Cited by 143Dementia and Cognitive Impairment ResearchNursing care and researchFamily Caregiving in Mental Illness

The DOI matches its Crossref record; 19 of the 19 references it cites were found in a registry or an index.

Experiences and Needs of Caregivers of Persons With Dementia in India During the COVID-19 Pandemic—A Qualitative Study

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Abstract

Objective To describe the experiences and needs of caregivers of persons with dementia during the COVID-19 pandemic and lockdown in a city in India.Design Qualitative study using a telephonic semistructured interview.Setting A specialist geriatric outpatient mental health service based in a nongovernmental organization in Chennai, India.Participants A purposive sampling of family members of persons with dementia registered in the database and seen within the previous 6 months.Results Thirty-one caregivers participated. Thematic analysis of the data showed two sets of issues that the caregivers of persons with dementia faced in their experiences during the pandemic. The first set was unique to the caregivers that directly related to their caregiving role, while the second set did not relate directly to their caregiving role. These two sets also appeared to have a two-way interaction influencing each other. These issues generated needs, some of which required immediate support while others required longer-term support. The caregivers suggested several methods, such as use of video-consultations, telephone-based support and clinic-based in-person visits to meet their needs. They also wanted more services postpandemic.Conclusion Caregivers of persons with dementia had multiple needs during the pandemic. Supporting them during these times require a pragmatic multilayered approach. Systemic changes, policies and frameworks, increased awareness, use of technology, and better access to health are necessary.

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Crossref · 10.1016/j.jagp.2020.06.026

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  1. Falconi, 2012, Protecting and supporting high risk populations in pandemic: drawing from experience with influenza A (H1N1), Int J Child Health Hum Dev, 5, 373

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Metadata

Authors
Vaitheswaran, S., Lakshminarayanan, M., Ramanujam, V., Sargunan, S., & Venkatesan, S.
Affiliations
Schizophrenia Research Foundation (IN)
Corresponding author
Vaitheswaran, Sridhar
Venue
The American Journal of Geriatric Psychiatry
Publisher
Elsevier BV
Published
2020-11
Volume
28
Issue
11
Pages
1185-1194
ISSN
1064-7481 (ISSN-L)
OpenAlex
W3041577321
Cited by
143
References
19
Citations by year
2026: 3 · 2025: 9 · 2024: 14 · 2023: 19 · 2022: 46 · 2021: 44 · 2020: 8
FWCI
21.30
Type
journal article
Language
en
Open access
Locations
  • American Journal of Geriatric Psychiatry (publishedVersion)
  • PubMed Central (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Nursing › Research and Theory › Nursing care and research
  • Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords
dementia caregivers, caregiver needs, COVID-19 pandemic, lockdown, caregiver experiences, family caregivers, caregiver support, telemedicine, video consultation, telephone support, geriatric mental health services, India
MeSH terms
Psychosocial Support Systems, Betacoronavirus, COVID-19, SARS-CoV-2, Aged, Dementia, Female, Home Care Services, Humans, India, Male, Mental Health, Pneumonia, Viral, Quality of Life, Caregivers, Telemedicine, Coronavirus Infections, Needs Assessment, Videoconferencing, Independent Living, Pandemics

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