The DOI matches its Crossref record; 26 of the 26 references it cites were found in a registry or an index.
Availability, readability, and content of privacy policies and terms of agreements of mental health apps
Open accessAbstract
OBJECTIVE: To assess the availability, readability, and privacy-related content of the privacy policies and terms of agreement of mental health apps available through popular digital stores. MATERIALS AND METHODS: Popular smartphone app stores were searched using combinations of keywords "track" and "mood" and their synonyms. The first 100 apps from each search were evaluated for inclusion and exclusion criteria. Apps were assessed for availability of a privacy policy (PP) and terms of agreement (ToA) and if available, these documents were evaluated for both content and readability. RESULTS: Most of the apps collected in the sample did not include a PP or ToA. PPs could be accessed for 18% of iOS apps and 4% of Android apps; whereas ToAs were available for 15% of iOS and 3% of Android apps. Many PPs stated that users' information may be shared with third parties (71% iOS, 46% Android). DISCUSSION: Results demonstrate that information collection is occurring with the majority of apps that allow users to track the status of their mental health. Most of the apps collected in the initial sample did not include a PP or ToA despite this being a requirement by the store. The majority of PPs and ToAs that were evaluated are written at a post-secondary reading level and disclose that extensive data collection is occurring. CONCLUSION: Our findings raise concerns about consent, transparency, and data sharing associated with mental health apps and highlight the importance of improved regulation in the mobile app environment.
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“and privacy policies (if existent) lack transparency (Robillard et al. 2019; Huckvale et al. 2019).”
From Evaluating the quality, safety, and functionality of commonly used smartphone apps for bipolar disorder mood and sleep self-management (2022) · cites this paper as Robillard et al. 2019
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“These commonly used apps also perform well compared to a review of privacy policies for mental health tracking apps (Robillard et al. 2019), which reported only 18% of iOS and 4% of Android apps made privacy policies available.”
From Evaluating the quality, safety, and functionality of commonly used smartphone apps for bipolar disorder mood and sleep self-management (2022) · cites this paper as Robillard et al. 2019
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“However, the high reading grade of the policies echoed a commonly cited issue, that the readability and comprehension of policies are often inaccessible (Robillard et al. 2019).”
From Evaluating the quality, safety, and functionality of commonly used smartphone apps for bipolar disorder mood and sleep self-management (2022) · cites this paper as Robillard et al. 2019
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Cites
Health App Use Among US Mobile Phone Owners: A National Survey
Krebs, P., & Duncan, D. T. (2015) · JMIR mHealth and uHealth · doi:10.2196/mhealth.4924 · Cited by 1,274
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“In addition, the quality of the services varies considerably from app to app, and only a small proportion of publicly available apps have undergone any formal testing (Donker et al., 2013).”
BackgroundMental Health Smartphone Apps: Review and Evidence-Based Recommendations for Future Developments
Bakker, D., Kazantzis, N., Rickwood, D., & Rickard, N. (2016) · JMIR Mental Health · doi:10.2196/mental.4984 · Cited by 886
mHealth for mental health: Integrating smartphone technology in behavioral healthcare.
