Quality of life in patients with hoarding disorder
Open accessAbstract
The aim of this study was to investigate health-related quality of life (QoL) in patients with hoarding disorder (HD). Fifty-four patients with a primary diagnosis of HD, and 24 age- and sex-matched healthy control (HC) participants, completed a battery of questionnaires including the Medical Outcomes Study 36-item Short-Form Health Survey (SF-36), Saving Inventory-Revised, and Depression, Anxiety, Stress Scales. Compared to HC participants, those with HD reported poorer health-related QoL across all domains of the SF-36. When controlling for comorbid affective symptoms, HD participants scored lower than did HC participants in the QoL domains of social functioning, emotional well-being, role limitations due to emotional problems, vitality, and general health. HD symptom severity predicted, beyond the effects of affective symptoms, lower QoL in social functioning, emotional well-being, role limitations due to emotional problems, vitality, and general health.
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Tolin et al. (2019) did not assess distress tolerance and associated constructs, so the impact of the program on distress intolerance is unclear.
“Furthermore, there was no assessment of distress tolerance and associated constructs (e.g., emotion regulation), and thus the impact of the program on distress intolerance is unclear.”
From A naturalistic study of emotion regulation-enhanced cognitive-behavioral group therapy for hoarding disorder in a community setting (2022) · cites this paper as Tolin et al., 2019
The Methods > Measures and Procedure sections list the assessments used, including hoarding symptoms, depression, anxiety, stress, and quality of life, but not distress tolerance or emotion regulation. The paper compares patients with hoarding disorder and healthy controls; although patients were recruited while seeking treatment, it does not evaluate a program’s impact on distress intolerance. (LLM, conf=0.85)
Experimental — accuracy not yet measuredIndividuals with hoarding disorder report a very poor quality of life, equivalent to those with schizophrenia.
“Individuals with HD report a very poor quality of life, equivalent to those with schizophrenia (Ong et al., 2015;Saxena et al., 2011;Tolin et al., 2019).”
From A naturalistic study of emotion regulation-enhanced cognitive-behavioral group therapy for hoarding disorder in a community setting (2022) · cites this paper as Tolin et al., 2019
The Abstract reports poorer health-related quality of life across all measured domains in patients with hoarding disorder than in healthy controls. But the Methods (Participants; page unavailable) excluded people with schizophrenia, and the Discussion notes the absence of a clinical control group. The paper therefore does not support the claimed equivalence to people with schizophrenia. (LLM, conf=0.88)
Experimental — accuracy not yet measuredHoarding disorder is known to be a chronic condition and has been shown not to improve in waitlist control conditions in previous studies.
“We note that HD is known to be a chronic condition and has been shown not to improve in waitlist control conditions in previous studies (e.g., Tolin et al., 2019).”
From A naturalistic study of emotion regulation-enhanced cognitive-behavioral group therapy for hoarding disorder in a community setting (2022) · cites this paper as Tolin et al., 2019
The paper defines hoarding disorder as involving a persistent inability to discard possessions (opening section; page unavailable), which lends support to the description of a chronic condition. It does not report outcomes for a waitlist control group or state that patients in previous waitlist conditions failed to improve; its Discussion instead describes comparisons with healthy controls. (LLM, conf=0.76)
Experimental — accuracy not yet measuredIn Tolin et al. (2019), 42% of the treatment group fell below a score of 43 on the Saving Inventory-Revised at post-treatment, but the authors did not report how many of these individuals changed by a reliable amount from pre-treatment.
“Forty-two percent of the treatment group fell below a score of 43 on the Saving Inventory -Revised (SI-R; Frost et al., 2004) at post-treatment, but the authors did not report how many of these individuals changed by a reliable amount from pre-treatment”
From A naturalistic study of emotion regulation-enhanced cognitive-behavioral group therapy for hoarding disorder in a community setting (2022) · cites this paper as Tolin et al., 2019
The Methods (Measures and Procedure; page unavailable) say the study used the SI-R and assessed patients seeking treatment, but they do not give post-treatment outcomes. Searches for the 42% figure, the score-of-43 cutoff, and reliable pre-to-post-treatment change found no passage addressing those claims in our copy. (LLM, conf=0.74)
Experimental — accuracy not yet measuredIn Tolin et al. (2019), only 31 of 46 participants completed treatment; six dropped out before or during treatment and 9 (20%) were administrative withdrawals because of non-compliance.
“It is also important to note that only 31 of 46 participants completed treatment.Six participants dropped out before or during treatment (3 each) and 9 (20%) were administrative withdrawal because of non-compliance.”
From A naturalistic study of emotion regulation-enhanced cognitive-behavioral group therapy for hoarding disorder in a community setting (2022) · cites this paper as Tolin et al., 2019
The Methods (Participants) describe 54 patients sampled from a larger treatment protocol, and Methods (Procedure) says they were seeking treatment in a clinical trial. Neither section reports treatment completion or withdrawals. Searches for the 31-of-46 figure, dropouts, and administrative withdrawals found no supporting passage in our copy. (LLM, conf=0.76)
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- Authors
- Tolin, D. F., Das, A., Hallion, L. S., Levy, H. C., Wootton, B. M., & Stevens, M. C.
- Affiliations
- Yale University (US)
- University of Pittsburgh (US)
- University of Technology Sydney (AU)
- Corresponding author
- Tolin, David F.
- ORCID
- Venue
- Journal of Obsessive-Compulsive and Related Disorders
- Publisher
- Elsevier BV
- Published
- 2019-04
- Volume
- 21
- Pages
- 55-59
- ISSN
- 2211-3649 (ISSN-L)
- PMC
- PMC6783256
- OpenAlex
- W2903992082
- Cited by
- 40
- References
- 35
- Citations by year
- 2026: 4 · 2025: 5 · 2024: 7 · 2023: 5 · 2022: 7 · 2021: 7 · 2020: 4 · 2019: 1
- FWCI
- 3.52
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of Obsessive-Compulsive and Related Disorders (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- UTS ePRESS (University of Technology Sydney) (submittedVersion)
- Funders
- National Institute of Mental Health (R01 MH101163)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Obsessive-Compulsive Spectrum Disorders
- Social Sciences › Psychology › Clinical Psychology › Perfectionism, Procrastination, Anxiety Studies
- Social Sciences › Decision Sciences › Information Systems and Management › Personal Information Management and User Behavior
- Keywords
- hoarding disorder, health-related quality of life, symptom severity, social functioning, emotional well-being, role limitations, vitality, affective comorbidity, depression, anxiety, stress
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