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Strategies used by people who inject drugs to avoid stigma in healthcare settings
Open accessAbstract
Background People who inject drugs (PWID) have limited engagement in healthcare services and report frequent experiences of stigma and mistreatment when accessing services. This paper explores the impact of stigma against injection drug use on healthcare utilization among PWID in the U.S. Northeast.Methods We recruited PWID through community-based organizations (CBOs; e.g., syringe service programs). Participants completed brief surveys and semi-structured interviews lasting approximately 45 min exploring HIV risk behaviors and prevention needs. Thematic analysis examined the emergent topic of stigma experiences in relation to healthcare utilization.Results Among 33 PWID (55% male; age range 24-62 years; 67% White; 24% Latino), most used heroin (94%) and injected at least daily (60%). Experiences of dehumanization in healthcare settings were common, with many participants perceiving that they had been treated unfairly or discriminated against due to their injection drug use. As participants anticipated this type of stigma from healthcare providers, they developed strategies to avoid it, including delaying presenting for healthcare, not disclosing drug use, downplaying pain, and seeking care elsewhere. In contrast to large institutional healthcare settings, participants described non-stigmatizing environments within CBOs, where they experienced greater acceptance, mutual respect, and stronger connections with staff.Conclusions Stigma against injection drug use carries important implications for PWID health. Increased provider training on addiction as a medical disorder could improve PWID healthcare experiences, and integrating health services into organizations frequented by PWID could increase utilization of health services by this population.
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“Building rapport and trust through low-threshold, non-stigmatizing services in community-based organizations, rather than in large institutional clinics, helps mitigate the anticipated discrimination that often deters these patients from seeking care [46].”
From Psychosocial Interventions for Improving Treatment Adherence in Tuberculosis Patients: A Scoping Review of Evidence-Based Approaches. (2026) · cites this paper as [46]
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“It is well evidenced that PWID face significant barriers in accessing appropriate healthcare due to stigma and discrimination from healthcare professionals as well as structural difficulties in accessing and attending medical appointments [29–31].”
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“A substantial body of literature describes stigma and marginalisation experienced by people who use substances, both in the wider community and within healthcare settings (Biancarelli et al., 2019; Earnshaw et al., 2013; Radley et al., 2017; Simon et al., 2020; van Boekel et al., 2013).”
Highlighting the palliative care needs of people using drugs
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“To further compound this, when feelings of stigma are internalized by PWUD, these internalized feelings can present barriers to seeking treatment, and are associated with increased health risk behaviors (Bayat et al., 2020; Biancarelli et al., 2019; Rivera et al., 2014).”
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Context of Substance Use: Harm Reduction and Safer Supply
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“Ongoing stigma and marginalization are common occurrences re-counted by PWUD when discussing accessing the healthcare system (Biancarelli et al., 2019; Muncan et al., 2020; van Boekel et al., 2013), demanding re-evaluation of how healthcare services, programs, and pathways can be adapted to meet…”
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“The study findings are also consistent with prior studies which state that individuals often avoid seeking treatment to evade stigma (Meyerson et al., 2021), and some may resort to drug injections to avoid stigma in the health care settings (Biancarelli et al., 2019; Paquette et al., 2018).”
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“34,35 While coordinating vaccination services through SSP appears to be an obvious strategy to increase vaccination rates in PWID, several barriers have been identified by these programs including a lack of sufficient physical space and staffing, especially for licensed vaccination providers as…”
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“PWUD may also encounter barriers that limit vaccination access such as lack of transportation [16], limited healthcare access [6], concerns about stigma and discrimination [17], and complexity of booking systems [18, 19].”
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“However, HIV testing coverage among PWUD remains low due to multiple factors, including high levels of substance use stigma and difficulty accessing healthcare services in traditional settings [11–13].”
