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European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre
Open accessAbstract
A significant increase in life expectancy in successive birth cohorts of people with cystic fibrosis (CF) is a result of more effective treatment for the disease. It is also now widely recognized that outcomes for patients cared for in specialist CF Centres are better than for those who are not. Key to the effectiveness of the specialist CF Centre is the multidisciplinary team (MDT), which should include consultants, clinical nurse specialist, microbiologist, physiotherapist, dietitian, pharmacist, clinical psychologist, social worker, clinical geneticist and allied healthcare professionals, all of whom should be experienced in CF care. Members of the MDT are also expected to keep up to date with developments in CF through continued professional development, attendance at conferences, auditing and involvement in research. Specialists CF Centres should also network with other Centres both nationally and internationally, and feed Centre data to registries in order to further the understanding of the disease. This paper provides a framework for the specialist CF Centre, including the organisation of the Centre and the individual roles of MDT members, as well as highlighting the value of CF organisations and disease registries.
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“According to Conway et al., this significantly affects patient safety, and such a treatment team should comprise consultants, a clinical nurse, a microbiologist, a physiotherapist, a dietician, a pharmacist, a clinical psychologist, a social worker, a clinical geneticist, and other healthcare professionals, all of whom should be experienced in the care of patients with CF [4].”
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Citations
Cites
The Prognostic Value of Exercise Testing in Patients with Cystic Fibrosis
Nixon, P. A., Orenstein, D. M., Kelsey, S. F., & Doershuk, C. F. (1992) · New England Journal of Medicine · doi:10.1056/nejm199212173272504 · Cited by 629
Cystic fibrosis mortality and survival in the UK: 1947–2003
DODGE, J. A., Lewis, P. A., Stanton, M., & Wilsher, J. (2006) · European Respiratory Journal · doi:10.1183/09031936.00099506 · Cited by 627
Standards of care for patients with cystic fibrosis: a European consensus
Kerem, E., Conway, S., Elborn, J. S., & Heijerman, H. G. M. (2005) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2004.12.002 · Cited by 477
Self-citationAerosol Deposition in Health and Disease
Darquenne, C. (2012) · Journal of Aerosol Medicine and Pulmonary Drug Delivery · doi:10.1089/jamp.2011.0916 · Cited by 453
Guidelines for the physiotherapy management of the adult, medical, spontaneously breathing patient
Bott, J., Blumenthal, S., Buxton, M., Ellum, S., Falconer, C., Garrod, R., Harvey, A., Hughes, T., Lincoln, M., Mikelsons, C., et al. (2009) · Thorax · doi:10.1136/thx.2008.110726 · Cited by 451
Saiman, L. M. (2003) · American Journal of Infection Control · doi:10.1067/mic.2003.78 · Cited by 307
Yen, E. H., Quinton, H., & Borowitz, D. (2013) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2012.08.040 · Cited by 306
BTS guidelines for home oxygen in children
Balfour-Lynn, I. M., Field, D. J., Gringras, P., Hicks, B., Jardine, E., Jones, R. C., Magee, A. G., Primhak, R. A., Samuels, M. P., Shaw, N. J., et al. (2009) · Thorax · doi:10.1136/thx.2009.116020 · Cited by 250
