The DOI matches its Crossref record; 70 of the 83 references it cites were found in a registry or an index.
Revisiting the online health information reliability debate in the wake of “web 2.0”: An inter-disciplinary literature and website review
Abstract
Purpose The purpose of this inter-disciplinary literature review was to explore renewed concerns about the reliability of online health information in light of the increasing popularity of web applications that enable more end-user-generated content ("web 2.0").Methods The findings are based on a literature and web review. Literature was collected at four different points between October 2006 and October 2008 and included 56 sources from 10 academic disciplines. The web review consisted of following 6 blogs (including both new and archived posts, with comments) and one wiki for a period of 1.5 months and assessing the content for relevancy on six points, totaling 63 sources altogether.Results The reliability issues that are identified with respect to "web 2.0" reiterate more general concerns expressed about the web over the last 15 years. The difference, however, lies in the scope and scale of potential problems. Social scientists have also pointed to new issues that can be especially relevant for use of web 2.0 applications in health care. Specific points of renewed concern include: disclosure of authorship and information quality, anonymity and privacy, and the ability of individuals to apply information to their personal situation. Whether or not end-users understand what social scientists call "negative network externalities" is a new concern. Finally, not all reliability issues are negative-social networking and the shift from text-based information to symbolic information, images or interactive information, are considered to enhance patient education and to provide opportunities to reach diverse groups of patients.Conclusions Interactive and collaborative web applications undeniably offer new opportunities for reaching patients and other health care consumers by facilitating lay information creation, sharing and retrieval. However, researchers must be careful and critical when incorporating applications or practices from other fields in health care. We must not easily dismiss concerns about reliability as outdated. Specific issues related to use of newly popular web applications for health purposes must be addressed. Nonetheless, the articles reviewed here also clearly show that potential problems can be addressed and the positive aspects of the technologies embraced.
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“Similar problems may be encountered with traditional websites, however, social media tools allow people to download information, regardless of who the user and what the quality of the information is, resulting in its rapid dissemination online.22”
From Social media and Internet usage of orthopaedic surgeons (2017) · cites this paper as [22]
Citations
Cites
4 What Is Web 2.0? Design Patterns and Business Models for the Next Generation of Software
O’Reilly, T. (2012) · New York University Press eBooks · doi:10.18574/nyu/9780814764077.003.0008 · Cited by 5,623
Blogs, Wikipedia, Second Life, and beyond: from production to produsage
(2009) · Choice Reviews Online · doi:10.5860/choice.46-2978 · Cited by 2,063
What is Web 2.0? Ideas, technologies and implications for education
Anderson, P. F. (2007) · Cited by 1,182
Boulos, M. N. K., Maramba, I. D. C., & Wheeler, S. (2006) · BMC Medical Education · doi:10.1186/1472-6920-6-41 · Cited by 1,154
Medicine 2.0: Social Networking, Collaboration, Participation, Apomediation, and Openness
Eysenbach, G. (2008) · Journal of Medical Internet Research · doi:10.2196/jmir.1030 · Cited by 1,143
Digital Media, Youth, and Credibility
Metzger, M. J., & Flanagin, A. J. (2007) · Cited by 1,036
Nardi, B. A., Schiano, D. J., Gumbrecht, M., & Swartz, L. (2004) · Communications of the ACM · doi:10.1145/1035134.1035163 · Cited by 968
Bridging the gap: a genre analysis of Weblogs
Herring, S. C., Scheidt, L. A., Bonus, S., & Wright, E. (2004) · Hawaii International Conference on System Sciences (HICSS) · doi:10.1109/hicss.2004.1265271 · Cited by 924
Boulos, M. N. K., & Wheeler, S. (2007) · Health Information & Libraries Journal · doi:10.1111/j.1471-1842.2007.00701.x · Cited by 894
The Cult of the Amateur: How Today's Internet Is Killing Our Culture
Keen, A. (2007) · Cited by 668
Proceedings of 48th Hawaii International Conference on System Sciences (HICSS)
Pöyry, E., Parvinen, P. M. T., & McFarland, R. (2015) · Cited by 643
Key differences between Web 1.0 and Web 2.0
Cormode, G., & Krishnamurthy, B. (2008) · First Monday · doi:10.5210/fm.v13i6.2125 · Cited by 640
Impicciatore, P., Pandolfini, C., Casella, N., & Bonati, M. R. (1997) · BMJ · doi:10.1136/bmj.314.7098.1875 · Cited by 622
Herring, S. C., Scheidt, L. A., Wright, E., & Bonus, S. (2005) · Information Technology and People · doi:10.1108/09593840510601513 · Cited by 614
Frost, J. H., & Massagli, M. P. (2008) · Journal of Medical Internet Research · doi:10.2196/jmir.1053 · Cited by 533
Infodemiology: the epidemiology of (mis)information
Eysenbach, G. (2002) · The American Journal of Medicine · doi:10.1016/s0002-9343(02)01473-0 · Cited by 527
Blogging as social activity, or, would you let 900 million people read your diary?