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BackgroundOverdose Experiences Among a Sample of Women in Jail with Opioid Use Disorder
Dickson, M. F., Annett, J., Walker, M., Leukefeld, C. G., Webster, J. M., Levi, M. M., Tillson, M. D., & Staton, M. (2024) · Substance Use & Misuse · doi:10.1080/10826084.2024.2383982 · Cited by 2
“Biancarelli et al. (2019) found that among a sample of people who inject drugs, many delay accessing health care because of anticipated biases and mistreatment by medical personnel.”
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Safer Supply: Program Discontinuation and Re-engagement
Haines, M., Hill, E. S., & O’Byrne, P. (2025) · Journal of Drug Issues · doi:10.1177/00220426251320885 · Cited by 2
“These concerns aligned with research which explored how PWUD commonly report experiences of stigma and mistreatment within healthcare institutions (Biancarelli et al., 2019; Motavalli et al., 2021).”
Lowenstein, M., Perrone, J., Ritter, A. Z., & Aronowitz, S. V. (2025) · Innovation in Aging · doi:10.1093/geroni/igaf048 · Cited by 2
Machavariani, E., Esserman, D., Dumchev, K. V., Filippovych, M., Pykalo, I., Ivasiy, R., Madden, L. M., Bromberg, D. J., Haddad, M. S., Morozova, O., et al. (2025) · Annals of Internal Medicine · doi:10.7326/annals-25-01764 · Cited by 2
Raj, A., Gnatienko, N., Cheng, D. M., Blokhina, E. A., Dey, A., Wagman, J. A., Toussova, O., Truong, V., Rateau, L. J., Lunze, K., et al. (2023) · International Journal for Quality in Health Care · doi:10.1093/intqhc/mzad068 · Cited by 2
Hinkes, S., Ciraldo, K. J., Kobetz, E. K., Bartholomew, T. S., Rinehart, S., Siringo, N. V., Barnett, R. L., Godbole, N. P., Jeanty, F., Frederick, M., et al. (2024) · Harm Reduction Journal · doi:10.1186/s12954-024-00982-3 · Cited by 2
“These findings demonstrate that this low-cost, low-barrier method of cancer screening is acceptable among PWID who avoid the traditional healthcare system due to intransigent stigma [18, 19].”
BackgroundBin Qamar, R. A., Pereira, H., & Alckmin-Carvalho, F. (2026) · Advances in respiratory medicine · doi:10.3390/arm94030032 · Cited by 1
“Building rapport and trust through low-threshold, non-stigmatizing services in community-based organizations, rather than in large institutional clinics, helps mitigate the anticipated discrimination that often deters these patients from seeking care [46].”
PrEP Indications and PrEP Knowledge, Access, and Interest Among Individuals With HCV
Hill, K. C., Kattakuzhy, S. M., Silk, R., Eyasu, R., Ogbumbadiugha-Weekes, O., Ebah, E., Cover, A. A., Davis, A., Gayle, B., Sternberg, D., et al. (2022) · Open Forum Infectious Diseases · doi:10.1093/ofid/ofac476 · Cited by 1
“While HIV risk can be elicited by provider interview, not all patients feel comfortable discussing this personal and often stigmatized information with providers [27, 28].”
