Contributors to and Mediators of Psychological Well-Being for Informal Caregivers
Abstract
This article explores the relationships between caregiving stressors and caregiver well-being in a representative community sample of disabled elders and their informal caregivers. The direct and indirect effects of stressors and potential mediators on the outcome of caregiver psychological well-being, as measured by depression, were examined using path analysis. Potential mediators of the primary stressors on depression included mastery, emotional support; quality of relationship between the caregiver and the care recipient, formal service use and role overload. Findings indicate that the caregiving stressors (needs for care) led to caregiver depression indirectly through their effect on hours of care provided and the resulting caregiver perception of role overload. Quality of the caregiver/care recipient relationship mediated the relationship of the caregiving stressors and caregiver overload and depression. Finally, regardless of the level of primary stressors, caregivers with high levels of mastery or emotional support were at lower risk of depression. These findings can be used to inform the design of proactive caregiver interventions.
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The manifestations of disturbing behaviors (wandering, hitting, disrobing) associated with dementia have been consistently related to greater caregiver burden.
“the manifestations of disturbing behaviors (wandering, hitting, disrobing) associated with dementia have been consistently related to greater caregiver burden.”
From Therapeutic recreation interventions for need-driven dementia-compromised (2002) · cites this paper as [22]
The Results (page not available) link problem behaviors associated with cognitive impairment to greater caregiver overload, primarily through increased care hours and poorer relationship quality. The Measures list wandering and hitting, but not disrobing; the paper also does not establish that the association has been found consistently across studies. (LLM, conf=0.84)
Experimental — accuracy not yet measuredCaregivers who reported role overload were also more likely to be depressed.
“In addition, caregivers who reported this type of role overload were also more likely to be depressed. 22”
From Therapeutic recreation interventions for need-driven dementia-compromised (2002) · cites this paper as [22]
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Cites
Tabachnick, B. G., & Fidell, L. S. (1983) · Cited by 79,888 · see citing works
The CES-D Scale: A Self-Report Depression Scale for Research in the General Population
Radloff, L. S. (1977) · Applied Psychological Measurement · doi:10.1177/014662167700100306 · Cited by 53,267 · see citing works
“Stress: appraisal and coping,”
Folkman, S. (2013) · Encyclopedia of Behavioral Medicine · doi:10.1007/978-1-4419-1005-9_215 · Cited by 27,833 · see citing works
Self-efficacy: Toward a unifying theory of behavioral change
Bandura, A. (1978) · Advances in Behaviour Research and Therapy · doi:10.1016/0146-6402(78)90002-4 · Cited by 10,586 · see citing works
Psychological stress and the coping process
Lazarus, R. S. (1966) · Medical Entomology and Zoology · Cited by 7,164 · see citing works
Pfeiffer, E. A. (1975) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.1975.tb00927.x · Cited by 5,320 · see citing works
Caregiving and the stress process: an overview of concepts and their measures
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990) · The Gerontologist · doi:10.1093/geront/30.5.583 · Cited by 4,810 · see citing works
Ross, C. E., Cohen, S., & Syme, S. L. (1986) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2071725 · Cited by 3,927 · see citing works
From Psychological Stress to the Emotions: A History of Changing Outlooks
Lazarus, R. S. (1993) · Annual Review of Psychology · doi:10.1146/annurev.ps.44.020193.000245 · Cited by 2,596 · see citing works
Coping as a mediator of emotion
Folkman, S., & Lazarus, R. S. (1988) · Journal of Personality and Social Psychology · doi:10.1037/0022-3514.54.3.466 · Cited by 2,103 · see citing works
Subjective Burden of Husbands and Wives as Caregivers: A Longitudinal Study
Zarit, S. H., Todd, P. A., & Zarit, J. M. (1986) · The Gerontologist · doi:10.1093/geront/26.3.260 · Cited by 1,846 · see citing works
Schulz, R., O'Brien, A. T., Bookwala, J., & Fleissner, K. (1995) · The Gerontologist · doi:10.1093/geront/35.6.771 · Cited by 1,765 · see citing works
Caregiver Weil-Being: A Multidimensional Examination of Family Caregivers of Demented Adults
George, L. K., & Gwyther, L. P. (1986) · The Gerontologist · doi:10.1093/geront/26.3.253 · Cited by 1,393 · see citing works
Measuring Caregiving Appraisal
Lawton, M. P., Kleban, M. H., Moss, M. S., Rovine, M. J., & Glicksman, A. (1989) · Journal of Gerontology · doi:10.1093/geronj/44.3.p61 · Cited by 742 · see citing works
A Two-factor Model of Caregiving Appraisal and Psychological Well-Being
Lawton, M. P., Moss, M. S., Kleban, M. H., Glicksman, A., & Rovine, M. J. (1991) · Journal of Gerontology · doi:10.1093/geronj/46.4.p181 · Cited by 662 · see citing works
Families Caring for Elders in Residence: Issues in the Measurement of Burden
Poulshock, S. W., & Deimling, G. T. (1984) · Journal of Gerontology · doi:10.1093/geronj/39.2.230 · Cited by 582 · cited 1× · see citing works
“…negative impacts of caregiving has been reported (Tennstedt ,' Cafferata, & Sullivan, 1992), even though the relationships between depressive symptoms, care recipient disability , and the type or amount of care have not been clearly identified (Kinney & Stephens, 1989; Poulshock & Deimling, 1984).”