Nardi, B. A., Schiano, D. J., & Gumbrecht, M. (2004) · ACM Conference on Computer Supported Cooperative Work (CSCW) · doi:10.1145/1031607.1031643 · Cited by 514
Henwood, F., Wyatt, S., Hart, A., & Smith, J. M. (2003) · Sociology of Health & Illness · doi:10.1111/1467-9566.00360 · Cited by 469
Online social networking as participatory surveillance
Albrechtslund, A. (1969) · First Monday · doi:10.5210/fm.v13i3.2142 · Cited by 466
Eysenbach, G., Gray, J. A. M., Bonati, M., Arunachalam, S., Diepgen, T. L., Impicciatore, P., & Pandolfini, C. (1998) · BMJ · doi:10.1136/bmj.317.7171.1496 · Cited by 461
Meric, F. (2002) · BMJ · doi:10.1136/bmj.324.7337.577 · Cited by 320
How Web 2.0 is changing medicine
Giustini, D. (2006) · BMJ · doi:10.1136/bmj.39062.555405.80 · Cited by 315
On the "localness" of user-generated content
Hecht, B. J., & Gergle, D. (2010) · ACM Conference on Computer Supported Cooperative Work (CSCW) · doi:10.1145/1718918.1718962 · Cited by 311
Bernstam, E. V., Shelton, D. M., Walji, M. F., & Meric‐Bernstam, F. (2004) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2004.10.001 · Cited by 261
Nettleton, S., Burrows, R., & O'Malley, L. (2005) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2005.00466.x · Cited by 259
How blogging software reshapes the online community
Blood, R. (2004) · Communications of the ACM · doi:10.1145/1035134.1035165 · Cited by 246
Health 2.0 and Medicine 2.0: Tensions and Controversies in the Field
Hughes, B., Joshi, I., & Wareham, J. (2008) · Journal of Medical Internet Research · doi:10.2196/jmir.1056 · Cited by 221
Peterson, G., Aslani, P., & Williams, K. A. (2003) · Journal of Medical Internet Research · doi:10.2196/jmir.5.4.e33 · Cited by 218
The Wisdom of Patients: Health Care Meets Online Social Media
Sarasohn-Kahn, J. (2008) · Issue Lab (Candid) · Cited by 213
Promoting partnerships: challenges for the internet age
Jadad, A. (1999) · BMJ · doi:10.1136/bmj.319.7212.761 · Cited by 189
McLean, R., Richards, B. H., & Wardman, J. I. (2007) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.2007.tb01180.x · Cited by 179
Credibility of Health Information and Digital Media: New Perspectives and Implications for Youth
Eysenbach, G. (2007) · TSpace (University of Toronto) · Cited by 178
Market Ideology and the Myths of Web 2.0
Scholz, T. R. (1969) · First Monday · doi:10.5210/fm.v13i3.2138 · Cited by 160
Loser Generated Content: From Participation to Exploitation
Petersen, S. M. (1969) · First Monday · doi:10.5210/fm.v13i3.2141 · Cited by 152
Interactivity is Evil! A critical investigation of Web 2.0
Jarrett, K. (1969) · First Monday · doi:10.5210/fm.v13i3.2140 · Cited by 122
Zimmer, M. T. (2008) · First Monday · doi:10.5210/fm.v13i3.2136 · Cited by 118
Proceedings of the 2004 ACM conference on Computer supported cooperative work
Herbsleb, J., & Olson, G. M. (2004) · doi:10.1145/1031607 · Cited by 117
Six degrees of reputation: The use and abuse of online review and recommendation systems
David, S., & Pinch, T. (2006) · First Monday · doi:10.5210/fm.v11i3.1315 · Cited by 106
Verifying quality and safety in health informatics services
Rigby, M., Forsström, J., Roberts, R., & Wyatt, J. C. (2001) · BMJ · doi:10.1136/bmj.323.7312.552 · Cited by 100
Adams, S. A. (2010) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2008.06.009 · Cited by 97
Self-citationDoes the internet harm health?
