular Allergy · doi:10.1186/s12948-021-00165-6 · Cited by 34 · see citing works

Safety and efficacy of lirentelimab in patients with refractory indolent systemic mastocytosis: a first-in-human clinical trial

Siebenhaar, F., Altrichter, S., Bonnekoh, H., Hawro, T., Hawro, M., Michaelis, E. G., Kantor, A., Chang, A. T., Youngblood, B. A., Singh, B., et al. (2023) · British Journal of Dermatology · doi:10.1093/bjd/ljad191 · Cited by 30 · see citing works

Mastocytosis

Akin, C., Arock, M., Carter, M. C., George, T. I., & Valent, P. (2025) · Nature Reviews Disease Primers · doi:10.1038/s41572-025-00611-8 · Cited by 28 · see citing works

Increased group 2 innate lymphoid cells in peripheral blood of adults with mastocytosis

van der Ploeg, E. K., Hermans, M. A. W., van der Velden, V. H. J., Dik, W. A., van Daele, P. L. A., & Stadhouders, R. (2020) · Journal of Allergy and Clinical Immunology · doi:10.1016/j.jaci.2020.09.037 · Cited by 26 · see citing works

The Impact of Stigmatization of Psoriasis, Atopic Dermatitis and Mastocytosis in Different Areas of Life—A Qualitative Interview Study

Heim-Ohmayer, P., Freiberger, A., GEDİK, M. R., Beckmann, J., Ziehfreund, S., Zink, A., Hähl, W., & Schielein, M. C. (2021) · Skin Health and Disease · doi:10.1002/ski2.62 · Cited by 20 · see citing works

Depression, psychosocial correlates, and psychosocial resources in individuals with mast cell activation syndrome

Nicoloro SantaBarbara, J., & Lobel, M. (2022) · Journal of Health Psychology · doi:10.1177/13591053211014583 · Cited by 17 · see citing works

Measuring Symptom Severity and Quality of Life in Mastocytosis

Pyatilova, P., & Siebenhaar, F. (2023) · Immunology and Allergy Clinics of North America · doi:10.1016/j.iac.2023.04.003 · Cited by 14 · see citing works

Cognitive, neuropsychiatric and neurological alterations in mastocytosis: A systematic review

Sagües‐Sesé, E., García‐Casares, N., & Álvarez‐Twöse, I. (2023) · Clinical and Translational Allergy · doi:10.1002/clt2.12319 · Cited by 12 · see citing works

Mastocytosis patients' cognitive dysfunctions correlate with the presence of spindle‐shaped mast cells in bone marrow

Spolak‐Bobryk, N., Romantowski, J., Kujawska‐Danecka, H., & Niedoszytko, M. (2022) · Clinical and Translational Allergy · doi:10.1002/clt2.12093 · Cited by 9 · see citing works

Health-related quality of life and health literacy in patients with systemic mastocytosis and mast cell activation syndrome

Schmidt, T. J., Sellin, J., Molderings, G. J., Conrad, R., & Mücke, M. (2022) · Orphanet Journal of Rare Diseases · doi:10.1186/s13023-022-02439-x · Cited by 9 · see citing works

Cognitive Impairment and Depression in Mastocytosis: A Synthesis of the Literature

Nicoloro‐SantaBarbara, J. M., Majd, M., Burdick, K. E., Dixon, V., & Giannetti, M. P. (2024) · Current Allergy and Asthma Reports · doi:10.1007/s11882-024-01127-z · Cited by 6 · see citing works

How persons with systemic mastocytosis describe the time between symptom onset and receiving diagnosis

Levedahl, K. H., Nilsson, A. K., Johansson, B., & Hedström, M. (2022) · Primary Health Care Research & Development · doi:10.1017/s146342362200024x · Cited by 4 · see citing works

Living with systemic mastocytosis: Balancing between vulnerability and resilience: A qualitative study

Levedahl, K. H., Nilsson, A. K., Ungerstedt, J. S., & Hedström, M. (2022) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2022.102172 · Cited by 5 · see citing works

Defining “Normal” basal serum tryptase levels: a context-dependent approach to improve diagnostics in systemic mastocytosis

Crupi, F., Caroprese, J., & Mannelli, F. (2025) · Frontiers in Allergy · doi:10.3389/falgy.2025.1592001 · Cited by 2 · see citing works

