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Cited by 19Nursing care and researchDementia and Cognitive Impairment ResearchFamily Caregiving in Mental Illness

Eficacia de las intervenciones no farmacológicas en la calidad de vida de las personas cuidadoras de pacientes con enfermedad de Alzheimer

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Amador-Marín, Bárbara, Guerra-Martín, María Dolores·2017·Gaceta Sanitaria
DOI 10.1016/j.gaceta.2016.09.006
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Abstract

Explorar la eficacia de las intervenciones no farmacológicas realizadas para mejorar la calidad de vida de los/las cuidadores/as familiares de pacientes con Alzheimer. Se realizó una revisión sistemática, por pares, en distintas bases de datos: PubMed, Scopus, CINAHL, PsycINFO, WOS, Biblioteca Cochrane Plus, IME, Cuiden Plus y Dialnet. Los criterios de inclusión fueron: 1) estudios publicados entre 2010 y 2015; 2) idioma inglés, portugués o español; 3) ensayos clínicos controlados y aleatorizados; 4) puntuación ≥3 en la escala Jadad. Se incluyeron 13 estudios, de los cuales cuatro realizaron una intervención psicosocial con cuidadores/as familiares, tres psicoterapéutica, dos psicoeducativa, dos multicomponente, uno educativa y otro con grupos de apoyo mutuo. De los instrumentos para evaluar la calidad de vida, tres estudios utilizaron el Health Status Questionnaire (HSQ), tres el EuroQoL-5D (dos solo utilizaron la escala visual analógica), dos el cuestionario de salud SF-36, dos el WHOQoL-BREF, dos el Quality of Life SF-12 y uno el instrumento de calidad de vida percibida (PQoL). Respecto a la eficacia de las intervenciones no farmacológicas, cinco estudios obtuvieron resultados favorables en la calidad de vida tras las intervenciones de tipo psicoterapéutica, multicomponente, formación y comunitaria. La diversidad de intervenciones no farmacológicas utilizadas y sus contenidos, las diferencias en el número de sesiones y horas, y la variabilidad de instrumentos de valoración utilizados para medir la calidad de vida de los/las cuidadores/as familiares, nos lleva a reflexionar sobre la idoneidad de unificar criterios en aras de mejorar la práctica clínica. Explore the effectiveness of non-pharmacological interventions to improve the quality of life of family caregivers of Alzheimer's patients. We conducted a systematic review, in pairs, in the following databases: PubMed, Scopus, CINAHL, PsycINFO, WOS, Cochrane Library, IME, Cuiden Plus and Dialnet. Inclusion criteria were: 1. Studies published between 2010-2015. 2. Language: English, Portuguese and Spanish. 3. Randomized controlled clinical trials. 4. Score greater than or equal to 3 on the Jadad scale. 13 studies were included. Four performed a psychosocial intervention with family caregivers, three psychotherapeutic, two psychoeducational, two multicomponent, one educational and another with mutual support groups. The tools to assess quality of life: three studies used the Health Status Questionnaire (HSQ), three EuroQol-5D (two only used the EVA), two health questionnaire SF-36, two WHOQOL-BREF, two Quality of Life SF-12 and one Perceived Quality of Life Scale (PQoL). Regarding the effectiveness of non-pharmacological interventions, five studies obtained favorable results in the quality of life after psychotherapeutic interventions and community-type multicomponent training. The diversity of non-pharmacological interventions used and contents, differences in the number of sessions and hours, and variability of valuation tools used to measure quality of life of family caregivers, leads us to reflect on the appropriateness to standardize criteria, for the sake to improve clinical practice.

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  • Family caregivers undergo an adaptation and acceptance process, facing numerous tasks with high level of stress, which result in physical, emotional, social, and financial draining, therefore affecting their quality of life.

    “Family caregivers undergo an adaptation and acceptance process with regard to the disease, facing numerous tasks with high level of stress, which result in physical, emotional, social, and financial draining, therefore affecting their quality of life [11,12].”

    From Quality of Life in Caregivers of Cancer Patients: A Literature Review (2023) · cites this paper as [11]

    The passage labeled Abstract (page not supplied) says that family caregivers face multiple tasks and that the workload can harm their physical, psychological and social health and quality of life; it also describes ongoing stress. It does not describe an adaptation-and-acceptance process or financial strain, so those parts of the attributed claim are unsupported. (LLM, conf=0.87)

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Cited by

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Authors
Amador-Marín, B., & Guerra-Martín, M. D.
Affiliations
Universidad de Sevilla (ES)
Corresponding author
Guerra-Martín, María Dolores
ORCID
Guerra-Martín, María Dolores
Venue
Gaceta Sanitaria
Publisher
Elsevier BV
Published
2017-03
Volume
31
Issue
2
Pages
154-160
ISSN
0213-9111 (ISSN-L)
DOI
10.1016/j.gaceta.2016.09.006
OpenAlex
W2551409322
Cited by
19
References
7
Citations by year
2026: 2 · 2024: 1 · 2023: 2 · 2022: 4 · 2021: 5 · 2020: 3 · 2019: 1 · 2018: 1
FWCI
0.19
Type
journal article
Language
es
Open access
Licence
Locations
  • Gaceta Sanitaria (publishedVersion, cc-by-nc-nd)
  • PubMed (publishedVersion)
  • Deposito de Investigacion Universidad de Sevilla (University of Seville) (publishedVersion, cc-by-nc-nd)
  • LA Referencia (Red Federada de Repositorios Institucionales de Publicaciones Científicas) (submittedVersion, cc-by-nc-nd)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
  • Scientific Electronic library online (Sciences Carlos III Health Institute) (submittedVersion)
Topics
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords
non-pharmacological treatment, family caregivers, Alzheimer's disease, quality of life, psychosocial interventions, psychotherapeutic interventions, psychoeducation, self-help groups, caregiver education, multicomponent intervention, quality of life instruments, health status questionnaires, EuroQol-5D, SF-36, WHOQOL-BREF, SF-12, subjective quality of life
MeSH terms
Alzheimer Disease, Humans, Quality of Life, Stress, Psychological, Caregivers

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