Luxton, D. D., McCann, R. A., Bush, N. E., Mishkind, M. C., & Reger, G. M. (2011) · Professional Psychology: Research and Practice · doi:10.1037/a0024485 · Cited by 809
Mobile medical and health apps: state of the art, concerns, regulatory control and certification
Kamel Boulos, M. N., Brewer, A. C., Karimkhani, C., Buller, D. B., & Dellavalle, R. P. (2014) · Online Journal of Public Health Informatics · doi:10.5210/ojphi.v5i3.4814 · Cited by 659
Harnessing context sensing to develop a mobile intervention for depression
Burns, M. N., Begale, M., Duffecy, J., Gergle, D., Karr, C. J., Giangrande, E., & Mohr, D. C. (2011) · Journal of Medical Internet Research · doi:10.2196/jmir.1838 · Cited by 646
Feasibility, Acceptability, and Preliminary Efficacy of a Smartphone Intervention for Schizophrenia
Ben-Zeev, D., Brenner, C. J., Begale, M., Duffecy, J., Mohr, D. C., & Mueser, K. T. (2014) · Schizophrenia Bulletin · doi:10.1093/schbul/sbu033 · Cited by 493
mHealth: A Mechanism to Deliver More Accessible, More Effective Mental Health Care
Price, M., Yuen, E. K., Goetter, E. M., Herbert, J. D., Forman, E. M., Acierno, R., & Ruggiero, K. J. (2014) · Clinical Psychology & Psychotherapy · doi:10.1002/cpp.1855 · Cited by 488
Huckvale, K., Prieto, J. T., Tilney, M., Benghozi, P.-J., & Car, J. (2015) · BMC Medicine · doi:10.1186/s12916-015-0444-y · Cited by 376
Availability and quality of mobile health app privacy policies
Sunyaev, A., Dehling, T., Taylor, P. L., & Mandl, K. D. (2015) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2013-002605 · Cited by 360
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Cited by
Sorted by citations
An overview of and recommendations for more accessible digital mental health services
Lattie, E. G., Stiles-Shields, C., & Graham, A. K. (2022) · Nature Reviews Psychology · doi:10.1038/s44159-021-00003-1 · Cited by 446
Bauer, M., Glenn, T., Geddes, J., Gitlin, M., Grof, P., Kessing, L. V., Monteith, S., Faurholt-Jepsen, M., Severus, E., & Whybrow, P. C. (2020) · International Journal of Bipolar Disorders · doi:10.1186/s40345-019-0164-x · Cited by 163
A Review of the Quality and Impact of Mobile Health Apps
Grundy, Q. (2021) · Annual Review of Public Health · doi:10.1146/annurev-publhealth-052020-103738 · Cited by 167
Security and Privacy of mHealth Applications: A Scoping Review
Nurgalieva, L., O'Callaghan, D., & Doherty, G. (2020) · IEEE Access · doi:10.1109/access.2020.2999934 · Cited by 132
“Critical evaluation of apps’ privacy is seen as a key consideration in the design of such therapeutic tools [56], for instance, by applying a specific framework [84] to evaluate digital mental health applications or adopting existing evaluation frameworks such as the American Psychiatric Association…”
BackgroundMethodZidaru, T., Morrow, E. M., & Stockley, R. (2021) · Health Expectations · doi:10.1111/hex.13299 · Cited by 143
Metadata
- Authors
- Robillard, J. M., Feng, T. L., Sporn, A. B., Lai, J.-A., Lo, C., Ta, M., & Nadler, R.
- Affiliations
- University of British Columbia (CA)
- University of Ottawa (CA)
- Corresponding author
- Robillard, Julie M.
- Venue
- Internet Interventions
- Publisher
- Elsevier BV
- Published
- 2019-09
- Volume
- 17
- Pages
- 100243
- ISSN
- 2214-7829 (ISSN-L)
- PMC
- PMC6430038
- OpenAlex
- W2921902116
- Cited by
- 111
- References
- 26
- Citations by year
- 2026: 11 · 2025: 8 · 2024: 15 · 2023: 14 · 2022: 23 · 2021: 19 · 2020: 17 · 2019: 4
- FWCI
- 31.69
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Internet Interventions (publishedVersion, cc-by-nc-nd)
- Europe PMC (PubMed Central) (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Funders
- Vancouver Coastal Health Research Institute
- British Columbia Knowledge Development Fund
- Topics
- Social Sciences › Sociology and Political Science › Privacy, Security, and Data Protection
- Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Keywords
- mental health apps, privacy policies, contract terms, readability, data sharing, third-party data sharing, informed consent, transparency, mood tracking, digital mental health
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