BackgroundWomen and Depression: Risk Factors and Treatment Issues
McGrath, E. (1990) · Cited by 420 · see citing works
Blair, J. R., & Bigner, J. J. (1980) · Family Relations · doi:10.2307/583866 · Cited by 324 · see citing works
Prevalence of Depression in Family Caregivers
Gallagher-Thompson, D. E., Rose, J., Rivera, P., Lovett, S. B., & Thompson, L. W. (1989) · The Gerontologist · doi:10.1093/geront/29.4.449 · Cited by 317 · see citing works
Handbook of the psychology of aging, 3rd ed.
Birren, J. E., & Schaie, K. W. (1990) · Cited by 314 · see citing works
Caregiving Spouses Physical and Mental Health in Perspective
Pruchno, R. A., & Potashnik, S. L. (1989) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.1989.tb02230.x · Cited by 304 · see citing works
Reliability and validity of screening scales: Effect of reducing scale length
Shrout, P. E., & Yager, T. J. (1989) · Journal of Clinical Epidemiology · doi:10.1016/0895-4356(89)90027-9 · Cited by 255 · see citing works
Hassles and uplifts of giving care to a family member with dementia.
Kinney, J. M., & Stephens, M. P. (1989) · Psychology and Aging · doi:10.1037//0882-7974.4.4.402 · Cited by 228 · see citing works
Social Support and Caregiving Burden in Family Caregivers of Frail Elders
Thompson, E. H., Futterman, A. M., Gallagher-Thompson, D. E., Rose, J. M., & Lovett, S. B. (1993) · Journal of Gerontology · doi:10.1093/geronj/48.5.s245 · Cited by 201 · see citing works
Caregiver Burden and Nursing Home Admission of Frail Elderly Persons
McFall, S., & Miller, B. H. (1992) · Journal of Gerontology · doi:10.1093/geronj/47.2.s73 · Cited by 184 · see citing works
Temporality and identity loss due to Alzheimer's disease
Orona, C. J. (1990) · Social Science & Medicine · doi:10.1016/0277-9536(90)90265-t · Cited by 177 · see citing works
Transition in the caregiving career: Effects on sense of mastery.
Skaff, M. M., Pearlin, L. I., & Mullan, J. T. (1996) · Psychology and Aging · doi:10.1037//0882-7974.11.2.247 · Cited by 175 · see citing works
The moderating influence of service use on negative caregiving consequences
Bass, D. M., Noelker, L. S., & Rechlin, L. R. (1996) · The Journals of Gerontology Series B: Psychological Sciences and Social Sciences · doi:10.1093/geronb/51b.3.s121 · Cited by 160 · see citing works
Abeles, R. P., Gift, H. C., & Ory, M. G. (1994) · Cited by 147 · see citing works
Impact of Parent-Caring on Women
Archbold, P. G. (1983) · Family Relations · doi:10.2307/583977 · Cited by 144 · see citing works
Race, Control, Mastery, and Caregiver Distress
Miller, B. H., Campbell, R. T., Farran, C. J., Kaufman, J. E., & Davis, L. (1995) · The Journals of Gerontology Series B · doi:10.1093/geronb/50b.6.s374 · Cited by 138 · see citing works
Some Contributions from the Social System to Gender Inequalities in Heart Disease
McKinlay, J. B. (1996) · Journal of Health and Social Behavior · doi:10.2307/2137228 · Cited by 135 · see citing works
Living Arrangements and Sources of Caregiving
Chappell, N. L. (1991) · Journal of Gerontology · doi:10.1093/geronj/46.1.s1 · Cited by 131 · see citing works
Do We Need Another "Stress and Caregiving" Study?