Self-citationMahadeva, R., DODGE, J. A., Webb, A. K., Westerbeek, R. C., Carroll, N. R., Dodd, M. E., Bilton, D., & Lomas, D. A. (1998) · BMJ · doi:10.1136/bmj.316.7147.1771 · Cited by 248
Guidelines for the management of pregnancy in women with cystic fibrosis
Edenborough, F. P., Borgo, G., Knoop, C., Lannefors, L., Mackenzie, W. E., Madge, S. L., Morton, A. M., Oxley, H., Touw, D. J., Benham, M., et al. (2007) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2007.10.001 · Cited by 245
Self-citation
Cited by
Sorted by citations
Items 101–200 of 232
A prospective analysis of unplanned patient-initiated contacts in an adult cystic fibrosis centre
Burnet, E., Hubert, D., Champreux, J., Honoré, I., Kanaan, R., Panzo, R., & Burgel, P. (2018) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2018.04.006 · Cited by 5
MHealth and Serious Game Analytics for Cystic Fibrosis Adults
Vagg, T., Tan, Y.-Y., Shortt, C., Hickey, C., Plant, B., & Tabirca, S. (2018) · 2018 IEEE 31st International Symposium on Computer-Based Medical Systems (CBMS) · doi:10.1109/cbms.2018.00025 · Cited by 4
Burghard, M., Takken, T., der Vlist, M. M. N.-V., Nijhof, S. L., van der Ent, C. K., Heijerman, H. G. M., & Hulzebos, E. H. J. (2022) · Therapeutic Advances in Respiratory Disease · doi:10.1177/17534666211070143 · Cited by 5
Self-citationGökdemi̇r, Y., Eralp, E. E., Ergenekon, P., Yeğit, C. Y., Yanaz, M., Mursaloglu, H. H., Uzunoğlu, B., Kocamaz, D., Taştan, G., Filbrun, A. G., et al. (2023) · Pediatric Pulmonology · doi:10.1002/ppul.26344 · Cited by 5
Dykowska, G., Śmigrocka, E., Borawska-Kowalczyk, U., Sands, D., Sienkiewicz, Z., Leńczuk-Gruba, A., Gorczyca, D., & Głowacka, M. (2023) · Journal of Clinical Medicine · doi:10.3390/jcm12165214 · Cited by 4
“, this significantly affects patient safety, and such a treatment team should comprise consultants, a clinical nurse, a microbiologist, a physiotherapist, a dietician, a pharmacist, a clinical psychologist, a social worker, a clinical geneticist, and other healthcare professionals, all of whom should be experienced in…”
BackgroundSelf-citationCFTrack: Advanced Diagnostic, Monitoring, and Tracking Device for Cystic Fibrosis Care
Premadasa, R., Wan, Z., Almasi, P., Barri, K., Zhang, H., Jiao, P., & Zhang, Q. (2024) · ACS Sensors · doi:10.1021/acssensors.4c01669 · Cited by 4
Effect of malnutrition in infants with cystic fibrosis in India
Thomas, L., John, S. T., B., A., Rebekah, G. J., Kumar, M., Punnen, A., & Varkki, S. D. (2021) · Journal of Family Medicine and Primary Care · doi:10.4103/jfmpc.jfmpc_2421_20 · Cited by 4
Use of mucoactive agents in cystic fibrosis: A consensus survey of Italian specialists
Volpi, S., Carnovale, V., Colombo, C., Raia, V., Blasi, F., Pappagallo, G. L., & PULMOCARE TEAM (2022) · Health Science Reports · doi:10.1002/hsr2.604 · Cited by 4
Healthcare reassessment in a pandemics time: challenges for CF
Castellani, C. (2020) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2020.03.010 · Cited by 4
du Plessis, A., Andronikou, S., & Zar, H. J. (2020) · Paediatric Respiratory Reviews · doi:10.1016/j.prrv.2020.06.022 · Cited by 4
Évolutions épidémiologiques de la mucoviscidose en France: perspectives à 10 ans
Burgel, P. (2016) · Archives de Pédiatrie · doi:10.1016/s0929-693x(17)30056-8 · Cited by 4
E-learning within the European cystic fibrosis society - A multidisciplinary cross-sectional survey
Smith, C., Chadwick, H. K., Hill, K., & Peckham, D. G. (2024) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2024.07.003 · Cited by 3
Self-citationPsychological Distress of Psoriasis Patients