BackgroundKonflikte zwischen Personen mit Opioidabhängigkeit und Fachpersonen im Akutspital
Jaiteh, C., Lauener, S. K., Fanaj, F., Schaub, P., & Grossmann, F. F. (2023) · Pflege · doi:10.1024/1012-5302/a000958 · Cited by 1
A harm reduction journey: Connection, family support, and engagement in health care
Fallin‐Bennett, A., & Elswick, A. (2023) · Journal of Substance Use and Addiction Treatment · doi:10.1016/j.josat.2023.209179 · Cited by 1
Anwar, I., Faye, A., Gonçalves, J. P., Madrid, L. B., Maradan, G., Lalanne, L., Jauffret‐Roustide, M., Auriacombe, M., & Roux, P. (2024) · International Journal of Women s Health · doi:10.2147/ijwh.s448147 · Cited by 1
Primary healthcare professionals’ attitudes toward patients with current or previous drug use
Garpenhag, L., & Dahlman, D. (2024) · Scandinavian Journal of Primary Health Care · doi:10.1080/02813432.2024.2349063 · Cited by 1
Woodward, B., Millar, K., & Carter, G. A. (2024) · Public Health Nursing · doi:10.1111/phn.13364 · Cited by 1
Richelle, L., Kacenelenbogen, N., Kornreich, C., & Aron, M. (2024) · BMC Family Practice · doi:10.1186/s12875-024-02493-3 · Cited by 1
“For substance use as a coping, a social integration and an acculturation strategy for immigrant population which can be a source of shame and guilt especially if it was in opposition to their home country culture [25], and physical consequences of injection for PWID [26].”
BackgroundDepressive symptoms and determinants among people who inject drugs in Kaduna State, Nigeria
Butawa, N. N., Nmadu, A. G., Audu, S., Ajuonuma, F. O., Hamza, K. L., Joseph, S., Sule, A. G., Adze, J. A., Omole, V. N., Suleman, M., et al. (2024) · African Journal of Primary Health Care & Family Medicine · doi:10.4102/phcfm.v16i1.4639 · Cited by 1
“18,19,20 In a more recent study, the 2018 United Nations Office on Drugs and Crime survey reported that opioids particularly tramadol, codeine and morphine were the most commonly injected drugs in Nigeria, with a prevalence of 4.7 % .”
InfluentialHaider, M. R., Clinton, S., Brown, M. J., & Hansen, N. B. (2024) · Drug and Alcohol Dependence Reports · doi:10.1016/j.dadr.2024.100309 · Cited by 1
“Resilience-based interventions have been effective in mitigating childhood trauma (Biancarelli et al., 2019; Chandler et al., 2015) and may improve harm reduction services uptake among PWID.”
Family Perspectives on Stigma Toward Women Who Use Drugs in Tanzania
Saleem, H. T., Noon, K., Nwakama, C., Atkins, K., Snyder, A., Josaphat, E., Mbwambo, J., & Likindikoki, S. L. (2025) · Issues in Mental Health Nursing · doi:10.1080/01612840.2024.2445008 · Cited by 1
“Fear of stigma from healthcare providers may also deter people from seeking health services (Austin et al., 2022; Biancarelli et al., 2019; Motavalli et al., 2021).”
Plesons, M., Yang, W. E., Sansbury, G. M., Suarez, E., Collington, C., Ekowo, E., Ciraldo, K. J., Chueng, T. A., Serota, D. P., Forrest, D. W., et al. (2025) · Annals of Medicine · doi:10.1080/07853890.2025.2461670 · Cited by 1
Szlyk, H. S., Jones, S. J., Michener, J., Zhang, Z., Kaiser, N., Holtz, H., Frempong, M. R. K., Lateef, H. A., Hutson, W. D., & Cavazos‐Rehg, P. A. (2025) · Frontiers in Public Health · doi:10.3389/fpubh.2025.1464075 · Cited by 1
Common Bacterial Infections in Persons Who Inject Drugs
Lorenzo, M. P., Adams, K. K., & Housman, S. T. (2025) · Medicines · doi:10.3390/medicines12020008 · Cited by 1
Chambers, C., Ly, L. H., & Protopopova, A. (2025) · Frontiers in Veterinary Science · doi:10.3389/fvets.2025.1527196 · Cited by 1
Peripartum substance use and punitive laws: an update
White, W. R., Ojeda, E. M., Ronquest, J. R., Scott, V. P., House, S. J., Brown, C. C., Stowe, Z. N., & Coker, J. L. (2025) · Archives of Women s Mental Health · doi:10.1007/s00737-025-01590-1 · Cited by 1
“The bias against illicit substance use disorders by both the general public as well as medical professionals has been well established (Biancarelli et al. 2019), and is often apparent in the ways state laws are developed, proposed, and enforced.”