Zarit, S. H. (1989) · The Gerontologist · doi:10.1093/geront/29.2.147 · Cited by 124 · see citing works
Braithwaite, V. A. (1992) · Research on Aging · doi:10.1177/0164027592141001 · Cited by 124 · see citing works
Social Support and Depressive Symptoms: Differential Patterns in Wife and Daughter Caregivers
Li, L., Seltzer, M. M., & Greenberg, J. S. (1997) · The Journals of Gerontology Series B · doi:10.1093/geronb/52b.4.s200 · Cited by 124 · see citing works
Tennstedt, S. L., Crawford, S. L., & McKinlay, J. B. (1993) · Milbank Quarterly · doi:10.2307/3350421 · Cited by 119 · see citing works
Self-citationCox, C. (1997) · The Gerontologist · doi:10.1093/geront/37.4.511 · Cited by 117 · see citing works
Tennstedt, S. L., Crawford, S., & McKinlay, J. B. (1993) · Journal of Gerontology · doi:10.1093/geronj/48.2.s74 · Cited by 112 · see citing works
Self-citationDepression among Caregivers of Impaired Elders
Tennstedt, S. L., Cafferata, G. L., & SULLIVAN, L. M. (1992) · Journal of Aging and Health · doi:10.1177/089826439200400104 · Cited by 83 · see citing works
Self-citationCharacteristics and significance of untreated major depressive disorder
Coryell, W. H., Endicott, J., Winokur, G., Akiskal, H. S., Solomon, D. A., León, A. M., Mueller, T., & Shea, M. T. (1995) · American Journal of Psychiatry · doi:10.1176/ajp.152.8.1124 · Cited by 69 · see citing works
Understanding Stress in Informal Caregiving
Braithwaite, V. A. (1996) · Research on Aging · doi:10.1177/0164027596182001 · Cited by 64 · see citing works
Between Stressors and Outcomes: Can We Simplify Caregiving Process Variables?
Braithwaite, V. A. (1996) · The Gerontologist · doi:10.1093/geront/36.1.42 · Cited by 63 · see citing works
Majerovitz, S. D. (1995) · Psychology and Aging · doi:10.1037//0882-7974.10.3.447 · Cited by 61 · see citing works
The Health Impact of Living with a Cognitively Impaired Elderly Spouse
Moritz, D. J., Kasl, S. V., & Ostfeld, A. M. (1992) · Journal of Aging and Health · doi:10.1177/089826439200400205 · Cited by 56 · see citing works
Caregiver Stress Studies - There Really Is More to Learn
George, L. K. (1990) · The Gerontologist · doi:10.1093/geront/30.5.580 · Cited by 55 · see citing works
The effects of caring on health: A community-based longitudinal study
Taylor, R., Ford, G., & Dunbar, M. (1995) · Social Science & Medicine · doi:10.1016/0277-9536(94)00271-t · Cited by 51 · see citing works
Maintaining a sense of control in later life.
Lachman, M. E., Ziff, M. A., & Spiro, A. (1994) · Cited by 51 · see citing works
Social roles and social participation
Mangen, D. J., & Peterson, W. A. (1982) · University of Minnesota Press eBooks · Cited by 33 · see citing works
Caregiver Role Appraisal and Caregiver Tasks as Factors in Ending Caregiving
Kasper, J. D., Steinbach, U., & Andrews, J. W. (1994) · Journal of Aging and Health · doi:10.1177/089826439400600307 · Cited by 23 · see citing works
Functional Status in Alzheimer's Disease and Multi-Infarct Dementia
DeBettignies, B. H., Mahurin, R. K., & Pirozzolo, F. J. (1993) · Clinical Gerontologist · doi:10.1300/j018v12n04_03 · Cited by 21 · see citing works
Psychological Impact of Caregiving on the Careprovider: A Critical Review of Research Methodologies
Raveis, V. H., Siegel, K., & Sudit, M. (1990) · Cited by 8 · see citing works
Understanding stress in informal caregiving: Is burden a problem for the individual or for society?
Braithwaite, V. A. (1997) · Cited by 4 · see citing works
Flagged first, then by citations
Research works printed but not linked: 4
- McFall, S., & Miller, B. (1992). Caregiver burden and nursing home ad- mission of frail elders. Journal of Gerontology: Social Sciences, 47, S573-S579.
- McKinlay, J. (1975). A case for refocusing upstream-the political econ- omy of sickness. In A. Enelow et al. (Eds.), Behavioral aspects of prevention. American Heart Association.
- Montgomery, R. (1992). Examining respite: Its promise and limits. In M. G. Ory & A. P. Duncker (Eds.), In-home care for older people (pp. 75-96). Newbury Park, CA: Sage Pulications, Inc.
- Pruchno, R. A., &. Resch, N. L. (1989). Aberrant behaviors of Alzheimer's disease: Mental health effects on spouse caregivers. Journal of Gerontology, 44, S177-S182.