O’Leary, C. (2025) · British Journal of Hospital Medicine · doi:10.12968/hmed.2024.0802 · Cited by 3
Telemedicine in chronic lung disease management: progress and prospects
Yoon, H., & Song, J. W. (2025) · The Korean Journal of Internal Medicine · doi:10.3904/kjim.2025.081 · Cited by 5
Bell, J. M., Dwyer, T., Cunich, M. M., Dentice, R. L., Hutchings, O., Jo, H. E., Lau, E., Lee, W. Y., Nolan, S., Muñoz, P. A., et al. (2023) · Internal Medicine Journal · doi:10.1111/imj.16258 · Cited by 3
The globalization of cystic fibrosis care
Milla, C. E. (2025) · Current Opinion in Pediatrics · doi:10.1097/mop.0000000000001458 · Cited by 3
Fila, L. (2017) · Vnitřní lékařství · doi:10.36290/vnl.2017.156 · Cited by 3
Hurley, N. R., Kehoe, B., McCaffrey, N., Redmond, K., Cullen, L., & Moyna, N. M. (2020) · BMC Health Services Research · doi:10.1186/s12913-020-05910-2 · Cited by 3
Building a pediatric rare lung disease program: It takes a community of villages
Vece, T. J., Gower, W. A., Davis, S. D., Austin, A., McKinzie, C. J., Hatch, J., Davis, M., & Hagood, J. S. (2022) · Pediatric Pulmonology · doi:10.1002/ppul.26083 · Cited by 3
A new era in cystic fibrosis care: always changing and adapting
Diener, B. L., Huertero, F., Stables-Carney, T., Hoelzer, M., & Kier, C. (2023) · Current Opinion in Pediatrics · doi:10.1097/mop.0000000000001286 · Cited by 4
A decade of change: The evolution of pharmacy services at U.S. cystic fibrosis centers
Grube, P. M., Autry, E. B., Kormelink, L. N., Young, D. C., Zobell, J. T., Bhakta, Z. N., Schadler, A. D., & Kuhn, R. J. (2023) · Pediatric Pulmonology · doi:10.1002/ppul.26798 · Cited by 3
O’Regan, P. W., Stevens, N. E., Logan, N., Ryan, D. J., & Maher, M. M. (2024) · Children · doi:10.3390/children11020256 · Cited by 3
Cystic fibrosis in Iceland and the high prevalence of the N1303K variant
Elidottir, H., Bjarnadottir, S. R., Baldursson, Ó., & Jónsdóttir, B. (2024) · Pediatric Pulmonology · doi:10.1002/ppul.27019 · Cited by 3
Sankararaman, S., Schindler, T., Leonard, A., Vavrina, K., Bailey, J., Thavamani, A., Cummings, L. C., & Mascarenhas, M. (2024) · Nutrition in Clinical Practice · doi:10.1002/ncp.11219 · Cited by 3
CONSENSO CHILENO PARA LA ATENCIÓN INTEGRAL DE NIÑOS Y ADULTOS CON FIBROSIS QUÍSTICA
Maria Lina Boza, C., Joel Melo, T., Salesa Barja, Y., Ethel Codner, D., Patricio Gomolan, G., Rubén Hernández, M., Luis Astorga, F., Barrientos, H., Rodrigo Bozzo, H., Mauricio Calderón, R., et al. (2020) · Neumología Pediátrica · doi:10.51451/np.v15i4.123 · Cited by 4
Addy, C., Downey, D. G., & Elborn, J. S. (2015) · Expert Opinion on Orphan Drugs · doi:10.1517/21678707.2016.1107473 · Cited by 3
Castro, R., de Chalendar, M., Vajda, I., van Breukelen, S., Courbier, S., Hedley, V., Montefusco, M., Nielsen, S. J., & Dan, D. (2021) · Springer eBooks · doi:10.1007/978-3-030-69262-9_44 · Cited by 3
Effectiveness of Autogenic Drainage in Improving Pulmonary Function in Patients with Cystic Fibrosis
Żak, M., Gauchez, H., Boberski, M., Stangret, A., & Kempińska‐Podhorodecka, A. (2023) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph20053822 · Cited by 2
Abni, E. N., & Kasim, A. M. (2024) · JURNAL ILMIAH KESEHATAN SANDI HUSADA · doi:10.35816/jiksh.v13i2.362 · Cited by 2
Smith, C., Chadwick, H. K., Shaw, N., Farinha, C. M., Southern, K. W., Landau, E., Mei‐Zahav, M., Havermans, T., Borawska-Kowalczyk, U., MacDuff, N., et al. (2025) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2025.11.012 · Cited by 2
Self-citationPartnership between cystic fibrosis centres in Europe: The Twinning Project