Kiley, R. (2002) · BMJ · doi:10.1136/bmj.324.7331.238a · Cited by 81
Web 2.0: Could it help move the health system into the 21st century?
Deshpande, A., & Jadad, A. R. (2006) · The Journal of Men s Health and Gender · doi:10.1016/j.jmhg.2006.09.004 · Cited by 74
Automatic detecting indicators for quality of health information on the Web
Wang, Y., & Liu, Z. (2006) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2006.04.001 · Cited by 70
Community Practice in the Network Society
(2004) · Routledge eBooks · doi:10.4324/9780203643730 · Cited by 62
Web 2.0: An argument against convergence
Allen, M. (1969) · First Monday · doi:10.5210/fm.v13i3.2139 · Cited by 61
Trying to Measure the Quality of Health Information on the Internet: Is It Time to Move On?
Deshpande, A., & Jadad, A. R. (2009) · The Journal of Rheumatology · doi:10.3899/jrheum.081101 · Cited by 60
Identity, Electronic Ethos, and Blogs
MacDougall, R. (2005) · American Behavioral Scientist · doi:10.1177/0002764205280922 · Cited by 59
Preface: Critical Perspectives on Web 2.0
Zimmer, M. T. (1969) · First Monday · doi:10.5210/fm.v13i3.2137 · Cited by 52
Adams, S., de Bont, A., & Berg, M. (2005) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2005.07.036 · Cited by 48
Self-citationFuture directions for depicting credibility in health care web sites
O'Grady, L. A. (2005) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2005.07.035 · Cited by 48
Health information on internet is often unreliable
Gottlieb, S. L. (2000) · BMJ · doi:10.1136/bmj.321.7254.136/b · Cited by 41
Journalistic objectivity redefined? Wikinews and the neutral point of view
Thorsen, E. (2008) · New Media & Society · doi:10.1177/1461444808096252 · Cited by 39
Collaborative reference work in the blogosphere
Pomerantz, J., & Stutzman, F. (2006) · Reference Services Review · doi:10.1108/00907320610669443 · Cited by 34
Eysenbach, G. (2001) · Journal of Medical Internet Research · doi:10.2196/jmir.3.4.e34 · Cited by 34
Letting the grass grow: grassroots information on blogs and wikis
Ramos, M. Á. M., & Piper, P. (2006) · Reference Services Review · doi:10.1108/00907320610716459 · Cited by 31
Hargittai, E. (2004) · Routledge eBooks · doi:10.4324/9780203643730-12 · Cited by 23
Adams, S., & Bont, A. A. D. (2006) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2006.05.024 · Cited by 19
Self-citationBlogging as a Tool: Innovative Approaches to Information Access
Bhatt, J. J. (2005) · Library Hi Tech News · doi:10.1108/07419050510640512 · Cited by 18
Tsai, C. C., Tsai, S. H., Zeng‐Treitler, Q., & Liang, B. A. (2007) · PubMed · Cited by 16
Web Review: Blogs: has their time finally come — or gone?
McIntosh, S. (2005) · Global Media and Communication · doi:10.1177/1742766505058137 · Cited by 16
Finding your way through blogspace: Using semantics for cross-domain blog analysis
Berendt, B., & Navigli, R. (2006) · Cited by 16
Wichowski, A. (2009) · First Monday · doi:10.5210/fm.v14i5.2447 · Cited by 15
Adams, S. (2007) · PubMed · Cited by 14
Self-citationHistory, Hype, and Hope: An Afterward
Silver, D. (1969) · First Monday · doi:10.5210/fm.v13i3.2143 · Cited by 13
Hsu, W., & Bath, P. A. (2008) · PubMed · Cited by 11
Chesanow, N. (2004) · PubMed · Cited by 9
Oransky, I. (2005) · The Lancet Oncology · doi:10.1016/s1470-2045(05)70419-8 · Cited by 9
Differences between Blogs and Web Diaries
Fujiki, T., Nanno, T., & Okumura, M. (2005) · Cited by 4
Charlotte's Web: Why and How to Create Personal Web Sites and Blogs
Goldman, K. D., & Schmalz, K. J. (2007) · Health Promotion Practice · doi:10.1177/1524839906296150 · Cited by 3
Quality of healthcare websites: A comparison of a general-purpose vs. domain-specific search engine.