Cited by
Sorted by citations
Pinquart, M., & Sörensen, S. (2003) · Psychology and Aging · doi:10.1037/0882-7974.18.2.250 · Cited by 2,857 · see citing works
Pinquart, M., & Sörensen, S. (2003) · The Journals of Gerontology: Series B · doi:10.1093/geronb/58.2.p112 · Cited by 1,108 · see citing works
Pinquart, M., & Sörensen, S. (2005) · The Gerontologist · doi:10.1093/geront/45.1.90 · Cited by 793 · see citing works
Caregiver burden—a critical discussion
Bastawrous, M. (2013) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2012.10.005 · Cited by 440 · see citing works
A Randomized, Controlled Trial of a Home Environmental Intervention
Gitlin, L. N., Corcoran, M. A., Winter, L., Boyce, A., & Hauck, W. W. (2001) · The Gerontologist · doi:10.1093/geront/41.1.4 · Cited by 439 · see citing works
Dementia care: mental health effects, intervention strategies, and clinical implications
Sörensen, S., Duberstein, P., Gill, D., & Pinquart, M. (2006) · The Lancet Neurology · doi:10.1016/s1474-4422(06)70599-3 · Cited by 396 · see citing works
Burden and Well-Being Among Caregivers: Examining the Distinction
Chappell, N. L., & Reid, R. C. (2002) · The Gerontologist · doi:10.1093/geront/42.6.772 · Cited by 376 · see citing works
Lifestyle interference and emotional distress in family caregivers of advanced cancer patients
Cameron, J., Franche, R., Cheung, A., & Stewart, D. (2002) · Cancer · doi:10.1002/cncr.10212 · Cited by 346 · see citing works
Pinquart, M., & Sörensen, S. (2004) · Aging & Mental Health · doi:10.1080/13607860410001725036 · Cited by 319 · see citing works
Caregiver burden and health-related quality of life among Japanese stroke caregivers
Morimoto, T. (2003) · Age and Ageing · doi:10.1093/ageing/32.2.218 · Cited by 301 · see citing works
Dementia Family Caregiver Training: Affecting Beliefs About Caregiving and Caregiver Outcomes
Hepburn, K. W., Tornatore, J. B., & Ostwald, S. W. (2001) · Journal of the American Geriatrics Society · doi:10.1046/j.1532-5415.2001.49090.x · Cited by 299 · see citing works
Benefits of cognitive-motor intervention in MCI and mild to moderate Alzheimer disease
Olazarán, J., Muñiz, R., Reisberg, ., Peña‐Casanova, J., del Ser, T., Cruz-Jentoft, A. J., Serrano, P., Navarro, E., de la Rocha, M. L. G., Frank, A., et al. (2004) · Neurology · doi:10.1212/01.wnl.0000147478.03911.28 · Cited by 294 · see citing works
Caregiving as a Dyadic Process: Perspectives From Caregiver and Receiver
Lyons, K. S., Zarit, S. H., Sayer, A. G., & Whitlatch, C. J. (2002) · The Journals of Gerontology Series B · doi:10.1093/geronb/57.3.p195 · Cited by 293 · see citing works
The Relevance of Control Beliefs for Health and Aging
Lachman, M. E., Neupert, S. D., & Agrigoroaei, S. (2010) · Elsevier eBooks · doi:10.1016/b978-0-12-380882-0.00011-5 · Cited by 291 · see citing works
Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2010) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-010-1140-6 · Cited by 284 · see citing works
Caregiver burden in Parkinson's disease
Martínez‐Martín, P., Forjaz, M. J., Payo, B. F., Bayés, À., Fernández‐García, J. M., Benito‐León, J., Arillo, V. M. C., Barberà, M. A., Pondal, M., & Catalán, M. J. (2007) · Movement Disorders · doi:10.1002/mds.21355 · Cited by 281 · see citing works
Development of a conceptual framework of positive aspects of caregiving in dementia
Carbonneau, H., Caron, C. D., & Desrosiers, J. (2010) · Dementia · doi:10.1177/1471301210375316 · Cited by 265 · see citing works
Cadman, T., Eklund, H., Howley, D., Hayward, H., Clarke, H., Findon, J., Xenitidis, K., Murphy, D., Asherson, P., & Glaser, K. (2012) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2012.06.017 · Cited by 264 · see citing works
A Multinational Review of Recent Trends and Reports in Dementia Caregiver Burden
Torti, F. M., Gwyther, L. P., Reed, S. D., Friedman, J. Y., & Schulman, K. A. (2004) · Alzheimer Disease & Associated Disorders · doi:10.1097/01.wad.0000126902.37908.b2 · Cited by 262 · see citing works
Casado, R. D. P., Cardosa, M. R., López‐Martínez, C., & Orgeta, V. (2019) · PLoS ONE · doi:10.1371/journal.pone.0217648 · Cited by 243 · see citing works
Age Differences in Reactivity to Daily Stressors: The Role of Personal Control
Neupert, S. D., Almeida, D. M., & Charles, S. T. (2007) · The Journals of Gerontology Series B · doi:10.1093/geronb/62.4.p216 · Cited by 239 · see citing works