Dřevı́nek, P., Chadwick, H. K., Stepankova, K., Francis, C., DeKeyser, H., Smith, C., & Naehrlich, L. (2026) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2026.06.009 · Cited by 2
Cardiorespiratory fitness on a treadmill in an adult cystic fibrosis population
Torvanger, O., Os, A., Skjønsberg, O. H., & Edvardsen, E. (2020) · BMJ Open Sport & Exercise Medicine · doi:10.1136/bmjsem-2020-000765 · Cited by 2
Audit of sweat chloride testing reveals analytical errors
Prenzel, F., Ceglarek, U., Adams, I., Hammermann, J., Issa, U., Lohse, G., Mainz, J. G., Meister, J., Spittel, D., Thoss, K., et al. (2021) · Clinical Chemistry and Laboratory Medicine (CCLM) · doi:10.1515/cclm-2020-1661 · Cited by 2
Niemitz, M., Gaber, A.-M., Goldbeck, L., Wallenwein, A., Tutus, D., Fegert, J. M., Smaczny, C., Heuer, H.-E., Junge, S., Hebestreit, H. U., et al. (2021) · Journal of Workplace Behavioral Health · doi:10.1080/15555240.2021.2016428 · Cited by 2
Gambazza, S., Mariani, A., Guarise, R., Ferrari, B., Carta, F., Brivio, A., Bizzarri, S., Castellani, C., Colombo, C., & Laquintana, D. (2024) · Pediatric Pulmonology · doi:10.1002/ppul.26915 · Cited by 2
Millar, B. C., Rendall, J. C., & Moore, J. E. (2024) · Infection Disease & Health · doi:10.1016/j.idh.2024.04.002 · Cited by 2
Gagulic, S., Bártolo, A., & Marques, A. S. P. D. D. (2024) · Healthcare · doi:10.3390/healthcare13010004 · Cited by 2
Makhmutova, V. R., Gembitskaya, T. E., Chermensky, A. G., Titova, O. N., Кузубова, Н. А., & Stepanenko, T. (2020) · Russian Medical Inquiry · doi:10.32364/2587-6821-2020-4-4-186-191 · Cited by 2
Ellemunter, H., Stahl, K., Smrekar, U., & Steinkamp, G. (2015) · European Journal of Pediatrics · doi:10.1007/s00431-015-2545-1 · Cited by 2
Akute respiratorische Verschlechterung bei zystischer Fibrose
Oberwaldner, B. (2016) · Elsevier eBooks · doi:10.1016/b978-3-437-45025-9.00005-1 · Cited by 2
Transition in Cystic Fibrosis: An International Experience
Daniel Office, & Madge, S. L. (2019) · Springer eBooks · doi:10.1007/978-3-030-23384-6_8 · Cited by 2
Self-citation[Impact of the transition period from childhood to adulthood in cystic fibrosis].
Louagé, A., Knoop, C., & Hanssens, L. (2020) · Revue des maladies respiratoires · doi:10.1016/j.rmr.2019.11.650 · Cited by 2
TRATAMIENTO DE FIBROSIS QUÍSTICA: PASADO Y PRESENTE
Pizarro, M. E., & Espinoza-Palma, T. (2021) · Neumología Pediátrica · doi:10.51451/np.v11i1.318 · Cited by 2
The implementation of a cystic fibrosis annual review process in a tertiary paediatric hospital
Armiento, R., Ranganathan, S., & Harrison, J. (2018) · Archives of Disease in Childhood Education & Practice · doi:10.1136/archdischild-2017-313455 · Cited by 2
Designing Heterogeneous-mHealth Apps for Cystic Fibrosis Adults
Vagg, T., Shortt, C., Fleming, C., McCarthy, M. J. H., Tabirca, S., & Plant, B. J. (2019) · IntechOpen eBooks · doi:10.5772/intechopen.85512 · Cited by 2
Jahnz‐Różyk, K., Czajkowska‐Malinowska, M., Krenke, K., Sands, D., Batura‐Gabryel, H., Kabicz, P., Diaków, E., & Więckowska, B. (2020) · Advances in respiratory medicine · doi:10.5603/arm.a2020.0107 · Cited by 2
Self-citationBrivio, A., Orenti, A., Barbisan, M., Buonpensiero, P., Ros, M., & Gambazza, S. (2021) · Monaldi Archives for Chest Disease · doi:10.4081/monaldi.2021.1619 · Cited by 2
Cystic fibrosis: Current aspects and perspectives
Burgel, P., & Fajac, I. (2017) · La Presse Médicale · doi:10.1016/j.lpm.2017.06.001 · Cited by 2
No easy road to better cystic fibrosis care in Eastern Europe?