Mastocytosis in the age of precision medicine

Siebenhaar, F., Brehler, R., Christen, D., Hartmann, K., Altrichter, S., Joest, M., Kampe, K. A., Lang, C. C. V., Lippert, U., Mülleneisen, N. K., et al. (2025) · Allergo Journal International · doi:10.1007/s40629-025-00327-x · Cited by 1 · see citing works

Mastozytose im Zeitalter der Präzisionsmedizin

Siebenhaar, F., Brehler, R., Christen, D., Hartmann, K., Altrichter, S., Joest, M., Kampe, K. A., Lang, C. C. V., Lippert, U., Mülleneisen, N. K., et al. (2025) · Allergo Journal · doi:10.1007/s15007-025-6465-8 · Cited by 1 · see citing works

Understanding the role of social media to support patients with mastocytosis: Content analysis of Facebook communities

Iglesias‐Puzas, Á., Conde‐Taboada, A., Aranegui‐Arteaga, B., & López‐Bran, E. (2020) · Australasian Journal of Dermatology · doi:10.1111/ajd.13469 · Cited by 1 · see citing works

Health-related Quality of Life and Health Literacy in Patients With Systemic Mastocytosis and Mast Cell Activation SyndromePreprint

Schmidt, T. J., Sellin, J., Molderings, G. J., Conrad, R., & Muecke, M. (2021) · Research Square · doi:10.21203/rs.3.rs-809554/v1 · Cited by 1 · see citing works

Investigating instruments for evaluation of gastrointestinal burdens in patients with systemic mastocytosis: an exploratory multimethod study

Levedahl, K. H., Carlson, M., Nilsson, G. P., Larsson, B., Åhsberg, E., & Hedström, M. (2025) · Scandinavian Journal of Gastroenterology · doi:10.1080/00365521.2025.2604778

Sleep disturbances and dermatology-related quality of life in children with cutaneous mastocytosis: a patient-centered perspective

Karakurt, L. T., Altınkaynak, P. Y., Kacar, D., Sonkur, A. C., & Arga, M. (2026) · European Journal of Pediatrics · doi:10.1007/s00431-026-07148-2

Objective Sleep Assessment in Systemic Mastocytosis: Polysomnographic Findings from a Single-Center Observational Study

Akten, H. S., Aykaç, Ş., Uludağ, B., Dalgıç, C. T., Gümüşburun, R., İnan, S., Okan, K., Galata, Z., Aslan, E., Ay, E., et al. (2026) · Journal of Clinical Medicine · doi:10.3390/jcm15156068

Problemy psychologiczne, jakość i satysfakcja z życia u osób chorujących na mastocytozę

Spolak‐Bobryk, N., Niedoszytko, M., & Jassem, E. (2016) · Alergologia Polska - Polish Journal of Allergology · doi:10.1016/j.alergo.2016.01.002

The role of the clinical and psychological symptoms of mastocytosis in the patient’s quality of life

Spolak‐Bobryk, N., Niedoszytko, M., Jassem, E., Chełmińska, M., Lange, M., Majkowicz, M., Nedoszytko, B., & Borchet, J. (2021) · Advances in Dermatology and Allergology · doi:10.5114/ada.2021.108433 · Cited by 9 · see citing works

Assessing quality of life in patients with mastocytosis: development of the disease-specific questionnaire

Spolak‐Bobryk, N., Niedoszytko, M., Jassem, E., Chełmińska, M., Lange, M., Majkowicz, M., Nedoszytko, B., & Borchet, J. (2021) · Advances in Dermatology and Allergology · doi:10.5114/ada.2021.108435 · Cited by 6 · see citing works

Health-Related Quality of Life and Influencing Factors in Adults with Nonadvanced Mastocytosis—A Cross-Sectional Study and Qualitative Approach

Pulfer, S., Ziehfreund, S., Gebhard, J., Hindelang, B., Biedermann, T., Brockow, K., & Zink, A. (2021) · The Journal of Allergy and Clinical Immunology In Practice · doi:10.1016/j.jaip.2021.04.059 · Cited by 22 · see citing works

Patient-reported disease-specific quality-of-life and symptom severity in systemic mastocytosis

van Anrooij, B., Kluin‐Nelemans, H. C., Safy‐Khan, M., Blok, B. M. J. F.-D., & Elberink, J. N. G. O. (2016) · Allergy · doi:10.1111/all.12920 · Cited by 59 · see citing works