Woytowich, D. J., McIntyre, A. F., Solomon, H., Hanunka, B., Chelu, L., Nkumbula, T., Tally, L., Handema, R., Khondowe, S., Kapungu, K., et al. (2025) · PLoS ONE · doi:10.1371/journal.pone.0323919 · Cited by 1
Mallise, C. A., Tremain, D., Lindsay, M., Ryder, N., Fisher, K., Moran, B., Lecathelinais, C., Mesure, J., Grebely, J., Marshall, A. D., et al. (2025) · International Journal of Drug Policy · doi:10.1016/j.drugpo.2025.104868 · Cited by 1
White, W. R., Coker, J. L., & Brown, C. C. (2025) · International Journal of Gynecology & Obstetrics · doi:10.1002/ijgo.70299 · Cited by 1
“23 Working on a larger scale, through policy, advocacy, and education, could help rectify these issues.”
Fathma, S., McKee, S. A., Grimshaw, A. A., Boateng, S., Fiellin, D. A., Haque, L., Mehal, W. Z., & Banini, B. A. (2025) · Alcoholism Clinical and Experimental Research · doi:10.1111/acer.70112 · Cited by 1
Managing risks and harms associated with the use of anabolic steroids: a qualitative study
Amaral, J., Kimergård, A., & Deluca, P. (2025) · Harm Reduction Journal · doi:10.1186/s12954-025-01269-x · Cited by 1
Joiner, A., Kamara, M.-I., Powell, S. L., Hart, L., Sawin, G., Glenn, M. J., Vleet, L. V., Supples, M., Chan, B. L., Starks, M. A., et al. (2025) · Resuscitation · doi:10.1016/j.resuscitation.2025.110748 · Cited by 1
Dumchev, K. V., Stepanovich-Falke, A., Lunchenkov, N., Rohde, A., Danshyna, A., Bekbolotov, A. A., Solpueva, A., Kenzhekarieva, A., Karagulova, A., Narmatova, E., et al. (2025) · PLoS ONE · doi:10.1371/journal.pone.0330210 · Cited by 1
Sundaram, G., Sato, T., Socrates, B., & Wurcel, A. G. (2025) · Addiction Science & Clinical Practice · doi:10.1186/s13722-025-00591-w · Cited by 2
“Additionally, due to anticipation of stigma, some PWID develop strategies to avoid health-care interactions, such as delaying presentation, down-playing pain, not disclosing drug use, and seeking other care [4, 5].”
Ahmed, R. F. M., Coulter, R. W. S., Friedman, M. R., Kay, E. S., & Hawk, M. E. (2025) · Therapeutic Advances in Infectious Disease · doi:10.1177/20499361251379979 · Cited by 1
Høj, S. B., Coignard-Friedman, R., Sako, A., de Montigny, C., Beauchemin-Nadeau, M.-È., Léandre, R., Minoyan, N., Boyer-Legault, G., Chougar, S., Lamont, S.-K., et al. (2025) · Harm Reduction Journal · doi:10.1186/s12954-025-01328-3 · Cited by 1
“Harm reduction settings are therefore viewed distinctly from institutional environments, supporting care engagement and patient-centered approaches [23, 25, 28, 35, 36].”