Boeck, K. D., & Fajac, I. (2018) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2018.05.007 · Cited by 2
Cystic Fibrosis: From Tragedy to Triumph
Ramsey, B. W., & Bush, A. (2023) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.202305-0785ed · Cited by 2
Oral health and cystic fibrosis in pediatrics: A survey of health professionals
Chin, D., Ramalingam, L., Harrison, J., & Silva, M. (2023) · Pediatric Pulmonology · doi:10.1002/ppul.26395 · Cited by 1
Kim, A. S., Thompson, A., Axon, D. R., Sabourin, A. A., Davies, M. J., Shannon, C., Nasr, S. Z., & Phan, H. (2023) · JACCP JOURNAL OF THE AMERICAN COLLEGE OF CLINICAL PHARMACY · doi:10.1002/jac5.1877 · Cited by 1
Steinkamp, C., Köhler, M., & Hrynyschyn, R. (2025) · International Journal of Adolescent Medicine and Health · doi:10.1515/ijamh-2024-0192 · Cited by 1
Camara, R. D. J., Silva, M. T. S., Ziegler, B., Schmitz, F. D. M., & Dalcin, P. D. T. R. (2025) · Scientific Reports · doi:10.1038/s41598-025-04563-7 · Cited by 1
Cafaro, A., Barco, S., Castellani, C., & Cangemi, G. (2025) · Therapeutic Drug Monitoring · doi:10.1097/ftd.0000000000001408 · Cited by 1
Perspective of the European Cystic Fibrosis Society on Improving Global Cystic Fibrosis Care
Davies, J. C., Bakkeheim, E., Chansard, A., Dřevı́nek, P., Dubois, C., Matthews, J., Sheremet, M., & Smith, C. (2026) · Pediatric Pulmonology · doi:10.1002/ppul.71720 · Cited by 1
Sands, D., Walicka‐Serzysko, K., Doniec, Z., Mastalerz–Migas, A., Batura‐Gabryel, H., & Pierzchała, W. (2017) · Pediatria Polska · doi:10.1016/j.pepo.2017.04.004 · Cited by 1
Self-citationIMPLEMENTACIÓN DE ATENCIÓN MULTIDISCIPLINARIA DEL PACIENTE CON FIBROSIS QUÍSTICA
Gutierrez, H. H. (2021) · Neumología Pediátrica · doi:10.51451/np.v11i1.311 · Cited by 1
The role of psychology in cystic fibrosis care: A multidisciplinary team perspective
McCulloch, A., O’Leary, C., & Bryon, M. (2018) · Clinical Psychology Forum · doi:10.53841/bpscpf.2018.1.306.31 · Cited by 1
Economic burden of cystic fibrosis care in British Columbia
Desai, S., Zhang, W., Sutherland, J. M., PhD, J. S., Zhou, X., & Quon, B. S. (2023) · Canadian Journal of Respiratory Critical Care and Sleep Medicine · doi:10.1080/24745332.2023.2176797 · Cited by 1
Rabelo, A. F., & Oliveira, R. C. (2023) · Amplla Editora eBooks · doi:10.51859/amplla.amc256.1123-12 · Cited by 1
Montiel, A. F., Fernández, A. Á., Amigo, M. C., Blasi, F., Gramegna, A., Elborn, J. S., Horsley, A. R., Madge, S. L., Stolz, D., Tabin, N., et al. (2024) · ERJ Open Research · doi:10.1183/23120541.00065-2024 · Cited by 1
Self-citationBrady, E., Perkins, R. C., Cullen, K., Sawicki, G. S., Kaplan, R. S., & Doyle, G. (2025) · NEJM Catalyst · doi:10.1056/cat.24.0095 · Cited by 1
Fecal calprotectin as a marker of intestinal inflammation in pediatric cystic fibrosis patients
Akbulut, D. G., Özden, T. A., Cantez, M. S., Ertekin, V., Tamay, Z., & Durmaz, Ö. (2025) · European Journal of Pediatrics · doi:10.1007/s00431-025-06442-9 · Cited by 1