Verbakel, E. (2017) · Scandinavian Journal of Public Health · doi:10.1177/1403494817726197 · Cited by 222 · see citing works
Ho, S. C., Chan, A., Woo, J., Chong, P., & Sham, A. (2009) · The Journals of Gerontology Series A: Biological Sciences and Medical Sciences · doi:10.1093/gerona/glp034 · Cited by 217 · see citing works
Schreiner, A. S., Morimoto, T., Arai, Y., & Zarit, S. (2006) · Aging & Mental Health · doi:10.1080/13607860500312142 · Cited by 254 · see citing works
Swinkels, J. C., van Tilburg, T. G., Verbakel, E., & Groenou, M. I. B. V. (2017) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbx036 · Cited by 207 · see citing works
Health-Promoting Self-Care in Family Caregivers
Acton, G. J. (2002) · Western Journal of Nursing Research · doi:10.1177/01939450222045716 · Cited by 178 · see citing works
Beeson, R. A. (2003) · Archives of Psychiatric Nursing · doi:10.1016/s0883-9417(03)00057-8 · Cited by 176 · see citing works
Cannuscio, C. C., Jones, C., Kawachi, I., Colditz, G. A., Berkman, L., & Rimm, E. (2002) · American Journal of Public Health · doi:10.2105/ajph.92.8.1305 · Cited by 171 · see citing works
Musil, C. M., & Ahmad, M. M. (2002) · Journal of Aging and Health · doi:10.1177/089826430201400106 · Cited by 170 · see citing works
McConaghy, R., & Caltabiano, M. L. (2005) · Nursing and Health Sciences · doi:10.1111/j.1442-2018.2005.00213.x · Cited by 169 · see citing works
The Role of Religion/Spirituality in Coping With Caregiving for Disabled Elders
Chang, B., Noonan, A. E., & Tennstedt, S. L. (1998) · The Gerontologist · doi:10.1093/geront/38.4.463 · Cited by 165 · see citing works
Self-citationAre all caregivers created equal? Stress in caregivers to adults with and without dementia
Bertrand, R. M., Fredman, L., & Saczynski, J. (2006) · Journal of Aging and Health · doi:10.1177/0898264306289620 · Cited by 160 · see citing works
Bookwala, J., & Schulz, R. (2000) · Psychology and Aging · doi:10.1037//0882-7974.15.4.607 · Cited by 151 · see citing works
Caregiver burden, time spent caring and health status in the first 12 months following stroke
Tooth, L. R., McKenna, K. T., Barnett, A. G., Prescott, C., & Murphy, S. (2005) · Brain Injury · doi:10.1080/02699050500110785 · Cited by 148 · see citing works
Measuring the Caregiver Burden of Caring for Community-Residing People with Alzheimer’s Disease
Yu, H., Wang, X., He, R., Liang, R., & Zhou, L. (2015) · PLoS ONE · doi:10.1371/journal.pone.0132168 · Cited by 146 · see citing works
Vaitheswaran, S., Lakshminarayanan, M., Ramanujam, V., Sargunan, S., & Venkatesan, S. (2020) · The American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2020.06.026 · Cited by 143 · see citing works
Caregivers' Descriptions of Sleep Changes and Depressive Symptoms
Carter, P. A. (2002) · Oncology nursing forum · doi:10.1188/02.onf.1277-1283 · Cited by 143 · see citing works
Systematic review of respite care in the frail elderly
Shaw, C., McNamara, R. L., Abrams, K. R., Cannings-John, R. L., Hood, K., Longo, M., Myles, S., O'Mahony, S., Roe, B. H., & Williams, K. (2009) · Health Technology Assessment · doi:10.3310/hta13200 · Cited by 142 · see citing works
Musculoskeletal Discomfort, Physical Demand, and Caregiving Activities in Informal Caregivers
Darragh, A. R., Sommerich, C. M., Lavender, S. A., Tanner, K. J., Vogel, K., & Campo, M. A. (2013) · Journal of Applied Gerontology · doi:10.1177/0733464813496464 · Cited by 142 · see citing works
Mental Health Challenges of United States Healthcare Professionals During COVID-19
Pearman, A. M., Hughes, M., Smith, E. L., & Neupert, S. D. (2020) · Frontiers in Psychology · doi:10.3389/fpsyg.2020.02065 · Cited by 140 · see citing works
Gallagher-Thompson, D. E., Gray, H. L., Tang, P. C. Y., Pu, C. Y., Leung, L., Wang, P.-C., Tse, C., Hsu, S., Kwo, E., Tong, H., et al. (2007) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e3180312028 · Cited by 140 · see citing works
Economic Burdens and Quality of Life of Family Caregivers of Cancer Patients
Yun, Y. H., Rhee, Y. S., Kang, I. O., Lee, J. S., Bang, S., Lee, W. S., Kim, J. S., Kim, S. Y., Shin, S. W., & Hong, Y. S. (2005) · Oncology · doi:10.1159/000085703 · Cited by 136 · see citing works
A Brief Behavioral Sleep Intervention for Family Caregivers of Persons With Cancer
Carter, P. A. (2006) · Cancer Nursing · doi:10.1097/00002820-200603000-00003 · Cited by 135 · see citing works