Abraham, J., & Reddy, M. C. (2007) · PubMed · Cited by 2
Research works printed but not linked: 9
- Childs, 2005, Editorial: blogging for health, Health Inform. Internet, 45, 1
- Scopus [Database on the Internet], Elsevier Publishing (US), New York, NY, C2008, Available from: http://www.info.scopus.com, last accessed: 27 October 2008.
- PubMed [Database on the Internet], National Library of Medicine (US), Bethesda, MD, Available from: http://www.ncbi.nlm.nih.gov/pubmed/, last accessed: 27 October 2008.
- Google Scholar [Database on the Internet], Google (US), Mountain View, CA, C2009, Available from: http://scholar.google.com, last accessed: 27 October 2008.
- Health 2.0 Conference: User-generated Healthcare [Homepage on the Internet], Health 2.0 Conference, San Francisco, Available from: http://www.health2con.com/, last accessed: 8 September 2009.
- Zimmer, 2008, The Faustian Bargain with web 2.0, First Monday Podcast [Monthly Online Audio Program]
- Hart, 2008, The rise of alter egos in everybody's space: after oversharing, users recast their online personas, Washington Post
- Genes, 2006, Diabetes patient offers goldmine of information and support, Medscape Med. Stud., 8
- Baoill, 2004, Conceptualizing the weblog: Understanding what it is in order to understand what it may be interfacings, J. Contemp. Media Stud.
Cited by
Sorted by citations
Moorhead, S. A., Hazlett, D. E., Harrison, L., Carroll, J. K., Irwin, A., & Hoving, C. (2013) · Journal of Medical Internet Research · doi:10.2196/jmir.1933 · Cited by 2,517
Trust and Credibility in Web-Based Health Information: A Review and Agenda for Future Research
Sbaffi, L., & Rowley, J. (2017) · Journal of Medical Internet Research · doi:10.2196/jmir.7579 · Cited by 537
Health Literacy and Use and Trust in Health Information.
Chen, X., Hay, J. L., Waters, E. A., Kiviniemi, M. T., Biddle, C., Schofield, E., Li, Y., Kaphingst, K., & Orom, H. (2018) · Journal of Health Communication · doi:10.1080/10810730.2018.1511658 · Cited by 548
Reviewing social media use by clinicians: Table 1
von Muhlen, M., & Ohno-Machado, L. (2012) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2012-000990 · Cited by 319
Social media and health care, part I: literature review of social media use by health care providers
Farsi, D. (2021) · Journal of Medical Internet Research · doi:10.2196/23205 · Cited by 299
Metadata
- Authors
- Adams, S. A.
- Affiliations
- Erasmus University Rotterdam (NL)
- Corresponding author
- Adams, Samantha A.
- ORCID
- Adams, Samantha A.
- Venue
- International Journal of Medical Informatics
- Publisher
- Elsevier BV
- Published
- 2010-06
- Volume
- 79
- Issue
- 6
- Pages
- 391-400
- ISSN
- 1386-5056 (ISSN-L)
- OpenAlex
- W2051889487
- Cited by
- 244
- References
- 83
- Citations by year
- 2026: 1 · 2025: 7 · 2024: 5 · 2023: 13 · 2022: 12 · 2021: 22 · 2020: 10 · 2019: 19 · 2018: 23 · 2017: 24 · 2016: 24 · 2015: 24 · 2014: 19 · 2013: 14 · 2012: 12
- FWCI
- 2.48
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- International Journal of Medical Informatics (publishedVersion)
- PubMed (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
- Funders
- Erasmus Universiteit Rotterdam
- Erasmus+
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Social Sciences › Health › Social Media in Health Education
- Social Sciences › Library and Information Sciences › Web and Library Services
- Keywords
- online health information, information reliability, Web 2.0, blogs, wikis, authorship disclosure, information quality, patient education, lay health information
- MeSH terms
- Humans, Medical Informatics, Medical Records Systems, Computerized, Internet, Consumer Health Information
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