Bonfim, I. M., Córdova, E. L. M., Garcia, C. C. B., & Paro, F. M. (2019) · Revista Brasileira de Pesquisa em Saúde/Brazilian Journal of Health Research · doi:10.21722/rbps.v21i1.26471 · Cited by 1
Ratjen, F. A., & Pizarro, M. E. (2020) · Springer eBooks · doi:10.1007/978-3-030-26961-6_45 · Cited by 1
Hall, K., Maxwell, L. J., Cobb, R., Chambers, R., Roll, M., Bell, S. C., & Kuys, S. S. (2020) · Physiotherapy Theory and Practice · doi:10.1080/09593985.2020.1777606 · Cited by 1
Huang, S. P., McKinzie, C. J., & Tak, C. R. (2021) · Journal of Managed Care & Specialty Pharmacy · doi:10.18553/jmcp.2021.27.2.157 · Cited by 1
Castro, R., Senecat, J., de Chalendar, M., Vajda, I., van Breukelen, S., Montefusco, M., Nielsen, S. J., & Dan, D. (2017) · Springer eBooks · doi:10.1007/978-3-319-56103-5_25 · Cited by 1
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Степанський, Д. О., Іщенко, О. В., & Koshova, I. (2022) · doi:10.31612/guidelines-2022-6 · Cited by 1
Response to: ‘On the TIDES study’, by Quittneret al
Bryon, M., & Webb, A. K. (2015) · Thorax · doi:10.1136/thoraxjnl-2015-206787 · Cited by 1
ESCF Care Guidelines beyond Europe
Gutierrez, H. H., & Mogayzel, P. J. (2014) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2014.05.002 · Cited by 1
Bell, S. C., Heijerman, H. G. M., & Hartl, D. (2014) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2014.09.009
Self-citationPaediatrics: messages from Munich
Midulla, F., Lombardi, E., Pijnenburg, M. W. H., Balfour-Lynn, I. M., Grigg, J., Bohlin, K., Rusconi, F., Pohunek, P., & Eber, E. (2015) · ERJ Open Research · doi:10.1183/23120541.00016-2015
Self-citationStern, M., Bertrand, D. P., Bignamini, E., Corey, M. L., Dembski, B., Goss, C. H., Pressler, T., Rault, G., Viviani, L., Elborn, J. S., et al. (2016) · Pediatria Polska · doi:10.1016/j.pepo.2016.08.009
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Conway, S., Balfour-Lynn, I. M., Rijcke, K. D., Dřevı́nek, P., Foweraker, J. E., Havermans, T., Heijerman, H. G. M., Lannefors, L., Lindblad, A., Maçek, M., et al. (2016) · Pediatria Polska · doi:10.1016/j.pepo.2016.08.018
Self-citationShort Communication Medical consensus, guidelines, and position papers: A policy for the ECFS
Boeck, K. D., & Castellani, C. (2014)
The open door policy - An important and under-recognised activity of the adult CF centre
Tai, A. S., & Morey, S. (2018) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2018.07.004
Walicka‐Serzysko, K., Milczewska, J., & Sands, D. (2018) · Pediatria Polska · doi:10.5114/polp.2018.77438
Self-citationMukoviszidose — immer bessere Perspektive durch lebenslange adäquate Behandlung
Sommerburg, O. (2019) · Pneumo News · doi:10.1007/s15033-019-1073-5
Schwarz, C., & Eschenhagen, P. N. (2019) · CME · doi:10.1007/s11298-019-6910-7
Standardy opieki Europejskiego Towarzystwa Mukowiscydozy: zarys kształtu centrum mukowiscydozy
Sands, D., Hedwig, D., Juszczyński, J., Wójtowicz, P., Orlik, T., Borawska-Kowalczyk, U., Mielus, M., Orlicz, B., & Trawińska, M. (2016) · Pediatria Polska · doi:10.1016/j.pepo.2016.08.012
Self-citationGarcia, B. A., Mattson, J., & Flume, P. A. (2020) · Respiratory medicine · doi:10.1007/978-3-030-42382-7_11