Adams, B. M., Aranda, M., Kemp, B. J., & Takagi, K. (2002) · Journal of Clinical Geropsychology · doi:10.1023/a:1019627323558 · Cited by 135 · see citing works
Gallagher-Thompson, D. E., Wang, P.-C., Liu, W., Cheung, V., Peng, R., China, D., & Thompson, L. W. (2010) · Aging & Mental Health · doi:10.1080/13607860903420989 · Cited by 133 · see citing works
Groenou, M. I. B. V., de Boer, A., & Iedema, J. (2013) · European Journal of Ageing · doi:10.1007/s10433-013-0276-6 · Cited by 132 · see citing works
Verbakel, E., Metzelthin, S., & Kempen, G. I. J. M. (2016) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbw047 · Cited by 128 · see citing works
Multiple mediators of the relations between caregiving stress and depressive symptoms
Mausbach, B. T., Roepke, S. K., Chattillion, E. A., Harmell, A. L., Moore, R., Romero-Moreno, R., Bowie, C. R., & Grant, I. (2012) · Aging & Mental Health · doi:10.1080/13607863.2011.615738 · Cited by 119 · see citing works
Champion, J. D., Piper, J. M., Shain, R. N., Perdue, S. T., & Newton, E. R. (2001) · Research in Nursing & Health · doi:10.1002/1098-240x(200102)24:1 · Cited by 29 · see citing works
Family Care for the Older Person With Cancer
Given, B. A., & Sherwood, P. R. (2006) · Seminars in Oncology Nursing · doi:10.1016/j.soncn.2005.10.006 · Cited by 118 · see citing works
Familism Beliefs and Psychological Distress Among African American Women Caregivers
Rozario, P. A., & Derienzis, D. (2008) · The Gerontologist · doi:10.1093/geront/48.6.772 · Cited by 118 · see citing works
Sörensen, S., & Pinquart, M. (2005) · Aging & Mental Health · doi:10.1080/13607860500142796 · Cited by 114 · see citing works
Cost and burden of informal caregiving of dependent older people in a rural Indian community
Brinda, E. M., Rajkumar, A. P., Enemark, U., Attermann, J., & Jacob, K. S. (2014) · BMC Health Services Research · doi:10.1186/1472-6963-14-207 · Cited by 112 · see citing works
Carter, J. H., Lyons, K. S., Stewart, B. J., Archbold, P. G., & Scobee, R. (2010) · Movement Disorders · doi:10.1002/mds.22888 · Cited by 112 · see citing works
Caregivers of persons with a brain tumor: a conceptual model
Sherwood, P. R., Given, B. A., Given, C. W., Schiffman, R. F., Murman, D. L., & Lovely, M. (2004) · Nursing Inquiry · doi:10.1111/j.1440-1800.2004.00200.x · Cited by 111 · see citing works
The mental and physical health of young carers: a systematic review
Lacey, R. E., Xue, B., & McMunn, A. (2022) · The Lancet Public Health · doi:10.1016/s2468-2667(22)00161-x · Cited by 109 · see citing works
Well-being in informal caregivers of survivors of acute respiratory distress syndrome*
Cameron, J. I., Herridge, M. S., Tansey, C. M., McAndrews, M. P., & Cheung, A. M. (2005) · Critical Care Medicine · doi:10.1097/01.ccm.0000190428.71765.31 · Cited by 109 · see citing works
Greenwell, K., Gray, W. K., van Wersch, A., van Schaik, P., & Walker, R. W. (2014) · Parkinsonism & Related Disorders · doi:10.1016/j.parkreldis.2014.10.013 · Cited by 108 · see citing works
Cameron, J. I., Cheung, A. M., Streiner, D. L., Coyte, P. C., & Stewart, D. E. (2006) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2005.10.012 · Cited by 108 · see citing works
Mello, J. D. A., Macq, J., Van Durme, T., Cès, S., Spruytte, N., Van Audenhove, C., & Declercq, A. (2017) · Aging & Mental Health · doi:10.1080/13607863.2016.1168360 · Cited by 107 · see citing works
Campbell, L. C., Keefe, F. J., McKee, D. C., Edwards, C. L., Herman, S. H., Johnson, L. E., Colvin, O. M., McBride, C. M., & Donatucci, C. F. (2004) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2004.02.020 · Cited by 107 · see citing works
Burden Among Family Caregivers of Persons With Alzheimer's Disease in Nursing Homes
Tornatore, J. B., & Grant, L. A. (2002) · The Gerontologist · doi:10.1093/geront/42.4.497 · Cited by 105 · see citing works
Zhou, J. W., Mao, W., Lee, Y., & Chi, I. (2016) · Research on Aging · doi:10.1177/0164027515623332 · Cited by 104 · see citing works
Adams, K., & Sanders, S. (2004) · Dementia · doi:10.1177/1471301204042337 · Cited by 109 · see citing works
Lyons, K. S., Stewart, B. J., Archbold, P. G., & Carter, J. H. (2009) · The Gerontologist · doi:10.1093/geront/gnp046 · Cited by 103 · see citing works
Lyonette, C., & Yardley, L. (2003) · Ageing and Society · doi:10.1017/s0144686x03001284 · Cited by 100 · see citing works
