The experience of fatigue as a distressing symptom of heart failure
Abstract
Objective We explored the perceptions, experience, and meaning of fatigue as a distressing symptom of chronic heart failure (HF).Background Fatigue, a common symptom of HF, may indicate worsening condition. Patients interpret their symptoms to determine the need for assistance. The meaning of fatigue in everyday life for HF patients in the United States is not well understood.Methods We performed an interpretive study of in-depth interviews with HF patients (n = 26) who reported fatigue as a symptom, using a thematic analysis of transcripts within an iterative group framework.Results Fatigue is characterized by patient values related to their self-identity, their body, their experience of time, their environment, and their relationships with others, including the healthcare system.Conclusions Fatigue influences perceived proximity to death and how patients try to preserve what they can do. A patient's HF management plan should be tailored and responsive to that patient's experience of fatigue as communicated by the patient.
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There is limited guidance on how to effectively treat fatigue because emotional and psychological factors play a major role in the experience of physiological fatigue.
“There is limited guidance on how to effectively treat fatigue because emotional and psychological factors play a major role in the experience of physiological fatigue. 46 , 49”
From Prioritizing symptom management in the treatment of chronic heart failure (2020) · cites this paper as [46]
Fatigue is difficult to treat.
“Fatigue is difficult to treat. 7 , 46”
From Prioritizing symptom management in the treatment of chronic heart failure (2020) · cites this paper as [46]
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- Authors
- Jones, J., McDermott, C. M., Nowels, C. T., Matlock, D. D., & Bekelman, D. B.
- Affiliations
- University of Colorado Anschutz (US)
- Denver VA Medical Center (US)
- Venue
- Heart & Lung
- Publisher
- Elsevier BV
- Published
- 2012-09
- Volume
- 41
- Issue
- 5
- Pages
- 484-491
- ISSN
- 0147-9563 (ISSN-L)
- OpenAlex
- W2031303464
- Cited by
- 47
- References
- 48
- Citations by year
- 2026: 2 · 2025: 4 · 2024: 3 · 2022: 2 · 2021: 3 · 2020: 4 · 2019: 5 · 2018: 6 · 2017: 6 · 2016: 2 · 2015: 5 · 2014: 4 · 2013: 1
- FWCI
- 2.05
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Heart & Lung (publishedVersion)
- PubMed (publishedVersion)
- Funders
- University of Colorado Hartford/Jahnigen Center for Excellence in Geriatric Medicine and the Mordecai Palliative Care Grants Fund
- Department of Veterans Affairs Career Development Award (Health Services Research & Development Service Career Development Award [HSR&D CDA] 08-022)
- Topics
- Health Sciences › Medicine › Cardiology and Cardiovascular Medicine › Heart Failure Treatment and Management
- Health Sciences › Medicine › Cardiology and Cardiovascular Medicine › Cardiac Health and Mental Health
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Keywords
- fatigue, chronic heart failure, symptom experience, patient perspectives, self-identity, proximity to death, patient values, patient-provider relationship, symptom management
- MeSH terms
- Aged, Colorado, Fatigue, Female, Follow-Up Studies, Health Status, Heart Failure, Humans, Male, Middle Aged, Quality of Life, Surveys and Questionnaires, Retrospective Studies, Risk Factors, Severity of Illness Index, Incidence
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
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