ERKRANKUNGEN DER ATMUNGSORGANE
Jung, N., Mayet, W.-J., Mertens, P. R., (federführend), J. M., Müller, O.-A., Pfeifer, R., Schellinger, P. D., Weiss, N., & Wendtner, C. (2020) · Elsevier eBooks · doi:10.1016/b978-3-437-06282-7.50010-3
Parents' experience of physiotherapy for infants with Cystic Fibrosis: A qualitative study
Andrews, K. (2020) · Charles Sturt University Research Output (CRO)
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Stehling, F., Sutharsan, S., Straßburg, S., Taube, C., Olivier, M., Steindor, M., & Welsner, M. (2021) · Der Pneumologe · doi:10.1007/s10405-020-00367-w
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Self-citationGenovese, V. V., Sorlat-Maire, C., Perceval, M., Touzet, S., & Llerena, C. (2022) · Kinésithérapie la Revue · doi:10.1016/j.kine.2022.05.005
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Braga, T. D. A., & Oliveira, R. C. (2023) · Amplla Editora eBooks · doi:10.51859/amplla.amc256.1123-19
Metadata
- Authors
- Conway, S., Balfour-Lynn, I. M., De Rijcke, K., Drevinek, P., Foweraker, J., Havermans, T., Heijerman, H., Lannefors, L., Lindblad, A., Macek, M., Madge, S., Moran, M., Morrison, L., Morton, A., Noordhoek, J., Sands, D., Vertommen, A., & Peckham, D.
- Affiliations
- Leeds Teaching Hospitals NHS Trust (GB)
- Royal Brompton Hospital (GB)
- Papworth Hospital NHS Foundation Trust (GB)
- Universitair Ziekenhuis Leuven (BE)
- Haga Hospital (NL)
- Copenhagen University Hospital (DK)
- Drottning Silvias barn- och ungdomssjukhus (SE)
- St. Vincent's University Hospital (IE)
- Gartnavel General Hospital (GB)
- St James's University Hospital (GB)
- Instytut Matki i Dziecka (PL)
- Corresponding author
- Conway, Steven
- ORCID
- Venue
- Journal of Cystic Fibrosis
- Publisher
- Elsevier BV
- Published
- 2014-05
- Volume
- 13
- Pages
- S3-S22
- ISSN
- 1569-1993 (ISSN-L)
- PMC
- PMC7105239
- OpenAlex
- W2151436444
- Cited by
- 232
- References
- 88
- Citations by year
- 2026: 8 · 2025: 16 · 2024: 17 · 2023: 39 · 2022: 15 · 2021: 18 · 2020: 19 · 2019: 17 · 2018: 17 · 2017: 17 · 2016: 25 · 2015: 14 · 2014: 9
- FWCI
- 3.71
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Journal of Cystic Fibrosis (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- White Rose Research Online (University of Leeds, The University of Sheffield, University of York) (acceptedVersion)
- Topics
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Cystic Fibrosis Research Advances
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Clinical practice guidelines implementation
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
- Keywords
- multidisciplinary team, standard of care, clinical nurse specialists, disease registries, professional development, patient outcomes, life expectancy
- MeSH terms
- Adolescent, Adult, Child, Child, Preschool, Cystic Fibrosis, Europe, Health Services Accessibility, Hospitals, Special, Humans, Patient Care Team, Societies, Medical, Young Adult, Standard of Care
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