Carter, P. A., & Acton, G. J. (2006) · Journal of Gerontological Nursing · doi:10.3928/0098-9134-20060201-11 · Cited by 99 · see citing works
Dew, M. A., Myaskovsky, L., DiMartini, A. F., Switzer, G. E., Schulberg, H. C., & Kormos, R. L. (2004) · Psychological Medicine · doi:10.1017/s0033291703001387 · Cited by 98 · see citing works
Longitudinal Dyad Models in Family Research
Lyons, K. S., & Sayer, A. G. (2005) · Journal of Marriage and the Family · doi:10.1111/j.1741-3737.2005.00193.x · Cited by 96 · see citing works
Cooper, B. K., Kinsella, G., & Picton, C. (2005) · Psycho-Oncology · doi:10.1002/pon.1001 · Cited by 94 · see citing works
Verbakel, E. (2014) · Journal of European Social Policy · doi:10.1177/0958928714543902 · Cited by 91 · see citing works
Hudson, P. (2003) · Palliative & Supportive Care · doi:10.1017/s1478951503030426 · Cited by 90 · see citing works
Goldsworthy, B., & Knowles, S. R. (2008) · The Journals of Gerontology Series B · doi:10.1093/geronb/63.6.p372 · Cited by 88 · see citing works
Differences in family caregiver outcomes by their level of involvement in discharge planning
Bull, M. J., Hansen, H. E., & Gross, C. R. (2000) · Applied Nursing Research · doi:10.1016/s0897-1897(00)80004-x · Cited by 86 · see citing works
D’Amen, B., Socci, M., & Santini, S. (2021) · BMC Geriatrics · doi:10.1186/s12877-020-01976-z · Cited by 83 · see citing works
A day at a time: caregiving on the edge in advanced COPD
Rocker, G. M., Simpson, C. A., Young, J., & Donahue, M. (2010) · International Journal of COPD · doi:10.2147/copd.s9881 · Cited by 83 · see citing works
Understanding Male Caregivers’ Emotional, Financial, and Physical Burden in the United States
Lopez–Anuarbe, M., & Kohli, P. (2019) · Healthcare · doi:10.3390/healthcare7020072 · Cited by 79 · see citing works
Dekel, R., Solomon, Z., & Bleich, A. (2005) · Anxiety Stress & Coping · doi:10.1080/10615800412336427 · Cited by 80 · see citing works
Marital Relationship Quality in Early-Stage Dementia
Clare, L., Nelis, S. M., Whitaker, C. J., Martyr, A., Markova, I. S., Roth, I., Woods, B. T., & Morris, R. G. (2011) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0b013e318221ba23 · Cited by 78 · see citing works
The impact of informal care-giving networks on adult children's care-giver burden
Tolkacheva, N., Groenou, M. I. B. V., de Boer, A., & van Tilburg, T. G. (2010) · Ageing and Society · doi:10.1017/s0144686x10000711 · Cited by 78 · see citing works
Care Giving of People with Severe Mental Illness: An Indian Experience
Janardhana, N., Raghunandan, S., Naidu, D. M., Saraswathi, L., & Seshan, V. (2015) · Indian Journal of Psychological Medicine · doi:10.4103/0253-7176.155619 · Cited by 77 · see citing works
Iecovich, E. (2008) · Journal of Applied Gerontology · doi:10.1177/0733464808315289 · Cited by 77 · see citing works
Grant, J. S., Bartolucci, A., Elliot, T. R., & Giger, J. (2000) · Brain Injury · doi:10.1080/02699050050203586 · Cited by 82 · see citing works
The enduring and contextual effects of physical health and depression on care‐dyad mutuality
Lyons, K. S., Sayer, A. G., Archbold, P. G., Hornbrook, M. C., & Stewart, B. J. (2007) · Research in Nursing & Health · doi:10.1002/nur.20165 · Cited by 75 · see citing works
Lee, J., Pomeroy, E. C., & Bohman, T. (2007) · Journal of Family Violence · doi:10.1007/s10896-007-9119-6 · Cited by 73 · see citing works
van Campen, C., de Boer, A. H., & Iedema, J. (2012) · Scandinavian Journal of Caring Sciences · doi:10.1111/j.1471-6712.2012.00998.x · Cited by 72 · see citing works
Malhotra, C., Malhotra, R., Østbye, T., Matchar, D. B., & Chan, A. W.-M. (2012) · International Psychogeriatrics · doi:10.1017/s1041610212000324 · Cited by 72 · see citing works
Relationship quality and burden among caregivers for late-stage cancer patients
Francis, L. E., Worthington, J., Kypriotakis, G., & Rose, J. H. (2010) · Supportive Care in Cancer · doi:10.1007/s00520-009-0765-5 · Cited by 71 · see citing works
Predictors of Social Support and Caregiver Outcomes
Chang, B. L., Brecht, M., & Carter, P. A. (2001) · Women & Health · doi:10.1300/j013v33n01_04 · Cited by 71 · see citing works
Self-citationEmotional Health of Black and White Dementia Caregivers: A Contextual Examination
Williams, I. C. (2005) · The Journals of Gerontology Series B · doi:10.1093/geronb/60.6.p287 · Cited by 70 · see citing works
Caregiving for elder relatives: Which caregivers experience personal benefits/gains?