McGladrey, M., Hart, J., Ard, T., Nentwick, C., Taylor, M., Ward, B., Brillakis, H., Grunert, C. R., Schmitt, I. M., Clear, E. R., et al. (2025) · Public Health Reports · doi:10.1177/00333549251379021 · Cited by 1
Aronson, I. D., Quiles, R., Cramer, A., Fong, C., Gibson, B., Vargas-Estrella, B., Stern, S., & Bennett, A. S. (2025) · Health Education Research · doi:10.1093/her/cyaf052 · Cited by 1
Comiford, A. L., Mera, J., Lewis, K., Christy, S., Feder, M., & Blair, A. (2025) · Frontiers in Public Health · doi:10.3389/fpubh.2025.1690448 · Cited by 1
Pollini, R. A., Paquette, C. E., Irvin, B., Syvertsen, J. L., & Lilly, C. L. (2025) · PLoS ONE · doi:10.1371/journal.pone.0338691 · Cited by 1
“The latter was included to evaluate the extent to which the full-scale score corresponds to a primary behavior of interest (healthcare avoidance), which previous literature suggests is strongly associated with drug-related stigma [4,6,7,18–21].”
Carroll, J. C., Herbert, S. M. C., Coley, K. C., Nguyen, T. Q., McGivney, M. S., Hake, K. L., Elliott, J. P., & Bunk, E. (2025) · Pharmacy · doi:10.3390/pharmacy14010003 · Cited by 1
“If stigma can be reduced in healthcare settings, individuals who use drugs may be more likely to engage in services for treatment or safer use [10].”
Development of an Opioid Stigma Scale for People Living With Chronic Pain
Carnago, L. R., Perry, M., & Knettel, B. A. (2025) · Pain Management Nursing · doi:10.1016/j.pmn.2025.12.009 · Cited by 1
Hartman, C. F., Boose, Q., & Beauchamp, G. A. (2025) · Substance Use & Misuse · doi:10.1080/10826084.2025.2609290 · Cited by 1
“This stigmatization has led to delay of care for routine and urgent medical visits, further increasing morbidity and mortality for these injection drug use-related harms (Biancarelli et al., 2019; Summers et al., 2018).”
Hill, K., Minahan-Rowley, R., Biegacki, E. T., Heimer, R., & Sue, K. L. (2026) · Harm Reduction Journal · doi:10.1186/s12954-026-01437-7 · Cited by 1
“Certainly, there is well-documented evidence that PWUD can face difficulties seeking health-care—especially care related to their drug use—as physical markings (e.g., abscesses, sores, etc.) can lead to feelings of shame and stigma [19, 20, 21, 22].”
Metadata
- Authors
- Biancarelli, D. L., Biello, K. B., Childs, E., Drainoni, M., Salhaney, P., Edeza, A., Mimiaga, M. J., Saitz, R., & Bazzi, A. R.
- Affiliations
- Boston University (US)
- Brown University (US)
- Corresponding author
- Bazzi, Angela R.
- ORCID
- Venue
- Drug and Alcohol Dependence
- Publisher
- Elsevier BV
- Published
- 2019-05
- Volume
- 198
- Pages
- 80-86
- ISSN
- 0376-8716 (ISSN-L)
- PMC
- PMC6521691
- OpenAlex
- W2921016611
- Cited by
- 524
- References
- 79
- Citations by year
- 2026: 51 · 2025: 92 · 2024: 109 · 2023: 79 · 2022: 73 · 2021: 69 · 2020: 42 · 2019: 8
- FWCI
- 36.54
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- Locations
- Drug and Alcohol Dependence (acceptedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- Providence/Boston Center for AIDS Research (P30AI042853)
- NIH/NIDA (K01DA043412)
- BU Peter Paul Career Development Professorship
- Topics
- Health Sciences › Medicine › Epidemiology › HIV, Drug Use, Sexual Risk
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Opioid Use Disorder Treatment
- Health Sciences › Medicine › Epidemiology › Substance Abuse Treatment and Outcomes
- Keywords
- people who inject drugs, stigma, health care utilization, dehumanization, community organizations, syringe services programs, HIV risk behavior, provider training, integrated care
- MeSH terms
- Adult, Female, Health Personnel, Humans, Male, Middle Aged, New England, Patient Acceptance of Health Care, HIV Infections, Substance Abuse, Intravenous, Drug Users, Young Adult, Social Stigma
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