Kœrner, S. S., Kenyon, D. B., & Shirai, Y. (2008) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2008.01.015 · Cited by 69 · see citing works
Effects of Guided Care on Family Caregivers
Wolff, J. L., Giovannetti, E. R., Boyd, C. M., Reider, L. M., Palmer, S., Scharfstein, D. O., Marsteller, J. A., Wegener, S. T., Frey, K. P., Leff, B. A., et al. (2009) · The Gerontologist · doi:10.1093/geront/gnp124 · Cited by 69 · see citing works
Poor patient health is associated with higher caregiver burden for older adults with advanced cancer
Semere, W., Althouse, A. D., Rosland, A.-M. M., White, D. B., Arnold, R. M., Chu, E., Smith, T. J., & Schenker, Y. (2021) · Journal of Geriatric Oncology · doi:10.1016/j.jgo.2021.01.002 · Cited by 77 · see citing works
Kuşçu, M. K., Dural, U., Önen, P., Yaşa, Y., Yayla, M., Başaran, G., Turhal, S., & Bekiroğlu, N. (2009) · Psycho-Oncology · doi:10.1002/pon.1441 · Cited by 68 · see citing works
Personal losses and relationship quality in dementia caregiving
Adams, K. B., McClendon, M. J., & Smyth, K. A. (2008) · Dementia · doi:10.1177/1471301208093286 · Cited by 68 · see citing works
Does Caregiving Strain Increase as Patients With and Without Dementia Approach the End of Life?
Vick, J. B., Ornstein, K. A., Szanton, S. L., Dy, S. M., & Wolff, J. L. (2019) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2018.11.004 · Cited by 68 · see citing works
Correlates of Caregiver Burden Among Family Caregivers of Older Korean Americans
Casado, B. L., & Sacco, P. (2011) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbr115 · Cited by 66 · see citing works
The Impact of Work Interferences on Family Caregiver Outcomes
Colin Reid, R., Stajduhar, K. I., & Chappell, N. L. (2010) · Journal of Applied Gerontology · doi:10.1177/0733464809339591 · Cited by 66 · see citing works
A Middle-Range Theory of Caregiver Stress
Tsai, P. (2003) · Nursing Science Quarterly · doi:10.1177/0894318403251789 · Cited by 65 · see citing works
Therapeutic recreation interventions for need-driven dementia-compromised
Fitzsimmons, S., & Buettner, L. L. (2002) · American Journal of Alzheimer's Disease & Other Dementias® · doi:10.1177/153331750201700603 · Cited by 64 · see citing works
- Authors
- Yates, M. E., Tennstedt, S., & Chang, B.-H.
- Affiliations
- New England Research Institutes (US)
- ORCID
- Chang, B.-H.
- Venue
- The Journals of Gerontology Series B: Psychological Sciences and Social Sciences
- Publisher
- Oxford University Press (OUP)
- Published
- 1999-01-01
- Volume
- 54B
- Issue
- 1
- Pages
- P12-P22
- ISSN
- 1079-5014 (ISSN-L)
- 1758-5368
- OpenAlex
- W2088415087
- Cited by
- 364
- References
- 53
- Citations by year
- 2026: 9 · 2025: 9 · 2024: 6 · 2023: 12 · 2022: 16 · 2021: 15 · 2020: 15 · 2019: 19 · 2018: 10 · 2017: 9 · 2016: 11 · 2015: 19 · 2014: 12 · 2013: 8 · 2012: 15
- Type
- paratext
- Language
- en
- Open access
- closed
- Locations
- The Journals of Gerontology Series B (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institutes of Health (5r37ag007182-10)
- National Institute on Aging (AG07182)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Social Sciences › Psychology › Clinical Psychology › Health and Well-being Studies
- Keywords
- informal caregivers, caregiver depression, psychological well-being, role overload, mastery, emotional support, caregiver-care recipient relationship, older adults with disabilities, mediation, caregiver interventions
- MeSH terms
- Activities of Daily Living, Aged, Aged, 80 and over, Behavior, Cognition, Depression, Female, Humans, Male, Middle Aged, Models, Psychological, Social Support, Stress, Psychological, Frail Elderly, Caregivers
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